Also, I agree with Jeanie, check out any supplements or other medications you 
are taking. Tumeric, is known to increase the effectiveness and also the side 
effects of the sprycel. I tried to take it with the sprycel and got horribly 
sick... so another thing to consider...


!8
s Beth



-----Original Message-----
From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Sat, Jul 28, 2018 12:44 pm
Subject: Re: [CMLHope] Breathing Difficulties [Dasatinib]


I need to clarify my post. My hubby had heart disease and I am the one with the 
cml. 
I never had the breathing problems with Dasatinib but it is a side effect and 
could be a lung problem.  
That is why I said don’t wait to get advice on what to do. 
It quit working for me after 4 years and I was put on Ponatinib.   
Read your leaflet that came with your meds very carefully.  Make sure you 
aren’t taking a medicine that might interfere with dasatinib but report this to 
your onc right away. 
Good luck. 



My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Jul 28, 2018, at 1:32 PM, 'Jeanie' via CMLHope <cmlhope@googlegroups.com> 
wrote:



Hi there
You may need oxygen. They gave my husband the choice of oxygen or not since he 
was borderline.  I wish we had opted for but we didn’t.  I don’t think I would 
wait for drs visit. Get it checked now. 
Just my opinion. 
Love you so very much 





My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Jul 28, 2018, at 9:26 AM, Gopalsamy Ragavan <graga...@gmail.com> wrote:




I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. For 
the last few months breathing difficulty is keep increasing. I am not able to 
take full breath. It is always half breath. I will discuss with my doctor in 
the coming visit.


Did anybody else face the same problem? How did you handle? Please help.


thanks,
Ragavan





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