UTSW is now getting monthly updates from our tumor registry. The data in
our warehouse is current through the beginning of April.  It should have
the majority of 2016 cases.

Phillip

On 4/18/17, 9:04 AM, "Gpc-dev on behalf of nicholas-c-sm...@uiowa.edu"
<gpc-dev-boun...@listserv.kumc.edu on behalf of
nicholas-c-sm...@uiowa.edu> wrote:

>Hello, Russ:
>
>At UIOWA we have recently loaded our most recent NAACCR data into our
>data warehouse.  This data is for all cases submitted to the state of
>Iowa through December 2016.  Our goal is to have this data loaded i2b2
>around the same time as the CDM refresh.  Like MCW, we loaded information
>for all cancer cases that were submitted to the state.  This includes all
>cancer types.
>
>Nick
>
>
>Nicholas C. Smith, MS
>Senior Database Architect
>Institute for Clinical & Translational Science (http://www.icts.uiowa.edu)
>Email:  nicholas-c-sm...@uiowa.edu
>Phone:  319-467-8173
>
>
>
>
>-----Original Message-----
>From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of
>Taylor, Bradley
>Sent: Tuesday, April 11, 2017 9:28 AM
>To: Russ Waitman; James McClay; Chrischilles, Elizabeth A
>Cc: Steve Fennel; GPC-DEV@LISTSERV.KUMC.EDU
>Subject: Re: CRG rapid cycle grants
>
>Hi Russ,
>
>Yes, ditto for MCW. For Clarification MCW¹s NAACCR tumor registry in i2b2
>was last refreshed 2/21/2017 for all cancers, and we did not limit the
>cancer types.
>
>Regards,
>Brad
>
>From: Gpc-dev <gpc-dev-boun...@listserv.kumc.edu> on behalf of Russ
>Waitman <rwait...@kumc.edu>
>Date: Monday, April 10, 2017 at 8:50 AM
>To: James McClay <jmcc...@unmc.edu>, "'Chrischilles, Elizabeth A'"
><e-chrischil...@uiowa.edu>
>Cc: Steve Fennel <sfen...@kumc.edu>, "GPC-DEV@LISTSERV.KUMC.EDU"
><GPC-DEV@LISTSERV.KUMC.EDU>
>Subject: FW: CRG rapid cycle grants
>
>Hi Betsy,
>Sharing with Dan and GPC dev.   I know in side discussions Minnesota,
>MCW, Iowa, and KUMC have been in discussions wrt other NCI opportunities
>where this background info may help.
>
>-          Nick: do you have this in hand at Iowa?
>
>-          Brad: ditto for MCW?
>
>-          Tim: UMN?
>
>-          Dan and I are starting to look at for KUMC.
>
>Russ
>
>From: "e-chrischil...@uiowa.edu" <e-chrischil...@uiowa.edu>
>Date: Thursday, April 6, 2017 at 4:01 PM
>To: James McClay <jmcc...@unmc.edu>, Russ Waitman <rwait...@kumc.edu>
>Cc: Steve Fennel <sfen...@kumc.edu>
>Subject: CRG rapid cycle grants
>
>Hi Jim, Russ, and Steve ­
>Didn¹t get to this on yesterday¹s Governance call.  There are 3 CRG rapid
>cycle projects approved so far, one is for cancer and one is for the CVD.
> We¹ve been invited to participate in the CVD one ­ hopefully someone has
>responded to indicate our interest.  I forwarded an email on that topic a
>few days ago.
>
>For the Cancer CRG, we will include sites that can rapidly turn around
>tumor registry data for all cancers. We want that to include all GPC
>sites!!
>
>I will need to know the true status of each site¹s tumor registry data
>ideally by next Friday when our feasibility report is due.  Sites will
>need to have up-to-date/fresh and complete data to participate and would
>have at most until end May to get to that point.
>
>I know Dan has been working with sites to update their data, and now I
>need specifics:
>
>
>·         How fresh is the tumor registry data?  This could be determined
>by an i2b2 query of diagnosis dates by calendar year by GPC site.  Sites
>that refreshed their tumor registry source data in December should be
>pretty complete for diagnoses through June 2016.
>
>·         How complete is the tumor registry data?  This means (a) were
>data for all tumor types loaded and (b) were all key variables loaded
>(especially sequence number (central and hospital) AJCC stage, diagnosis
>dates, site-specific factors)
>
>If possible, can we also get an assessment of which sites have loaded
>data on molecular therapies in the CDM
>
>·         Look for trastuzumab CPT (J9355)  NDC (50242-134-68), and RXCUI
>(224905)?  Find CPT and NDC in the Procedures Table, NDC in the
>Dispensing table, and RXCUI in the Prescribint table?
>A wish list item would be to also assess whether we can find molecular
>tests ordered in the CDM
>
>·         HER2 CPT (88,360, 88361, 88342, 88377, 89586, 83950) and LOINC
>­ I¹m not familiar enough with these.
>
>In case you are curious, I¹m attaching the Rapid Cycle project process
>that we are supposed to follow (just received it today).
>
>Thanks,
>Betsy
>
>Elizabeth A. Chrischilles, PhD
>Professor and Marvin A. and Rose Lee Pomerantz Chair in Public Health
>Department of Epidemiology College of Public Health University of Iowa
>S424 CPHB
>145 N. Riverside Dr.
>Iowa City, Iowa 52242-2007
>
>Voice: 319-384-1575
>Fax: 319-384-4155
>
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>
>
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