Hi David,

You mention a big issue: we want to build local archetype and template 
repositories but we don't have the tools to do it in a coordinated way with the 
openEHR CKM.

I think it would be great to have an open & free CKM to start with, and a 
common generic API to connect our local CKMs to regional CKMs and regional CKMs 
to the global CKM in a controlled way (in this scenario the versioning of 
artefacts is a big issue and I think it is not solved at the tool level yet).

AFAIK the to install the global CKM we have to buy some licenses.

-- 
Kind regards,
Ing. Pablo Pazos Guti?rrez
LinkedIn: http://uy.linkedin.com/in/pablopazosgutierrez
Blog: http://informatica-medica.blogspot.com/
Twitter: http://twitter.com/ppazos

> Date: Wed, 7 Sep 2011 17:47:09 +0100
> From: rmhidxi at live.ucl.ac.uk
> To: openehr-clinical at openehr.org; Martin.Severs at port.ac.uk
> Subject: Re: openEHR Transition Announcement (about regional/national openehr 
> organizations)
> 
> Just to say, I think it would be great to support the excellent efforts 
> represented in this discussion, to work towards locally governed 
> repositories of archetypes/templates, evolving synergistically in the 
> sort of way being outlined. There is an important parallel with 
> requirements for governance of terminology.
> 
> I tried very hard to align openEHR within the IHTSDO governance 
> framework for combining local and global initiative for this sort of 
> entity, but failed in this because the politics was too hard, as we 
> reported at the time. IHTSDO seemed, and to me still seems to have the 
> greatest chance of achieving useful progress towards effective standards 
> and governance for clinical content, and openEHR should stay as close as 
> possible to them in this, I believe. There are many clinical and 
> professional issues still to be explored and resolved as to how 
> terminology and archetypes should best coexist within such a framework. 
> There are also licensing issues and realistically the licensing of 
> archetypes for use in patient care at different levels will have to be 
> acceptable to those groups responsible for ethico-legal standards that 
> regulate the clinical professions, and, more immediately, for control of 
> the licensing of international terminologies. Thus archetype/template 
> licensing was always bound to be a very thorny and politicised issue for 
> openEHR and, as a board charged with protecting the openEHR IP for the 
> ultimate good of the healthcare community, we had to hear arguments from 
> both within and outside the Foundation in deciding how we should hold 
> the position. In truth, no one really knows how this issue will play out 
> and we have to remain flexible in our policy, as we have said. I have 
> been involved in working groups at a national level on reform of 
> copyright law, where the kind of argument that is put forward within 
> openEHR lists is advocated for publication more widely, with similar 
> push back from interests dependent on controlling completely legitimate 
> special interests. For what it's worth, I personally am in favour of 
> society moving towards minimally restrictive licensing of knowledge 
> artefacts, such as archetypes and terminologies, consistent with good 
> order. I recognise that the many different perspectives in play about 
> the underlying issues mean there will be fierce debate and honest 
> disagreement about what that means and how it can be achieved. 'Twas 
> ever thus!
> 
> One of the huge difficulties I have observed over the past few years or 
> so has been the ever growing number of ab initio and, in terms of 
> outcome, mutually destructive, efforts to define and create standardised 
> clinical content repositories - from hospital provider and clinical 
> specialty to national, company product, regional and international 
> levels. This is happening in many domains beyond healthcare, of course. 
> There is a need for much more experiment in evolving good practice but 
> there will never, I feel, be complete unification of such entities. Even 
> if by some gargantuan effort, something is established globally, it 
> would tend to fragment at more local levels, much as language itself has 
> an organic existence between the universal and the local forms.  Not 
> easy to accommodate this basic truth when building and seeking to meet 
> the evolving requirements of what are essentially very complex 
> socio-technical entities like standard repositories of clinical content! 
> What is needed, in my mind, is effective and accessible tooling to 
> support shared discipline and methodological approach to these 
> challenges, such that there can be improved, but never perfect or 
> enduring, interoperability between domains. That's where openEHR has 
> been trying to help things move forward.
> 
> One final point, here. The marrying of global and local data in computer 
> systems is being highlighted all over the place, well beyond the 
> confines of health care records, although it's probably true that the 
> health record carries one of the most complex set of requirements in 
> this regard. I have seen it called the problem of 'hyper' but have no 
> idea why that term is used. I suspect there may be useful research to be 
> done in looking across 'hyper' requirements in a variety of different 
> domains where content repositories are being built. Maybe one of the 
> university groups active in openEHR is taking or might take an interest 
> in this topic.
> 
> David I
> 
> 
> On 07/09/2011 09:24, Ian McNicoll wrote:
> Thanks Erik,
> 
> These feel like very sound proposals, in particular the focus on
> bottom-up local development.
> 
> Pablo, Shinji - would Erik's suggestions be the kind of support that
> you would hope to have?
> 
> Ian
> 
> Dr Ian McNicoll
> office +44 (0)1536 414 994
> fax +44 (0)1536 516317
> mobile +44 (0)775 209 7859
> skype ianmcnicoll
> ian.mcnicoll at oceaninformatics.com
> 
> Clinical Modelling Consultant, Ocean Informatics, UK
> openEHR Clinical Knowledge Editor www.openehr.org/knowledge
> Honorary Senior Research Associate, CHIME, UCL
> BCS Primary Health Care www.phcsg.org
> 
> 
> 
> 
> On 7 September 2011 08:31, Erik Sundvall<erik.sundvall at liu.se>  wrote:
> > Hi!
> >
> > On Wed, Sep 7, 2011 at 08:38, Ian McNicoll
> > <Ian.McNicoll at oceaninformatics.com>  wrote:
> >> So, my question back, is
> >> "What sort of support would you like to see, given that significant
> >> central resourcing is not likely in the short term?"
> > [...]
> >> Would it be sufficient for the Foundation to give 'official status' to
> >> regional affiliates e.g. openEHR Japan, or are there other practical
> >> suggestions as to how best to support regional affiliates?
> > I would guess that an 'official status' recognition and thus links in
> > online (and some offline) information resources would be a major
> > thing, more imoportant than funding, especially if this also allowed
> > the regional organisation to arrange "official" openEHR
> > gatherings/conferences etc. It would be reasonable if the local
> > organisation could keep money left over from such (possibly partly
> > commercially sponsored) gatherings/conferences.
> >
> > Of course it would be reasonable if the foundation had some
> > requirements on official local organisations, like having:
> > - open membership
> > - statutes matching regional democratic traditions and the openEHR
> > goals (internal governance rules or whatever the swedish word
> > "stadgar" should be translated to)
> > - proper accounting and audit
> > - a duty to have a dialogue with the central openEHR foundation
> > regarding plans involving using the openEHR tradmark for events etc
> > - ...probably more...
> >
> > For local organisations I think bottom up comunity driven governance
> > with elected boards etc is the only way to go, not top-down.
> >
> > Best regards,
> > Erik Sundvall
> > erik.sundvall at liu.se http://www.imt.liu.se/~erisu/  Tel: +46-13-286733
> >
> > _______________________________________________
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> > openEHR-clinical at openehr.org
> > http://lists.chime.ucl.ac.uk/mailman/listinfo/openehr-clinical
> >
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