date:20160321

Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

2016-03-21 Thread Marty Gartenberg

Hi Susan,

Yes I am finally home. Left the hospital at 3:00 PM and it took my wife
about one hour to drive back home. The pacemaker is in and adjusted and
fine tuned. Amazing how these work. No more fainting spells which only
would last for only 2 seconds so I haven't actually fainted. I was always
been able to keep my eyes open and hear as well as even hearing and talking
  Have some pain where they made the incision but some Tylenol PM should
help me sleep, nothing I can't handle.

Thank you for asking about me.

18's,

Marty

On Mon, Mar 21, 2016 at 7:25 PM, 'Susan Zimmerman' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Love you to pieces, Marty! Hope you comfortably home by now. An update for
> me, please!
>
> 18's,
>
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing,
> and shall have wonderful peace." Ps.37:11
> --
> On Monday, March 21, 2016 Myvety2k via CMLHope 
> wrote:
> Marty, got my fingers crossed.
>
> greenie
>
> In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time,
> wa2...@gmail.com writes:
>
> Hi Beth,
>
> I am actually still in the hospital but maybe today I will be getting out
> just have to wait for the doctors when they make their rounds. I will keep
> everyone updated.
>
> 18's,
>
> Marty
>
> bkbarney via CMLHope  wrote:
> Dear Marty,
> So glad you are out of the hospital! And Peg, you are so right about what
> you said to Jeanie...Hope everyone is doing as well as possible. Thinking
> of all of you...love, and 18's Beth
>
> -Original Message-
> From: 'Icandoallttc' via CMLHope 
> To: peg 
> Cc: CMLHope 
> Sent: Fri, Mar 18, 2016 11:19 am
> Subject: [CMLHope] Re: Dizzy all day
>
> Thanks Peg,
> You are so right.  I was reading the side effects of ponatinib and i was
> thinking I have to take this??!
> Well yes I do and blood clots and heart problems are right up there high
> on the list.
> My potassium tends to be high also and you can get heart problems from
> that.
> Just have to fight on and thanks again.
>
>
>
> My Motto: Faith and Pills❤️
> With Jeanie 18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Mar 18, 2016, at 12:00 PM, peg  wrote:
>
>
> Hi Jeanie,
>
> I was traveling on business this week and just checked in and am wondering
> if you are feeling better?
>
> I had to caution another cancer patient recently not to write off sudden
> changes as normal...caused by treatment, age, etc.  The new generation of
> meds to treat CML and other cancers can have side effects that can be
> deadly if not caught in time.  Sprycel was a really good example of this.
> Prior to the FDA warning that it can cause deadly pulmonary hypertension no
> one was paying attention to folks that were already on it.  When one of our
> CML warriors started feeling weak and dizzy, even her doctor dismissed it,
> for months, until she collapsed and woke up in the cardiac care unit.  She
> almost died, and had a long road to recovery. Her spreading the word saved
> other lives!   Everyone should know their meds, know what the symptoms are
> of the dangerous side effects and alert their doctor if those symptoms
> present. It doesn't hurt to tell the doctor you are concerned it is a side
> effect of your meds, you would be surprised how many doctors are not
> familiar with the side effects of the meds they are prescribing!
>
> I think those of us living with cancer or any other chronic disease are
> kind of stoic and don't whine a lot...but sometimes we should.
>
> *Note to Marty...since I am sure you are reading this...you are in my
> prayers!!*
>
> Fight on,
> Peg
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
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Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

2016-03-21 Thread 'Susan Zimmerman' via CMLHope

Love you to pieces, Marty! Hope you comfortably home by now. An update for me, 
please!

18's,

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Monday, March 21, 2016 Myvety2k via CMLHope  wrote:

Marty, got my fingers crossed.

 

greenie

 

In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, 
wa2...@gmail.com writes:

Hi Beth, 

I am actually still in the hospital but maybe today I will be getting out just 
have to wait for the doctors when they make their rounds. I will keep everyone 
updated.

18's,

Marty

bkbarney via CMLHope  wrote:
Dear Marty, 

So glad you are out of the hospital! And Peg, you are so right about what you 
said to Jeanie...Hope everyone is doing as well as possible. Thinking of all of 
you...love, and 18's Beth

-Original Message-

From: 'Icandoallttc' via CMLHope 
To: peg 
Cc: CMLHope 
Sent: Fri, Mar 18, 2016 11:19 am
Subject: [CMLHope] Re: Dizzy all day

Thanks Peg,

You are so right.  I was reading the side effects of ponatinib and i was 
thinking I have to take this??!

Well yes I do and blood clots and heart problems are right up there high on the 
list. 

My potassium tends to be high also and you can get heart problems from that. 

Just have to fight on and thanks again. 




My Motto: Faith and Pills❤️ 

With Jeanie 18,s Chi 

Dx 1/2004. CML Leukemia

Started Gleevec 2/2004

Started Tasigna  9/2009

Started Sprycel 11/2009

Started Ponatinib January 2015

Dr Balducci Moffitt Cancer Center


On Mar 18, 2016, at 12:00 PM, peg  wrote:


Hi Jeanie,  


I was traveling on business this week and just checked in and am wondering if 
you are feeling better?  


I had to caution another cancer patient recently not to write off sudden 
changes as normal...caused by treatment, age, etc.  The new generation of meds 
to treat CML and other cancers can have side effects that can be deadly if not 
caught in time.  Sprycel was a really good example of this. Prior to the FDA 
warning that it can cause deadly pulmonary hypertension no one was paying 
attention to folks that were already on it.  When one of our CML warriors 
started feeling weak and dizzy, even her doctor dismissed it, for months, until 
she collapsed and woke up in the cardiac care unit.  She almost died, and had a 
long road to recovery. Her spreading the word saved other lives!   Everyone 
should know their meds, know what the symptoms are of the dangerous side 
effects and alert their doctor if those symptoms present. It doesn't hurt to 
tell the doctor you are concerned it is a side effect of your meds, you would 
be surprised how many doctors are not familiar with the side effects of the 
meds they are prescribing!  


I think those of us living with cancer or any other chronic disease are kind of 
stoic and don't whine a lot...but sometimes we should. 


Note to Marty...since I am sure you are reading this...you are in my prayers!!


Fight on,

Peg

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Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

2016-03-21 Thread 'Icandoallttc' via CMLHope

Prayers Marty!!' ❤️

My Motto: Faith and Pills❤️
With Jeanie 18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 21, 2016, at 10:05 AM, Marty Gartenberg  wrote:
> 
> Thanks
> 
> 18's
> 
> Marty
> 
>> On Monday, March 21, 2016, Myvety2k via CMLHope  
>> wrote:
>> Marty, got my fingers crossed.
>>  
>> greenie
>>  
>> In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, 
>> wa2...@gmail.com writes:
>> Hi Beth, 
>> 
>> I am actually still in the hospital but maybe today I will be getting out 
>> just have to wait for the doctors when they make their rounds. I will keep 
>> everyone updated.
>> 
>> 18's,
>> 
>> Marty
>> 
>> bkbarney via CMLHope  wrote:
>> Dear Marty,
>> So glad you are out of the hospital! And Peg, you are so right about what 
>> you said to Jeanie...Hope everyone is doing as well as possible. Thinking of 
>> all of you...love, and 18's Beth
>> 
>> -Original Message-
>> From: 'Icandoallttc' via CMLHope 
>> To: peg 
>> Cc: CMLHope 
>> Sent: Fri, Mar 18, 2016 11:19 am
>> Subject: [CMLHope] Re: Dizzy all day
>> 
>> Thanks Peg,
>> You are so right.  I was reading the side effects of ponatinib and i was 
>> thinking I have to take this??!
>> Well yes I do and blood clots and heart problems are right up there high on 
>> the list. 
>> My potassium tends to be high also and you can get heart problems from that. 
>> Just have to fight on and thanks again. 
>> 
>> 
>> 
>> My Motto: Faith and Pills❤️
>> With Jeanie 18,s Chi
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>> 
>> On Mar 18, 2016, at 12:00 PM, peg  wrote:
>> 
>> 
>> Hi Jeanie, 
>> 
>> I was traveling on business this week and just checked in and am wondering 
>> if you are feeling better?  
>> 
>> I had to caution another cancer patient recently not to write off sudden 
>> changes as normal...caused by treatment, age, etc.  The new generation of 
>> meds to treat CML and other cancers can have side effects that can be deadly 
>> if not caught in time.  Sprycel was a really good example of this. Prior to 
>> the FDA warning that it can cause deadly pulmonary hypertension no one was 
>> paying attention to folks that were already on it.  When one of our CML 
>> warriors started feeling weak and dizzy, even her doctor dismissed it, for 
>> months, until she collapsed and woke up in the cardiac care unit.  She 
>> almost died, and had a long road to recovery. Her spreading the word saved 
>> other lives!   Everyone should know their meds, know what the symptoms are 
>> of the dangerous side effects and alert their doctor if those symptoms 
>> present. It doesn't hurt to tell the doctor you are concerned it is a side 
>> effect of your meds, you would be surprised how many doctors are not 
>> familiar with the side effects of the meds they are prescribing!  
>> 
>> I think those of us living with cancer or any other chronic disease are kind 
>> of stoic and don't whine a lot...but sometimes we should.
>> 
>> Note to Marty...since I am sure you are reading this...you are in my 
>> prayers!!
>> 
>> Fight on,
>> Peg
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
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>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>> -- 
>> -- 
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>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
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[CMLHope] Re: CMLHope] Re: Dizzy all day

2016-03-21 Thread Marty Gartenberg

Thanks

18's

Marty

On Monday, March 21, 2016, Myvety2k via CMLHope 
wrote:

> Marty, got my fingers crossed.
>
> greenie
>
> In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time,
> wa2...@gmail.com 
> writes:
>
> Hi Beth,
>
> I am actually still in the hospital but maybe today I will be getting out
> just have to wait for the doctors when they make their rounds. I will keep
> everyone updated.
>
> 18's,
>
> Marty
>
> bkbarney via CMLHope  > wrote:
> Dear Marty,
> So glad you are out of the hospital! And Peg, you are so right about what
> you said to Jeanie...Hope everyone is doing as well as possible. Thinking
> of all of you...love, and 18's Beth
>
> -Original Message-
> From: 'Icandoallttc' via CMLHope  >
> To: peg  >
> Cc: CMLHope  >
> Sent: Fri, Mar 18, 2016 11:19 am
> Subject: [CMLHope] Re: Dizzy all day
>
> Thanks Peg,
> You are so right.  I was reading the side effects of ponatinib and i was
> thinking I have to take this??!
> Well yes I do and blood clots and heart problems are right up there high
> on the list.
> My potassium tends to be high also and you can get heart problems from
> that.
> Just have to fight on and thanks again.
>
>
>
> My Motto: Faith and Pills❤️
> With Jeanie 18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Mar 18, 2016, at 12:00 PM, peg  > wrote:
>
>
> Hi Jeanie,
>
> I was traveling on business this week and just checked in and am wondering
> if you are feeling better?
>
> I had to caution another cancer patient recently not to write off sudden
> changes as normal...caused by treatment, age, etc.  The new generation of
> meds to treat CML and other cancers can have side effects that can be
> deadly if not caught in time.  Sprycel was a really good example of this.
> Prior to the FDA warning that it can cause deadly pulmonary hypertension no
> one was paying attention to folks that were already on it.  When one of our
> CML warriors started feeling weak and dizzy, even her doctor dismissed it,
> for months, until she collapsed and woke up in the cardiac care unit.  She
> almost died, and had a long road to recovery. Her spreading the word saved
> other lives!   Everyone should know their meds, know what the symptoms are
> of the dangerous side effects and alert their doctor if those symptoms
> present. It doesn't hurt to tell the doctor you are concerned it is a side
> effect of your meds, you would be surprised how many doctors are not
> familiar with the side effects of the meds they are prescribing!
>
> I think those of us living with cancer or any other chronic disease are
> kind of stoic and don't whine a lot...but sometimes we should.
>
> *Note to Marty...since I am sure you are reading this...you are in my
> prayers!!*
>
> Fight on,
> Peg
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> 
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
> 
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
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>
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Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

2016-03-21 Thread Myvety2k via CMLHope

Marty, got my fingers crossed.
 
greenie
 
 
In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

Hi Beth,  

I am actually still in the hospital but maybe today I will be getting  out 
just have to wait for the doctors when they make their rounds. I will keep  
everyone updated.

18's,

Marty

bkbarney via CMLHope   wrote:
Dear Marty,  
So glad you are out of the hospital! And Peg, you are so right about what  
you said to Jeanie...Hope everyone is doing as well as possible. Thinking of 
 all of you...love, and 18's Beth

-Original  Message-
From: 'Icandoallttc' via CMLHope  
To: peg 
Cc:  CMLHope 
Sent: Fri, Mar 18, 2016 11:19  am
Subject: [CMLHope] Re: Dizzy all day


 
Thanks Peg,
You are so right.  I was reading the side effects of ponatinib and i  was 
thinking I have to take this??!
Well yes I do and blood clots and heart problems are right up there high  
on the list. 
My potassium tends to be high also and you can get heart problems from  
that. 
Just have to fight on and thanks again. 




My Motto: Faith and Pills❤️  
With Jeanie 18,s Chi  
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center



On Mar 18, 2016, at 12:00 PM, peg <_peg.hss@live.com_ 
(mailto:peg@live.com) > wrote:





Hi Jeanie,   


I was traveling on business this week and just checked in and am  wondering 
if you are feeling better?  


I had to caution another cancer patient recently not to write off  sudden 
changes as normal...caused by treatment, age, etc.  The new  generation of 
meds to treat CML and other cancers can have side effects that  can be deadly 
if not caught in time.  Sprycel was a really good example  of this. Prior to 
the FDA warning that it can cause deadly pulmonary  hypertension no one was 
paying attention to folks that were already on it.  When one of our CML 
warriors started feeling weak and dizzy, even her  doctor dismissed it, for 
months, until she collapsed and woke up in the  cardiac care unit.  She almost 
died, and had a long road to recovery.  Her spreading the word saved other 
lives!   Everyone should know their  meds, know what the symptoms are of the 
dangerous side effects and alert  their doctor if those symptoms present. It 
doesn't hurt to tell the doctor  you are concerned it is a side effect of 
your meds, you would be surprised  how many doctors are not familiar with the 
side effects of the meds they are  prescribing!  


I think those of us living with cancer or any other chronic disease are  
kind of stoic and don't whine a lot...but sometimes we should.  


Note to Marty...since I am sure you are reading this...you are in my  
prayers!!


Fight on,
Peg







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[CMLHope] Re: CMLHope] Re: Dizzy all day

2016-03-21 Thread Martin Gartenberg

Hi Beth, 

I am actually still in the hospital but maybe today I will be getting out just 
have to wait for the doctors when they make their rounds. I will keep everyone 
updated.

18's,

Marty

bkbarney via CMLHope  wrote:
>Dear Marty, 
>
>So glad you are out of the hospital! And Peg, you are so right about what you 
>said to Jeanie...Hope everyone is doing as well as possible. Thinking of all 
>of you...love, and 18's Beth
>
>-Original Message-
>From: 'Icandoallttc' via CMLHope 
>To: peg 
>Cc: CMLHope 
>Sent: Fri, Mar 18, 2016 11:19 am
>Subject: [CMLHope] Re: Dizzy all day
>
>Thanks Peg,
>
>You are so right.  I was reading the side effects of ponatinib and i was 
>thinking I have to take this??!
>
>Well yes I do and blood clots and heart problems are right up there high on 
>the list. 
>
>My potassium tends to be high also and you can get heart problems from that. 
>
>Just have to fight on and thanks again. 
>
>
>
>
>My Motto: Faith and Pills❤️ 
>
>With Jeanie 18,s Chi 
>
>Dx 1/2004. CML Leukemia
>
>Started Gleevec 2/2004
>
>Started Tasigna  9/2009
>
>Started Sprycel 11/2009
>
>Started Ponatinib January 2015
>
>Dr Balducci Moffitt Cancer Center
>
>
>On Mar 18, 2016, at 12:00 PM, peg  wrote:
>
>
>Hi Jeanie,  
>
>
>I was traveling on business this week and just checked in and am wondering if 
>you are feeling better?  
>
>
>I had to caution another cancer patient recently not to write off sudden 
>changes as normal...caused by treatment, age, etc.  The new generation of meds 
>to treat CML and other cancers can have side effects that can be deadly if not 
>caught in time.  Sprycel was a really good example of this. Prior to the FDA 
>warning that it can cause deadly pulmonary hypertension no one was paying 
>attention to folks that were already on it.  When one of our CML warriors 
>started feeling weak and dizzy, even her doctor dismissed it, for months, 
>until she collapsed and woke up in the cardiac care unit.  She almost died, 
>and had a long road to recovery. Her spreading the word saved other lives!   
>Everyone should know their meds, know what the symptoms are of the dangerous 
>side effects and alert their doctor if those symptoms present. It doesn't hurt 
>to tell the doctor you are concerned it is a side effect of your meds, you 
>would be surprised how many doctors are not familiar with the side effects of 
>the meds they are prescribing!  
>
>
>I think those of us living with cancer or any other chronic disease are kind 
>of stoic and don't whine a lot...but sometimes we should. 
>
>
>Note to Marty...since I am sure you are reading this...you are in my prayers!!
>
>
>Fight on,
>
>Peg
>
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>-
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Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

[CMLHope] Re: CMLHope] Re: Dizzy all day

Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

[CMLHope] Re: CMLHope] Re: Dizzy all day

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