Re: [CMLHope] For Terri

2013-08-08 Thread Marty Gartenberg
Hi Millie,

One of the reasons that I gave Terri this advice is because it is exactly
what I had to do in order to get my Medicare benefits even though they were
already approved or so I thought. I did go the the Social Security office
in person in Staten Island which is where I used to live, wearing a
surgical mask and gloves. They were very accommodating to me.

18's

Marty


On Thu, Aug 8, 2013 at 11:10 PM, C.M. Houtz  wrote:

> **
> *MartyYou give such excellent advice.  I sure hope that Terri doesn't
> get to discouraged and will continue to fight.  They (Social Security) just
> hopes that you will give up.  I had to fight with them one time, and thank
> God I did find someone at the office locally that helped me through it
> all.  This was in regards to money that was being paid to my Grandson
> (adopted son) Chris and they were going to take it away from him, but
> somehow, we stopped it all.  They said I hadn't filled out paper work that
> was sent to me, and I told them, that I couldn't fill out what I hadn't
> received.  Like I said, I did get in touch with this person over the phone,
> and he asked me to come into the office which really worked for us.  Terri,
> listen to Marty as he knows what he's talking about.  It is terrible what
> they try to do to people.  They act like it's their money.  I'm glad that
> you don't have Multiple Myeloma...that's such good news.  *
> **
> *Hugs and 18's to both of you,*
> *Millie*
>
> - Original Message -
> *From:* Marty Gartenberg 
> *To:* cmlhope@googlegroups.com
> *Sent:* Thursday, August 08, 2013 11:01 PM
> *Subject:* Re: [CMLHope] For Terri
>
> Hi Again Terri,
>
> Remember what I said, you are your own best advocate, and sometimes you
> have to do things that can help you along. If you asked for a continuation
> then it should be on the records. Did you get any paperwork or do you
> remember who you spoke with about that continuance??
>
> Take a suggestion and don't do any of this on the phone. First call and
> set up an appointment, but only with a supervisor. Once you have that
> appointment you show up wearing a surgical mask and gloves and try to sit
> away from the others that are there.
>
> Since you have CML you are immuno compromised and once they see you there
> you will have their attention. This is exactly what I did once I got out of
> that plastic bubble.
>
> If you can't get any satisfaction at your local social security office
> then simply travel to another office and try there. You will win but only
> if you take things into your own hands. Do not get discouraged, I didn't!
>
> 18's
>
> Marty
>
>
> On Thu, Aug 8, 2013 at 4:44 PM,  wrote:
>
>> **
>> Thanks Peg!  I have a lawyer and that is the thing, this is to be a
>> continuation so not to start a new claim. I've been on phone all day and
>> actually on hold right now. They are telling me my Medicare is no longer in
>> effect. Even though I appealed cessation within ten days. which was to
>> allow me two more months of coverage. So crazy! I have to plan to have some
>> kind of coverage while this appeal is going on. Our local office is about
>> worthless. They have no information and no answers.
>>
>> Terri
>>
>>
>>
>>
>>  In a message dated 8/6/2013 3:16:57 P.M. Eastern Daylight Time,
>> peg@live.com writes:
>>
>> Terri,
>>
>> Your Nephrologist is an ass...and is not the final word on whether you
>> are disabled or not, there are plenty of folks on disability because they
>> are on dialysis.  However, remember that you don't want to file a NEW claim
>> but rather, reopen the old one.  If you were to file it on the basis of
>> dialysis it would start an entirely new claim with a new wait period for
>> your Medicare.  You want to show that your health has deteriorated as a
>> result of the ORIGINAL claim, so all of that time applies to the wait and
>> you could have Medicare immediately.  ANY doctor that cares about you and
>> recognizes that you are unable to work can file your disability.  If you
>> don't have one on your team that will do that for you, perhaps a disability
>> lawyer can recommend one.
>>
>> Sorry about the tough road ahead...I relate...I have just been diagnosed
>> with my third primary cancer since being diagnosed with CML three years
>> ago, have had MS for 24 years and care for my husband who has brain
>> damage.  The best advice I can give you besides find a caring doc and a new
>> lawyer is to take each day, one bite at a time.  Message me any time I can
>> be of help.  I care

Re: [CMLHope] For Terri

2013-08-08 Thread C.M. Houtz
MartyYou give such excellent advice.  I sure hope that Terri doesn't get to 
discouraged and will continue to fight.  They (Social Security) just hopes that 
you will give up.  I had to fight with them one time, and thank God I did find 
someone at the office locally that helped me through it all.  This was in 
regards to money that was being paid to my Grandson (adopted son) Chris and 
they were going to take it away from him, but somehow, we stopped it all.  They 
said I hadn't filled out paper work that was sent to me, and I told them, that 
I couldn't fill out what I hadn't received.  Like I said, I did get in touch 
with this person over the phone, and he asked me to come into the office which 
really worked for us.  Terri, listen to Marty as he knows what he's talking 
about.  It is terrible what they try to do to people.  They act like it's their 
money.  I'm glad that you don't have Multiple Myeloma...that's such good news.  

Hugs and 18's to both of you,
Millie
  - Original Message - 
  From: Marty Gartenberg 
  To: cmlhope@googlegroups.com 
  Sent: Thursday, August 08, 2013 11:01 PM
  Subject: Re: [CMLHope] For Terri


  Hi Again Terri,


  Remember what I said, you are your own best advocate, and sometimes you have 
to do things that can help you along. If you asked for a continuation then it 
should be on the records. Did you get any paperwork or do you remember who you 
spoke with about that continuance??  


  Take a suggestion and don't do any of this on the phone. First call and set 
up an appointment, but only with a supervisor. Once you have that appointment 
you show up wearing a surgical mask and gloves and try to sit away from the 
others that are there. 


  Since you have CML you are immuno compromised and once they see you there you 
will have their attention. This is exactly what I did once I got out of that 
plastic bubble. 


  If you can't get any satisfaction at your local social security office then 
simply travel to another office and try there. You will win but only if you 
take things into your own hands. Do not get discouraged, I didn't!


  18's


  Marty



  On Thu, Aug 8, 2013 at 4:44 PM,  wrote:

Thanks Peg!  I have a lawyer and that is the thing, this is to be a 
continuation so not to start a new claim. I've been on phone all day and 
actually on hold right now. They are telling me my Medicare is no longer in 
effect. Even though I appealed cessation within ten days. which was to 
allow me two more months of coverage. So crazy! I have to plan to have some 
kind of coverage while this appeal is going on. Our local office is about 
worthless. They have no information and no answers. 

Terri




In a message dated 8/6/2013 3:16:57 P.M. Eastern Daylight Time, 
peg@live.com writes:
  Terri,

  Your Nephrologist is an ass...and is not the final word on whether you 
are disabled or not, there are plenty of folks on disability because they are 
on dialysis.  However, remember that you don't want to file a NEW claim but 
rather, reopen the old one.  If you were to file it on the basis of dialysis it 
would start an entirely new claim with a new wait period for your Medicare.  
You want to show that your health has deteriorated as a result of the ORIGINAL 
claim, so all of that time applies to the wait and you could have Medicare 
immediately.  ANY doctor that cares about you and recognizes that you are 
unable to work can file your disability.  If you don't have one on your team 
that will do that for you, perhaps a disability lawyer can recommend one.  

  Sorry about the tough road ahead...I relate...I have just been diagnosed 
with my third primary cancer since being diagnosed with CML three years ago, 
have had MS for 24 years and care for my husband who has brain damage.  The 
best advice I can give you besides find a caring doc and a new lawyer is to 
take each day, one bite at a time.  Message me any time I can be of help.  I 
care.  peg  


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Re: [CMLHope] For Terri

2013-08-08 Thread Marty Gartenberg
Hi Again Terri,

Remember what I said, you are your own best advocate, and sometimes you
have to do things that can help you along. If you asked for a continuation
then it should be on the records. Did you get any paperwork or do you
remember who you spoke with about that continuance??

Take a suggestion and don't do any of this on the phone. First call and set
up an appointment, but only with a supervisor. Once you have that
appointment you show up wearing a surgical mask and gloves and try to sit
away from the others that are there.

Since you have CML you are immuno compromised and once they see you there
you will have their attention. This is exactly what I did once I got out of
that plastic bubble.

If you can't get any satisfaction at your local social security office then
simply travel to another office and try there. You will win but only if you
take things into your own hands. Do not get discouraged, I didn't!

18's

Marty


On Thu, Aug 8, 2013 at 4:44 PM,  wrote:

> **
> Thanks Peg!  I have a lawyer and that is the thing, this is to be a
> continuation so not to start a new claim. I've been on phone all day and
> actually on hold right now. They are telling me my Medicare is no longer in
> effect. Even though I appealed cessation within ten days. which was to
> allow me two more months of coverage. So crazy! I have to plan to have some
> kind of coverage while this appeal is going on. Our local office is about
> worthless. They have no information and no answers.
>
> Terri
>
>
>
>
>  In a message dated 8/6/2013 3:16:57 P.M. Eastern Daylight Time,
> peg@live.com writes:
>
> Terri,
>
> Your Nephrologist is an ass...and is not the final word on whether you are
> disabled or not, there are plenty of folks on disability because they are
> on dialysis.  However, remember that you don't want to file a NEW claim but
> rather, reopen the old one.  If you were to file it on the basis of
> dialysis it would start an entirely new claim with a new wait period for
> your Medicare.  You want to show that your health has deteriorated as a
> result of the ORIGINAL claim, so all of that time applies to the wait and
> you could have Medicare immediately.  ANY doctor that cares about you and
> recognizes that you are unable to work can file your disability.  If you
> don't have one on your team that will do that for you, perhaps a disability
> lawyer can recommend one.
>
> Sorry about the tough road ahead...I relate...I have just been diagnosed
> with my third primary cancer since being diagnosed with CML three years
> ago, have had MS for 24 years and care for my husband who has brain
> damage.  The best advice I can give you besides find a caring doc and a new
> lawyer is to take each day, one bite at a time.  Message me any time I can
> be of help.  I care.  peg
>
> --
> --
> [CMLHope]
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Re: [CMLHope] For Terri

2013-08-08 Thread Marty Gartenberg
Terri,

Just to let you know. Almost any time that someone applies for Medicare
benefits they are usually denied. Even when they try to apply again they
are denied once again.

I remember when I had to live in a plastic bubble in the hospital for many
months my social worker applied for for social security disability and I
was denied. She applied twice more and I was finally accepted although I
had to wait two years in order to start receiving any benefits. Once I was
accepted I was paid retroactively to when I first applied. My social worker
at the time really helped me so much that I asked her if I could help her
start a foundation, and I did. It is now The bone marrow foundation in New
York City. I still remain very friendly with her. www.bonemarrow.org  Why
not check it out and see if you can get some help

Almost everyone that I know who has tried getting onto Medicare had these
same problems.

Your right, never stop fighting because in the end you will win because as
upsetting as it is, you are your own best advocate.

By the way, let me congratulate you on not having multiple myeloma,
something else that you don't need

As usual I send along 18's to you

Marty


On Thu, Aug 8, 2013 at 4:38 PM,  wrote:

> **
> Thanks! I got my bone marrow results back and they are clear, no multiple
> myeloma. So now time to focus on the kidneys, nephrologist wants me to go
> for transplant consult. Doesn't know if I am even a candidate as it has
> only been 2 and a half yrs since bone marrow transplant. I have been on the
> phone all day with social security and medicare. My medicare started in
> June. I appealed within ten days the cessation and got a lawyer. Today I
> call to see what happens at end of August after I was allowed a two month
> extension since I appealed. They are telling me I no longer even have
> medicare right now. Nobody could tell me anything as to when it stopped or
> any info. Just advised me to go to welfare. I am very frustrated!!! Ugh!
>
> Terri  (not gonna stop fighting!)
>
>
>
>  In a message dated 8/6/2013 7:24:57 P.M. Eastern Daylight Time,
> wa2...@gmail.com writes:
>
> Hi Terri, Peg is correct, your Nephrologist is an ass. She is also right
> about not starting another claim because if you do then there is a two year
> waiting period in order to be able to get your benefits.
>
> As I previously mentioned, I am on dialysis for the past two years and
> that qualifies me as disabled, so if and when you have to go on it then you
> should also be qualified for disability and Medicare. I wish you the very
> best of luck and health.
>
> Now Peg, I wish you and your husband the best. May you both be blessed by
> GOD for health and happiness. Same goes for Terri and everyone reading this.
>
> 18's (Symbol for life)
>
> Marty
>
>
> On Tue, Aug 6, 2013 at 3:16 PM, peg  wrote:
>
>> Terri,
>>
>> Your Nephrologist is an ass...and is not the final word on whether you
>> are disabled or not, there are plenty of folks on disability because they
>> are on dialysis.  However, remember that you don't want to file a NEW claim
>> but rather, reopen the old one.  If you were to file it on the basis of
>> dialysis it would start an entirely new claim with a new wait period for
>> your Medicare.  You want to show that your health has deteriorated as a
>> result of the ORIGINAL claim, so all of that time applies to the wait and
>> you could have Medicare immediately.  ANY doctor that cares about you and
>> recognizes that you are unable to work can file your disability.  If you
>> don't have one on your team that will do that for you, perhaps a disability
>> lawyer can recommend one.
>>
>> Sorry about the tough road ahead...I relate...I have just been diagnosed
>> with my third primary cancer since being diagnosed with CML three years
>> ago, have had MS for 24 years and care for my husband who has brain
>> damage.  The best advice I can give you besides find a caring doc and a new
>> lawyer is to take each day, one bite at a time.  Message me any time I can
>> be of help.  I care.  peg
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
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>>
>>
>>
>
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Re: [CMLHope] For Terri

2013-08-08 Thread C.M. Houtz
Dear Terri,

You're in all of our thoughts and prayers.  Please keep us posted on how things 
are going.  Dealing with all of this is so stressful for you, but keep on 
fighting and in the end, it will be worth it.Millie

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Re: [CMLHope] For Terri

2013-08-08 Thread bkbarney

Dear Terri,

You are an amazing warrior! Keep up the fight. So glad no multiple 
myelomaTake good care of you and keep us posted! Beth 




-Original Message-
From: Terrijeff20 
To: cmlhope 
Sent: Thu, Aug 8, 2013 3:38 pm
Subject: Re: [CMLHope] For Terri



Thanks! I got my bone marrow results back and they are clear, no multiple 
myeloma. So now time to focus on the kidneys, nephrologist wants me to go for 
transplant consult. Doesn't know if I am even a candidate as it has only been 2 
and a half yrs since bone marrow transplant. I have been on the phone all day 
with social security and medicare. My medicare started in June. I appealed 
within ten days the cessation and got a lawyer. Today I call to see what 
happens at end of August after I was allowed a two month extension since I 
appealed. They are telling me I no longer even have medicare right now. Nobody 
could tell me anything as to when it stopped or any info. Just advised me to go 
to welfare. I am very frustrated!!! Ugh!
 
Terri  (not gonna stop fighting!)
 
 
 

In a message dated 8/6/2013 7:24:57 P.M. Eastern Daylight Time, 
wa2...@gmail.com writes:

Hi Terri, Peg is correct, your Nephrologist is an ass. She is also right about 
not starting another claim because if you do then there is a two year waiting 
period in order to be able to get your benefits. 


As I previously mentioned, I am on dialysis for the past two years and that 
qualifies me as disabled, so if and when you have to go on it then you should 
also be qualified for disability and Medicare. I wish you the very best of luck 
and health.


Now Peg, I wish you and your husband the best. May you both be blessed by GOD 
for health and happiness. Same goes for Terri and everyone reading this.


18's (Symbol for life)


Marty




On Tue, Aug 6, 2013 at 3:16 PM, peg  wrote:

Terri,

Your Nephrologist is an ass...and is not the final word on whether you are 
disabled or not, there are plenty of folks on disability because they are on 
dialysis.  However, remember that you don't want to file a NEW claim but 
rather, reopen the old one.  If you were to file it on the basis of dialysis it 
would start an entirely new claim with a new wait period for your Medicare.  
You want to show that your health has deteriorated as a result of the ORIGINAL 
claim, so all of that time applies to the wait and you could have Medicare 
immediately.  ANY doctor that cares about you and recognizes that you are 
unable to work can file your disability.  If you don't have one on your team 
that will do that for you, perhaps a disability lawyer can recommend one.  

Sorry about the tough road ahead...I relate...I have just been diagnosed with 
my third primary cancer since being diagnosed with CML three years ago, have 
had MS for 24 years and care for my husband who has brain damage.  The best 
advice I can give you besides find a caring doc and a new lawyer is to take 
each day, one bite at a time.  Message me any time I can be of help.  I care.  
peg  

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Re: [CMLHope] For Terri

2013-08-08 Thread Terrijeff20
Thanks Peg!  I have a lawyer and that is the thing, this is to be a  
continuation so not to start a new claim. I've been on phone all day and  
actually 
on hold right now. They are telling me my Medicare is no longer in  effect. 
Even though I appealed cessation within ten days. which was to allow  
me two more months of coverage. So crazy! I have to plan to have some kind of 
 coverage while this appeal is going on. Our local office is about 
worthless.  They have no information and no answers. 
 
Terri
 
 
 
 
 
In a message dated 8/6/2013 3:16:57 P.M. Eastern Daylight Time,  
peg@live.com writes:

Terri,

Your Nephrologist is an ass...and is not the final  word on whether you are 
disabled or not, there are plenty of folks on  disability because they are 
on dialysis.  However, remember that you  don't want to file a NEW claim but 
rather, reopen the old one.  If you  were to file it on the basis of 
dialysis it would start an entirely new claim  with a new wait period for your 
Medicare.  You want to show that your  health has deteriorated as a result of 
the ORIGINAL claim, so all of that time  applies to the wait and you could 
have Medicare immediately.  ANY doctor  that cares about you and recognizes 
that you are unable to work can file your  disability.  If you don't have one 
on your team that will do that for  you, perhaps a disability lawyer can 
recommend one.  

Sorry about  the tough road ahead...I relate...I have just been diagnosed 
with my third  primary cancer since being diagnosed with CML three years ago, 
have had MS for  24 years and care for my husband who has brain damage.  
The best advice I  can give you besides find a caring doc and a new lawyer is 
to take each day,  one bite at a time.  Message me any time I can be of 
help.  I  care.  peg  
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Re: [CMLHope] For Terri

2013-08-08 Thread Terrijeff20
Thanks! I got my bone marrow results back and they are clear, no multiple  
myeloma. So now time to focus on the kidneys, nephrologist wants me to go 
for  transplant consult. Doesn't know if I am even a candidate as it has only 
been 2  and a half yrs since bone marrow transplant. I have been on the 
phone all day  with social security and medicare. My medicare started in June. 
I 
appealed  within ten days the cessation and got a lawyer. Today I call to 
see what happens  at end of August after I was allowed a two month extension 
since I appealed.  They are telling me I no longer even have medicare right 
now. Nobody could tell  me anything as to when it stopped or any info. Just 
advised me to go to welfare.  I am very frustrated!!! Ugh!
 
Terri  (not gonna stop fighting!)
 
 
 
 
In a message dated 8/6/2013 7:24:57 P.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

Hi Terri, Peg is correct, your Nephrologist is an  ass. She is also right 
about not starting another claim because if you do then  there is a two year 
waiting period in order to be able to get your  benefits.  


As I  previously mentioned, I am on dialysis for the past two years and  
that qualifies me as disabled, so if and when you have to go on it  then you 
should also be qualified for disability and Medicare. I wish you the  very 
best of luck and health.


Now Peg, I  wish you and your husband the best. May you both be blessed by 
GOD for health  and happiness. Same goes for Terri and everyone reading  
this.


18's (Symbol  for life)


Marty



On Tue, Aug 6, 2013 at 3:16 PM, peg <_peg.hss@live.com_ 
(mailto:peg@live.com) > wrote:

Terri,

Your  Nephrologist is an ass...and is not the final word on whether you are 
 disabled or not, there are plenty of folks on disability because they are 
on  dialysis.  However, remember that you don't want to file a NEW claim  
but rather, reopen the old one.  If you were to file it on the basis of  
dialysis it would start an entirely new claim with a new wait period for  your 
Medicare.  You want to show that your health has deteriorated as a  result of 
the ORIGINAL claim, so all of that time applies to the wait and  you could 
have Medicare immediately.  ANY doctor that cares about you  and recognizes 
that you are unable to work can file your disability.   If you don't have one 
on your team that will do that for you, perhaps a  disability lawyer can 
recommend one.  

Sorry about the tough  road ahead...I relate...I have just been diagnosed 
with my third primary  cancer since being diagnosed with CML three years ago, 
have had MS for 24  years and care for my husband who has brain damage.  
The best advice I  can give you besides find a caring doc and a new lawyer is 
to take each day,  one bite at a time.  Message me any time I can be of 
help.  I  care.  peg  
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Re: [CMLHope] For Terri

2013-08-06 Thread Marty Gartenberg
Hi Terri, Peg is correct, your Nephrologist is an ass. She is also right
about not starting another claim because if you do then there is a two year
waiting period in order to be able to get your benefits.

As I previously mentioned, I am on dialysis for the past two years and
that qualifies me as disabled, so if and when you have to go on it then you
should also be qualified for disability and Medicare. I wish you the very
best of luck and health.

Now Peg, I wish you and your husband the best. May you both be blessed by
GOD for health and happiness. Same goes for Terri and everyone reading this.

18's (Symbol for life)

Marty


On Tue, Aug 6, 2013 at 3:16 PM, peg  wrote:

> Terri,
>
> Your Nephrologist is an ass...and is not the final word on whether you are
> disabled or not, there are plenty of folks on disability because they are
> on dialysis.  However, remember that you don't want to file a NEW claim but
> rather, reopen the old one.  If you were to file it on the basis of
> dialysis it would start an entirely new claim with a new wait period for
> your Medicare.  You want to show that your health has deteriorated as a
> result of the ORIGINAL claim, so all of that time applies to the wait and
> you could have Medicare immediately.  ANY doctor that cares about you and
> recognizes that you are unable to work can file your disability.  If you
> don't have one on your team that will do that for you, perhaps a disability
> lawyer can recommend one.
>
> Sorry about the tough road ahead...I relate...I have just been diagnosed
> with my third primary cancer since being diagnosed with CML three years
> ago, have had MS for 24 years and care for my husband who has brain
> damage.  The best advice I can give you besides find a caring doc and a new
> lawyer is to take each day, one bite at a time.  Message me any time I can
> be of help.  I care.  peg
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
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>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
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>
>

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[CMLHope] For Terri

2013-08-06 Thread peg
Terri,

Your Nephrologist is an ass...and is not the final word on whether you are 
disabled or not, there are plenty of folks on disability because they are 
on dialysis.  However, remember that you don't want to file a NEW claim but 
rather, reopen the old one.  If you were to file it on the basis of 
dialysis it would start an entirely new claim with a new wait period for 
your Medicare.  You want to show that your health has deteriorated as a 
result of the ORIGINAL claim, so all of that time applies to the wait and 
you could have Medicare immediately.  ANY doctor that cares about you and 
recognizes that you are unable to work can file your disability.  If you 
don't have one on your team that will do that for you, perhaps a disability 
lawyer can recommend one.  

Sorry about the tough road ahead...I relate...I have just been diagnosed 
with my third primary cancer since being diagnosed with CML three years 
ago, have had MS for 24 years and care for my husband who has brain 
damage.  The best advice I can give you besides find a caring doc and a new 
lawyer is to take each day, one bite at a time.  Message me any time I can 
be of help.  I care.  peg  

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