[CMLHope] Daniel
I have been a member of this group for 16 years. It has always been a rule to keep the subject on our health issues. You better get this guy Daniel off the site. He is very misinformed - probably gets his info from Fox News and Limbaugh. I will certainly unsubscribe if the site continues with this nonsense. Big D -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: 3 new messages in 2 topics - digest
Ain't Finished Yet: Beautifully said. You should frame this. I have figured out the mystery of life and you stated it precisely. I'll have 14 years under my belt next August (7 years on IFN and 7 years on Gleevec). It has been a journey, and I intend on continuing it. It's all about managing the side-effects and not giving in to it. Get mad at this thing and kick it in the butt! Keep on truckin' y'all. Dave -- Original message -- From: CMLHope group [EMAIL PROTECTED] CMLHope http://groups.google.com/group/CMLHope?hl=en CMLHope@googlegroups.com Today's topics: * MERRY CHRISTMAS HAPPY NEW YEAR ! ! ! - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/5df348e206d389f9?hl= en * Chat Reminder - Tuesday 9:00 PM Eastern - 2 messages, 2 authors http://groups.google.com/group/CMLHope/browse_thread/thread/6c8f84cbe487e142?hl= en == TOPIC: MERRY CHRISTMAS HAPPY NEW YEAR ! ! ! http://groups.google.com/group/CMLHope/browse_thread/thread/5df348e206d389f9?hl= en == == 1 of 1 == Date: Tues, Dec 25 2007 5:14 am From: IAintFinishedYet We are strong. We have made through another year. We have learned a lot in this last year. But life will throw you curve balls. It is a part of life's learning process to help you identify and measure your personal evolution along the way. No matter what experience you may encounter, remember that you always have a choice about the way in which you choose to respond to it. If you become angry, that is your choice. If you lash out, that is your choice. If you allow yourself to become hurt or offended, that is your choice. And if you take the experience in stride and continue to press forward? You guessed it - that too, is your choice. It is through these choices that your life will take its shape. Each time you make a choice, you automatically accept the consequences, both positive and negative that comes with that choice. If you are happy with the direction that your life is moving in, continue to press on at a pace that will continue to move you forward, but also allows you to see adapt to the road ahead. If you are unhappy with your course, know that you are in the driver's seat and that you can choose to slow down, accelerate, put on the brakes or change course at any time you choose to do so. Life is a journey, not a destination. The moment you arrive' will be the very moment in which you discover that there is somewhere else yet to go. To lose control over your journey is to lose yourself. If you get lost along the way, don't be afraid, ashamed, embarrassed or too prideful to pull over and ask for help. Remember: there is always a road map that will lead you to where it is that you are trying to go. Hoping to get to a destination blindly is simply that - hoping blindly. However, charting a course and putting provisions in place almost always ensures a completely different kind of journey. Both are choices. The question is: which path are you currently choosing? No matter the road, I wish you safe travels along the way. Chart your course, prepare for your journey, and ALWAYS follow the signs. May you find peace This Christmas blessings along your way of your New Year journey. I AM A SURVIVOR. . .I AIN'T FINISHED YET ! ! ! K I AIN'T FINISHED YET!!! == TOPIC: Chat Reminder - Tuesday 9:00 PM Eastern http://groups.google.com/group/CMLHope/browse_thread/thread/6c8f84cbe487e142?hl= en == == 1 of 2 == Date: Tues, Dec 25 2007 3:43 pm From: Zavie miller Chat Reminder - Tuesday 9:00 PM Eastern Photo: Back yard this week. == 2 of 2 == Date: Tues, Dec 25 2007 6:51 pm From: Tony Lanoue I see all that snow and I'm so jealous Merry Christmas Tony. - Original Message - From: Zavie miller To: ; Sent: Tuesday, December 25, 2007 6:43 PM Subject: [CMLHope] Chat Reminder - Tuesday 9:00 PM Eastern Chat Reminder - Tuesday 9:00 PM Eastern Photo: Back yard this week. == You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com or visit http://groups.google.com/group/CMLHope?hl=en To unsubscribe from this group, send email to [EMAIL PROTECTED] To change the way
[CMLHope] Re: 4 new messages in 2 topics - digest
Millie Judy: Thanks for your replies. I have been on 37.5mg/day of triamterene for the water retention. I see my Onc. in three weeks. He may decide to boost the triamterene or switch diuretics. I have found that stress at work tightens up the stomach and prevents easy urination even though I only work 6-7 hours per day. I also keep the stomach retention down by watching the salt intake and not overeating. Please let me know what your Docs say. Peace. Dave -- Original message -- From: CMLHope group [EMAIL PROTECTED] CMLHope http://groups.google.com/group/CMLHope?hl=en CMLHope@googlegroups.com Today's topics: * Superb Powerpoint Shows : You will like these - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/83f9a86d13d7bb49?hl= en * Water Retention - 3 messages, 3 authors http://groups.google.com/group/CMLHope/browse_thread/thread/967b77e395820371?hl= en == TOPIC: Superb Powerpoint Shows : You will like these http://groups.google.com/group/CMLHope/browse_thread/thread/83f9a86d13d7bb49?hl= en == == 1 of 1 == Date: Mon, Oct 22 2007 4:57 am From: Ankur Kothari - How do you know as your organisation is learning ow-as-your-organisation-is.html - How Do You Know tml - How Do You Feel Now w.html - How do I use powerpoint to teach erpoint-to-teach.html - How did this happen ppen.html - How could you - How Big Is Wal Mart rt.html - how are you - House of Golf l - hotline - Hotels particuliers pour voyager autrement culiers-pour-voyager.html - Hot lips - Hot Dreaming html - Hot Baloons ml - Horse - Horrible Dolls tml - Horoscope test ml - hope eternal tml - Hop Step Jump l - Hong Kong airport ort.html - Honey - Homour - Hommage Senna ml - Hommage Villeret ret.html - Hommage Princess Diana 2007 diana-2007.html - Hommage Picasso chanson Andrea Bocceli o-chanson-andrea-bocceli.html - Hommage Irene Nolin lin.html - Hommage au bien aime Jesus aime-jesus.html - Hommage a l etre supreme 02 eme-02.html - Hommage a Joe Dassin sin.html - Hommage a Jacques Martin fait le tin-fait-le.html - Hommage a Gregory Lemarchal 30 Avril 2007 emarchal-30-avril-2007.html - Hommage a Gregory Le Petit Ange e-petit-ange.html - hommage a Grace Kelly lly.html - Hommage a avarotti claude i-claude.html - Hommage Monet par Jenny 2007 -jenny-2007.html - Home For A Cat - Home Decoration tion.html - Home computer security and privacy 02 ity-and-privacy-02.html - Home computer security and privacy 01 ity-and-privacy-01.html - Hombourg Montmartre ntmartre.html - Holocaust ml - Hollywood Actress after extreme dieting ess-after-extreme-dieting.html - Hollywood ml - Holidays Safety .html -- Ankur CrIcKeT http://cricketmyreligion.blogspot.com/ Exercise to live forever http://exercisebetterandsafer.blogspot.com/ Indian cricket!!! http://problemsgalore.blogspot.com/ MaKe MoNeY OnLiNe GeT RicH http://getrichonlinefast.blogspot.com/ How to win and influence People http://winpeople.blogspot.com/ Powerpoint Show http://powerpoint-presentation-share.blogspot.com/ Healthy foods!!! http://eattolivehealthy.blogspot.com/ See who is complaining? Aussie gets back from brave Indians. http://thewarofwordscalledrasicm.blogspot.com/ World news you would hate to miss!!! http://worldnewsyouwouldhatetomiss.blogspot.com/ == TOPIC: Water Retention http://groups.google.com/group/CMLHope/browse_thread/thread/967b77e395820371?hl= en == == 1 of 3 == Date: Mon, Oct 22 2007 11:06 am From: Dave Hi Group: I am closing in on my 7th year on Gleevec and have had severe edema since January. I had one gallon of fluid removed after suffering for two months not knowing the cause. The Docs did not think there was anything abnormal. After I insisted on a CAT scan, the water retention was obvious. My Onc changed me from 600mg/day to 400mg. I still have edema in the stomach, but not as bad. I take Tiamterene as a diuretic. Anyone else run into this? Peace. Dave == 2 of 3 == Date: Mon, Oct 22 2007 2:34 pm From: C.M. Houtz Hi Dave I've been on Gleevec about the same amount of time and from time to time experience a lot of water retention. My doctor changed me to Sprycel, but had to many side effects, so after being off of it was put back on a couple of weeks ago. Right now I have such swelling in my legs, feet, stomach and probably other places, but mostly I
[CMLHope] Re: 1 new message in 1 topic - digest
Carl: Well said. As a Vietnam veteran, I understand the folly of our government fabricating an excuse to wage war. How can out leaders be so unconcerned about the welfare our our citizens? Billions spent and wasted lives in Iraq instead of helping the people! Common sense always trumps religious beliefs for me. It's funny that us CMLers and others suffering from cancer and disease along with our love-ones are the ones who want more $ put into research. I am for a reasonable attempt to study stem cells, which includes funding. Peace. Dave (CML 1994) -- Original message -- From: CMLHope group [EMAIL PROTECTED] CMLHope http://groups.google.com/group/CMLHope?hl=en CMLHope@googlegroups.com Today's topics: * New York Times Endorses Stem Cell Research Bill - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/fadf77dbfda3b3c9?hl= en == TOPIC: New York Times Endorses Stem Cell Research Bill http://groups.google.com/group/CMLHope/browse_thread/thread/fadf77dbfda3b3c9?hl= en == == 1 of 1 == Date: Sun, Apr 15 2007 1:46 pm From: Carl Davies Hi, Suzieq: Given that governments waste (in my humble opinion) billions of dollars on silly and oftentimes destructive research, I believe you and I would agree that more should be spent on medical research. Since I believe that embryonic stem cell research is a promising area of inquiry that could eventually save millions of lives, if properly funded, I support it from a medical and scientific point of view. If you are opposed to this promising research on religious grounds then I cannot argue the matter with you, because that is a matter of faith, not science. And there are many prominent religious leaders and theologians who support the life-giving potential of stem cell research. Their opinions are not hard to find on the internet. However, if you really want to learn more about the potential benefits of this research, I suggest you peruse the websites of the many great research hospitals that are keeping our fellow CML'ers alive. Insititutions like Dana Farber, MD Anderson, OHSU, and Sloan Kettering where I am treated. Their website is www.mskcc.org. Or you can just Google the topic and find what the experts are saying. Hope this helps. Best Wishes to You and Yours, Carl Suzieq wrote: Mr. Davies: Could you tell me just what they've proven that using embryonic stem cells have helped medically? The only good I've read has had to do with using adult stem cells of which I applaud. I guess I fit into that catagory of the minority of his party this editorial talks about. I am against using mine my husbands' hard earned tax dollars to fund anything having to do with destroying embryos while government seeks to cut funding for cancer leukemia research as well as other health related illnesses. Keep Looking Up, Suzieq On Apr 13, 12:10 pm, Carl Davies wrote: April 13, 2007 New York Times Editorial Loosening the Stem Cell Binds The Senate easily approved a bill this week that would free embryonic stem cell research from the worst shackles imposed by the Bush administration. The House passed its version earlier. A substantial majority of Americans tell pollsters they support embryonic stem cell research. Yet one man, President Bush, and a minority of his party, the religious and social conservatives, are once again trying to impose their moral code on the rest of the nation and stand in the way of scientific progress. Mr. Bush is threatening a veto, and neither house had enough votes for the bills on initial passage to override him. Concerned voters will need to ratchet up the pressure on recalcitrant Republicans to help stop the president from killing the second enlightened stem cell bill in less than a year. Under the president's current policy, federal funds can be used to support research on only some 20 stem cell lines that have limited scientific value. Many of the lines are deteriorating or contaminated, and the group as a whole lacks the diversity needed to conduct a wide range of studies. There is no doubt that progress is being hampered. The director of the National Institutes of Health, who had initially been a good soldier in trying to live within the president's policy, told the Senate last month that American science would be better served if the nation let researchers have access to more stem cell lines. The restrictions on federal financing have led to absurdly complicated and costly maneuvers. Scientists are forced to buy extra equipment and laboratory space with private money to perform off-limits research while using equipment
[CMLHope] Re: 11 new messages in 6 topics - digest
This message has been processed by Symantec's AntiVirus Technology. Unknown.data was not scanned for viruses because too many nested levels of files were found. For more information on antivirus tips and technology, visit http://ses.symantec.com/ --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~--- ---BeginMessage--- Allyson Kay I had to weigh in on your messages. I am 5 1/2 years on Gleevec and am grateful to still be here, but struggle with all the side-effects like everyone else. Over those years the Gleevec has eaten away the outside (epidermis) layer of skin. That is why I am always freezing anddraw blood every time I bump something. The same goes for being in the sun without sunscreen - burn. I also desperately want to rid myself of looking pale as a dead man. I am now trying a new moisturizer and tanner. It seems to be working on my face and legs. I forget the name (Gleevec related loss of memory). Try it. Dave -- Original message -- From: CMLHope group [EMAIL PROTECTED] This message has been processed by Symantec's AntiVirus Technology. Unknown.data was not scanned for viruses because too many nested levels of files were found.For more information on antivirus tips and technology, visit http://ses.symantec.com/ ---BeginMessage--- ---BeginMessage--- CMLHope http://groups.google.com/group/CMLHope CMLHope@googlegroups.com Today's topics: * white skin/Allyson - 3 messages, 3 authors http://groups.google.com/group/CMLHope/browse_thread/thread/9d8e5d22dee6ae3a * white skin - 3 messages, 3 authors http://groups.google.com/group/CMLHope/browse_thread/thread/f665684d89d35b5 * Chat Reminder - This Evening - 9:00 PM - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/5ded27ec98de1fb2 * Cytotoxic effects of histone deacetylase inhibitor FK228 (depsipeptide, formally named FR901228) in combination with conventional anti-leukemia/ lymphoma agents against human leukemia/lymphoma cell lines. - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/c6d63fecb7680478 * City of Hope making strides in understanding the cause of leukemia - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/c297a657c2a80a03 * heart murmur - 2 messages, 2 authors http://groups.google.com/group/CMLHope/browse_thread/thread/e5dcd765719fff99 == TOPIC: white skin/Allyson http://groups.google.com/group/CMLHope/browse_thread/thread/9d8e5d22dee6ae3a == == 1 of 3 == Date: Tues, Aug 1 2006 8:17 am From: Terry Dailey Allyson and Katy, I am half irish and half American Indian and I also am pale, though I do tan very easy. I am not sure how everyone else feels, but if I am out in the hot sun for very long it starts to feel like I am in a mircowave..lol. It was a running joke for a while in my family that you could watch me and I would become pale then back to normal color right before you eyes. I also have black hair so that does not help either. Along with dark circles under my eyes. Now I do avoid being out in the sun simply because I can't handle the heat at all. I do need to disclose I am into sort of the goth look so for me being pale is not a problem..rotfl. I have been told not to be out in the sun for long periods which suits me just fine. I would check with your doctor Allyson, but I do know their are rub on cremes that will give you a tan without being in the sun. My lady use to get what they call mystic tan. It is a booth at a tanning salon here in our area that gives you a spray on tan. It is kind of funny because when we have been out together we have had commits that we look like a barbie doll and a vampire..hehe. That is sort of ironic and me with my dark humor can't help but laugh because I actually love vampire movies and I end up with a blood disorder..rotl. Anyway Allyson, check with your doctor first but that rub on or spray on stuff might help without you having to be in the sun. Terry On 7/31/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Dear Allyson, I have never heard that it is bad to get in the sun while taking gleevec just that it makes you more susceptible to burning so you have to be careful. I have attached a pic of me (hope it comes thru and you can see it) which goes to prove you can take gleevec and *still *get a tan! Hugs, Katy p.s... if the pic
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I have a new e-mail: [EMAIL PROTECTED]. I think I have to subscribe, since my post did not go through. Can you help? Thanks. Dave Schulz --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
