Re: [CMLHope]

2012-12-23 Thread Marwan Abdeh
Dear friend
I hope you are well now . If you have any Gleevec leftovers, would
appreciate it you can send to me for my son with Dermatofibrosarcoma.
Kind regards.Please adv.
Yours
Marwan Abdeh

On 23/12/2012, fausto grossi  wrote:
> Merry Christmas and happy new year from italy
>
> (13 years on gleevec and 8 years in complete remission)
>
>
> Gros50
>
>
> -
>
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope

-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] RE: Merry Christmas and Happy New Year

2012-12-23 Thread Joyce Mesnarich

On Dec 23, 2012, at 7:54 AM, N Quade wrote:

> Merry Christmas and a very Happy New Year
> my son received his orders and he will be stationed in OAHU
> 
> 
> From: ho...@ptd.net
> To: tasigna-support-group-...@googlegroups.com; CMLHope@googlegroups.com
> Subject: Merry Christmas and Happy New Year
> Date: Sat, 22 Dec 2012 18:21:25 -0500
> 
>  
>  
> 
> Wishing everyone the Happiest of Holiday Seasons.  You all are important in 
> my life and I'm glad we can share our ups and downs with one another. 
> Hugs and 18's to all,
> Millie
> 
> 
> -- 
> You received this message because you are subscribed to the Google Groups 
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> For more options, visit this group at 
> http://groups.google.com/group/tasigna-support-group-cml?hl=en.
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope

-- 
[CMLHope]
A support group of http://cmlhope.com
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[CMLHope] Re: Merry Xmas and a happy new year from the NetherlandsnL

2012-12-23 Thread Penny
Hi,
 
Well you are a star now!  
 
Have you been taking 600 mg all this time?
I started on 800 mg and after a year I had a reaction to it.  My Dr cut me 
back to 400 mgs and
have been undetectable ever since.  9 years and still kicking:)
 
Merry Christmas to all
Penny Van Curler Singleton
 
  
On Sunday, December 23, 2012 2:25:46 AM UTC-7, rien wrote:

>  Dear all,
>
> From the rainy Netherlands I wish you very pleasant and peaceful 
> Christmas'days and of course a Nrw Year with only positive results 
> concerning our common ennemy CML. Since I was diagnosed in early 2003, just 
> before being transferred to Italy, this group has been of great support 
> (and it still is). Being abroad the infornation on this site helped a lot 
> and I even met a Dutch fellow patient on this group, who appeared to have 
> had the same (colon) cancer previous to the CML and who became the chief 
> editor of the Dutch CML Patients magazine, of which I became a member of 
> the editorial board after having coming back to the Netherlands.
> I am still on Gleevec (600 mg) and finally the two last pcr/abl checks had 
> the result desired for such a long time: leucemia not detectable. I keep my 
> fingers crossed for the next exams in January 
> The messages on this site are wonderful, they really give hope and 
> support; thank you, all of you! 
> Actually I am living partly in the Netherlands and partly in the south of 
> France, from where I regularly go to Italy.
> If you want to see me, I invite you to follow the following link (short 
> movie in Dutch with English subtitles)
> http://www.novartisoncology.nl/voorpatienten/cmlvideo_en.shtml
> I never thought that I would have a part in a movie, but because I think 
> it is very important to give hope especcialy to new patients, just like 
> this group does, I decided to figure in this movie, hoping that it will 
> help our new "colleagues".  
> All the best to everyone, keep thinking positive!
> Ciao,
>
> Rien
>
>
>

-- 
[CMLHope]
A support group of http://cmlhope.com
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RE: [CMLHope] how do you subscribe

2012-12-23 Thread Pat Elliott
Hi again Rein:

You may be reaching the group page and need to take another step. Look over
to the right side for "Edit my membership" and click on it. There should be
a drop down menu that gives you choices on how you participate such as no
email, email, digests, etc. It asks what email you want to use, and then at
the bottom says, "Save these settings." 

 

You are not bothering me, there is always time to help fellow CMLers! J

Pat

 

 

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf
Of rien jonkers
Sent: Sunday, December 23, 2012 11:59 AM
To: cmlhope@googlegroups.com
Cc: theo thissen
Subject: Re: [CMLHope] how do you subscribe

 

Hi Pat,

 

Thank you for your quick reaction. However, if I follow your instructions, I
get after your point 2 a whole series of links to messages from the group
and is still remains impossible to subscribe...

Is this because I am trying to get access from Europe???

 

Sorry to bother you, but this is rather important, because we would like to
inform our fellow patients in the next issue of the Dutch Leucemia
Magazine...

Ciao from the Netherlands, I suppose the weather in Arizona will be much
better than here

 

Rien

 

  _  

From: Pat Elliott 
To: cmlhope@googlegroups.com 
Sent: Sunday, December 23, 2012 6:08 PM
Subject: RE: [CMLHope] how do you subscribe

 

Hi Rien, here are instructions for subscribing to the group. 

1.  From the home screen for Google Groups, http://groups.google.com/,
type the Group name, CMLHope, in the search field.
2.  Press the Search button. 
3.  Click on the group name.
4.  Click on the 'Join group' link. The Join group dialog box appears.
5.  Fill in the options on the Join Group dialog box.
6.  Click the Join this group button. You are now a member of the group.

Let me know if this doesn't work, but it should. Thanks for your ongoing
support of CML patients and caregivers!

Warm regards from Phoenix, Arizona,

Pat Elliott

 

 

 

-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope

-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope]

2012-12-23 Thread rien jonkers
Grazie Fausto e  buon natale e buon anno anche a te!!
Cari saluti dai Paesi Bassi,

Rien (Marino)



 From: fausto grossi 
To: Digest Recipients  
Sent: Sunday, December 23, 2012 7:15 PM
Subject: [CMLHope] 
 

Merry Christmas and happy new year from italy 

(13 years on gleevec and 8 years in complete remission)


Gros50


-



-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope

-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
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For more options, visit this group at http://groups.google.com/group/CMLHope

Re: [CMLHope] how do you subscribe

2012-12-23 Thread rien jonkers
Hi Pat,

Thank you for your quick reaction. However, if I follow your instructions, I 
get after your point 2 a whole series of links to messages from the group and 
is still remains impossible to subscribe...
Is this because I am trying to get access from Europe???

Sorry to bother you, but this is rather important, because we would like to 
inform our fellow patients in the next issue of the Dutch Leucemia Magazine...
Ciao from the Netherlands, I suppose the weather in Arizona will be much better 
than here

Rien



 From: Pat Elliott 
To: cmlhope@googlegroups.com 
Sent: Sunday, December 23, 2012 6:08 PM
Subject: RE: [CMLHope] how do you subscribe
 

Hi Rien, here are instructions for subscribing to the group. 
1. From the home screen for Google Groups, http://groups.google.com/, 
type the Group name, CMLHope, in the search field.
2. Press the Search button. 
3. Click on the group name.
4. Click on the 'Join group' link. The Join group dialog box appears.
5. Fill in the options on the Join Group dialog box.
6. Click the Join this group button. You are now a member of the group.
Let me know if this doesn’t work, but it should. Thanks for your ongoing 
support of CML patients and caregivers!
Warm regards from Phoenix, Arizona,
Pat Elliott

-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope

[CMLHope]

2012-12-23 Thread fausto grossi
Merry Christmas and happy new year from italy

(13 years on gleevec and 8 years in complete remission)


Gros50


-

-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
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For more options, visit this group at http://groups.google.com/group/CMLHope

RE: [CMLHope] how do you subscribe

2012-12-23 Thread Pat Elliott
Hi Rien, here are instructions for subscribing to the group. 

1.  From the home screen for Google Groups, http://groups.google.com/,
type the Group name, CMLHope, in the search field.
2.  Press the Search button. 
3.  Click on the group name.
4.  Click on the 'Join group' link. The Join group dialog box appears.
5.  Fill in the options on the Join Group dialog box.
6.  Click the Join this group button. You are now a member of the group.

Let me know if this doesn't work, but it should. Thanks for your ongoing
support of CML patients and caregivers!

Warm regards from Phoenix, Arizona,

Pat Elliott

 

 

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf
Of rien jonkers
Sent: Sunday, December 23, 2012 9:24 AM
To: cmlhope@googlegroups.com
Subject: [CMLHope] how do you subscribe

 

Hello everybody,

 

Here I am again! We would like to inform the Dutch fellow-CML-patients how
one can subscribe to this group. I tried the link CMLHope.com  but if you
fill ikn subscribe, a very long technical text appears. Could you give me
some help?

Thanks, in the name of our magazine for Dutch speaking CML patients!

Ciao,

 

Rien

 

-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
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For more options, visit this group at http://groups.google.com/group/CMLHope

[CMLHope] how do you subscribe

2012-12-23 Thread rien jonkers
Hello everybody,

Here I am again! We would like to inform the Dutch fellow-CML-patients how one 
can subscribe to this group. I tried the link CMLHope.com  but if you fill ikn 
subscribe, a very long technical text appears. Could you give me some help?
Thanks, in the name of our magazine for Dutch speaking CML patients!
Ciao,

Rien



 From: Marty Gartenberg 
To: cmlhope@googlegroups.com 
Sent: Sunday, December 23, 2012 3:14 PM
Subject: Re: [CMLHope] PCRU
 

Hi Marcie,

l'chaim, another way to say 18's.

Take care of yourself and enjoy another happy and healthy New Years.

18's "l'chaim"

Marty



On Sat, Dec 22, 2012 at 11:20 AM,  wrote:

l'chaim
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
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-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
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For more options, visit this group at http://groups.google.com/group/CMLHope

Re: [CMLHope] PCRU

2012-12-23 Thread Marty Gartenberg
Hi Marcie,

l'chaim, another way to say 18's.

Take care of yourself and enjoy another happy and healthy New Years.

18's "l'chaim"

Marty


On Sat, Dec 22, 2012 at 11:20 AM,  wrote:

> l'chaim

-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
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[CMLHope] Merry Xmas and a happy new year from the NetherlandsnL

2012-12-23 Thread rien jonkers
Dear all,

>From the rainy Netherlands I wish you very pleasant and peaceful 
>Christmas'days and of course a Nrw Year with only positive results concerning 
>our common ennemy CML. Since I was diagnosed in early 2003, just before being 
>transferred to Italy, this group has been of great support (and it still is). 
>Being abroad the infornation on this site helped a lot and I even met a Dutch 
>fellow patient on this group, who appeared to have had the same (colon) cancer 
>previous to the CML and who became the chief editor of the Dutch CML Patients 
>magazine, of which I became a member of the editorial board after having 
>coming back to the Netherlands.
I am still on Gleevec (600 mg) and finally the two last pcr/abl checks had the 
result desired for such a long time: leucemia not detectable. I keep my fingers 
crossed for the next exams in January 
The messages on this site are wonderful, they really give hope and support; 
thank you, all of you! 
Actually I am living partly in the Netherlands and partly in the south of 
France, from where I regularly go to Italy.
If you want to see me, I invite you to follow the following link (short movie 
in Dutch with English subtitles)
http://www.novartisoncology.nl/voorpatienten/cmlvideo_en.shtml

I never thought that I would have a part in a movie, but because I think it is 
very important to give hope especcialy to new patients, just like this group 
does, I decided to figure in this movie, hoping that it will help our new 
"colleagues".  
All the best to everyone, keep thinking positive!
Ciao,

Rien

-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope