Dear Terri,

You are an amazing warrior! Keep up the fight. So glad no multiple 
myeloma!!!!Take good care of you and keep us posted! Beth 




-----Original Message-----
From: Terrijeff20 <terrijef...@aol.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Thu, Aug 8, 2013 3:38 pm
Subject: Re: [CMLHope] For Terri



Thanks! I got my bone marrow results back and they are clear, no multiple 
myeloma. So now time to focus on the kidneys, nephrologist wants me to go for 
transplant consult. Doesn't know if I am even a candidate as it has only been 2 
and a half yrs since bone marrow transplant. I have been on the phone all day 
with social security and medicare. My medicare started in June. I appealed 
within ten days the cessation and got a lawyer. Today I call to see what 
happens at end of August after I was allowed a two month extension since I 
appealed. They are telling me I no longer even have medicare right now. Nobody 
could tell me anything as to when it stopped or any info. Just advised me to go 
to welfare. I am very frustrated!!! Ugh!
 
Terri  (not gonna stop fighting!)
 
 
 

In a message dated 8/6/2013 7:24:57 P.M. Eastern Daylight Time, 
wa2...@gmail.com writes:

Hi Terri, Peg is correct, your Nephrologist is an ass. She is also right about 
not starting another claim because if you do then there is a two year waiting 
period in order to be able to get your benefits. 


As I previously mentioned, I am on dialysis for the past two years and that 
qualifies me as disabled, so if and when you have to go on it then you should 
also be qualified for disability and Medicare. I wish you the very best of luck 
and health.


Now Peg, I wish you and your husband the best. May you both be blessed by GOD 
for health and happiness. Same goes for Terri and everyone reading this.


18's (Symbol for life)


Marty




On Tue, Aug 6, 2013 at 3:16 PM, peg <peg....@live.com> wrote:

Terri,

Your Nephrologist is an ass...and is not the final word on whether you are 
disabled or not, there are plenty of folks on disability because they are on 
dialysis.  However, remember that you don't want to file a NEW claim but 
rather, reopen the old one.  If you were to file it on the basis of dialysis it 
would start an entirely new claim with a new wait period for your Medicare.  
You want to show that your health has deteriorated as a result of the ORIGINAL 
claim, so all of that time applies to the wait and you could have Medicare 
immediately.  ANY doctor that cares about you and recognizes that you are 
unable to work can file your disability.  If you don't have one on your team 
that will do that for you, perhaps a disability lawyer can recommend one.  

Sorry about the tough road ahead...I relate...I have just been diagnosed with 
my third primary cancer since being diagnosed with CML three years ago, have 
had MS for 24 years and care for my husband who has brain damage.  The best 
advice I can give you besides find a caring doc and a new lawyer is to take 
each day, one bite at a time.  Message me any time I can be of help.  I care.  
peg  

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