Dear friends, Thank you all for the nice replys and warmfull thoughts for me and the family. I will tell you now what followed.
Monday morning Lars was still very alive and alert. He drank several times during the night, pied, made stools, had the hickup, was sneezing, in one word, he did all a healthy child does. The mother hardly dared to close her eyes to sleep, afraid of missing some moments. The baby never left the arms of his parents. So in the morning we had a talk. We all had questions about how it will continue, how much time do we have, how will he die... So the parents decided to go to the university hospital to have an ultrasound of the heart. They made clear to the docter that they just wanted an ultrasound and then return home to decide what options were for them. The ultrasound confirmed the previous diagnosis: no left part of the heart, severe of the aorta and when the ductus of Botalli closes, the baby will go in acidosis, coma and die. They predicted 24 to 48 hours to live. The familie came home again. They made pictures and video of the baby. Lars never left their arms. They called some friends and told them about the birth and had visitors. But also we did a lot of talking, laughing and crying. 24 hours passed, 48 hours passed. Lars is now more then 72 hours and still a perfect child. He had his first bath today together with his mother and enjoyed it a lot. He is feeding well, has already breastfeeding stools and is very alert. He beated all the prognoses about lifetime. So we don't know anything about how long. Emotions are strange, we know there is no hope for long time, but we don't know how long. The parents enjoy the baby, but also fear the moment they have to let him go. We are prepared, but it's so absurd when you see Lars, he is so alive. The parents hoped that he would live long enough to see his eyes open, the mother hoped for some moments on the breast. Now they got already so much. They feel privileged and very happy, but grieve is so close. Laughter and tears go hand in hand. What will the futur bring??? Warm greetings Lieve -- This mailing list is sponsored by ACE Graphics. Visit <http://www.acegraphics.com.au> to subscribe or unsubscribe.
