There are better treatments now. I'm on Ponatinib and its working good. I take
1 15 mg pill daily. I've been on most of the tkis. I got mutants on all
except the one I'm in now.Yes go to specialist. Blessings.
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
> On Aug 11, 2016, at 10:52 PM, 'rszim0...@aol.com' via CMLHope
> <cmlhope@googlegroups.com> wrote:
>
> Are you speaking of interferon treatments? These were used before gleevec and
> all the other new drugs. I was diagnosed in early 2005 and have been on all
> the tki's except ponatinib. It would seem the doc would change you to another
> drug instead of interferon. Are you going to a cml specialist? Highly
> recommend either a university medical dept. Like northwestern in chicago (dr
> jessica altman), or moffitt in tampa (dr. Pinilla), md anderson in texas,
> johns hopkins in new york, dr. Talpaz at univ. Of michigan, or portland
> oregon's dr. Druker who invented gleevec. I didnt mention mayo but that is
> great also. Some small-town docs do not know their stuff. Please do not go
> back on sprycel. Your symptoms w heart will only worsen. Yes interferon does
> not give a good quality of life due to flu-like symptoms. I drive 2 1/2 hrs
> to see my doc. Worth it Local blood tests if not seeing doc. Blessings
> and best wishes to you!!! Susan Zimmerman from Granger, In. Near South Bend.
> 18's to all and hope to hear from Marty or his relative!!!
>
> Sent from my Sprint phone
>
> -- Original message--
> From: perk
> Date: Thu, Aug 11, 2016 12:49 PM
> To: CMLHope;
> Subject:[CMLHope] Ferone treatment
>
> I was placed on Sprycel in 2008. While this treatment contained my WBC, it
> caused fluid retention around my heart and lungs. My onc was to try a ferone
> treatment. Has anyone had any experience with this form of treatment. It is
> an injection and he said common side effects were flu-like symptoms.
> --
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