[CMLHope] 9 Years and counting with CML
Hi Cammie from MA, I was dx Oct 2003. I'm still on 400mg of Gleevic and take Protonox for the GI problems. My counts have wavered up and down over the last 9 years. My last visit at Dana Farber my onc, Dr. Soiffer told me that my counts were up still. He's waiting for my latest results to come back to see if we need to make changes. I hope not. My side effects have been pretty consistent-weight gain, bone pain, breathing problems, and edema in my left leg. I did have a DVT//PE in 2006 that totally ruined that year. I had to retire from my very physical job in 2008 and was very depressed. I decided to do something with my life, returned to community college and graduated with high honors. My illness has been a blessing in disguise. By having CML and my former career, along with my life experience, made for awesome essays. I received a full scholarship to get my bachelors and started this past September. I love school, however this fall all I have been is sick. Colds, coughs, aches, pains-you name it, I've been dealing with it. It's like being back in kindergarten where you catch everything anyone else has. I've taken to wearing a mask when I'm cooped up with even slightly ill people. All in all, these past 9 years have been a blessing. I now have a one-month old grand daughter who is the absolute light of my life. I intend to live a long and fruitful life and enjoy every moment I have been given. Cammie Dx 2003 Gleevic 400mg -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] 9 Years and counting with CML
Hi Cammie, Having CML and being depressed are one in the same. That is if you let it be that way. The way I look at it is to picture a child's See-Saw and your on one side of it with all of your problems resting on your shoulders. This brings you down. Now start taking some of the good things in your life. Now, take your Grand Daughter as well as your full scolarship toward your collage education, your excellent grades and every other good thing in your life and place all of them on the other side. What happens? Well, what you thought was weighing you down only proves to be what is on that other side just bringing you up. Yes Cammie, you go on and lead a fruitful life. Enjoy that shining beacon (Your Grand Daughter) and all of the other good things... Any time that I end a post I will include two numbers. 18 which is a symbol for life. 18's Cammie. Marty On Wed, Nov 21, 2012 at 5:24 PM, Cammie wannabni...@yahoo.com wrote: Hi Cammie from MA, I was dx Oct 2003. I'm still on 400mg of Gleevic and take Protonox for the GI problems. My counts have wavered up and down over the last 9 years. My last visit at Dana Farber my onc, Dr. Soiffer told me that my counts were up still. He's waiting for my latest results to come back to see if we need to make changes. I hope not. My side effects have been pretty consistent-weight gain, bone pain, breathing problems, and edema in my left leg. I did have a DVT//PE in 2006 that totally ruined that year. I had to retire from my very physical job in 2008 and was very depressed. I decided to do something with my life, returned to community college and graduated with high honors. My illness has been a blessing in disguise. By having CML and my former career, along with my life experience, made for awesome essays. I received a full scholarship to get my bachelors and started this past September. I love school, however this fall all I have been is sick. Colds, coughs, aches, pains-you name it, I've been dealing with it. It's like being back in kindergarten where you catch everything anyone else has. I've taken to wearing a mask when I'm cooped up with even slightly ill people. All in all, these past 9 years have been a blessing. I now have a one-month old grand daughter who is the absolute light of my life. I intend to live a long and fruitful life and enjoy every moment I have been given. Cammie Dx 2003 Gleevic 400mg -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] 9 Years and counting with CML
Commie: I imagine that every CML warrior has had many emotional ups and downs. I, too, look at my diagnosis (3/09) as a blessing. I'm thankful for every day I have, good or bad, filled with bone pain or normal. The members on this site are so very kind and caring and I always feel uplifted reading the posts. Someone recently described me as a cancer survivor. I corrected her and said, no, I am a thriver. And truly I feel that way. To all who post, and especially those who got back to me on acid reflux, thanks so very, very much. I hope everyone's Thanksgiving will be filled with love and joy. Marcie Baltimore Sent from my iPad On Nov 21, 2012, at 7:59 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Cammie, Having CML and being depressed are one in the same. That is if you let it be that way. The way I look at it is to picture a child's See-Saw and your on one side of it with all of your problems resting on your shoulders. This brings you down. Now start taking some of the good things in your life. Now, take your Grand Daughter as well as your full scolarship toward your collage education, your excellent grades and every other good thing in your life and place all of them on the other side. What happens? Well, what you thought was weighing you down only proves to be what is on that other side just bringing you up. Yes Cammie, you go on and lead a fruitful life. Enjoy that shining beacon (Your Grand Daughter) and all of the other good things... Any time that I end a post I will include two numbers. 18 which is a symbol for life. 18's Cammie. Marty On Wed, Nov 21, 2012 at 5:24 PM, Cammie wannabni...@yahoo.com wrote: Hi Cammie from MA, I was dx Oct 2003. I'm still on 400mg of Gleevic and take Protonox for the GI problems. My counts have wavered up and down over the last 9 years. My last visit at Dana Farber my onc, Dr. Soiffer told me that my counts were up still. He's waiting for my latest results to come back to see if we need to make changes. I hope not. My side effects have been pretty consistent-weight gain, bone pain, breathing problems, and edema in my left leg. I did have a DVT//PE in 2006 that totally ruined that year. I had to retire from my very physical job in 2008 and was very depressed. I decided to do something with my life, returned to community college and graduated with high honors. My illness has been a blessing in disguise. By having CML and my former career, along with my life experience, made for awesome essays. I received a full scholarship to get my bachelors and started this past September. I love school, however this fall all I have been is sick. Colds, coughs, aches, pains-you name it, I've been dealing with it. It's like being back in kindergarten where you catch everything anyone else has. I've taken to wearing a mask when I'm cooped up with even slightly ill people. All in all, these past 9 years have been a blessing. I now have a one-month old grand daughter who is the absolute light of my life. I intend to live a long and fruitful life and enjoy every moment I have been given. Cammie Dx 2003 Gleevic 400mg -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
