Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?
I all the good news was short termed, I woke up yesterday and the nausea came back so I'm thinking I may have picked up some bug. Grace she's O.K. time will tell. So far this morning I feel find but will see our the rest of the day goes. greenie In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: YEAH FOR GOOD NEWS :) Beth -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Jan 27, 2015 4:59 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Well, I have good news. We both woke up today, Grace was O. K. and later on into the day I'm feeling much better. Tomorrow well tell the truth. I'll let you all know and Thanks for thinking of us both. We all are one hell of a team, we should have our own Superbowl.. greenie In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: maybe you both have a bit of a virus or bug? Hope that's all it is and you both will feel better soon. It does seem odd when all of a sudden after so many years you get a symptom like nausea. Be well...thinking of you and everyone else today... Beth -Original Message- From: Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jan 26, 2015 5:09 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Hi Beth, I'm starting to think it's not the Gleevec that's given me the nausea because my wife started to get the nausea also. Could be Florida weather, tree's, flowers, etc. greenie In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Greenie, Remember, if you do need to swap a TKILots of good options with low doses because you have done so well for so long on Gleevec...you are a warrior. My blood counts are O.K...but I appreciate the anxiety of all this for all of us..it's one of the harder parts to manage well. Good luck to you! Beth -Original Message- From: Joan <_lilako19@gmail.com_ (mailto:lilak...@gmail.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jan 26, 2015 5:01 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Greenie, I had to quit Gleevec because it was messing with my kidneys. Now I take Tasinga. Joan On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: Hi to my friends in our group, well I've been on Gleevec for 15 years and 14 days all of a sudden for the last 4 days I'm having nausea problems. I'm taking some promethazine that helps some what but it's not a fun thing. I have no idea what started it either. I had this problem before when we lived in Springfield, MO. I got over heated and got hit with nausea every day for a little more then 2 years then I awoke one morning and it was like someone turned off the switch and it was gone. This time of the year it's not hot here so I know that's not what caused this problem. I'm going to take a Gleevec break for a week or two to clean out my system and hope that I get back to normal. I did this before about 6 years ago when I had a sinus infection and the doctor back in Indiana put me on and anabolic that interfered with my Gleevec so we stopped Gleevec for 26 days. After getting blood work some cancer cells did show back up in my blood work but after stating Gleevec again the next test showed that I was clean again. My doctor at that time was doctor Tallman and he gave me a call and said "well if it worked before it will work again" and that was that. So I have my fingers crossed to see what happens. I can't stand this nausea problem, my heart goes out to the women that have babies and have to put up with nausea. I just hope it's the Gleevec again and not something else. My blood counts are O. K. so I'm not worried about that. This does not help my anxiety problems Will keep you all up to date as how things go. greenie -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from i
Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?
Hi Greenie Sorry to hear you still have your nausea. Have you tried Meclizine ? I find it works better than compozine. My nausea is better since coming off hydrea. I am on my 5th day of ponatinib.I had blood work done yesterday. My WBC came down but the platelets keep going up. Still in the millions (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets daily. My skin is drying out and headaches have returned. This reminds me of Gleevec but it has many side effects. Just have to deal with them as usual. I hope everyone is good this morning. Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope > wrote: > > I all the good news was short termed, I woke up yesterday and the nausea came > back so I'm thinking I may have picked up some bug. Grace she's O.K. time > will tell. So far this morning I feel find but will see our the rest of the > day goes. > > greenie > > In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > YEAH FOR GOOD NEWS :) Beth > > > -Original Message- > From: Myvety2k via CMLHope > To: cmlhope > Sent: Tue, Jan 27, 2015 4:59 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Well, I have good news. We both woke up today, Grace was O. K. and later on > into the day I'm feeling much better. Tomorrow well tell the truth. I'll > let you all know and Thanks for thinking of us both. We all are one hell of > a team, we should have our own Superbowl.. > > greenie > > In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > maybe you both have a bit of a virus or bug? Hope that's all it is and you > both will feel better soon. It does seem odd when all of a sudden after so > many years you get a symptom like nausea. > Be well...thinking of you and everyone else today... > > Beth > > -Original Message- > From: Myvety2k via CMLHope > To: cmlhope > Sent: Mon, Jan 26, 2015 5:09 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Hi Beth, I'm starting to think it's not the Gleevec that's given me the > nausea because my wife started to get the nausea also. Could be Florida > weather, tree's, flowers, etc. > > greenie > > In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Greenie, Remember, if you do need to swap a TKILots of good options with > low doses because youhave done so well for so long on Gleevec...you > are a warrior. My blood counts are O.K...but I appreciate the anxiety of all > this for all of us..it's one of the harder parts to manage well. Good luck to > you! Beth > > > -Original Message- > From: Joan > To: cmlhope > Sent: Mon, Jan 26, 2015 5:01 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Greenie, > I had to quit Gleevec because it was messing with my kidneys. Now I take > Tasinga. > Joan > >> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >> Hi to my friends in our group, well I've been on Gleevec for 15 years and >> 14 days all of a sudden for the last 4 days I'm having nausea problems. I'm >> taking some promethazine that helps some what but it's not a fun thing. I >> have no idea what started it either. I had this problem before when we >> lived in Springfield, MO. I got over heated and got hit with nausea every >> day for a little more then 2 years then I awoke one morning and it was like >> someone turned off the switch and it was gone. This time of the year it's >> not hot here so I know that's not what caused this problem. >> >> I'm going to take a Gleevec break for a week or two to clean out my system >> and hope that I get back to normal. I did this before about 6 years ago >> when I had a sinus infection and the doctor back in Indiana put me on and >> anabolic that interfered with my Gleevec so we stopped Gleevec for 26 days. >> After getting blood work some cancer cells did show back up in my blood work >> but after stating Gleevec again the next test showed that I was clean again. >> >> My doctor at that time was doctor Tallman and he gave me a call and said >> "well if it worked before it will work again" and that was that. So I have >> my fingers crossed to see what happens. I can't stand this nausea problem, >> my heart goes out to the women that have babies and have to put up with >> nausea. I just hope it's the Gleevec again and not something else. >> My blood counts are O. K. so I'm not worried about that. This does not >> help my anxiety problems >> >> Will keep you all up to date as how things go. >> >> greenie > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the
Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?
Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take the hole pill in makes me sleepy. 1/2 works better but that puts me into low gear. But it does take away the nausea. greenie In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Hi Greenie Sorry to hear you still have your nausea. Have you tried Meclizine ? I find it works better than compozine. My nausea is better since coming off hydrea. I am on my 5th day of ponatinib.I had blood work done yesterday. My WBC came down but the platelets keep going up. Still in the millions (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets daily. My skin is drying out and headaches have returned. This reminds me of Gleevec but it has many side effects. Just have to deal with them as usual. I hope everyone is good this morning. Prayers & Blessings Jeanie 18's 🐠🐠 On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: I all the good news was short termed, I woke up yesterday and the nausea came back so I'm thinking I may have picked up some bug. Grace she's O.K. time will tell. So far this morning I feel find but will see our the rest of the day goes. greenie In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: YEAH FOR GOOD NEWS :) Beth -Original Message- From: Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Tue, Jan 27, 2015 4:59 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Well, I have good news. We both woke up today, Grace was O. K. and later on into the day I'm feeling much better. Tomorrow well tell the truth. I'll let you all know and Thanks for thinking of us both. We all are one hell of a team, we should have our own Superbowl.. greenie In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: maybe you both have a bit of a virus or bug? Hope that's all it is and you both will feel better soon. It does seem odd when all of a sudden after so many years you get a symptom like nausea. Be well...thinking of you and everyone else today... Beth -Original Message- From: Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jan 26, 2015 5:09 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Hi Beth, I'm starting to think it's not the Gleevec that's given me the nausea because my wife started to get the nausea also. Could be Florida weather, tree's, flowers, etc. greenie In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Greenie, Remember, if you do need to swap a TKILots of good options with low doses because you have done so well for so long on Gleevec...you are a warrior. My blood counts are O.K...but I appreciate the anxiety of all this for all of us..it's one of the harder parts to manage well. Good luck to you! Beth -Original Message- From: Joan <_lilako19@gmail.com_ (mailto:lilak...@gmail.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jan 26, 2015 5:01 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Greenie, I had to quit Gleevec because it was messing with my kidneys. Now I take Tasinga. Joan On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: Hi to my friends in our group, well I've been on Gleevec for 15 years and 14 days all of a sudden for the last 4 days I'm having nausea problems. I'm taking some promethazine that helps some what but it's not a fun thing. I have no idea what started it either. I had this problem before when we lived in Springfield, MO. I got over heated and got hit with nausea every day for a little more then 2 years then I awoke one morning and it was like someone turned off the switch and it was gone. This time of the year it's not hot here so I know that's not what caused this problem. I'm going to take a Gleevec break for a week or two to clean out my system and hope that I get back to normal. I did this before about 6 years ago when I had a sinus infection and the doctor back in Indiana put me on and anabolic that interfered with my Gleevec so we stopped Gleevec for 26 days. After getting blood work some cancer cells did show back up in my blood work but after stating Gleevec again the next test showed that I was clean again. My doct
Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?
Kk Greenie. The doctor gave me Proclorperazine. It didn't help me that much but meclizine did. We all have to find what works for us. Good luck and hang in there. Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope > wrote: > > Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take the > hole pill in makes me sleepy. 1/2 works better but that puts me into low > gear. But it does take away the nausea. > > greenie > > In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Hi Greenie > Sorry to hear you still have your nausea. > Have you tried Meclizine ? I find it works better than compozine. My > nausea is better since coming off hydrea. > I am on my 5th day of ponatinib.I had blood work done yesterday. > My WBC came down but the platelets keep going up. Still in the millions > (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets > daily. > My skin is drying out and headaches have returned. This reminds me of > Gleevec but it has many side effects. > Just have to deal with them as usual. > I hope everyone is good this morning. > > > Prayers & Blessings Jeanie 18's 🐠🐠 > >> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope >> wrote: >> >> I all the good news was short termed, I woke up yesterday and the nausea >> came back so I'm thinking I may have picked up some bug. Grace she's O.K. >> time will tell. So far this morning I feel find but will see our the rest of >> the day goes. >> >> greenie >> >> In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> YEAH FOR GOOD NEWS :) Beth >> >> >> -Original Message- >> From: Myvety2k via CMLHope >> To: cmlhope >> Sent: Tue, Jan 27, 2015 4:59 pm >> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >> >> Well, I have good news. We both woke up today, Grace was O. K. and later on >> into the day I'm feeling much better. Tomorrow well tell the truth. I'll >> let you all know and Thanks for thinking of us both. We all are one hell of >> a team, we should have our own Superbowl.. >> >> greenie >> >> In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, >> cmlhope@googlegroups.comwrites: >> maybe you both have a bit of a virus or bug? Hope that's all it is and you >> both will feel better soon. It does seem odd when all of a sudden after so >> many years you get a symptom like nausea. >> Be well...thinking of you and everyone else today... >> >> Beth >> >> -Original Message- >> From: Myvety2k via CMLHope >> To: cmlhope >> Sent: Mon, Jan 26, 2015 5:09 pm >> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >> >> Hi Beth, I'm starting to think it's not the Gleevec that's given me the >> nausea because my wife started to get the nausea also. Could be Florida >> weather, tree's, flowers, etc. >> >> greenie >> >> In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> Greenie, Remember, if you do need to swap a TKILots of good options with >> low doses because you have done so well for so long on Gleevec...you are a >> warrior. My blood counts are O.K...but I appreciate the anxiety of all this >> for all of us..it's one of the harder parts to manage well. Good luck to >> you! Beth >> >> >> -Original Message- >> From: Joan >> To: cmlhope >> Sent: Mon, Jan 26, 2015 5:01 pm >> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >> >> Greenie, >> I had to quit Gleevec because it was messing with my kidneys. Now I take >> Tasinga. >> Joan >> >>> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >>> Hi to my friends in our group, well I've been on Gleevec for 15 years and >>> 14 days all of a sudden for the last 4 days I'm having nausea problems. >>> I'm taking some promethazine that helps some what but it's not a fun thing. >>> I have no idea what started it either. I had this problem before when we >>> lived in Springfield, MO. I got over heated and got hit with nausea every >>> day for a little more then 2 years then I awoke one morning and it was like >>> someone turned off the switch and it was gone. This time of the year it's >>> not hot here so I know that's not what caused this problem. >>> >>> I'm going to take a Gleevec break for a week or two to clean out my system >>> and hope that I get back to normal. I did this before about 6 years ago >>> when I had a sinus infection and the doctor back in Indiana put me on and >>> anabolic that interfered with my Gleevec so we stopped Gleevec >>> for 26 days. After getting blood work some cancer cells did show back up >>> in my blood work but after stating Gleevec again the next test showed that >>> I was clean again. >>> >>> My doctor at that
[CMLHope] Update Jeanie's blood counts
Hi all, The following counts were all high on latest blood test: RDW 62.5 Platelet counts 1535 Basophils Auto 0.30 k/ul Immature Gran Auto 0.34 k/ul Potassium 5.6 Bun 25 mg/dl Creatine 1.1 Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 8:00 AM, Icandoallttc wrote: > > Kk Greenie. > The doctor gave me Proclorperazine. It didn't help me that much but > meclizine did. We all have to find what works for us. Good luck and hang > in there. > > Prayers & Blessings Jeanie 18's 🐠🐠 > >> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope >> wrote: >> >> Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take the >> hole pill in makes me sleepy. 1/2 works better but that puts me into low >> gear. But it does take away the nausea. >> >> greenie >> >> In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> Hi Greenie >> Sorry to hear you still have your nausea. >> Have you tried Meclizine ? I find it works better than compozine. My >> nausea is better since coming off hydrea. >> I am on my 5th day of ponatinib.I had blood work done yesterday. >> My WBC came down but the platelets keep going up. Still in the millions >> (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets >> daily. >> My skin is drying out and headaches have returned. This reminds me of >> Gleevec but it has many side effects. >> Just have to deal with them as usual. >> I hope everyone is good this morning. >> >> >> Prayers & Blessings Jeanie 18's 🐠🐠 >> >>> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope >>> wrote: >>> >>> I all the good news was short termed, I woke up yesterday and the nausea >>> came back so I'm thinking I may have picked up some bug. Grace she's O.K. >>> time will tell. So far this morning I feel find but will see our the rest >>> of the day goes. >>> >>> greenie >>> >>> In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> YEAH FOR GOOD NEWS :) Beth >>> >>> >>> -Original Message- >>> From: Myvety2k via CMLHope >>> To: cmlhope >>> Sent: Tue, Jan 27, 2015 4:59 pm >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>> >>> Well, I have good news. We both woke up today, Grace was O. K. and later >>> on into the day I'm feeling much better. Tomorrow well tell the truth. >>> I'll let you all know and Thanks for thinking of us both. We all are one >>> hell of a team, we should have our own Superbowl.. >>> >>> greenie >>> >>> In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> maybe you both have a bit of a virus or bug? Hope that's all it is and you >>> both will feel better soon. It does seem odd when all of a sudden after so >>> many years you get a symptom like nausea. >>> Be well...thinking of you and everyone else today... >>> >>> Beth >>> >>> -Original Message- >>> From: Myvety2k via CMLHope >>> To: cmlhope >>> Sent: Mon, Jan 26, 2015 5:09 pm >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>> >>> Hi Beth, I'm starting to think it's not the Gleevec that's given me the >>> nausea because my wife started to get the nausea also. Could be Florida >>> weather, tree's, flowers, etc. >>> >>> greenie >>> >>> In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> Greenie, Remember, if you do need to swap a TKILots of good options >>> with low doses because you have done so well for so long on Gleevec...you >>> are a warrior. My blood counts are O.K...but I appreciate the anxiety of >>> all this for all of us..it's one of the harder parts to manage well. Good >>> luck to you! Beth >>> >>> >>> -Original Message- >>> From: Joan >>> To: cmlhope >>> Sent: Mon, Jan 26, 2015 5:01 pm >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>> >>> Greenie, >>> I had to quit Gleevec because it was messing with my kidneys. Now I take >>> Tasinga. >>> Joan >>> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: Hi to my friends in our group, well I've been on Gleevec for 15 years and 14 days all of a sudden for the last 4 days I'm having nausea problems. I'm taking some promethazine that helps some what but it's not a fun thing. I have no idea what started it either. I had this problem before when we lived in Springfield, MO. I got over heated and got hit with nausea every day for a little more then 2 years then I awoke one morning and it was like someone turned off the switch and it was gone. This time of the year it's not hot here so I know that's not what caused this problem. I'm going to take a Gleevec break for a week or two to clean out my system and hope that I get back to normal.
Re: [CMLHope] Update Jeanie's blood counts
Hi Jeanie, I'm sure that after a period of time the count will get better. I wish I had your creatine mine is always between 1.3 to 1.56. Hang in their things Will Work Out for you. I'll be thinking of you. greenie In a message dated 1/30/2015 12:38:37 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Hi all, The following counts were all high on latest blood test: RDW 62.5 Platelet counts 1535 Basophils Auto 0.30 k/ul Immature Gran Auto 0.34 k/ul Potassium 5.6 Bun 25 mg/dl Creatine 1.1 Prayers & Blessings Jeanie 18's 🐠🐠 On Jan 30, 2015, at 8:00 AM, Icandoallttc <_icandoallttc@aol.com_ (mailto:icandoall...@aol.com) > wrote: Kk Greenie. The doctor gave me Proclorperazine. It didn't help me that much but meclizine did. We all have to find what works for us. Good luck and hang in there. Prayers & Blessings Jeanie 18's 🐠🐠 On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take the hole pill in makes me sleepy. 1/2 works better but that puts me into low gear. But it does take away the nausea. greenie In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Hi Greenie Sorry to hear you still have your nausea. Have you tried Meclizine ? I find it works better than compozine. My nausea is better since coming off hydrea. I am on my 5th day of ponatinib.I had blood work done yesterday. My WBC came down but the platelets keep going up. Still in the millions (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets daily. My skin is drying out and headaches have returned. This reminds me of Gleevec but it has many side effects. Just have to deal with them as usual. I hope everyone is good this morning. Prayers & Blessings Jeanie 18's 🐠🐠 On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: I all the good news was short termed, I woke up yesterday and the nausea came back so I'm thinking I may have picked up some bug. Grace she's O.K. time will tell. So far this morning I feel find but will see our the rest of the day goes. greenie In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: YEAH FOR GOOD NEWS :) Beth -Original Message- From: Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Tue, Jan 27, 2015 4:59 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Well, I have good news. We both woke up today, Grace was O. K. and later on into the day I'm feeling much better. Tomorrow well tell the truth. I'll let you all know and Thanks for thinking of us both. We all are one hell of a team, we should have our own Superbowl.. greenie In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: maybe you both have a bit of a virus or bug? Hope that's all it is and you both will feel better soon. It does seem odd when all of a sudden after so many years you get a symptom like nausea. Be well...thinking of you and everyone else today... Beth -Original Message- From: Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jan 26, 2015 5:09 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Hi Beth, I'm starting to think it's not the Gleevec that's given me the nausea because my wife started to get the nausea also. Could be Florida weather, tree's, flowers, etc. greenie In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Greenie, Remember, if you do need to swap a TKILots of good options with low doses because you have done so well for so long on Gleevec...you are a warrior. My blood counts are O.K...but I appreciate the anxiety of all this for all of us..it's one of the harder parts to manage well. Good luck to you! Beth -Original Message- From: Joan <_lilako19@gmail.com_ (mailto:lilak...@gmail.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jan 26, 2015 5:01 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Greenie, I had to quit Gleevec because it was messing with my kidneys. Now I take Tasinga. Joan On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: Hi to my friends in our
Re: [CMLHope] Update Jeanie's blood counts
Thanks for the uplift Greenie. I've got to go back Monday to get it checked again. Yes I hanging in there and good luck to you too! Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 1:22 PM, Myvety2k via CMLHope > wrote: > > Hi Jeanie, I'm sure that after a period of time the count will get better. I > wish I had your creatine mine is always between 1.3 to 1.56. Hang in their > things Will Work Out for you. I'll be thinking of you. > > greenie > > In a message dated 1/30/2015 12:38:37 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > Hi all, > The following counts were all high on latest blood test: > > RDW 62.5 > Platelet counts 1535 > Basophils Auto 0.30 k/ul > Immature Gran Auto 0.34 k/ul > Potassium 5.6 > Bun 25 mg/dl > Creatine 1.1 > > Prayers & Blessings Jeanie 18's 🐠🐠 > >> On Jan 30, 2015, at 8:00 AM, Icandoallttc wrote: >> >> Kk Greenie. >> The doctor gave me Proclorperazine. It didn't help me that much but >> meclizine did. We all have to find what works for us. Good luck and hang >> in there. >> >> Prayers & Blessings Jeanie 18's 🐠🐠 >> >>> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope >>> wrote: >>> >>> Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take >>> the hole pill in makes me sleepy. 1/2 works better but that puts me into >>> low gear. But it does take away the nausea. >>> >>> greenie >>> >>> In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, >>> cmlhope@googlegroups.comwrites: >>> Hi Greenie >>> Sorry to hear you still have your nausea. >>> Have you tried Meclizine ? I find it works better than compozine. My >>> nausea is better since coming off hydrea. >>> I am on my 5th day of ponatinib.I had blood work done yesterday. >>> My WBC came down but the platelets keep going up. Still in the >>> millions (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) >>> tablets daily. >>> My skin is drying out and headaches have returned. This reminds me of >>> Gleevec but it has many side effects. >>> Just have to deal with them as usual. >>> I hope everyone is good this morning. >>> >>> >>> Prayers & Blessings Jeanie 18's 🐠🐠 >>> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope wrote: I all the good news was short termed, I woke up yesterday and the nausea came back so I'm thinking I may have picked up some bug. Grace she's O.K. time will tell. So far this morning I feel find but will see our the rest of the day goes. greenie In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: YEAH FOR GOOD NEWS :) Beth -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Jan 27, 2015 4:59 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Well, I have good news. We both woke up today, Grace was O. K. and later on into the day I'm feeling much better. Tomorrow well tell the truth. I'll let you all know and Thanks for thinking of us both. We all are one hell of a team, we should have our own Superbowl.. greenie In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: maybe you both have a bit of a virus or bug? Hope that's all it is and you both will feel better soon. It does seem odd when all of a sudden after so many years you get a symptom like nausea. Be well...thinking of you and everyone else today... Beth -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 5:09 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Hi Beth, I'm starting to think it's not the Gleevec that's given me the nausea because my wife started to get the nausea also. Could be Florida weather, tree's, flowers, etc. greenie In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, Remember, if you do need to swap a TKILots of good options with low doses because you have done so well for so long on Gleevec...you are a warrior. My blood counts are O.K...but I appreciate the anxiety of all this for all of us..it's one of the harder parts to manage well. Good luck to you! Beth -Original Message- From: Joan To: cmlhope Sent: Mon, Jan 26, 2015 5:01 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Greenie, I had to quit Gleevec because it was messing with my kidneys. Now I take Tasinga. Joan > On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: > Hi to my friends in our group, well
Re: [CMLHope] Update Jeanie's blood counts
Hi Jeanie, Could you clarify something? Your platelets are ??? by chance did you leave out the period? Your Creation is very good, I wish that mine were that low. Mine was at the last count 9.8. That is why I am on dialysis. By the way, the rest of your counts are really not all that bad. 18's, Marty On Fri, Jan 30, 2015 at 12:38 PM, 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> wrote: > > Hi all, > The following counts were all high on latest blood test: > > RDW 62.5 > Platelet counts 1535 > Basophils Auto 0.30 k/ul > Immature Gran Auto 0.34 k/ul > Potassium 5.6 > Bun 25 mg/dl > Creatine 1.1 > > Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] > > On Jan 30, 2015, at 8:00 AM, Icandoallttc wrote: > > Kk Greenie. > The doctor gave me Proclorperazine. It didn't help me that much but > meclizine did. We all have to find what works for us. Good luck and hang > in there. > > Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] > > On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope < > cmlhope@googlegroups.com> wrote: > > Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take > the hole pill in makes me sleepy. 1/2 works better but that puts me into > low gear. But it does take away the nausea. > > greenie > > In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > Hi Greenie > Sorry to hear you still have your nausea. > Have you tried Meclizine ? I find it works better than compozine. My > nausea is better since coming off hydrea. > I am on my 5th day of ponatinib.I had blood work done yesterday. > My WBC came down but the platelets keep going up. Still in the millions > (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets > daily. > My skin is drying out and headaches have returned. This reminds me of > Gleevec but it has many side effects. > Just have to deal with them as usual. > I hope everyone is good this morning. > > > Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] > > On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope < > cmlhope@googlegroups.com> wrote: > > I all the good news was short termed, I woke up yesterday and the > nausea came back so I'm thinking I may have picked up some bug. Grace > she's O.K. time will tell. So far this morning I feel find but will see our > the rest of the day goes. > > greenie > > In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > YEAH FOR GOOD NEWS :) Beth > > > -Original Message- > From: Myvety2k via CMLHope > To: cmlhope > Sent: Tue, Jan 27, 2015 4:59 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Well, I have good news. We both woke up today, Grace was O. K. and > later on into the day I'm feeling much better. Tomorrow well tell the > truth. I'll let you all know and Thanks for thinking of us both. We all > are one hell of a team, we should have our own Superbowl.. > > greenie > > In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > maybe you both have a bit of a virus or bug? Hope that's all it is and you > both will feel better soon. It does seem odd when all of a sudden after so > many years you get a symptom like nausea. > Be well...thinking of you and everyone else today... > > Beth > > -Original Message- > From: Myvety2k via CMLHope > To: cmlhope > Sent: Mon, Jan 26, 2015 5:09 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Hi Beth, I'm starting to think it's not the Gleevec that's given me the > nausea because my wife started to get the nausea also. Could be Florida > weather, tree's, flowers, etc. > > greenie > > In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > Greenie, Remember, if you do need to swap a TKILots of good options > with low doses because you have done so well for so long on Gleevec...you > are a warrior. My blood counts are O.K...but I appreciate the anxiety of > all this for all of us..it's one of the harder parts to manage well. Good > luck to you! Beth > > > -Original Message- > From: Joan > To: cmlhope > Sent: Mon, Jan 26, 2015 5:01 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Greenie, > I had to quit Gleevec because it was messing with my kidneys. Now I take > Tasinga. > Joan > > On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >> >> Hi to my friends in our group, well I've been on Gleevec for 15 years >> and 14 days all of a sudden for the last 4 days I'm having nausea >> problems. I'm taking some promethazine that helps some what but it's not a >> fun thing. I have no idea what started it either. I had this problem >> before when we lived in Springfield, MO. I got over heated and got hit with >> nausea every day for a little more then 2 years then I awoke one morning >> and
Re: [CMLHope] Update Jeanie's blood counts
Oh sorry Marty They are listed as C1535 k/ul Since he told me they were in the millions I assume this is millions. I hope the new med starts bringing them down. He lowered my allopurinol to 100 mgs daily. How are you? Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 3:02 PM, Marty Gartenberg wrote: > > Hi Jeanie, > > Could you clarify something? Your platelets are ??? by chance did you leave > out the period? > > Your Creation is very good, I wish that mine were that low. Mine was at the > last count 9.8. That is why I am on dialysis. > > By the way, the rest of your counts are really not all that bad. > > 18's, > > Marty > >> On Fri, Jan 30, 2015 at 12:38 PM, 'Icandoallttc' via CMLHope >> wrote: >> >> Hi all, >> The following counts were all high on latest blood test: >> >> RDW 62.5 >> Platelet counts 1535 >> Basophils Auto 0.30 k/ul >> Immature Gran Auto 0.34 k/ul >> Potassium 5.6 >> Bun 25 mg/dl >> Creatine 1.1 >> >> Prayers & Blessings Jeanie 18's >> >>> On Jan 30, 2015, at 8:00 AM, Icandoallttc wrote: >>> >>> Kk Greenie. >>> The doctor gave me Proclorperazine. It didn't help me that much but >>> meclizine did. We all have to find what works for us. Good luck and hang >>> in there. >>> >>> Prayers & Blessings Jeanie 18's >>> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope wrote: Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take the hole pill in makes me sleepy. 1/2 works better but that puts me into low gear. But it does take away the nausea. greenie In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Hi Greenie Sorry to hear you still have your nausea. Have you tried Meclizine ? I find it works better than compozine. My nausea is better since coming off hydrea. I am on my 5th day of ponatinib.I had blood work done yesterday. My WBC came down but the platelets keep going up. Still in the millions (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets daily. My skin is drying out and headaches have returned. This reminds me of Gleevec but it has many side effects. Just have to deal with them as usual. I hope everyone is good this morning. Prayers & Blessings Jeanie 18's > On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope > wrote: > > I all the good news was short termed, I woke up yesterday and the nausea > came back so I'm thinking I may have picked up some bug. Grace she's > O.K. time will tell. So far this morning I feel find but will see our the > rest of the day goes. > > greenie > > In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > YEAH FOR GOOD NEWS :) Beth > > > -Original Message- > From: Myvety2k via CMLHope > To: cmlhope > Sent: Tue, Jan 27, 2015 4:59 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Well, I have good news. We both woke up today, Grace was O. K. and later > on into the day I'm feeling much better. Tomorrow well tell the truth. > I'll let you all know and Thanks for thinking of us both. We all are one > hell of a team, we should have our own Superbowl.. > > greenie > > In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > maybe you both have a bit of a virus or bug? Hope that's all it is and > you both will feel better soon. It does seem odd when all of a sudden > after so many years you get a symptom like nausea. > Be well...thinking of you and everyone else today... > > Beth > > -Original Message- > From: Myvety2k via CMLHope > To: cmlhope > Sent: Mon, Jan 26, 2015 5:09 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Hi Beth, I'm starting to think it's not the Gleevec that's given me the > nausea because my wife started to get the nausea also. Could be Florida > weather, tree's, flowers, etc. > > greenie > > In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Greenie, Remember, if you do need to swap a TKILots of good options > with low doses because you have done so well for so long on Gleevec...you > are a warrior. My blood counts are O.K...but I appreciate the anxiety of > all this for all of us..it's one of the harder parts to manage well. Good > luck to you! Beth > > > -Original Message- > From: Joan > To: cmlhope > Sent: Mon, Jan 26, 2015 5:01 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on
Re: [CMLHope] Update Jeanie's blood counts
Hi Jeanie, That's right it is in the millions. Allopurinol is not what will bring this down it is Hydrea that will do that. Don't worry this will all work out. I remember whenever I took a blood test I used to sweat until I got the results and when I finally got the results back I just had to deal with it so my Hydrea was either reduced or I was told to take more. It is just a process that you have to go through but like I said don't you worry anything about it. Please remember what you take today will usually show up in a blood test in about a week or so. GOD is looking down on you with a smile. Now how can you beat that?[?]Hugs Jeanie. 18, Marty On Fri, Jan 30, 2015 at 3:20 PM, 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> wrote: > Oh sorry Marty > They are listed as > C1535 k/ul > Since he told me they were in the millions I assume this is millions. > I hope the new med starts bringing them down. > He lowered my allopurinol to 100 mgs daily. > How are you? > > > Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] > > On Jan 30, 2015, at 3:02 PM, Marty Gartenberg wrote: > > Hi Jeanie, > > Could you clarify something? Your platelets are ??? by chance did you > leave out the period? > > Your Creation is very good, I wish that mine were that low. Mine was at > the last count 9.8. That is why I am on dialysis. > > By the way, the rest of your counts are really not all that bad. > > 18's, > > Marty > > On Fri, Jan 30, 2015 at 12:38 PM, 'Icandoallttc' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> >> Hi all, >> The following counts were all high on latest blood test: >> >> RDW 62.5 >> Platelet counts 1535 >> Basophils Auto 0.30 k/ul >> Immature Gran Auto 0.34 k/ul >> Potassium 5.6 >> Bun 25 mg/dl >> Creatine 1.1 >> >> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] >> >> On Jan 30, 2015, at 8:00 AM, Icandoallttc wrote: >> >> Kk Greenie. >> The doctor gave me Proclorperazine. It didn't help me that much but >> meclizine did. We all have to find what works for us. Good luck and hang >> in there. >> >> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] >> >> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I >> take the hole pill in makes me sleepy. 1/2 works better but that puts me >> into low gear. But it does take away the nausea. >> >> greenie >> >> In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> >> Hi Greenie >> Sorry to hear you still have your nausea. >> Have you tried Meclizine ? I find it works better than compozine. My >> nausea is better since coming off hydrea. >> I am on my 5th day of ponatinib.I had blood work done yesterday. >> My WBC came down but the platelets keep going up. Still in the millions >> (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets >> daily. >> My skin is drying out and headaches have returned. This reminds me of >> Gleevec but it has many side effects. >> Just have to deal with them as usual. >> I hope everyone is good this morning. >> >> >> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] >> >> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> I all the good news was short termed, I woke up yesterday and the >> nausea came back so I'm thinking I may have picked up some bug. Grace >> she's O.K. time will tell. So far this morning I feel find but will see our >> the rest of the day goes. >> >> greenie >> >> In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> >> YEAH FOR GOOD NEWS :) Beth >> >> >> -Original Message- >> From: Myvety2k via CMLHope >> To: cmlhope >> Sent: Tue, Jan 27, 2015 4:59 pm >> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >> >> Well, I have good news. We both woke up today, Grace was O. K. and >> later on into the day I'm feeling much better. Tomorrow well tell the >> truth. I'll let you all know and Thanks for thinking of us both. We all >> are one hell of a team, we should have our own Superbowl.. >> >> greenie >> >> In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> >> maybe you both have a bit of a virus or bug? Hope that's all it is and >> you both will feel better soon. It does seem odd when all of a sudden after >> so many years you get a symptom like nausea. >> Be well...thinking of you and everyone else today... >> >> Beth >> >> -Original Message- >> From: Myvety2k via CMLHope >> To: cmlhope >> Sent: Mon, Jan 26, 2015 5:09 pm >> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >> >> Hi Beth, I'm starting to think it's not the Gleevec that's given me the >> nausea because my wife started to get the nausea also. Could be Florida >> weather, tree's, flowers, etc. >> >> greenie >
Re: [CMLHope] Update Jeanie's blood counts
Dear Jeanie, Will surely be praying for you. Don't panic, and don't even be anxious! Worry accomplishes nothing except wasting time. I have not been on lately cuz of my own battles. We have God on our side, like Marty says! Loved that emoticon of him hugging you!!! Here's my only way.<<>>> That is lots of hugs. Blessings and 18, Susan -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Fri, Jan 30, 2015 1:22 pm Subject: Re: [CMLHope] Update Jeanie's blood counts Hi Jeanie, I'm sure that after a period of time the count will get better. I wish I had your creatine mine is always between 1.3 to 1.56. Hang in their things Will Work Out for you. I'll be thinking of you. greenie In a message dated 1/30/2015 12:38:37 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Hi all, The following counts were all high on latest blood test: RDW 62.5 Platelet counts 1535 Basophils Auto 0.30 k/ul Immature Gran Auto 0.34 k/ul Potassium 5.6 Bun 25 mg/dl Creatine 1.1 Prayers & Blessings Jeanie 18's On Jan 30, 2015, at 8:00 AM, Icandoallttcwrote: Kk Greenie. The doctor gave me Proclorperazine. It didn't help me that much but meclizine did. We all have to find what works for us. Good luck and hang in there. Prayers & Blessings Jeanie 18's On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope wrote: Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take the hole pill in makes me sleepy. 1/2 works better but that puts me into low gear. But it does take away the nausea. greenie In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Hi Greenie Sorry to hear you still have your nausea. Have you tried Meclizine ? I find it works better than compozine. My nausea is better since coming off hydrea. I am on my 5th day of ponatinib.I had blood work done yesterday. My WBC came down but the platelets keep going up. Still in the millions (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets daily. My skin is drying out and headaches have returned. This reminds me of Gleevec but it has many side effects. Just have to deal with them as usual. I hope everyone is good this morning. Prayers & Blessings Jeanie 18's On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope wrote: I all the good news was short termed, I woke up yesterday and the nausea came back so I'm thinking I may have picked up some bug. Grace she's O.K. time will tell. So far this morning I feel find but will see our the rest of the day goes. greenie In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: YEAH FOR GOOD NEWS :) Beth -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Jan 27, 2015 4:59 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Well, I have good news. We both woke up today, Grace was O. K. and later on into the day I'm feeling much better. Tomorrow well tell the truth. I'll let you all know and Thanks for thinking of us both. We all are one hell of a team, we should have our own Superbowl.. greenie In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: maybe you both have a bit of a virus or bug? Hope that's all it is and you both will feel better soon. It does seem odd when all of a sudden after so many years you get a symptom like nausea. Be well...thinking of you and everyone else today... Beth -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 5:09 pm Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? Hi Beth, I'm starting to think it's not the Gleevec that's given me the nausea because my wife started to get the nausea also. Could be Florida weather, tree's, flowers, etc. greenie
