Re: [CMLHope] New member
Hi Severinsen, Welcome to this group. Although I am not on any medications for CML I had to have a bone marrow transplant more then 21+ years ago. I make sure to keep up on the latest things that can help with the management of CML or any other types of Leukemia. Believe me Severinsen you can consider yourself lucky to have this disease rather then many types of other cancers. What I wouldn't have given if these current drugs, and others to follow weren't around when I was ill. This is a time that people such as yourself can really benefit from this technology. I have no doubt that you will do well having CML, in fact most of the people on this site are alive because of drugs such as these, and there is a great expectation of newer and better ones to follow. Please keep everyone apprised of what is happening with you. There are a lot of very caring people here that will be of great comfort to you with any questions you may have. I wish you the best of luck GOD bless you. Marty . On Mon, Jul 5, 2010 at 5:31 PM, Severinsen styrkecoac...@gmail.com wrote: Hi all. I am a newly diagnosed CML patient. I am 30 years old, and live in Denmark. I will start my medication monday the 12th of july, it will be Tasigna. I will be participating in a test group, aiming at getting Tasigna approved as standard treatment i Denmark. Gleevec is the present standard treatment. What can I expect my future as a CML patient to be? I´m still in chock from the diagnosis, but has found comfort in all of the positive articles on the web, about CML. I am looking forward to participating in this group. Regards, Severinsen -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] New member
Hi Severinsen, Sorry you have CML but I found that it is a disease that is very treatable that this is a very good Group to be a part off. I was diagnosed with CML in June '05, started taking Gleevec right away have been doing ok to this day. I found this group a little while after being diagnosed found CML Hope to be most kind considerate group around found it to be an information highway to all my questions concerning this disease. We think of ourselves as CML Warriors who don't have to fight this battle on our own, God Bless keep coming back here share your fears, strengths most of all your Hope with us. Regards, Frank In a message dated 7/6/2010 10:27:14 A.M. Eastern Daylight Time, styrkecoac...@gmail.com writes: Hi all. I am a newly diagnosed CML patient. I am 30 years old, and live in Denmark. I will start my medication monday the 12th of july, it will be Tasigna. I will be participating in a test group, aiming at getting Tasigna approved as standard treatment i Denmark. Gleevec is the present standard treatment. What can I expect my future as a CML patient to be? I´m still in chock from the diagnosis, but has found comfort in all of the positive articles on the web, about CML. I am looking forward to participating in this group. Regards, Severinsen -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Re: Hi Greenie
Welcome Nadia, I think that your english is just fine. Frank In a message dated 7/5/2010 9:45:13 P.M. Eastern Daylight Time, nadia...@earthlink.net writes: Thank you so much to all of you. I read all yours mail every days, but never post because my poor English. You make me feel good and proud to be part of the CML Warriors. Merci. Nadia From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of C.M. Houtz Sent: Monday, July 05, 2010 7:46 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Re: Hi Greenie Hello Nadiia Welcome to our group. We do have a great bunch here, and everyone tries to help everyone else when we can. Glad you're joining usMillie - Original Message - From: _Nadiia Noles_ (mailto:nadia...@earthlink.net) To: _cmlh...@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Monday, July 05, 2010 7:32 PM Subject: RE: [CMLHope] Re: Hi Greenie Hi Jeanie: My name is Nadia and I just moved to Florida in Winter Haven. I’d like to go to Moffit , but I don’t know the right Hematologist. Can you recommend yours? And if you can would you give me his name please? I’ve been diagnosed with CML since 8/2006, and am on Gleevac , 300/mg a day and feeling good. Thank you and thanks to all of you. Your mail has been a big help. Thanks From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of icandoall...@aol.com Sent: Monday, July 05, 2010 6:25 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Re: Hi Greenie Good luck on your move to Florida. I'm a Florida Cracker so I love it. What doctor will you go to in Florida. I go to Moffitt Cancer Center. Blessings, Jeanie3 In a message dated 7/2/2010 11:43:19 A.M. Pacific Daylight Time, myvet...@aol.com writes: Hi Suzieq, Port Richey is nice, we checked it out put my brother wants us to move his way. Sorry, we are not looking for a house. We are looking to rent, condo, etc. No more up keep, would like to find some folks in our age group. Not much into golf, but we do like to go fishing. Grace likes just to be near water and I like to check out the babes (smile). I'll be 71 on July 22nd, my body no's it's 71 but my mind thinks it's 21. We are selling all our belongings and just taking our cloths, and of course my fishing gear. This part is for the guys, one thing that did happen to me yesterday is my wife gives me a shot of testosterone every Wednesday. I've been back on the shots for almost two months. About 30 min. after my shot I started to get fatigue and I do mean fatigue, it lasted all day into the night. Then it went away almost as fast as it started. This is the third time in the last 2 months. I know this is not a women thing but maybe one of the guys out their may have had this same thing happen to them. I use to take a gel each day but that didn't do much for me, always had a lack of energy, etc. When I first started STI-571 in 2000 my study at Northwestern I was on the shots and never had a problem, now 9 years later something new. I still think that their are things out their that they don't know what side effects and others drugs will not mix with Gleevec. I called my nurse this morning and told her what happened and her reply was take the shot before bed time and sleep through the fatigue. WOMEN, they just don't understand us men. (smile) Greenie In a message dated 7/1/2010 4:11:15 P.M. Central Daylight Time, sheila.a.wat...@gmail.com writes: Greenie: If you want to live a little further up the coast line, my mom still has her house in Port Richey, Fl. It's north of Tampa off Hwy. 19. It's not far from Hudson Beach, so that's a plus. She still wants to sell it, if you're interested. It's not on the market right now. she plans to go back down in a few months and get it ready to list once again. Her house sits on a corner lot..has nice full size treesan extremely nice retired elderly couple across the street from her that always helps with anything she needs. Course, you'll might looking more for a condo or something.and be closer to your brother. This is a wee bit back up the other way. Anyway, just wanted to let you know. Are you'll gonna be going to do this just through the winter time and then go back up North in the summer months? Suzieq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of _http://cmlhope.com_
Re: [CMLHope] New member
Hi, Severinsen I'm so sorry you belong to this group because of you have CML :( But the bright side is you can find really nice and helpful people in here. I know it because from time to time I'm a lurking member of this group. I joined this group last year because I have wanted to know much more about people diagnosed CML living in the whole world. Otherwise, one of my present goals is to become a bone marrow donor, so we may say I stay at the opposite side of that disease Anyway, I wish U and all of you reading my words, strength and patience fighting the disease. Btw I live in Poland and as I've noticed, we're probably the only Europeans in this group :) I believe that your medication will work. I keep my fingers crossed! best wishes, 2010/7/5 Severinsen styrkecoac...@gmail.com Hi all. I am a newly diagnosed CML patient. I am 30 years old, and live in Denmark. I will start my medication monday the 12th of july, it will be Tasigna. I will be participating in a test group, aiming at getting Tasigna approved as standard treatment i Denmark. Gleevec is the present standard treatment. What can I expect my future as a CML patient to be? I´m still in chock from the diagnosis, but has found comfort in all of the positive articles on the web, about CML. I am looking forward to participating in this group. Regards, Severinsen -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
