[CMLHope] Re: Jeanie/transfusion

[C.M. Houtz]

Hi Nancy,

I'm Millie from Pennsylvania and have been on Tasigna for about 3 months now.  
They've played with dosage some and I have had some side effects, but am now 
back on 800 mg. and seem to be doing okay on that amount.  Jeanie and I have 
been comparing notes for a while, and it sure does help knowing you're not 
alone in your fight.  I've been fighting this for about 10 years now and am not 
in remission, but hoping that Tasigna will do it for me.
Just wanted to touch base as there aren't to many of us on this new drug, and 
it's interesting to know how it's affecting us.  Best wishes with your fight 
and, hopefully, this Tasigna will be the answer for all of us.

Millie in PA.
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[CMLHope] Re: Jeanie/transfusion

[ICANDOALLTTC]

 
Hi Nancy, Good to meet you.
Yes, we're related; CML TWINS HEHE.
How did the Gleevec quit working for you and how are you doing  on Tasigna?
My platelets started going up and then my potassium went up,  so I was having 
a time.
I then got blast in my blood and went into aml.
I hope I am on the right track now.
Blessings,
Jeanie3
 
In a message dated 10/3/2008 5:56:48 A.M. Pacific Daylight Time,  
[EMAIL PROTECTED] writes:

Hi Jeanie,
 
I'm glad to hear you got through the transfusion ok.  I'm sure  you will feel 
better because of it.  Good luck with all your other tests  including the ct 
scan.
 
I read an earlier post of yours and realized that we were diagnosed at  the 
same time, January 2004.  I was on Gleevec from that time until last  June 
2008.  Now, we're both on Tasigna!  It's almost like we're  related!  lol!
 
Best wishes,
Nancy in NY 



 



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