I have no experience but will be praying for you both. Can a suprapubic be taken out and a regular indwelling cath be used to see if it helps? I recently changed brands of my indwelling cath and the tip was so long it was rubbing my bladder.
Nicki From: [email protected] [mailto:[email protected]] Sent: Monday, February 24, 2014 4:22 PM To: Quadriplegic Peer Group Subject: [QUAD-L] Burning suprapubic pain Anyone here first start to experience on relenting burning pain in their bladder after getting an indwelling catheter? He solutions? My husband has had a suprapubic catheter since 2008. The pain is intense and is 24 seven. We can tell you everything that it isn't and everything that doesn't work to eliminate it. He is literally ready to die. And, he is well on his way. He is now down to 95 pounds in 6 foot three. The pain is too great and does not allow him to eat. It all got worse after a nerve block in December 2012. He takes gabapentin, alprazolam, oxycodone, marijuana, and baclofen for it. This is a man who never touched a drug in his life prior to all of this. Sent from my iPhone Please excuse any typos or brevity of tone as this was typed using an iPhone (and possibly Siri, in an effort to be as safe as possible while en route.) My best,
