Thanks for the update Paula, we're all rooting for you and Steve. Hope he has a better day today, tell him to hurry up and get better, we miss his banter! Best, Jeremy
> From: pgil...@ntlworld.com > To: pgil...@ntlworld.com > Date: Thu, 27 Feb 2014 23:33:22 +0000 > Subject: [LU] Update > > 27/2/2014 - 10pm - Not a very good day today. Still running high fevers. > Doctor took IV line out of artery in neck as thought that may be the reason > for it. They were talking about the possibility of putting others back in. > They continue to do loads of blood tests. His kidneys have moved in to > doing double time, but instead of taking fluid out of tissue, they are > taking the fluid he drinks and running it through his system super fast. > They want him to drink more and I told them again...he has a very small > stomach and the stuff they are feeding him 24/7 by the tube to his stomach > is keeping his stomach full and he will never be able to drink enough to > combat what the kidneys are doing until you back the tube food off. He then > will be able to drink and feel like eating. It might have sunk in as they > are finally stopping the tube feed for part of the day. I am making his > lunch and now will make his tea and take it in insulated containers and feed > him as he cannot do it himself and he hates the taste of the hospital > food...it is quite awful. After a mouthful or two, he quits. That is partly > due to the tube feeding. They got him pretty stirred up after the night > staff decided to totally bathe, moisturise and re-bandage both legs at 2am > last night so it would save them time in the morning. This is a man who has > just come from being unconscious battling a life threatening disease and has > had exactly one nights sleep since he woke up just so they can save some > time the next day. I was livid. He was in pain and so stressed after that > ordeal. He hasn't been comfortable all day. I will be taking not only his > lunch but now his tea in insulated containers so I know what is in it and > that it tastes good so he will eat it, along with the juices, milk and > whatever else I think he will drink. His lips have been so dry that they > crack and bleed and he can't have anything put on his lips that has Vaseline > or "petroleum" products in then due to the oxygen he is having to be on > because they are flammable. I was told the hospital didn't have anything > that didn't contain these products so I could either go down to the hospital > shop to see if they had anything (they didn't) or find something at a shop > "outside the hospital". Thank you medical staff! The physical therapy > people didn't show up either. One of the nurses told me that didn't like > coming on the infectious disease ward so they didn't see them very often. > Steve is there for the duration of his stay as far as I know..how is he > supposed to have this therapy if they don't show up? There are some other > issues going on which I do believe that I will have to be in contact with > the Patient Advice and Liaison Service about. Today I didn't know if I was > coming or going. Why does getting well have to be so dang hard? Its > driving me crazy trying to makes sense of what the people who are suppose to > be helping him are doing, or in some cases, not doing. Going to trey to go > get some sleep. 4am telephone call to the ward comes early. > > > > Thanks, > > > > Paula > > _______________________________________________ > Leedslist mailing list > Info and options: http://mailman.greennet.org.uk/mailman/listinfo/leedslist > To unsubscribe, email leedslist-unsubscr...@gn.apc.org > > John 'Grampa' Sykes > Rest In Peace old lad > 28th Oct 1938 - 12 Nov 2013 > MARCHING ON TOGETHER _______________________________________________ Leedslist mailing list Info and options: http://mailman.greennet.org.uk/mailman/listinfo/leedslist To unsubscribe, email leedslist-unsubscr...@gn.apc.org John 'Grampa' Sykes Rest In Peace old lad 28th Oct 1938 - 12 Nov 2013 MARCHING ON TOGETHER
