Ian,

Haven't used Google Wave myself yet and guess it's still at the
innovator/early adopter stage. But what about starting with something that
people are used to, like normal Internet Messaging? I am available on
melanie.spath at gmail.com on google chat. Otherwise, if people are brave
enough, I'd like a GW invitation also.

Mel.

On Wed, Nov 11, 2009 at 5:13 PM, Ian McNicoll <
Ian.McNicoll at oceaninformatics.com> wrote:

> Ok - here is a suggestion.
>
> Would there be any interest in me setting up a Google Wave to develop the
> content of a possible Radiotherapy archetype? I have just been given a few
> Google Wave invitations to hand out.
>
> This would be something of an experiment to see how well Wave might support
> (or confuse) a collaborative approach to early archetype development.
>
> I would be happy to facilitate the process and, for example, draw up an
> initial Mindmap but I would need a bit of help getting started in terms of
> Radiotherapy content. The general idea would be work on the mind map and
> associated wiki until we had enough consensus to develop a draft archetype
> to put up into CKM.
>
> It will obviously need input from people like Kevin who have some
> experience in this area but the intention is just to get the scope and
> general shape of a Radiotherapy archetype(s) outlined so it will not require
> anything like as much rigour (and demand on time) as the formal CKM review
> process.
>
> There is already some interest in the Google Wave community in developing
> eHeath standards and we could perhaps tap into that group to get a few more
> volunteers. It would also be a great way of getting more attention for
> openEHR and the work we are doing in CKM.
>
> For those of you unfamiliar with Google Wave - this is a pretty good intro
> http://www.youtube.com/watch?v=rDu2A3WzQpo&feature=player_embedded#
>
> Any takers? Let me know here or directly to
> ian.mcnicoll at oceaninformatics.com
>
>
> Ian
>
>
> Dr Ian McNicoll
> office / fax  +44(0)141 560 4657
> mobile +44 (0)775 209 7859
> skype ianmcnicoll
> ian.mcnicoll at oceaninformatics.com
> ian at mcmi.co.uk
>
> Clinical Analyst  Ocean Informatics openEHR Archetype Editorial Group
> Member BCS Primary Health Care SG Group www.phcsg.org / BCS Health
> Scotland
>
>
>
> 2009/11/11 Ian McNicoll <Ian.McNicoll at oceaninformatics.com>
>
> Hi Melanie,
>>
>> There are a few interesting pieces of work around openEHR and research
>> repositories, including the Sintero project
>> http://www.openehr.org/288-OE.html?branch=1&language=1
>>
>> This is now starting to get going and you should really have a chat to Ed
>> Conley, the project lead about possible collaboration, particularly around
>> archetype design, so that as far as possible any research derived data is
>> shareable across different research platforms.
>>
>> It is not always easy to decide the best approach for a particular piece
>> of clinical information in terms of separate archetype or specialisation ,
>> but once you get a good maximal dataset around a particular concept the
>> choices normally become clearer.
>> This is why we often start the modelling process by looking for existing
>> data models e.g. for Radiotherapy and use Mindmaps to get a good feel for
>> the scope of the concept, well before we begin any formal archetype
>> modelling.
>>
>> At some stage we would like CKM to direct support this early stage of
>> 'informal' modelling using mindmaps and a more conversational. collaborative
>> style of debate between those who are interested in a particular topic. Part
>> of the goal is to encourage people to share ideas at an early stage without
>> feeling under pressure to come up with a publishable solution. By keeping
>> the discussions as public as possible, we avoid the danger of  individuals
>> or groups working privately and independently on the same topic, with a
>> resulting clash of ideas and constructs.
>>
>> We are a bit away from providing this in CKM, but Google Wave has some of
>> the approach we might want to look at - mixture of email, chat, wiki + some
>> support for mindmaps.
>>
>>
>>
>> Ian
>>
>> Dr Ian McNicoll
>> office / fax  +44(0)141 560 4657
>> mobile +44 (0)775 209 7859
>> skype ianmcnicoll
>> ian.mcnicoll at oceaninformatics.com
>> ian at mcmi.co.uk
>>
>> Clinical Analyst  Ocean Informatics openEHR Archetype Editorial Group
>> Member BCS Primary Health Care SG Group www.phcsg.org / BCS Health
>> Scotland
>>
>>
>>
>> 2009/11/11 Melanie Spath <melanie.spath at gmail.com>
>>
>> Hi all,
>>>
>>> Thanks for the great advice, it is very helpful.
>>>
>>> I am actually aiming at developing "research" or "omic" archetypes (e.g.
>>> test results from experiments on patient specimen, e.g. from
>>> genomic/proteomic/metabolomic experiments etc.), since my background is in
>>> genetics. The reason for this is to be able to integrate clinical patient
>>> and scientific research data to support biomedical knowledge discovery. In
>>> this, I am collaborating with a prostate cancer bio-resource which collects
>>> specimen from prostate cancer patients. A biobank contains clinical patient
>>> information and the "omic" information. I am planning to use this biobank as
>>> a test-bed for an "archetyped" biobank information system.
>>>
>>> As a start I was trying to see how much of the clinical content in the
>>> biobank could be modelled with existing archetypes (to avoid duplicate
>>> effort) and to discover "holes". Some of the information could be modelled
>>> with existing archetypes (e.g. results of histopathological analysis with
>>> the openEHR-EHR-CLUSTER.microscopy_prostate_carcinoma.v1 archetype), but for
>>> others I could not find suitable archetypes (this in itself was not an easy
>>> task, I think there needs to be another discussion on a different
>>> thread/list about the difficulties of matching database fields to existing
>>> archetypes/fields in existing archetypes). I wasn't sure if the
>>> non-existence of archetypes for radio/hormone/chemotherapy was because they
>>> hadn't been developed yet or because it was envisaged that other existing
>>> archetypes could be used to model these (e.g. the INSTRUCTION.medication and
>>> INSTRUCTION.non_drug_therapy ones).
>>>
>>> Until then, in the presence of these "holes", my approach will be to use
>>> "placeholder" archetypes that hold the minimum needed information for this
>>> specific case e.g. for radio/hormone/chemotherapy as discussed above, until
>>> experts have agreed on their general suitable structure. I am welcoming any
>>> developments in this area.
>>>
>>> Thank you for your help.
>>>
>>> Best regards,
>>>  Melanie.
>>>
>>>
>>>
>>>
>>>
>>> On Wed, Nov 11, 2009 at 1:16 AM, Heather Leslie <
>>> heather.leslie at oceaninformatics.com> wrote:
>>>
>>>>  Hi Melanie,
>>>>
>>>> I see some great comments from Ian and Kevin so far - thanks.
>>>>
>>>> You aren't starting with anything simple ;-) - this is a very
>>>> complicated domain and hopefully you will have access to some oncological
>>>> advice and resources as well.
>>>>
>>>> The Medication archetype is a great starting point.  Please be aware
>>>> that we are doing some work at the moment to try to bring the Medication
>>>> family - Instruction, Action and the common description up for 
>>>> collaborative
>>>> review in CKM soon.  We are trying to harmonise the current archetype with
>>>> many requirements and standards so that we can try to streamline the review
>>>> process, but I expect that we will find it to be one of our harder
>>>> archetypes to get agreement on. Keep an eye out, and adopt the archetypes 
>>>> if
>>>> you would like to participate in the review when initiated.
>>>>
>>>> Intravenous orders and administration of drugs adds a further degree of
>>>> complexity, and most of your chemo will likely be needing this extra
>>>> functionality.  Plus some of these chemo instructions will be complex
>>>> orders, potentially with a number of activities within the one order. Some
>>>> routes may be atypical eg intrathecal etc.
>>>>
>>>> Hormone therapy - hmm trying to remember back... Certainly many will be
>>>> simple oral medication instructions/actions; some will be IV (as above).  
>>>> We
>>>> need some expert advice here to determine if there are additional
>>>> requirements for some hormone therapy that exceed these identified use
>>>> cases.
>>>>
>>>> Radiotherapy is a completely separate area, and as Kevin/Ian suggest,
>>>> you need to determine the scope here - potentially it is a whole domain of
>>>> medicine!  I would suggest you mindmap your requirements for recording as a
>>>> starting point, and from there you should be able to identify the potential
>>>> archetypes that need development - it may be more than one
>>>> instruction/action eg related measurements etc requiring recording in an
>>>> Observation archetype.
>>>>
>>>> regards
>>>>
>>>> Heather
>>>>
>>>>
>>>> On 11/11/2009 2:44 AM, Melanie Spath wrote:
>>>>
>>>> Hi,
>>>>
>>>> I'm trying to archetype patient records in a prostate cancer
>>>> environment. I see that there are currently no specific archetypes for
>>>> common cancer treatments such as radiotherapy, hormone therapy and
>>>> chemotherapy. Could hormone therapy and chemotherapy be described as
>>>> specializations of the openEHR-EHR-INSTRUCTION.medication.v1
>>>> archetype? And could radiotherapy be described with a specialization
>>>> of openEHR-EHR-INSTRUCTION.non_
>>>> drug_therapy.v1? Or should these be
>>>> described in completely new archetypes (e.g. INSTRUCTION.radiotherapy/
>>>> hormone_therapy/chemotherapy)?
>>>>
>>>> Thanks for your help,
>>>> Melanie Spath.
>>>>
>>>> PhD Candidate
>>>>
>>>> Centre for Health Informatics
>>>> School of Computer Science & Statistics
>>>> Trinity College Dublin
>>>> Dublin 2, Ireland
>>>> _______________________________________________
>>>> openEHR-clinical mailing list
>>>> openEHR-clinical at 
>>>> openehr.orghttp://lists.chime.ucl.ac.uk/mailman/listinfo/openehr-clinical
>>>>
>>>>
>>>>
>>>> __________ Information from ESET Smart Security, version of virus 
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>>>>
>>>> The message was checked by ESET Smart Security.
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>>>>
>>>>
>>>>
>>>>
>>>> --
>>>>
>>>>  *Dr Heather Leslie*
>>>> MBBS FRACGP FACHI
>>>> Director of Clinical Modelling
>>>> *Ocean Informatics <http://www.oceaninformatics.com/>*
>>>> Phone (Aust) +61 (0)418 966 670
>>>> Skype - heatherleslie
>>>> Twitter - @omowizard
>>>>
>>>> _______________________________________________
>>>> openEHR-clinical mailing list
>>>> openEHR-clinical at openehr.org
>>>> http://lists.chime.ucl.ac.uk/mailman/listinfo/openehr-clinical
>>>>
>>>
>>>
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>>>
>>
>>
>
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