Jeanie, you listen to me! You are still alive and that is the way that it will be. Why are you so afraid of the medication that helps keep you alive? Please just don't you keep worring because what will that do? It will just make you worry even more.
Okay Jeanie I see that you may need a pep talk every once in a while. Well I don't give any pep talks. You are the one that has to give yourself pep talks every once in a while, And don't you worry I will still be here holding your hand/s through our computer. Got it? Good, then stuff it under your belt and keep it there. By the way I just got a brand new Dell computer and just finished loading everything up on it. So it is a fresh computer with fresh vibes. Now something I can help you do for yourself. I am ending this this with two (count them) 18's 18's so when you read this take both of your index fingers and touch one of your temples very gently and a light message to your temple and do the same with your other index finger on your other temple and just put your head back and relax. This is what I used to do after a Radiation treatment when I had a real bad headache. Does it sound crazy? Perhaps but who knows maybe it isn't? You know the numbers... 18's Marty On Thu, Aug 23, 2018 at 8:47 AM 'Jeanie' via CMLHope < cmlhope@googlegroups.com> wrote: > Hi perk > Yes my onc reduced my Ponatinib as soon as my numbers got good. > It’s so hard to know what to do. We are scared to take mds but know we > will die if we don’t. > Good luck with all. > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > Taking 0.05mg 50 mcg levothyroxine > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Jul 30, 2018, at 2:24 PM, perk <perkuss...@msn.com> wrote: > > I had the same problem with Sprycel. I went into the hospital thinking > they were going to drain the fluid around my lungs. They took me off of > Sprycel and on Tasigna. They also gave me Lasix to assist in removing the > fluid. They cautioned that I may experience the same problem with Tasigna. > I started taking it every other day instead of everyday and so far, my > numbers have been good. I feel a little tightness in my chest sometimes but > I seem to do better by not taking it everyday. Why did they increase your > dosage? I think they prescribe too much sometimes and you should listen to > your own body. This may not be good advice but it has worked for me. > > Good luck > > Perk in Texas > > On Saturday, July 28, 2018 at 8:26:52 AM UTC-5, Ragavan wrote: >> >> I was taking 50mg Dasatinib per day. An year back it was increased to >> 75mg. For the last few months breathing difficulty is keep increasing. I am >> not able to take full breath. It is always half breath. I will discuss with >> my doctor in the coming visit. >> >> Did anybody else face the same problem? How did you handle? Please help. >> >> thanks, >> Ragavan >> >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
