They can do a cystostopy (I think that is what it is called) a camera put down 
there to check 

----- Original Message -----

From: "nichole rohling" <[email protected]> 
To: [email protected], [email protected] 
Sent: Monday, February 24, 2014 3:22:28 PM 
Subject: RE: [QUAD-L] Burning suprapubic pain 



I have no experience but will be praying for you both. Can a suprapubic be 
taken out and a regular indwelling cath be used to see if it helps? I recently 
changed brands of my indwelling cath and the tip was so long it was rubbing my 
bladder. 

Nicki 




From: [email protected] [mailto:[email protected]] 
Sent: Monday, February 24, 2014 4:22 PM 
To: Quadriplegic Peer Group 
Subject: [QUAD-L] Burning suprapubic pain 





Anyone here first start to experience on relenting burning pain in their 
bladder after getting an indwelling catheter? He solutions? My husband has had 
a suprapubic catheter since 2008. The pain is intense and is 24 seven. We can 
tell you everything that it isn't and everything that doesn't work to eliminate 
it. He is literally ready to die. And, he is well on his way. He is now down to 
95 pounds in 6 foot three. The pain is too great and does not allow him to eat. 
It all got worse after a nerve block in December 2012. 





He takes gabapentin, alprazolam, oxycodone, marijuana, and baclofen for it. 
This is a man who never touched a drug in his life prior to all of this. 



Sent from my iPhone 







Please excuse any typos or brevity of tone as this was typed using an iPhone 
(and possibly Siri, in an effort to be as safe as possible while en route.) 



My best, 



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