[CMLHope] Millie
Hey Millie, you hang in there too! The last few days I've been having a terrible time again with the itch, and along comes lack of sleep with it. I must drive my husband nuts with the scratch-scratch-scratching. I tell him to sleep on his good ear (he doesn't hear well out of one) so he won't hear me!! One would think with all that exercise of scratching I'd lose a pound or two - not. Yup, you're right - we could be far worse off than we are. I'm not complaining, just stating groaning a bit! Hugs, Judy P. in Calgary __ Connect with friends from any web browser - no download required. Try the new Yahoo! Canada Messenger for the Web BETA at http://ca.messenger.yahoo.com/webmessengerpromo.php --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Rash
This sounds silly, but I have a rash you can't see. It's mainly on my upper arms but lately I am itchy on my back as well. My onc says it's from Gleevec (after all these years (7)). I am taking Ranitidine (Zantac) and drinking Mangosteen Juice as well. The combination of the two seems to help. Mangosteen Juice is like an antihistine, but is all natural juices. I tried using Areus but didn't like the side-effects, eventho it was non-drousy. If you want to email me privately here is my address: leukie2...@yahoo.ca. Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Welcome to Phoebe Lynn
I love the name! Congratulations to all. Hugs, Judy P. in Calgary __ Ask a question on any topic and get answers from real people. Go to Yahoo! Answers and share what you know at http://ca.answers.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re muscle spasms, etc.
Ahh, the good old muscle spasms, how could I live without them. Quite nicely, thank you very much. I get them in my feet, my calves, my thighs, my hands and now on the left side of my neck, which proves interesting some times. I've tried everything and nothing helps so I just live with them.I do stretching exercises but then during those exercises the spasms happen as well. I've been on Gleevec for 6.5 years and I'm still here so life is good. Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re Frank being newly dxd
Welcome to the group, Frank. It's a very scary time for you and your family. I was 60 when diagnosed and will be reaching my 7 year CML anniversary in September. I hope Gleevec does for you, what it has done for me - kept me stable all these years. This site is full of very knowledgeable CML'ers who will guide you in this journey. You will no doubt go through some rough times mentally and physically so don't hesitate to contact this group for advice, empathy, suggestions, etc. Remember, no question is a stupid question. I'll let the more knowledgeable members of this group answer the questions you asked. All the best - you are in my thoughts and prayers. Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Jody's son
Hi Jody - I'm another Judy from Canada. It is very devastating when your child becomes ill - you want to take it from them and go through it yourself. We never want to see our children ill or having problems, but that's life and they learn to deal with it in their own way. Sometimes I think we, as mothers, hurt more than they do. With all the drugs for CML he will fit one of them and I'm sure he will be fine. Take some really deep breaths and try and relax a little. I'm a great worrier and I sure don't follow my own advice but I'm learning as I get older (I think). I was diagnosed 6.5 years ago and my family was more upset than I was because I think it really didn't hit me. You will find great advice and comfort with the wonderful people in this group and please, never think any question is stupid - we're here to help where we can and to comfort and console you and your son. Annie has a son who was diagnosed a few years ago at the age of 22 or 23 I think it was. He's doing well now, I believe. Do all the research you can - you're probably living on the computer now getting all the information you can. We all have learned we have to be our own advocates and the better prepared with information, the better off you are. Well, I've rambled on enough - you and your son are in my thoughts and prayers and remember, we're here for you 24 hours a day, 7 days a week. Hugs to you and your son, Judy P. Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Jonathan
It warms my heart to read your post. There is nothing worse than an ill child. You are in my thoughts and prayers. What a brave little guy. Hugs to you, Judy P Hugs, Judy P. in Calgary __ Instant Messaging, free SMS, sharing photos and more... Try the new Yahoo! Canada Messenger at http://ca.beta.messenger.yahoo.com/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Kelly
Kelly, all I can do for you is to put you and your husband in my thoughts and prayers. You're right, when the blankety blank hits the fan, it REALLY hits the fan. When you go on your vacation, I hope you can enjoy yourselves, try to put all your worries in a box while you are there. Easy for me to say, isn't it - I'm not in your shoes. I hope the company will continue to honor your LTD. Hugs, Judy P. Hugs, Judy P. in Calgary __ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re:Skip
Glad to hear you're ok Skip, albiet that your meds are being adjusted. You're a real trooper and I'm one of your Admiration Society members. Have a great New Year. Hugs, Judy P Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Congratulations Suzieq
Hi - way to go! I bet you had a whew moment! Keep up the good work - 5 years here you come. Hugs, Judy P Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Monkey Butt Powder
Well Suzieq, I'm going to try that too. Wonder if the Harley Davidson Motorcycle shop in Calgary carries it? Think I'll put a mask on before I go in and ask!!! Hugs everyone, Judy P. Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] What cruise, Greenie?
Gee, I think we should all go on the same cruise as you, Greenie. We'd have an absolute blast by the sounds of it. Sounds like you are living in Calgary i.e. motorists. If you do the speed limit you have the guy behind you just about in your trunk. I'm always afraid of someone rear ending me. Everyone relies on their brakes far too much. You watch in the rear view mirror when you are stopped for a light and lordy, the speed they are coming you'd swear there's going to be a collision. As for going through yellow and red lights - what are they? I swear everyone in Calgary is color blind - you know, the lights aren't for them nor is the speed. Take care and oh yes, I used Tea Tree dilutable liquid soap (straight) and it worked! Used it because I didn't have any oil and haven't gone out to buy any, Ok, everyone, have a great day. I'm almost finished mucking around with our Christmas Newsletter, which has to be absolutely perfect. I drive my husband nuts I think. Hugs, Judy Hugs, Judy P. in Calgary __ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Thanks again
By gosh I'm going to try the tea tree oil. As I spent most of the night trying to will away the itch, I'm game to try anything. I'm also relieved to know that others have the no can see itch. Have a great day everyone. Hugs, Judy P Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Thanks Greenie, Patrick et al
I hope I didn't miss anyone in thanking you for tips on the itch. I have plastered on Benedryl and it tames the itch slightly. I've used so many things that don't work at all. I think I'm going to have to will away the itch. I see a determatologist next week so we'll see what he has to offer in the way of advice. I can just hear it now, well, just don't scratch. Sometimes my head itches like crazy too but I thought it might be dry scalp, which I don't have. H, something else to blame Gleevec on? Thanks again, everyone. Hugs, Judy P Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] another question re rash
I have areas that itch like crazy but you can't see a rash. There are times I simply can't get the itch to go away and I scratch so much it hurts. Any suggestions? Would you classify this as a can't see rash? Hugs, Judy P __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] You won't want to miss this...................
Hi everyone- I attended a CML Patient Retreat in Calgary last weekend put on by the CML Society of Canada. What a jam packed weekend full of meeting fellow CML'ers (whom I didn't know existed in Calgary). We saw an extremely informative and educational video prepared and presented by the Association, followed by a question and answer period. A local CML Doctor was present to answer our questions in a very relaxed setting. No one felt intimidated and felt free to ask whatever was on their mind regarding CML. What was most amazing was the dinner on Friday night where all these strangers just sat and chatted for over three hours - there were absolutely no quiet moments where we were lost for something to say. I would encourage you to attend the Retreat in Toronto, this coming weekend. I copied and pasted the information for you so if it's not lined up perfectly, it's my fault. If I could, I'd fly to Toronto just to take part in this Retreat as I found it so beneficial and fun. ATTENTION Fellow CMLers CML PATIENT RETREAT The CML Society is inviting patients with CML to join us at a special event where we will be providing general information regarding CML and its monitoring. Following a presentation and a discussion, wellness exercises will be offered to help CML sufferers better manage their day-to-day lives dealing with CML. When: Toronto, Ontario, November 29th and 30th Marriott Courtyard The event schedule is as follows: Friday or Saturday evening 6:00 pm Welcome Dinner Sunday all day 8:30 am Continental Breakfast 9:00 am Presentation – CML – Past, Present and Future PCR Video QA Period with, Dr. J. Lipton (Toronto)) 11:00 am Workshop 12:00 pm Lunch 1:00 pm Group Discussion 2:30 pm Light Snack 2:45 pm Wellness Activities 6:30 pm Next Steps, Close The CML Society invites you to stay overnight at the Marriott Hotel, if needed, at its expense. There are no charges associated with this event. However, you must be registered to participate and you must agree to join in both the Saturday and the Sunday activities. TO REGISTER:Call Fifth Element (the event management group); 1 866 487 7060 extension 209 Speak with Debra to get more information and/or to register. OR Go to The CML Society website: www.cmlsociety.org for more information OR Call the CML Society: 1-866-912-7575 or Cell:1-514-239-5488 Hugs, Judy P. in Calgary Hugs, Judy P. in Calgary __ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re Jeanie and Barium
Hi Jeanie - just remember to drink lots of water after your test to get rid of the barium. Unless they have added something to it to make it soft when you expel it, which is highly unlikely, it hardens rather quickly and it's hard to get rid of (physically). If you are susceptible to constipation you've really got to drink lots of water to get the stuff moving out of your system. Hope all goes well - I'm praying for you. Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Jeanie
My thoughts and prayers are with you Jeanie, as you embark on the tour of another drug. Thank goodness for all the advances in medications for CML - this gives us all hope when things go awry with the present drugs we are on. May Tasigna make you feel so good that you'll feel like a new you. Hugs, Judy P. in Calgary __ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] re BMA Pain
Good morning all - the first BMB/BMA I had was simply put, Brutal and the pain lasted for a few days then went away. The other ones weren't nearly as bad because I had a different onc with a different approach - a much more gentle pair of hands. Don't despair, the ache and pain will go away. Hugs, Judy P. in Calgary __ Ask a question on any topic and get answers from real people. Go to Yahoo! Answers and share what you know at http://ca.answers.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Cam Williams
I am cross posting this request as I really want to target all the groups. I am asking everyone to pray for Cam Williams, like you've never prayed before. He has 50% blast cells even after his second transplant. You may, or may not, remember that Cam and Coralee are a very special young couple to us - we consider them our kids. He really needs a miracle right now so thanks in advance everyone for your prayers. Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] feeling full and dry lips
Goodness gracious, just when I think it's only me, up pop the same side effects I am having. My lips peel all the time and it doesn't matter what I put on them - just thought it was because we live in a dry climate. I always feel full too and don't really want to eat much - just nibble. I'm trying to make myself eat a decent meal and sometimes I succeed, sometimes I don't. Oh well, guess I can survive these side effects, just like the other ones, but it makes me feel better that others are experiencing the same symptoms. Hugs, Judy P. in Calgary __ Get the name you've always wanted @ymail.com or @rocketmail.com! Go to http://ca.promos.yahoo.com/jacko/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[no subject]
Patrick, perhaps you could give me your Mom's phone number and we could have a heart to heart chat! Just kidding. She sounds so much like me. I had to chuckle because that's me through and through. You are always our children no matter how old you are and it's a mother's job to worry, and we do a darned good job of it! When my son and his family is staying with us for a visit, when he and his wife are out for the evening and it's getting late, I still sleep with one eye open. Hugs, Judy P. in Calgary __ Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail. Click on Options in Mail and switch to New Mail today or register for free at http://mail.yahoo.ca --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Cause of CML
Sue, it's a mother thing thinking you might have caused your child to become ill - it's just innate in us mothers. It's hard not to think about it - I know. My daughter has had health problems and always in the back of my mind I question myself, is it because... I still find myself doing that and she's in her 30's now - I guess I'll always do it, no matter now hard I try not to. I do think stress has a lot to do with the CML emerging. At any rate Sue, don't keep beating yourself up - great one to talk aren't I! Hugs, Judy P. __ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Greenie Donna
Greenie - I feel for you feeling this way after 8 years. Somewhere along the line in the last couple of years you didn't get a bug bite of some kind did you? I am getting really hot flashes and sweats off and on - it's definitely not menopause as I've been there, done that and am too old to go into menopause again. Of course, I blame Gleevec, because I don't know what else to blame! I also literally overnight put on 10 pounds and I've been stable weight-wise for 5.5 years on Gleevec. Sorry I don't have some suggestions for you - I hope this passes quickly. Donna - you do not need to feel stupid about anything regarding CML. It's a real learning curve for all of us when first dxd. Actually, it's a learning curve throughout the whole process of taking Gleevec - the learning never stops, really. So, don't ever feel stupid or think you are asking a stupid question, because there is no such thing as a stupid question. I just wish that you have more resources available to guide you and your husband on this journey,. This group if fantastic - the resources here are second to none. You just have to have a doctor who knows what he/she is doing. Things will work out for you and you'll look back and say, we were there once. Take care and all the best of luck, Hugs, Judy P. in Calgary __ Instant Messaging, free SMS, sharing photos and more... Try the new Yahoo! Canada Messenger at http://ca.beta.messenger.yahoo.com/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] re little Bethany
The poor little tyke - she's on my prayer list and will always be. What a heartbreak for the family. Hugs, Judy P. in Calgary __ Get the name you've always wanted @ymail.com or @rocketmail.com today! Go to http://ca.promos.yahoo.com/jacko/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Cam Williams #2 transplant
Cam will be undergoing his second transpslant today in Montreal, Canada. Please keep him in your prayers - this HAS GOT TO WORK. Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] God is sure busy these days
Hi Suzieq - I'll sure add Bethany to my list of prayers. It's so scary, particularly at 5 years old. My heart goes out to the family. I think God must have a prayer chain going these days for everyone - and we are just a small community of cancer patients. He works miracles all the time so let's hope little Bethany and Cam are two miracles this next week. Hugs, Judy P. in Calgary __ Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at http://ca.toolbar.yahoo.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Cam Williams
Hi Everyone - I know I'm cross posting this message, but I want to make sure a multitude of prayers are directed to Cam Williams. Would you please join me in praying for Cam as enters into yet another round of Chemo to slay the dragons before his second transplant (since January) next week. Thank you so much. Cam and Coralee are very important young people to me and my husband. Hugs, Judy P. in Calgary __ Instant Messaging, free SMS, sharing photos and more... Try the new Yahoo! Canada Messenger at http://ca.beta.messenger.yahoo.com/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] re: Bethany
I will certainly pray for little Bethany. It breaks my heart when a little child is involved, or any child of any age for that matter. I too am a believer that things happen for a reason, although sometimes I wonder what the reason is. Hopefully the MRI will come back negative. Hugs, Judy P. in Calgary __ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re Sandy's husband Randy
Dear Sandy, I am so sorry to hear about Randy. What a shock for you. You are in my thoughts and prayers. Hugs, Judy Hugs, Judy P. in Calgary Get a sneak peak at messages with a handy reading pane with All new Yahoo! Mail: http://mail.yahoo.ca --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Chuck
Just to give you more hope -I am 65 and was dxd on September 16, 2002. The first few months were crazy with worry, tests, more tests and getting used to Gleevec. Now, it's just a part of my day, my month, my year - others worry about me more than I do. Don't get me wrong, there are still days when I am very tired, feeling crappy, etc. but I'm here and intend to stick around for a long time yet! Good luck, Chuck, and best wishes to you. You never know how many friends you have until you join this group! Hugs to you, Judy in Calgary Hugs, Judy P. in Calgary Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail. Click on Options in Mail and switch to New Mail today or register for free at http://mail.yahoo.ca --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Fatigue
Ok, I'd like to join the Fatigue Group too. My onc. says that the fatigue is part of Gleevec. Some days I'm really good and have lots of energy and then the next day I'm almost a zombie. I am lucky as I am retired and can put my feet up during the day - my husband encourages me to do this, and I really try. But, on good days I don't want to waste that precious time. I do find that by riding my recumbant bike daily my energy is a bit better but it's getting on the bike and finding the energy to really pedal and raise a sweat that is hard. Whew, just thinking about it right now makes my muscles tired! No matter how you cut it, Gleevec is a strong chemical going into our bodies and our systems are doing a lot of work with that drug. That's my story and I'm stickin' to it. Hugs to all, Judy Hugs, Judy P. in Calgary Get a sneak peak at messages with a handy reading pane with All new Yahoo! Mail: http://mrd.mail.yahoo.com/try_beta?.intl=ca --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] BMB and being knocked out
Hi all, I read all the posts but don't post often - feel I don't have much to add after 5 years of CML. When I have any BMB's I am given a sedative via IV and I agree, that's the only way to go. My first couple were torture and I wasn't willing to go through that again. I haven't had to have a BMB for quite a while because of the PCR's being done - I'll take the latter as long as the test is giving good results! Take care everyone and lots of virtual hugs to all of you, Judy Hugs, Judy P. in Calgary Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail at http://mrd.mail.yahoo.com/try_beta?.intl=ca --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re Going Crazy
Hi Sherri - I agree with everyone else - you are not going crazy. I will be celebrating my fifth anniversary of CML in September and I too have symptoms that plague me. Tight muscles, muscle spasms, fatigue, weight gain, etc. Never once has my oncologist doubted my symptoms - always says it's part of taking Gleevec. As long as I have a decent lifestyle we'll stay with Gleevec. My muscles are getting tighter and tighter in spite of stretching; my muscle spasms are now including my neck. But, I feel I am very lucky and no one should say you should be feeling better by now. I'd like to say to some of these doctors (not mine) out there, have you ever taken this medication? Well, if you haven't don't try to tell me how I should be feeling - you can't know. Even my physiotherapist says the drug is really hard on the muscles. It's my feeling that you can't take a drug like this and come out of it scott free. My gosh it's potent - it's keeping the CML at bay. That's my two cents worth on another very hot day in Calgary, Alberta. Oh yes, I now sweat since I've been on Gleevec - I don't perspire! Hugs to all, Judy Hugs, Judy P. in Calgary Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail at http://mrd.mail.yahoo.com/try_beta?.intl=ca --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Sympathy to Joe
Joe, my thoughts and prayers are with you and your family. Your Dad tried everything to control his CML but sometimes, things just don't work out the way we plan. Thank goodness all the wonderful memories can't be taken away from us. Cherish those memories with your friends and loved ones. Hugs, Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Pat and BMB
Hi Pat - During the first year I had several BMB's but now I only have the PCR bloodwork done. I'm told that's sufficient. There's still part of me that would like to have the BMB done just to double confirm my flat line as my onc. says, but it isn't the hip part of me that wants it! Congratulations -- keep on swallowing our golden magic bullets. Hugs, Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Susan R.
Hi Susan - that's a really tough call and I can see where your husband is coming from - he is undoubtedly worried right to his core. I don't think you are getting the answers you want but if you are tolerating the dosages I sure wouldn't lower it. Are your side effects the cause of why you are trying to make this decision? Hugs, Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re BMB and Suzieq
First of all, congratulations on your three years. Just to make you feel a little better, my onc also says what your onc is saying about the BMB. Sometimes I would feel better if I had one done just to prove that everything is alright but I have to trust him. There's always that bit of uncertainty isn't there? Take care and 'rotsa hugs to you, Suzieq Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re Tinnitus
The freight train in the ears sounds somewhat familiar. If I exercise too hard, when I come up stairs, sometimes if I get up too fast, I get this sound. It sounds like a freight train in the head - a great pulsating sound mimicking a train. I have mentioned this to both my gp and onc and they think it's caused by high blood pressure caused by either the Gleevec or CML. I will be having an echocardiogram in the near future just to make sure my heart is alright as I'm starting to retain fluid more. Hope this helps. Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Gleevec 100 mg pills
Hi all, for what it's worth, when the newer version of Gleevec came out in the 400 mg doses I used it and was sick every time, didn't matter what I tried. I told my onc about it and told him that with the 100 mg pills I was at least able to eat my breakfast slowly, taking a pill about every five minutes. So he switched me back to the 100 mg pills and it makes all the difference in the world. I still feel a little icky for a while but it is so much better than the 400 mg dose. That's my story and I'm stickin' to it! Hugs, Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Thanks Richard
Hi Richard - thanks for your comments. I remember you have come off of Gleevec at times. I would still be scared spitless if that happened to me and I had to come off for any length of time more than a month. I know everyone's systems react differently and who knows, maybe I would remain in remission for quite a while, but let's hope I never have to find out! Thanks again, Hugs, Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] going off Gleevec
Hi everyone. I told my oncologist that the devil in me ( I hope I didn't offend anyone with that statement, but I couldn't think of another word) wanted me to try not taking Gleevec just to see what would happen. He too said that within a month I'd be worse off than I was when first diagnosed. So, I don't want to tempt fate and let any of the little beggars hanging in the wings be allowed to show their little cells. Judy in Calgary Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] re: coming off Gleevec and Lynn Franklin's comments
Lynn, you are so correct in saying there are times when a supervised withdrawal from Gleevec is a necessity. Thankfully that hasn't happened to me - if it did, I'd be a basket case worrying about the outcome. Also, what a memory you have about me smelling the turkeys. Jeepers that's just about four years ago and I had forgotten all about it. Hugs, Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Pacific Pete's Question
Well Pacific Pete (I'm trying to think of something smart to go with my name) it looks like you have raised a really good question. I bet it's going to be brought up to a lot of our onc's. Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Dane, you're a real winner
Dane, Congratulations times a million. It's been a long haul, but you have finally done it. What a happy time for you and your family. You deserve it, as you've fought hard and long for this day. Hugs and love, Judy Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] this is a test
Hi everyone. I am trying this to see if I can post. Hugs to all. Judy in Calgary Hugs, Judy P. in Calgary __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
