I'm hearing that BOTOX is also being used on some approved candidates of  
the procedure.
Best Wishes
 
 
In a message dated 2/24/2014 6:02:19 P.M. Central Standard Time,  
[email protected] writes:

 
They can do a cystostopy (I think that is what  it is called) a camera put 
down there to check



 
____________________________________
From:  "nichole rohling" <[email protected]>
To:  [email protected], [email protected]
Sent: Monday, February  24, 2014 3:22:28 PM
Subject: RE: [QUAD-L] Burning suprapubic  pain



I  have no experience but will be praying for you both. Can a suprapubic be 
taken  out and a regular indwelling cath be used to see if it helps? I 
recently  changed brands of my indwelling cath and the tip was so long it was 
rubbing my  bladder.  
Nicki 
 
 
From:  [email protected] [mailto:[email protected]] 
Sent: Monday,  February 24, 2014 4:22 PM
To: Quadriplegic Peer  Group
Subject: [QUAD-L] Burning suprapubic  pain

 
Anyone here first start to experience on relenting burning  pain in their 
bladder after getting an indwelling catheter? He solutions? My  husband has 
had a suprapubic catheter since 2008. The pain is intense and is  24 seven. 
We can tell you everything that it isn't and everything that doesn't  work to 
eliminate it. He is literally ready to die. And, he is well on his  way. He 
is now down to 95 pounds in 6 foot three. The pain is too great and  does 
not allow him to eat. It all got worse after a nerve block in December  2012.
 

 
He takes gabapentin, alprazolam, oxycodone, marijuana, and  baclofen for 
it. This is a man who never touched a drug in his life prior to  all of this.
 

Sent from my iPhone 
 

 
Please excuse any typos or brevity of tone as this was  typed using an 
iPhone (and possibly Siri, in an effort to be as safe as  possible while en 
route.) 
My best,








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