[CMLHope] Hi everyone!
I am 41 years old. I was diagnosed with CML 2 years ago. In 2004, the cytogenetics test was positive for 19 of 20 cells and the FISH test was positve for 200 of 200 cells. I went on 400mg of Gleevec daily and after 6 months increased to 600mg daily. I have a lot of the same side effects as others: nausea, diarrhea, muscle cramps, water retention, loss of appetite, some changes in my complexion and hair, lack of energy, acid reflux, etc... In 2005, when I had my 2nd bone marrow biopsy, my cytogenetics test shows 0 of 20, FISH showed 0 of 200, and PCR showed 0 of 10,000 cells positive. So after one year on Gleevec, I had what my doctor called an "excellent" remission of the CML. I have to agree after reading some of the other posts. I feel very fortunate to have responded so well to Gleevec. My next bone marrow biopsy is coming up soon - June 22, 2006. My oncologist has not said anything about testing any of my siblings (for compatibility) for possible bone marrow transplant. In the back of my mind, I keep wondering when I will stop responding to the Gleevec or when my doctor is going to start pressing me toward getting the bone marrow transplant. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Responded to Gleevec Now I'm Not ~ Anyone else out there??
That is great news! I'm glad you've had such a good response / reaction to the 800mg dose. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Hi everyone!
YAHOOO!!! YIPPEEE!!! Number 974 in the Zero Club Zavie On 6/6/06, Renee <[EMAIL PROTECTED]> wrote: I am 41 years old. I was diagnosed with CML 2 years ago. In 2004, thecytogenetics test was positive for 19 of 20 cells and the FISH test was positve for 200 of 200 cells. I went on 400mg of Gleevec daily andafter 6 months increased to 600mg daily.I have a lot of the same side effects as others: nausea, diarrhea,muscle cramps, water retention, loss of appetite, some changes in my complexion and hair, lack of energy, acid reflux, etc...In 2005, when I had my 2nd bone marrow biopsy, my cytogenetics testshows 0 of 20, FISH showed 0 of 200, and PCR showed 0 of 10,000 cellspositive. So after one year on Gleevec, I had what my doctor called an "excellent" remission of the CML. I have to agree after reading someof the other posts. I feel very fortunate to have responded so wellto Gleevec.My next bone marrow biopsy is coming up soon - June 22, 2006. My oncologist has not said anything about testing any of my siblings(for compatibility) for possible bone marrow transplant. In the backof my mind, I keep wondering when I will stop responding to the Gleevec or when my doctor is going to start pressing me toward getting the bonemarrow transplant.67 Shoreham AvenueOttawa, Canada, dxd AUG/99INF OCT/99 to FEB/00, CHFNo meds FEB/00 to JAN/01Gleevec since MAR/27/01 (400 mg)CCR SEP/01. #102 in Zero ClubPCRU 5/02 at RVH2.8 log reduction Sep/05 3.0 log reduction Jan/06e-mail: [EMAIL PROTECTED]Tel: 613-726-1117Fax: 309-296-0807Cell: 613-202-0204Yahoo ID: zaviem --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Chat Reminder
Loved the ducks. Made me smile. Thanks Zavie. Sue --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] HI
I not very good at this. I am 47 yrs and was just offically diagnosed last Thursday. I started on Gleevec on Friday. I just went to the Dr for a yearly phyiscal and surprise my WBCs were out of the ballpark. 98% of my cell were positive for BCR/ABL. The somewhat strange twist to this is that I have been working in clinical research in oncology for the last 7yrs. Only in solid tumor so this is very new to me. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] 2nd anniversary
Hi all I just celebrated my 2nd anniversary on June 4th. I went into complete remission in March this year. I am in Zavie's zero club but do not remember my number. Chalk that up to my brain fog. LOL at least I am alive even with all the side effects. Today the doctor told me that all is still good. Nothing unusual except that my potassium continues to stay low even on potassium tablets. Now the doctor has upped me again to three potassium tablets. Another side effect of Gleevec has been that my chest hurts and it causes me to have a rapid heart beat according to the heart doctor. So he is giving me meds to lower the heart rate. It was at 120 now down to 100 but he wants it at around 60. On my first anniversary last year I bought myself a small diamond ring. This year I went over board and bought my self a new Saturn VUE fully loaded even with a sun roof. I figure I deserved something big this year. MM wonder what next year will bring. The doctor did say that as soon as the new drug is approved she will be putting me on that to see if the side effects improve. Suzan __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Chat Reminder
How do I join the chat??? - Original Message - From: Zavie miller To: [EMAIL PROTECTED] ; CMLHope@googlegroups.com Sent: Tuesday, June 06, 2006 12:40 AM Subject: [CMLHope] Chat Reminder Tuesday 9:00 PMPhoto; Ma and Pa out for a strol --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Join the chat
How do I join the chat?? --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: HI
Welcome, Rosie. to the club no one wants to join!A lot of good people here and a lot of good information, both scientific and anecdotal, to help you through. Do be shy about asking anything, we've been through it all, when you look at us collectively. Richard Troxeldx 2/2003On 6/6/06, Rosie < [EMAIL PROTECTED]> wrote:I not very good at this. I am 47 yrs and was just offically diagnosed last Thursday. I started on Gleevec on Friday. I just went to the Drfor a yearly phyiscal and surprise my WBCs were out of the ballpark.98% of my cell were positive for BCR/ABL. The somewhat strange twist to this is that I have been working in clinical research in oncologyfor the last 7yrs. Only in solid tumor so this is very new to me. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: HI
Welcome to the group.RobOn 6/6/06, Rosie <[EMAIL PROTECTED]> wrote: I not very good at this. I am 47 yrs and was just offically diagnosedlast Thursday. I started on Gleevec on Friday. I just went to the Drfor a yearly phyiscal and surprise my WBCs were out of the ballpark. 98% of my cell were positive for BCR/ABL. The somewhat strange twistto this is that I have been working in clinical research in oncologyfor the last 7yrs. Only in solid tumor so this is very new to me. -- Powered by NewOrleansEmail.Com http://neworleansemail.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
