Bryce, I have the same problem, a chronic wound. It is superficial and there are about 4 different areas that pop up, kind of rotating. Pete is taking amazing care of me and I do see a wound Doctor for a few years now. He is the VERY BEST I've ever met and his staff too.
It's soooooooo hard to stay in bed for days if months when I feel perfectly healthy. I can't plan ANYTHING because I can't promise I'll make it. Sometimes I feel like I'm just existing instead of living. Bobbie Smile Everyday > On Sep 4, 2015, at 7:35 PM, Bryce Willis <lwillis82...@msn.com> wrote: > > How easily something simple can become tragic! I have been battling a butt > sore for over ten years now. It is about 3x4 in. and just will not heal. Not > much depth but wide open and raw. (When my daughter was small she asked why I > had Bologna on my butt.) I imagine I will take it to the grave. > > Sent from my iPad > > Begin forwarded message: > >> Resent-From: quad-list@eskimo.com >> From: wheelch...@aol.com >> Date: September 4, 2015 at 5:08:23 PM EDT >> To: diannal...@aol.com, sbell...@cox.net, quad-list@eskimo.com >> Subject: Re: [QUAD-L] Sitting wrong/Pressure sore >> >> Did you actually go to a clinic that specialize in seating and positioning >> or did someone hold their thumb up to your profile? Positioning is so >> important, especially today. Do you have a Comfort Company set up? >> >> Best Wishes >> >> In a message dated 9/4/2015 3:37:58 P.M. Central Daylight Time, >> diannal...@aol.com writes: >> funny you should ask that. no, but I sure am sweating now! or clammy I >> should say. first thing in the morning and after wound changes...I hate the >> feeling. feels like my blood pressure raises too & I feel mean...actually I >> am after wound changes that is! my doc has ordered the wound cleaned with a >> solution that smells like bleach. I know i'm having a reaction to it cause I >> feel sweaty. I didn't mention I've gone 25 years without a problem on my >> butt until now. >> Dianna, what a drag. thanks for sharing this important info. Did you not >> feel sweaty or anything as the sore was coming on? that's the scariest for >> us, not to feel it until it's to late. >> Kind regards, >> Shirley Bell >> >> >> >> -----Original Message----- >> From: shirley bell <sbell...@cox.net> >> To: diannal767 <diannal...@aol.com> >> Cc: quad-list <quad-list@eskimo.com> >> Sent: Fri, Sep 4, 2015 2:51 pm >> Subject: Re: [QUAD-L] Sitting wrong/Pressure sore >> >> >> Dianna, what a drag. thanks for sharing this important info. Did you not >> feel sweaty or anything as the sore was coming on? that's the scariest for >> us, not to feel it until it's to late. >> Kind regards, >> Shirley Bell >> www.ShirleyBellDesigns.com >> ----- Original Message ----- >> From: diannal...@aol.com >> To: quad-list@eskimo.com >> Sent: Friday, September 04, 2015 12:27 PM >> Subject: [QUAD-L] Sitting wrong/Pressure sore >> >> ~Thought I'd share my story with everyone in hopes of preventing this of >> happening to anyone else!! Finally got in my new chair July 1. By August >> 14th, I was in the hospital getting surgery on a sore on my butt. I'm home >> now with a sore the size of a 50 cent piece and 3/4 of an inch deep. Hooked >> up to a Wound vac and hopefully next week, I'll get this pic line out. >> ~The wheelchair rep made countless visits to my home to adjust the back, >> then finally changed it to a air back cushion. Worked on programming the >> controls that still are 'crazy'. Through the month, Dave said "Your butts >> hanging out the back". I thought he meant to say, it was big because that's >> how it felt to me reaching back. What he should have said was, "Your cheeks >> are hanging over the back of the cushion" ! I was sitting out on my patio & >> looked in my bay window to actually look and see from the suns reflection, >> what my butt looked like in this chair. This was a Saturday. I was feeling >> chilled that weekend, wearing a sweater while it's 80 degrees out. Anyway, I >> immediately said to Dave, "My butts hanging over the cushion, my butt looks >> huge"! Dave:, "I told you" Saturday night, he noticed a pencil size sore >> on my butt, by `Monday morning, it broke open a little with bleeding. I had >> already had an appointment Monday with my wound doctor for a healing sore on >> my ankle. She sent me to the E.R with a letter requesting a plastic surgeon, >> Dr Raj. I also encountered two >> infections from the wound, one being staff A and another letter to go with >> it...couldn't care less at this point. Eight days in the hospital, I just >> wanted to go home. >> ~That Monday morning, Dave announced he could fix this, (6 weeks too late) >> Moved the plate under the cushion 3 inches, now the cushion is correct and >> so is my butt. The wheelchair rep should have checked and caught my seating >> in corrections!! >> ~Not finished. I had waited about 2 months for a prior authorization from >> Medicaid to get the driving equipment installed on my chair. Three inches >> now has my head about an inch from the door post in my car. Driving it now >> slightly reclined but it throws everything off, steering wheel, brakes. I >> had to resubmit another prior to adjust either EZ-Lock or bolt on my chair >> from the adjustment on chair. >> Quantum 6000, I do not like it. The ONLY feature I like about this chair is >> recline. >> Dianna >> If you think your butts bigger than you think, in a new chair....check it >> out