Hi Melanie,

I will send you a Wave invite. The reason we are interested in using Wave
rather than traditional email, wikis or instant messaging, is that it
nicely combines all three. We are interested in using a similar approach
within some aspects of CKM, particularly a forthcoming more informal area,
we currently call the 'Sandbox' where people can collaborate on very early
draft archetypes  and templates.

Because Wave is still in a testing phase, I appreciate this will limit the
numbers who can get involved but after a few weeks new Wavers get their own
invites to hand out, so the numbers who have access are starting to grow
quite quickly now.

I will send you an invite - it might take a wee while to come through.

Ian

Dr Ian McNicoll
office / fax  +44(0)141 560 4657
mobile +44 (0)775 209 7859
skype ianmcnicoll
ian.mcnicoll at oceaninformatics.com
ian at mcmi.co.uk

Clinical Analyst  Ocean Informatics openEHR Archetype Editorial Group
Member BCS Primary Health Care SG Group www.phcsg.org / BCS Health Scotland



2009/11/13 Melanie Spath <melanie.spath at gmail.com>

> Ian,
>
> Haven't used Google Wave myself yet and guess it's still at the
> innovator/early adopter stage. But what about starting with something that
> people are used to, like normal Internet Messaging? I am available on
> melanie.spath at gmail.com on google chat. Otherwise, if people are brave
> enough, I'd like a GW invitation also.
>
> Mel.
>
>
> On Wed, Nov 11, 2009 at 5:13 PM, Ian McNicoll <
> Ian.McNicoll at oceaninformatics.com> wrote:
>
>> Ok - here is a suggestion.
>>
>> Would there be any interest in me setting up a Google Wave to develop the
>> content of a possible Radiotherapy archetype? I have just been given a few
>> Google Wave invitations to hand out.
>>
>> This would be something of an experiment to see how well Wave might
>> support (or confuse) a collaborative approach to early archetype
>> development.
>>
>> I would be happy to facilitate the process and, for example, draw up an
>> initial Mindmap but I would need a bit of help getting started in terms of
>> Radiotherapy content. The general idea would be work on the mind map and
>> associated wiki until we had enough consensus to develop a draft archetype
>> to put up into CKM.
>>
>> It will obviously need input from people like Kevin who have some
>> experience in this area but the intention is just to get the scope and
>> general shape of a Radiotherapy archetype(s) outlined so it will not require
>> anything like as much rigour (and demand on time) as the formal CKM review
>> process.
>>
>> There is already some interest in the Google Wave community in developing
>> eHeath standards and we could perhaps tap into that group to get a few more
>> volunteers. It would also be a great way of getting more attention for
>> openEHR and the work we are doing in CKM.
>>
>> For those of you unfamiliar with Google Wave - this is a pretty good intro
>> http://www.youtube.com/watch?v=rDu2A3WzQpo&feature=player_embedded#
>>
>> Any takers? Let me know here or directly to
>> ian.mcnicoll at oceaninformatics.com
>>
>>
>> Ian
>>
>>
>> Dr Ian McNicoll
>> office / fax  +44(0)141 560 4657
>> mobile +44 (0)775 209 7859
>> skype ianmcnicoll
>> ian.mcnicoll at oceaninformatics.com
>> ian at mcmi.co.uk
>>
>> Clinical Analyst  Ocean Informatics openEHR Archetype Editorial Group
>> Member BCS Primary Health Care SG Group www.phcsg.org / BCS Health
>> Scotland
>>
>>
>>
>> 2009/11/11 Ian McNicoll <Ian.McNicoll at oceaninformatics.com>
>>
>> Hi Melanie,
>>>
>>> There are a few interesting pieces of work around openEHR and research
>>> repositories, including the Sintero project
>>> http://www.openehr.org/288-OE.html?branch=1&language=1
>>>
>>> This is now starting to get going and you should really have a chat to Ed
>>> Conley, the project lead about possible collaboration, particularly around
>>> archetype design, so that as far as possible any research derived data is
>>> shareable across different research platforms.
>>>
>>> It is not always easy to decide the best approach for a particular piece
>>> of clinical information in terms of separate archetype or specialisation ,
>>> but once you get a good maximal dataset around a particular concept the
>>> choices normally become clearer.
>>> This is why we often start the modelling process by looking for existing
>>> data models e.g. for Radiotherapy and use Mindmaps to get a good feel for
>>> the scope of the concept, well before we begin any formal archetype
>>> modelling.
>>>
>>> At some stage we would like CKM to direct support this early stage of
>>> 'informal' modelling using mindmaps and a more conversational. collaborative
>>> style of debate between those who are interested in a particular topic. Part
>>> of the goal is to encourage people to share ideas at an early stage without
>>> feeling under pressure to come up with a publishable solution. By keeping
>>> the discussions as public as possible, we avoid the danger of  individuals
>>> or groups working privately and independently on the same topic, with a
>>> resulting clash of ideas and constructs.
>>>
>>> We are a bit away from providing this in CKM, but Google Wave has some of
>>> the approach we might want to look at - mixture of email, chat, wiki + some
>>> support for mindmaps.
>>>
>>>
>>>
>>> Ian
>>>
>>> Dr Ian McNicoll
>>> office / fax  +44(0)141 560 4657
>>> mobile +44 (0)775 209 7859
>>> skype ianmcnicoll
>>> ian.mcnicoll at oceaninformatics.com
>>> ian at mcmi.co.uk
>>>
>>> Clinical Analyst  Ocean Informatics openEHR Archetype Editorial Group
>>> Member BCS Primary Health Care SG Group www.phcsg.org / BCS Health
>>> Scotland
>>>
>>>
>>>
>>> 2009/11/11 Melanie Spath <melanie.spath at gmail.com>
>>>
>>> Hi all,
>>>>
>>>> Thanks for the great advice, it is very helpful.
>>>>
>>>> I am actually aiming at developing "research" or "omic" archetypes (e.g.
>>>> test results from experiments on patient specimen, e.g. from
>>>> genomic/proteomic/metabolomic experiments etc.), since my background is in
>>>> genetics. The reason for this is to be able to integrate clinical patient
>>>> and scientific research data to support biomedical knowledge discovery. In
>>>> this, I am collaborating with a prostate cancer bio-resource which collects
>>>> specimen from prostate cancer patients. A biobank contains clinical patient
>>>> information and the "omic" information. I am planning to use this biobank 
>>>> as
>>>> a test-bed for an "archetyped" biobank information system.
>>>>
>>>> As a start I was trying to see how much of the clinical content in the
>>>> biobank could be modelled with existing archetypes (to avoid duplicate
>>>> effort) and to discover "holes". Some of the information could be modelled
>>>> with existing archetypes (e.g. results of histopathological analysis with
>>>> the openEHR-EHR-CLUSTER.microscopy_prostate_carcinoma.v1 archetype), but 
>>>> for
>>>> others I could not find suitable archetypes (this in itself was not an easy
>>>> task, I think there needs to be another discussion on a different
>>>> thread/list about the difficulties of matching database fields to existing
>>>> archetypes/fields in existing archetypes). I wasn't sure if the
>>>> non-existence of archetypes for radio/hormone/chemotherapy was because they
>>>> hadn't been developed yet or because it was envisaged that other existing
>>>> archetypes could be used to model these (e.g. the INSTRUCTION.medication 
>>>> and
>>>> INSTRUCTION.non_drug_therapy ones).
>>>>
>>>> Until then, in the presence of these "holes", my approach will be to use
>>>> "placeholder" archetypes that hold the minimum needed information for this
>>>> specific case e.g. for radio/hormone/chemotherapy as discussed above, until
>>>> experts have agreed on their general suitable structure. I am welcoming any
>>>> developments in this area.
>>>>
>>>> Thank you for your help.
>>>>
>>>> Best regards,
>>>>  Melanie.
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> On Wed, Nov 11, 2009 at 1:16 AM, Heather Leslie <
>>>> heather.leslie at oceaninformatics.com> wrote:
>>>>
>>>>>  Hi Melanie,
>>>>>
>>>>> I see some great comments from Ian and Kevin so far - thanks.
>>>>>
>>>>> You aren't starting with anything simple ;-) - this is a very
>>>>> complicated domain and hopefully you will have access to some oncological
>>>>> advice and resources as well.
>>>>>
>>>>> The Medication archetype is a great starting point.  Please be aware
>>>>> that we are doing some work at the moment to try to bring the Medication
>>>>> family - Instruction, Action and the common description up for 
>>>>> collaborative
>>>>> review in CKM soon.  We are trying to harmonise the current archetype with
>>>>> many requirements and standards so that we can try to streamline the 
>>>>> review
>>>>> process, but I expect that we will find it to be one of our harder
>>>>> archetypes to get agreement on. Keep an eye out, and adopt the archetypes 
>>>>> if
>>>>> you would like to participate in the review when initiated.
>>>>>
>>>>> Intravenous orders and administration of drugs adds a further degree of
>>>>> complexity, and most of your chemo will likely be needing this extra
>>>>> functionality.  Plus some of these chemo instructions will be complex
>>>>> orders, potentially with a number of activities within the one order. Some
>>>>> routes may be atypical eg intrathecal etc.
>>>>>
>>>>> Hormone therapy - hmm trying to remember back... Certainly many will be
>>>>> simple oral medication instructions/actions; some will be IV (as above).  
>>>>> We
>>>>> need some expert advice here to determine if there are additional
>>>>> requirements for some hormone therapy that exceed these identified use
>>>>> cases.
>>>>>
>>>>> Radiotherapy is a completely separate area, and as Kevin/Ian suggest,
>>>>> you need to determine the scope here - potentially it is a whole domain of
>>>>> medicine!  I would suggest you mindmap your requirements for recording as 
>>>>> a
>>>>> starting point, and from there you should be able to identify the 
>>>>> potential
>>>>> archetypes that need development - it may be more than one
>>>>> instruction/action eg related measurements etc requiring recording in an
>>>>> Observation archetype.
>>>>>
>>>>> regards
>>>>>
>>>>> Heather
>>>>>
>>>>>
>>>>> On 11/11/2009 2:44 AM, Melanie Spath wrote:
>>>>>
>>>>> Hi,
>>>>>
>>>>> I'm trying to archetype patient records in a prostate cancer
>>>>> environment. I see that there are currently no specific archetypes for
>>>>> common cancer treatments such as radiotherapy, hormone therapy and
>>>>> chemotherapy. Could hormone therapy and chemotherapy be described as
>>>>> specializations of the openEHR-EHR-INSTRUCTION.medication.v1
>>>>> archetype? And could radiotherapy be described with a specialization
>>>>> of openEHR-EHR-INSTRUCTION.non_
>>>>> drug_therapy.v1? Or should these be
>>>>> described in completely new archetypes (e.g. INSTRUCTION.radiotherapy/
>>>>> hormone_therapy/chemotherapy)?
>>>>>
>>>>> Thanks for your help,
>>>>> Melanie Spath.
>>>>>
>>>>> PhD Candidate
>>>>>
>>>>> Centre for Health Informatics
>>>>> School of Computer Science & Statistics
>>>>> Trinity College Dublin
>>>>> Dublin 2, Ireland
>>>>> _______________________________________________
>>>>> openEHR-clinical mailing list
>>>>> openEHR-clinical at 
>>>>> openehr.orghttp://lists.chime.ucl.ac.uk/mailman/listinfo/openehr-clinical
>>>>>
>>>>>
>>>>>
>>>>> __________ Information from ESET Smart Security, version of virus 
>>>>> signature database 4593 (20091110) __________
>>>>>
>>>>> The message was checked by ESET Smart Security.
>>>>> http://www.eset.com
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> --
>>>>>
>>>>>  *Dr Heather Leslie*
>>>>> MBBS FRACGP FACHI
>>>>> Director of Clinical Modelling
>>>>> *Ocean Informatics <http://www.oceaninformatics.com/>*
>>>>> Phone (Aust) +61 (0)418 966 670
>>>>> Skype - heatherleslie
>>>>> Twitter - @omowizard
>>>>>
>>>>> _______________________________________________
>>>>> openEHR-clinical mailing list
>>>>> openEHR-clinical at openehr.org
>>>>> http://lists.chime.ucl.ac.uk/mailman/listinfo/openehr-clinical
>>>>>
>>>>
>>>>
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>>>>
>>>
>>>
>>
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>
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