Re: [CMLHope] Prayers are offered.
Hi Susan, I had many of them (CPK tests) [image: Email this page to a friend] [image: Print] <https://www.nlm.nih.gov/medlineplus/ency/article/003504.htm#> [image: Facebook] <https://www.nlm.nih.gov/medlineplus/ency/article/003504.htm#> [image: Twitter] <https://www.nlm.nih.gov/medlineplus/ency/article/003504.htm#> [image: Bookmark & Share] <https://www.addthis.com/bookmark.php?pub=medlineplus&title=&lng=enCPK%20isoenzymes%20test> The CPK isoenzymes test measures the different forms of creatine phosphokinase (CPK) in the blood. CPK is an enzyme found mainly in the heart, brain, and skeletal muscle. 18's, Marty On Mon, May 16, 2016 at 11:49 AM, 'Susan Zimmerman' via CMLHope < cmlhope@googlegroups.com> wrote: > Wow Beth, > Sounds very interesting, glad you could go! > What is CPK? Thinking of you. > > Love and 18's, > Susan F. Zimmerman > > > > -Original Message- > From: bkbarney via CMLHope > To: cmlhope > Sent: Tue, May 3, 2016 2:44 pm > Subject: Re: [CMLHope] Prayers are offered. > > CPK doubled in the last two months to 700. Monoclonal protein they had > been tracking for the last two years is up...BCR abl will hopefully be a > good result... Then we plan from there... > > Marty, I just went to the national Bone Marrow Transplant Survivors > conference this weekend...I went as the caregiver and helper to my best > friend who is now 2.5 years out and struggling with graft vs host. I went > to 9 seminars and met lots of people ..wow...so humbling, inspiring, > overwhelming...and I thought of you.all those years agobefore all these > advances have been made.hope you are feeling better...I know you will > stay positive, and strong..I am thinking of you.. > > > and Jeanie, the session I went to on faith, spirituality and illness > was right up your alley...you and many other's here.. > > also did a nice piece on yoga and meditation, complementary medicines, > nutritionpain management, sleep issues...etc..etc..really well done > weekend. > > > and the importance of not getting lost in our heads, in fear, and > ruminating...but instead, staying anchored, and reaching out so we are not > in isolation > > Thinking of all of you.. > > Love, Beth > 18's.. > > > -Original Message- > From: 'Icandoallttc' via CMLHope > To: cmlhope > Sent: Tue, May 3, 2016 12:12 pm > Subject: Re: [CMLHope] Prayers are offered. > > What are the changes in your blood work if u don't mind sharing Beth?I > have several things out of range but just slightly. > > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope < > cmlhope@googlegroups.com> wrote: > > Beth, yes, a long time since you've posted. Please let us know your > results. Sending prayers and hugs. > > Marcie > > Sent from my iPhone > > On May 2, 2016, at 2:05 PM, bkbarney via CMLHope > wrote: > > Thank you Richard for your kind words and prayers. They are always so > appreciated. You are such a stable presence here. I so appreciate your > thoughts and help. I hope everyone is navigating the best they can. Know > that I think of all of you often...haven't written much because of my own > journey...I am sorry if I missed out on communicating with those who are > struggling recently. All of you are in my heart. > > I do BCR abl next week..so please keep your fingers crossed. I have more > anxiety about this one for some reason... My basic blood work shows some > changes that are in the wrong direction...hopefully things are stable in > the CML realm. > > Will keep you posted.. > > Much love and 18's, Beth > > -Original Message- > From: Richard H > To: CMLHope > Sent: Sun, May 1, 2016 11:11 pm > Subject: Re: [CMLHope] Prayers are offered. > > Thank you. > Richard > > On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >> >> Just one thing to say Richard H. Your like the rock of Gibraltar. >> >> 18's to you! >> >> Marty >> >> On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: >> >>> I am sorry to hear about all the problems everyone is reporting. I am >>> lifting prayers for healing to those with problems and for the caregivers >>> prayers of understanding and strength to help them be the support they want >>> and need to be. >>> >>> I am
Re: [CMLHope] Prayers are offered.
Wow Beth, Sounds very interesting, glad you could go! What is CPK? Thinking of you. Love and 18's, Susan F. Zimmerman -Original Message- From: bkbarney via CMLHope To: cmlhope Sent: Tue, May 3, 2016 2:44 pm Subject: Re: [CMLHope] Prayers are offered. CPK doubled in the last two months to 700. Monoclonal protein they had been tracking for the last two years is up...BCR abl will hopefully be a good result... Then we plan from there... Marty, I just went to the national Bone Marrow Transplant Survivors conference this weekend...I went as the caregiver and helper to my best friend who is now 2.5 years out and struggling with graft vs host. I went to 9 seminars and met lots of people ..wow...so humbling, inspiring, overwhelming...and I thought of you.all those years agobefore all these advances have been made.hope you are feeling better...I know you will stay positive, and strong..I am thinking of you.. and Jeanie, the session I went to on faith, spirituality and illness was right up your alley...you and many other's here.. also did a nice piece on yoga and meditation, complementary medicines, nutritionpain management, sleep issues...etc..etc..really well done weekend. and the importance of not getting lost in our heads, in fear, and ruminating...but instead, staying anchored, and reaching out so we are not in isolation Thinking of all of you.. Love, Beth 18's.. -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Tue, May 3, 2016 12:12 pm Subject: Re: [CMLHope] Prayers are offered. What are the changes in your blood work if u don't mind sharing Beth?I have several things out of range but just slightly. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope wrote: Beth, yes, a long time since you've posted. Please let us know your results. Sending prayers and hugs. Marcie Sent from my iPhone On May 2, 2016, at 2:05 PM, bkbarney via CMLHope wrote: Thank you Richard for your kind words and prayers. They are always so appreciated. You are such a stable presence here. I so appreciate your thoughts and help. I hope everyone is navigating the best they can. Know that I think of all of you often...haven't written much because of my own journey...I am sorry if I missed out on communicating with those who are struggling recently. All of you are in my heart. I do BCR abl next week..so please keep your fingers crossed. I have more anxiety about this one for some reason... My basic blood work shows some changes that are in the wrong direction...hopefully things are stable in the CML realm. Will keep you posted.. Much love and 18's, Beth -Original Message- From: Richard H To: CMLHope Sent: Sun, May 1, 2016 11:11 pm Subject: Re: [CMLHope] Prayers are offered. Thank you. Richard On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: Just one thing to say Richard H. Your like the rock of Gibraltar. 18's to you! Marty On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: I am sorry to hear about all the problems everyone is reporting. I am lifting prayers for healing to those with problems and for the caregivers prayers of understanding and strength to help them be the support they want and need to be. I am just coasting with all my problems and trying to deal with lower strength because of them. I have changed a couple of Doctors because they started practicing too far away. They have reviewed my records and have updated me on things that I don't remember being told about and clarified some things that were given as side inference. I am also adding a new heart med and will be monitored to see if I need to change others on my list. 18's Richard H. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post
Re: [CMLHope] Prayers are offered.
Oh yes Beth, How well I remember those days of early CML. A lot of changes for sure. Believe me there were a lot of very bad days but also some good days, but at least they were all days and GOD put upon me to survive this. Beth, as well as everyone is concerned, each and every one of you are survivors... 18's Marty On Tue, May 3, 2016 at 2:44 PM, bkbarney via CMLHope < cmlhope@googlegroups.com> wrote: > CPK doubled in the last two months to 700. Monoclonal protein they had > been tracking for the last two years is up...BCR abl will hopefully be a > good result... Then we plan from there... > > Marty, I just went to the national Bone Marrow Transplant Survivors > conference this weekend...I went as the caregiver and helper to my best > friend who is now 2.5 years out and struggling with graft vs host. I went > to 9 seminars and met lots of people ..wow...so humbling, inspiring, > overwhelming...and I thought of you.all those years agobefore all these > advances have been made.hope you are feeling better...I know you will > stay positive, and strong..I am thinking of you.. > > > and Jeanie, the session I went to on faith, spirituality and illness > was right up your alley...you and many other's here.. > > also did a nice piece on yoga and meditation, complementary medicines, > nutritionpain management, sleep issues...etc..etc..really well done > weekend. > > > and the importance of not getting lost in our heads, in fear, and > ruminating...but instead, staying anchored, and reaching out so we are not > in isolation > > Thinking of all of you.. > > Love, Beth > 18's.. > > > > -Original Message----- > From: 'Icandoallttc' via CMLHope > To: cmlhope > Sent: Tue, May 3, 2016 12:12 pm > Subject: Re: [CMLHope] Prayers are offered. > > What are the changes in your blood work if u don't mind sharing Beth?I > have several things out of range but just slightly. > > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope < > cmlhope@googlegroups.com> wrote: > > Beth, yes, a long time since you've posted. Please let us know your > results. Sending prayers and hugs. > > Marcie > > Sent from my iPhone > > On May 2, 2016, at 2:05 PM, bkbarney via CMLHope > wrote: > > Thank you Richard for your kind words and prayers. They are always so > appreciated. You are such a stable presence here. I so appreciate your > thoughts and help. I hope everyone is navigating the best they can. Know > that I think of all of you often...haven't written much because of my own > journey...I am sorry if I missed out on communicating with those who are > struggling recently. All of you are in my heart. > > I do BCR abl next week..so please keep your fingers crossed. I have more > anxiety about this one for some reason... My basic blood work shows some > changes that are in the wrong direction...hopefully things are stable in > the CML realm. > > Will keep you posted.. > > Much love and 18's, Beth > > -Original Message- > From: Richard H > To: CMLHope > Sent: Sun, May 1, 2016 11:11 pm > Subject: Re: [CMLHope] Prayers are offered. > > Thank you. > Richard > > On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >> >> Just one thing to say Richard H. Your like the rock of Gibraltar. >> >> 18's to you! >> >> Marty >> >> On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: >> >>> I am sorry to hear about all the problems everyone is reporting. I am >>> lifting prayers for healing to those with problems and for the caregivers >>> prayers of understanding and strength to help them be the support they want >>> and need to be. >>> >>> I am just coasting with all my problems and trying to deal with lower >>> strength because of them. I have changed a couple of Doctors because they >>> started practicing too far away. They have reviewed my records and have >>> updated me on things that I don't remember being told about and clarified >>> some things that were given as side inference. I am also adding a new >>> heart med and will be monitored to see if I need to change others on my >>> list. >>> >>> 18's >>> >>> Richard H. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com &g
Re: [CMLHope] Prayers are offered.
CPK doubled in the last two months to 700. Monoclonal protein they had been tracking for the last two years is up...BCR abl will hopefully be a good result... Then we plan from there... Marty, I just went to the national Bone Marrow Transplant Survivors conference this weekend...I went as the caregiver and helper to my best friend who is now 2.5 years out and struggling with graft vs host. I went to 9 seminars and met lots of people ..wow...so humbling, inspiring, overwhelming...and I thought of you.all those years agobefore all these advances have been made.hope you are feeling better...I know you will stay positive, and strong..I am thinking of you.. and Jeanie, the session I went to on faith, spirituality and illness was right up your alley...you and many other's here.. also did a nice piece on yoga and meditation, complementary medicines, nutritionpain management, sleep issues...etc..etc..really well done weekend. and the importance of not getting lost in our heads, in fear, and ruminating...but instead, staying anchored, and reaching out so we are not in isolation Thinking of all of you.. Love, Beth 18's.. -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Tue, May 3, 2016 12:12 pm Subject: Re: [CMLHope] Prayers are offered. What are the changes in your blood work if u don't mind sharing Beth?I have several things out of range but just slightly. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope wrote: Beth, yes, a long time since you've posted. Please let us know your results. Sending prayers and hugs. Marcie Sent from my iPhone On May 2, 2016, at 2:05 PM, bkbarney via CMLHope wrote: Thank you Richard for your kind words and prayers. They are always so appreciated. You are such a stable presence here. I so appreciate your thoughts and help. I hope everyone is navigating the best they can. Know that I think of all of you often...haven't written much because of my own journey...I am sorry if I missed out on communicating with those who are struggling recently. All of you are in my heart. I do BCR abl next week..so please keep your fingers crossed. I have more anxiety about this one for some reason... My basic blood work shows some changes that are in the wrong direction...hopefully things are stable in the CML realm. Will keep you posted.. Much love and 18's, Beth -Original Message- From: Richard H To: CMLHope Sent: Sun, May 1, 2016 11:11 pm Subject: Re: [CMLHope] Prayers are offered. Thank you. Richard On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: Just one thing to say Richard H. Your like the rock of Gibraltar. 18's to you! Marty On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: I am sorry to hear about all the problems everyone is reporting. I am lifting prayers for healing to those with problems and for the caregivers prayers of understanding and strength to help them be the support they want and need to be. I am just coasting with all my problems and trying to deal with lower strength because of them. I have changed a couple of Doctors because they started practicing too far away. They have reviewed my records and have updated me on things that I don't remember being told about and clarified some things that were given as side inference. I am also adding a new heart med and will be monitored to see if I need to change others on my list. 18's Richard H. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to th
Re: [CMLHope] Prayers are offered.
What are the changes in your blood work if u don't mind sharing Beth?I have several things out of range but just slightly. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope > wrote: > > Beth, yes, a long time since you've posted. Please let us know your results. > Sending prayers and hugs. > > Marcie > > Sent from my iPhone > >> On May 2, 2016, at 2:05 PM, bkbarney via CMLHope >> wrote: >> >> Thank you Richard for your kind words and prayers. They are always so >> appreciated. You are such a stable presence here. I so appreciate your >> thoughts and help. I hope everyone is navigating the best they can. Know >> that I think of all of you often...haven't written much because of my own >> journey...I am sorry if I missed out on communicating with those who are >> struggling recently. All of you are in my heart. >> >> I do BCR abl next week..so please keep your fingers crossed. I have more >> anxiety about this one for some reason... My basic blood work shows some >> changes that are in the wrong direction...hopefully things are stable in the >> CML realm. >> >> Will keep you posted.. >> >> Much love and 18's, Beth >> >> -Original Message- >> From: Richard H >> To: CMLHope >> Sent: Sun, May 1, 2016 11:11 pm >> Subject: Re: [CMLHope] Prayers are offered. >> >> Thank you. >> Richard >> >>> On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >>> Just one thing to say Richard H. Your like the rock of Gibraltar. >>> >>> 18's to you! >>> >>> Marty >>> >>>> On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: >>>> I am sorry to hear about all the problems everyone is reporting. I am >>>> lifting prayers for healing to those with problems and for the caregivers >>>> prayers of understanding and strength to help them be the support they >>>> want and need to be. >>>> >>>> I am just coasting with all my problems and trying to deal with lower >>>> strength because of them. I have changed a couple of Doctors because they >>>> started practicing too far away. They have reviewed my records and have >>>> updated me on things that I don't remember being told about and clarified >>>> some things that were given as side inference. I am also adding a new >>>> heart med and will be monitored to see if I need to change others on my >>>> list. >>>> >>>> 18's >>>> >>>> Richard H. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> - >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to cml...@googlegroups.com >>>> To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+u...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >>
Re: [CMLHope] Prayers are offered.
Yes Beth I miss your uplifting posts. I know we are all fighting and it gets to be hard, but sharing does help. I am doing good on Ponatinib with few side effects but the side pain I with me all the time. And yes Beth waiting to get our blood results can be scary. It always surprises me when the doctor walks in and all is good. It's like I'm waiting for the bomb to drop. I go to Moffitt every three months now. I'm still in remission. However leukemia can rear its ugly head ant time as we all know. I tend to live each day as best I can and try not to worry. Share with us what you can Beth and keep in touch. ❤️❤️😇😇 My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope > wrote: > > Beth, yes, a long time since you've posted. Please let us know your results. > Sending prayers and hugs. > > Marcie > > Sent from my iPhone > >> On May 2, 2016, at 2:05 PM, bkbarney via CMLHope >> wrote: >> >> Thank you Richard for your kind words and prayers. They are always so >> appreciated. You are such a stable presence here. I so appreciate your >> thoughts and help. I hope everyone is navigating the best they can. Know >> that I think of all of you often...haven't written much because of my own >> journey...I am sorry if I missed out on communicating with those who are >> struggling recently. All of you are in my heart. >> >> I do BCR abl next week..so please keep your fingers crossed. I have more >> anxiety about this one for some reason... My basic blood work shows some >> changes that are in the wrong direction...hopefully things are stable in the >> CML realm. >> >> Will keep you posted.. >> >> Much love and 18's, Beth >> >> -Original Message- >> From: Richard H >> To: CMLHope >> Sent: Sun, May 1, 2016 11:11 pm >> Subject: Re: [CMLHope] Prayers are offered. >> >> Thank you. >> Richard >> >>> On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >>> Just one thing to say Richard H. Your like the rock of Gibraltar. >>> >>> 18's to you! >>> >>> Marty >>> >>>> On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: >>>> I am sorry to hear about all the problems everyone is reporting. I am >>>> lifting prayers for healing to those with problems and for the caregivers >>>> prayers of understanding and strength to help them be the support they >>>> want and need to be. >>>> >>>> I am just coasting with all my problems and trying to deal with lower >>>> strength because of them. I have changed a couple of Doctors because they >>>> started practicing too far away. They have reviewed my records and have >>>> updated me on things that I don't remember being told about and clarified >>>> some things that were given as side inference. I am also adding a new >>>> heart med and will be monitored to see if I need to change others on my >>>> list. >>>> >>>> 18's >>>> >>>> Richard H. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> - >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to cml...@googlegroups.com >>>> To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+u...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com
Re: [CMLHope] Prayers are offered.
Hi Beth, Try not to worry to much. things will all work out. Sending you a nice red rose. 🌷 18's, Marty On Mon, May 2, 2016 at 6:14 PM, 'Marcie Goodman' via CMLHope < cmlhope@googlegroups.com> wrote: > Beth, yes, a long time since you've posted. Please let us know your > results. Sending prayers and hugs. > > Marcie > > Sent from my iPhone > > On May 2, 2016, at 2:05 PM, bkbarney via CMLHope > wrote: > > Thank you Richard for your kind words and prayers. They are always so > appreciated. You are such a stable presence here. I so appreciate your > thoughts and help. I hope everyone is navigating the best they can. Know > that I think of all of you often...haven't written much because of my own > journey...I am sorry if I missed out on communicating with those who are > struggling recently. All of you are in my heart. > > I do BCR abl next week..so please keep your fingers crossed. I have more > anxiety about this one for some reason... My basic blood work shows some > changes that are in the wrong direction...hopefully things are stable in > the CML realm. > > Will keep you posted.. > > Much love and 18's, Beth > > -----Original Message- > From: Richard H > To: CMLHope > Sent: Sun, May 1, 2016 11:11 pm > Subject: Re: [CMLHope] Prayers are offered. > > Thank you. > Richard > > On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >> >> Just one thing to say Richard H. Your like the rock of Gibraltar. >> >> 18's to you! >> >> Marty >> >> On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: >> >>> I am sorry to hear about all the problems everyone is reporting. I am >>> lifting prayers for healing to those with problems and for the caregivers >>> prayers of understanding and strength to help them be the support they want >>> and need to be. >>> >>> I am just coasting with all my problems and trying to deal with lower >>> strength because of them. I have changed a couple of Doctors because they >>> started practicing too far away. They have reviewed my records and have >>> updated me on things that I don't remember being told about and clarified >>> some things that were given as side inference. I am also adding a new >>> heart med and will be monitored to see if I need to change others on my >>> list. >>> >>> 18's >>> >>> Richard H. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to cml...@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-u...@googlegroups.com >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to cmlhope+u...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope- > unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscri
Re: [CMLHope] Prayers are offered.
Beth, yes, a long time since you've posted. Please let us know your results. Sending prayers and hugs. Marcie Sent from my iPhone > On May 2, 2016, at 2:05 PM, bkbarney via CMLHope > wrote: > > Thank you Richard for your kind words and prayers. They are always so > appreciated. You are such a stable presence here. I so appreciate your > thoughts and help. I hope everyone is navigating the best they can. Know that > I think of all of you often...haven't written much because of my own > journey...I am sorry if I missed out on communicating with those who are > struggling recently. All of you are in my heart. > > I do BCR abl next week..so please keep your fingers crossed. I have more > anxiety about this one for some reason... My basic blood work shows some > changes that are in the wrong direction...hopefully things are stable in the > CML realm. > > Will keep you posted.. > > Much love and 18's, Beth > > -Original Message- > From: Richard H > To: CMLHope > Sent: Sun, May 1, 2016 11:11 pm > Subject: Re: [CMLHope] Prayers are offered. > > Thank you. > Richard > >> On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >> Just one thing to say Richard H. Your like the rock of Gibraltar. >> >> 18's to you! >> >> Marty >> >>> On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: >>> I am sorry to hear about all the problems everyone is reporting. I am >>> lifting prayers for healing to those with problems and for the caregivers >>> prayers of understanding and strength to help them be the support they want >>> and need to be. >>> >>> I am just coasting with all my problems and trying to deal with lower >>> strength because of them. I have changed a couple of Doctors because they >>> started practicing too far away. They have reviewed my records and have >>> updated me on things that I don't remember being told about and clarified >>> some things that were given as side inference. I am also adding a new >>> heart med and will be monitored to see if I need to change others on my >>> list. >>> >>> 18's >>> >>> Richard H. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to cml...@googlegroups.com >>> To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+u...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A supp
Re: [CMLHope] Prayers are offered.
Thank you Richard for your kind words and prayers. They are always so appreciated. You are such a stable presence here. I so appreciate your thoughts and help. I hope everyone is navigating the best they can. Know that I think of all of you often...haven't written much because of my own journey...I am sorry if I missed out on communicating with those who are struggling recently. All of you are in my heart. I do BCR abl next week..so please keep your fingers crossed. I have more anxiety about this one for some reason... My basic blood work shows some changes that are in the wrong direction...hopefully things are stable in the CML realm. Will keep you posted.. Much love and 18's, Beth -Original Message- From: Richard H To: CMLHope Sent: Sun, May 1, 2016 11:11 pm Subject: Re: [CMLHope] Prayers are offered. Thank you. Richard On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: Just one thing to say Richard H. Your like the rock of Gibraltar. 18's to you! Marty On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: I am sorry to hear about all the problems everyone is reporting. I am lifting prayers for healing to those with problems and for the caregivers prayers of understanding and strength to help them be the support they want and need to be. I am just coasting with all my problems and trying to deal with lower strength because of them. I have changed a couple of Doctors because they started practicing too far away. They have reviewed my records and have updated me on things that I don't remember being told about and clarified some things that were given as side inference. I am also adding a new heart med and will be monitored to see if I need to change others on my list. 18's Richard H. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Prayers are offered.
Thank you. Richard On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: > > Just one thing to say Richard H. Your like the rock of Gibraltar. > > 18's to you! > > Marty > > On Sat, Apr 30, 2016 at 12:07 AM, Richard H > wrote: > >> I am sorry to hear about all the problems everyone is reporting. I am >> lifting prayers for healing to those with problems and for the caregivers >> prayers of understanding and strength to help them be the support they want >> and need to be. >> >> I am just coasting with all my problems and trying to deal with lower >> strength because of them. I have changed a couple of Doctors because they >> started practicing too far away. They have reviewed my records and have >> updated me on things that I don't remember being told about and clarified >> some things that were given as side inference. I am also adding a new >> heart med and will be monitored to see if I need to change others on my >> list. >> >> 18's >> >> Richard H. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> >> To unsubscribe from this group, send email to >> cmlhope-u...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+u...@googlegroups.com . >> For more options, visit https://groups.google.com/d/optout. >> > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Prayers are offered.
I'm sorry too. With illness it's like taking one step forward and one step back. The good thing is that we are all still stepping. Our stories can be someone's uplift for the day. Let's hear from everyone and keep our stepping stone well. Each day is a treasure and God will see us through the rough ones. ❤️❤️ My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Apr 30, 2016, at 12:07 AM, Richard H wrote: > > I am sorry to hear about all the problems everyone is reporting. I am > lifting prayers for healing to those with problems and for the caregivers > prayers of understanding and strength to help them be the support they want > and need to be. > > I am just coasting with all my problems and trying to deal with lower > strength because of them. I have changed a couple of Doctors because they > started practicing too far away. They have reviewed my records and have > updated me on things that I don't remember being told about and clarified > some things that were given as side inference. I am also adding a new heart > med and will be monitored to see if I need to change others on my list. > > 18's > > Richard H. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Prayers are offered.
Just one thing to say Richard H. Your like the rock of Gibraltar. 18's to you! Marty On Sat, Apr 30, 2016 at 12:07 AM, Richard H wrote: > I am sorry to hear about all the problems everyone is reporting. I am > lifting prayers for healing to those with problems and for the caregivers > prayers of understanding and strength to help them be the support they want > and need to be. > > I am just coasting with all my problems and trying to deal with lower > strength because of them. I have changed a couple of Doctors because they > started practicing too far away. They have reviewed my records and have > updated me on things that I don't remember being told about and clarified > some things that were given as side inference. I am also adding a new > heart med and will be monitored to see if I need to change others on my > list. > > 18's > > Richard H. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Prayers are offered.
I am sorry to hear about all the problems everyone is reporting. I am lifting prayers for healing to those with problems and for the caregivers prayers of understanding and strength to help them be the support they want and need to be. I am just coasting with all my problems and trying to deal with lower strength because of them. I have changed a couple of Doctors because they started practicing too far away. They have reviewed my records and have updated me on things that I don't remember being told about and clarified some things that were given as side inference. I am also adding a new heart med and will be monitored to see if I need to change others on my list. 18's Richard H. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
