I think it is absurd that I cannot get my lab data from the lab. There are categories of medical info like Rx's for major tranquilizers and postive HIV test that should be subject to privacy. However, making much of the other routine data subject to the extreme privacy rules compromises health care. We need a happy medium some how.
Jim

----- Original Message ----- From: "Nancy Anthracite" <[EMAIL PROTECTED]>
To: <hardhats-members@lists.sourceforge.net>
Sent: Friday, September 02, 2005 10:43 AM
Subject: Re: [Hardhats-members] Shared lab data/We DO Care


What I am referring to is a proposed requirement by the Department of Health in NYC that the 800 or so clinical labs across the city provide them with the abnormal A1C hemoglobin results and the names of the patients who had them so
they could have a database of all of the diabetics in New York City.  This
was not something where patients would be asked to opt in. They planned an
educational campaign for the patients and their doctors using that data.
Since diabetes and obesity an "epidemic", they felt this fell under their
purview.

That is a far different thing from you granting a physician rights to view
your lab data.  In fact, aren't you a bit outraged that the labs will not
give you your data?  I surely find that a problem, and the same with x-ray
reports. In the occupational setting I work in, often send patients to get x-rays with a note that says to give the patient the results of the x-ray as soon as the radiologist does the wet reading, and that doesn't work half the
time or more.

I find it curious that the health professionals I have told about this NYC
story are all outraged, but those of you who might have your privacy violated
were you living there seem like it is no big deal.

On Friday 02 September 2005 11:57 am, James Gray wrote:
Personally I find the present system of blocking the transfer of lab data a detriment to my medical care. For the past few years I have found that all
of my doctors have only part of my lab data (different parts).  I cannot
just give blanket approval to the lab to share my data with all of my
doctors. I have to fill out a copy of a special form for each of my doctors
each time I get a test.  Why should I have to do that?  I know this has
nothing to do with an electronic health record, but the issue is the same
regardless of whether the records are kept electronically or as paper.  I
know that my health care has been compromised because the doctors do not
have the whole picture.  I guess my privacy has not been compromised.
Should I be cheering for that?

Jim Gray

----- Original Message -----
From: "Nancy Anthracite" <[EMAIL PROTECTED]>
To: <hardhats-members@lists.sourceforge.net>
Sent: Friday, September 02, 2005 4:00 AM
Subject: Re: [Hardhats-members] We DO Care

I think you are confusing my concern about having national databases that
store records of patients from all of their physicians, no matter what
system
they are in, and those that are for a system, be it a doctors office, or
in
this case, the VA system.  I would not expect Kaiser, for example, not to
have a national system and anyone choosing that insurer is buying into
that,
just like the VA.

Has anyone heard if the health department in NY City succeeded in
hijacking
the lab results records of its citizens or not?  I surely hope not.

On Thursday 01 September 2005 09:57 pm, Gregory Woodhouse wrote:
I must be missing something. A little while back, I remember you
flatly saying there is no medical justification for replicating
records across facilities.  I'm not a doctor, but that was a little
surprising to me. If a veteran is evacuated from Biloxi in the wake
of Katrina, then how is having access to his or her medical record of
no medical value? My assumption was that the concern here was for
privacy (which is no small matter), and that was the reason for my
allusion to privacy concerns in my message.
===
Gregory Woodhouse
[EMAIL PROTECTED]

"It is foolish to answer a question that
you do not understand."
--G. Polya ("How to Solve It")

On Sep 1, 2005, at 2:55 PM, Nancy Anthracite wrote:
I hope I did not make people think I am supporting one or the
other.  I am in
favor of both.  I feel that if it is a small clinic, it should have
remote
backup perhaps with the primary server local.  If it is an ASP sort of
situation, then I think the ASP might provide the primary server
but there
should be a local backup available.   That describes my comfort
level,  and,
as a logical extension, it is my opinion that it should be the
comfort level
for the VA as well ... not that what I think matters in the least!

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