Re: [CMLHope] why are you on dialysis?
Hi Jeanie, You seem to have gone through a lot with everything that happened to you and your husband. From this new year on may you be blessed with things that will make you live life to it's fullest and have some joy in your life. 18's Marty On Tue, Jan 1, 2013 at 4:03 PM, icandoall...@aol.com wrote: ** Thanks Marty, and yes I still miss him a lot. My hubby wasn't real sick; but he just seem to lose a little more of his health each day. He passed away in his sleep very peacefully and that was a great relief. I didn't have to see him dying in a hospital bed or hospice. I thought I wasn't going to make it without him; we were in love ever since high school. But the days passed and I learned to live without him. My children were a great help to me. Happy New to you and yours, Jeanie3 In a message dated 12/13/2012 10:17:39 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Jeanie, I just want to comment on something you wrote. but then I wonder what the drugs are doing to my body. Well, the leukemia kills, so better to just face it head on and live with it Jeanie, now your getting the idea. No matter what your going through your still alive to go through it... I really feel badly for you loosing your hubby and at such a relatively young age. I'm sure that it was and still is very difficult for you. When I was first diagnoised with CML I thanked GOD that I got it rather then my wife or children. I could live with me having it but not my wife or children. Take care of yourself and I wish you to have a very healthy and happy holiday season. 18's Marty On Thu, Dec 13, 2012 at 4:17 PM, icandoall...@aol.com wrote: ** Hi Marty and thanks so much; you sure sound like a warrior to me. I love your response; just face it and try the best to live with it. In Jan I will start on my 9th year of being a CML warrior. Gleevec and Tasigna failed me and I am now on Sprcel. It is a struggle every day for me to take these chemo drugs. I want to look at like you do, and most days I do, but then I wonder what the drugs are doing to my body. Well, the leukemia kills, so better to just face it head on and live with it I lost my hubby when he was only 62 from heart disease caused by diabetes. He struggled many years with it, having a by pass when he was 52. His heart just finally gave out. He had the surgery where they split you open through the breast bone and take veins out of your legs to repair you clogged veins. Christmas is almost here and I love the season. So Merry Christmas to you and a Happy New Year. Jeanie3 In a message dated 12/11/2012 9:34:24 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Jeanie, I'm not the warrior here because I have already gone through all of this. If anyone is a warrior here it is you and Millie and all the rest of the people with this disease. You are fighting and winning, and that is what this is all about isn't it? I read through all of the posts here and on other sites as well, and every one of them are warriors. I had to start on dialysis a little over one year ago. My kidneys have been failing for several years because of several factors. One being all of the radiation and chemotherapy I had almost twenty three years ago for my bone marrow transplant. Also as ageing comes about your kidneys become less effective. Not that I am an old fart but non the less it just happens. Who really knows, it could have been caused by many things but that is what I have, and I will just have to deal with it just as all of you have to deal with your problems. The trick to dealing with anything is to just accept it and simply go on with your life. No one ever said that life is a bowl of cherries. What actually brought my kidney failure was that my community puts down mulch around the houses here and there are always some bags left over that they leave in front of the garages. Since I have some property behind my home I decided to take and put that extra mulch there. Two days later I had a 104 fever and had to go to the hospital. I had double pneumonia and had to be in the hospital for three weeks. It was at that time my kidneys said good bye and I was started on dialysis while in the hospital. Maybe it also had something to do with my job and the fact that when I lived in Staten Island and there was an explosion of a benzine storage tank across the Author Kill River in New Jersey that carried burnt benzine across the water way and deposited it om my house and cars. About two months after I was diagnosed with CML, and I later found out that several of my neighbors were also catering to this disease called CML. I am now on three waiting kidney transplant lists just waiting for something to come about. I also have two potential live donors but even with that it is still a very complicated waiting game. They may or may not be a match for me but it takes a lot of time to
Re: [CMLHope] why are you on dialysis?
Hi Marty and thanks so much; you sure sound like a warrior to me. I love your response; just face it and try the best to live with it. In Jan I will start on my 9th year of being a CML warrior. Gleevec and Tasigna failed me and I am now on Sprcel. It is a struggle every day for me to take these chemo drugs. I want to look at like you do, and most days I do, but then I wonder what the drugs are doing to my body. Well, the leukemia kills, so better to just face it head on and live with it I lost my hubby when he was only 62 from heart disease caused by diabetes. He struggled many years with it, having a by pass when he was 52. His heart just finally gave out. He had the surgery where they split you open through the breast bone and take veins out of your legs to repair you clogged veins. Christmas is almost here and I love the season. So Merry Christmas to you and a Happy New Year. Jeanie3 In a message dated 12/11/2012 9:34:24 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Jeanie, I'm not the warrior here because I have already gone through all of this. If anyone is a warrior here it is you and Millie and all the rest of the people with this disease. You are fighting and winning, and that is what this is all about isn't it? I read through all of the posts here and on other sites as well, and every one of them are warriors. I had to start on dialysis a little over one year ago. My kidneys have been failing for several years because of several factors. One being all of the radiation and chemotherapy I had almost twenty three years ago for my bone marrow transplant. Also as ageing comes about your kidneys become less effective. Not that I am an old fart but non the less it just happens. Who really knows, it could have been caused by many things but that is what I have, and I will just have to deal with it just as all of you have to deal with your problems. The trick to dealing with anything is to just accept it and simply go on with your life. No one ever said that life is a bowl of cherries. What actually brought my kidney failure was that my community puts down mulch around the houses here and there are always some bags left over that they leave in front of the garages. Since I have some property behind my home I decided to take and put that extra mulch there. Two days later I had a 104 fever and had to go to the hospital. I had double pneumonia and had to be in the hospital for three weeks. It was at that time my kidneys said good bye and I was started on dialysis while in the hospital. Maybe it also had something to do with my job and the fact that when I lived in Staten Island and there was an explosion of a benzine storage tank across the Author Kill River in New Jersey that carried burnt benzine across the water way and deposited it om my house and cars. About two months after I was diagnosed with CML, and I later found out that several of my neighbors were also catering to this disease called CML. I am now on three waiting kidney transplant lists just waiting for something to come about. I also have two potential live donors but even with that it is still a very complicated waiting game. They may or may not be a match for me but it takes a lot of time to get everything in order. One of my problems is that I was born with O+ blood type, and when I had my bone marrow transplant my donor had B+ blood type. So, now my blood type is B+. I am what is called a Chimera. Two different people living in my body. I always try to look at some humor in my life, it just keeps me going I guess... So, what will happen if and when I get that kidney transplant? Do you think there will be enough room in me for another person living inside of me or am I just going to explode? I would like to wish you and everyone here a very HEALTHY and happy holiday season. May your upcoming year be better then it has been. I also add my usual 18's to everyone. Marty On Mon, Dec 10, 2012 at 4:43 PM, _ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com) wrote: Happy Holidays Marty, Can you tell us again about your dialysis and why you are on it? Good luck to you in the coming year; you are truly a warrior; and Millie also. Jeanie3 In a message dated 12/10/2012 11:10:40 A.M. Eastern Standard Time, _houtz@ptd.net_ (mailto:ho...@ptd.net) writes: Hello again, Marty, I'm taking a short break from decorating for the season. I am about done. It takes me a while to do little things, but in the end, I accomplish it. Yes, I know that you're on dialysis and are a very strong individual. I have always tried to be, but we all have our days when it doesn't work. I always say that I kick myself in the rear when I get depressed, but it's getting impossible for my legs to do that.:))) I do try very hard to look at the bright side of life. Today I have work to finish
Re: [CMLHope] why are you on dialysis?
Hi Jeanie, I just want to comment on something you wrote. but then I wonder what the drugs are doing to my body. Well, the leukemia kills, so better to just face it head on and live with it Jeanie, now your getting the idea. No matter what your going through your still alive to go through it... I really feel badly for you loosing your hubby and at such a relatively young age. I'm sure that it was and still is very difficult for you. When I was first diagnoised with CML I thanked GOD that I got it rather then my wife or children. I could live with me having it but not my wife or children. Take care of yourself and I wish you to have a very healthy and happy holiday season. 18's Marty On Thu, Dec 13, 2012 at 4:17 PM, icandoall...@aol.com wrote: ** Hi Marty and thanks so much; you sure sound like a warrior to me. I love your response; just face it and try the best to live with it. In Jan I will start on my 9th year of being a CML warrior. Gleevec and Tasigna failed me and I am now on Sprcel. It is a struggle every day for me to take these chemo drugs. I want to look at like you do, and most days I do, but then I wonder what the drugs are doing to my body. Well, the leukemia kills, so better to just face it head on and live with it I lost my hubby when he was only 62 from heart disease caused by diabetes. He struggled many years with it, having a by pass when he was 52. His heart just finally gave out. He had the surgery where they split you open through the breast bone and take veins out of your legs to repair you clogged veins. Christmas is almost here and I love the season. So Merry Christmas to you and a Happy New Year. Jeanie3 In a message dated 12/11/2012 9:34:24 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Jeanie, I'm not the warrior here because I have already gone through all of this. If anyone is a warrior here it is you and Millie and all the rest of the people with this disease. You are fighting and winning, and that is what this is all about isn't it? I read through all of the posts here and on other sites as well, and every one of them are warriors. I had to start on dialysis a little over one year ago. My kidneys have been failing for several years because of several factors. One being all of the radiation and chemotherapy I had almost twenty three years ago for my bone marrow transplant. Also as ageing comes about your kidneys become less effective. Not that I am an old fart but non the less it just happens. Who really knows, it could have been caused by many things but that is what I have, and I will just have to deal with it just as all of you have to deal with your problems. The trick to dealing with anything is to just accept it and simply go on with your life. No one ever said that life is a bowl of cherries. What actually brought my kidney failure was that my community puts down mulch around the houses here and there are always some bags left over that they leave in front of the garages. Since I have some property behind my home I decided to take and put that extra mulch there. Two days later I had a 104 fever and had to go to the hospital. I had double pneumonia and had to be in the hospital for three weeks. It was at that time my kidneys said good bye and I was started on dialysis while in the hospital. Maybe it also had something to do with my job and the fact that when I lived in Staten Island and there was an explosion of a benzine storage tank across the Author Kill River in New Jersey that carried burnt benzine across the water way and deposited it om my house and cars. About two months after I was diagnosed with CML, and I later found out that several of my neighbors were also catering to this disease called CML. I am now on three waiting kidney transplant lists just waiting for something to come about. I also have two potential live donors but even with that it is still a very complicated waiting game. They may or may not be a match for me but it takes a lot of time to get everything in order. One of my problems is that I was born with O+ blood type, and when I had my bone marrow transplant my donor had B+ blood type. So, now my blood type is B+. I am what is called a Chimera. Two different people living in my body. I always try to look at some humor in my life, it just keeps me going I guess... So, what will happen if and when I get that kidney transplant? Do you think there will be enough room in me for another person living inside of me or am I just going to explode? [?][?][?] I would like to wish you and everyone here a very HEALTHY and happy holiday season. May your upcoming year be better then it has been. I also add my usual 18's to everyone. Marty On Mon, Dec 10, 2012 at 4:43 PM, icandoall...@aol.com wrote: ** Happy Holidays Marty, Can you tell us again about your dialysis and why you are on it? Good luck to you in the coming year; you are truly a
Re: [CMLHope] why are you on dialysis?
Hi Jeanie, I'm not the warrior here because I have already gone through all of this. If anyone is a warrior here it is you and Millie and all the rest of the people with this disease. You are fighting and winning, and that is what this is all about isn't it? I read through all of the posts here and on other sites as well, and every one of them are warriors. I had to start on dialysis a little over one year ago. My kidneys have been failing for several years because of several factors. One being all of the radiation and chemotherapy I had almost twenty three years ago for my bone marrow transplant. Also as ageing comes about your kidneys become less effective. Not that I am an old fart but non the less it just happens. Who really knows, it could have been caused by many things but that is what I have, and I will just have to deal with it just as all of you have to deal with your problems. The trick to dealing with anything is to just accept it and simply go on with your life. No one ever said that life is a bowl of cherries. What actually brought my kidney failure was that my community puts down mulch around the houses here and there are always some bags left over that they leave in front of the garages. Since I have some property behind my home I decided to take and put that extra mulch there. Two days later I had a 104 fever and had to go to the hospital. I had double pneumonia and had to be in the hospital for three weeks. It was at that time my kidneys said good bye and I was started on dialysis while in the hospital. Maybe it also had something to do with my job and the fact that when I lived in Staten Island and there was an explosion of a benzine storage tank across the Author Kill River in New Jersey that carried burnt benzine across the water way and deposited it om my house and cars. About two months after I was diagnosed with CML, and I later found out that several of my neighbors were also catering to this disease called CML. I am now on three waiting kidney transplant lists just waiting for something to come about. I also have two potential live donors but even with that it is still a very complicated waiting game. They may or may not be a match for me but it takes a lot of time to get everything in order. One of my problems is that I was born with O+ blood type, and when I had my bone marrow transplant my donor had B+ blood type. So, now my blood type is B+. I am what is called a Chimera. Two different people living in my body. I always try to look at some humor in my life, it just keeps me going I guess... So, what will happen if and when I get that kidney transplant? Do you think there will be enough room in me for another person living inside of me or am I just going to explode? [?][?][?] I would like to wish you and everyone here a very HEALTHY and happy holiday season. May your upcoming year be better then it has been. I also add my usual 18's to everyone. Marty On Mon, Dec 10, 2012 at 4:43 PM, icandoall...@aol.com wrote: ** Happy Holidays Marty, Can you tell us again about your dialysis and why you are on it? Good luck to you in the coming year; you are truly a warrior; and Millie also. Jeanie3 In a message dated 12/10/2012 11:10:40 A.M. Eastern Standard Time, ho...@ptd.net writes: *Hello again, Marty,* ** *I'm taking a short break from decorating for the season. I am about done. It takes me a while to do little things, but in the end, I accomplish it.* ** *Yes, I know that you're on dialysis and are a very strong individual. I have always tried to be, but we all have our days when it doesn't work. I always say that I kick myself in the rear when I get depressed, but it's getting impossible for my legs to do that.:))) I do try very hard to look at the bright side of life.* ** *Today I have work to finish up for our quilt guild, so I plan on doing that. I just keep plugging along like the turtle and in the end surprise myself at what I can do.* ** *You have a wonderful day and know that you are admired by many CMLers. Your attitude is always uplifting.* *Millie* -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of
RE: [CMLHope] why are you on dialysis?
It's always so good and uplifting to hear from you, Marty!!! God bless. Hope you can take dialysis in your home as the new wave of care is happening. My friend does that and she is so much happier because of it. It works while you sleep during the night. 18's, Susan zimmerman From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of Marty Gartenberg Sent: Tuesday, December 11, 2012 9:34 AM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] why are you on dialysis? Hi Jeanie, I'm not the warrior here because I have already gone through all of this. If anyone is a warrior here it is you and Millie and all the rest of the people with this disease. You are fighting and winning, and that is what this is all about isn't it? I read through all of the posts here and on other sites as well, and every one of them are warriors. I had to start on dialysis a little over one year ago. My kidneys have been failing for several years because of several factors. One being all of the radiation and chemotherapy I had almost twenty three years ago for my bone marrow transplant. Also as ageing comes about your kidneys become less effective. Not that I am an old fart but non the less it just happens. Who really knows, it could have been caused by many things but that is what I have, and I will just have to deal with it just as all of you have to deal with your problems. The trick to dealing with anything is to just accept it and simply go on with your life. No one ever said that life is a bowl of cherries. What actually brought my kidney failure was that my community puts down mulch around the houses here and there are always some bags left over that they leave in front of the garages. Since I have some property behind my home I decided to take and put that extra mulch there. Two days later I had a 104 fever and had to go to the hospital. I had double pneumonia and had to be in the hospital for three weeks. It was at that time my kidneys said good bye and I was started on dialysis while in the hospital. Maybe it also had something to do with my job and the fact that when I lived in Staten Island and there was an explosion of a benzine storage tank across the Author Kill River in New Jersey that carried burnt benzine across the water way and deposited it om my house and cars. About two months after I was diagnosed with CML, and I later found out that several of my neighbors were also catering to this disease called CML. I am now on three waiting kidney transplant lists just waiting for something to come about. I also have two potential live donors but even with that it is still a very complicated waiting game. They may or may not be a match for me but it takes a lot of time to get everything in order. One of my problems is that I was born with O+ blood type, and when I had my bone marrow transplant my donor had B+ blood type. So, now my blood type is B+. I am what is called a Chimera. Two different people living in my body. I always try to look at some humor in my life, it just keeps me going I guess... So, what will happen if and when I get that kidney transplant? Do you think there will be enough room in me for another person living inside of me or am I just going to explode? I would like to wish you and everyone here a very HEALTHY and happy holiday season. May your upcoming year be better then it has been. I also add my usual 18's to everyone. Marty On Mon, Dec 10, 2012 at 4:43 PM, icandoall...@aol.com wrote: Happy Holidays Marty, Can you tell us again about your dialysis and why you are on it? Good luck to you in the coming year; you are truly a warrior; and Millie also. Jeanie3 In a message dated 12/10/2012 11:10:40 A.M. Eastern Standard Time, ho...@ptd.net writes: Hello again, Marty, I'm taking a short break from decorating for the season. I am about done. It takes me a while to do little things, but in the end, I accomplish it. Yes, I know that you're on dialysis and are a very strong individual. I have always tried to be, but we all have our days when it doesn't work. I always say that I kick myself in the rear when I get depressed, but it's getting impossible for my legs to do that.:))) I do try very hard to look at the bright side of life. Today I have work to finish up for our quilt guild, so I plan on doing that. I just keep plugging along like the turtle and in the end surprise myself at what I can do. You have a wonderful day and know that you are admired by many CMLers. Your attitude is always uplifting. Millie -- [CMLHope] A support group of http://cmlhope.com http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com
Re: [CMLHope] why are you on dialysis?
Hi Susan, I have also tried doing that but it didn't work. It is called peritoneal dialysis and a catheter is placed into your abdomen and you infuse special bags of glucose based dialyses. It was able to go into but it didn't come out and I had to get another round of surgery to remove it. My abdomen is full of scars from all of that because they tried doing it three times but it just didn't work. Since I also had my spleen removed because of having CML that also left a big scar in my abdomen so that was probably another problem for not being able to do the peritoneal dialysis at home. Believe me if is out there then I am going to find out about it. I even tried stem cell therapy to try and help my kidneys, but it also didn't work. However, what it did do was to get rid of my diabetes. I used to be on insulin but now I don't need any more of that, and my sugar levels are around 98 to about 110 in the mornings. Since insurance didn't cover it I had to pay, and it was very expensive to say the least. If I do get a kidney transplant I will have to be on immunosurpressive drugs for the rest of my life and they usually but not always cause diabetes. So, that's about it and I am just like Pop Eye the sailor man... I am what I am. It's all about attitude and most of all, hope. I would like you to read something that was posted by someone about me. Go to: http://talkbloodcancer.com/content/window-martin-gartenberg Or simply Google my name Marty Gartenberg and look for something called The Window. I wrote this over twenty years ago and I have seen it plagiarized several times. Some were not very nice but I can't stop people from doing what they do... 18's and have a wonderful and most of all a very HEALTHY and happy holiday season. And by the way, GOD has blessed me. Out of transplant going on 23 years this May 21st. It was actually on my 45th birthday that I received my bone marrow transplant, and I'm still here. Some birthday gift, huh? However, this really isn't about me because as I previously stated, I am finished with my CML, it is about all of you. I know what each and every one of you is going through and it breaks my heart just because I know. But you know something? You are also blessed by GOD because your still here. Even though you have some difficulties in your life from having to take these TKI's you are also here as well. How I would have wished that they would have been there for me at the time rather having to go through that bone marrow transplant... Water under the bridge, and I still go on. Again, 18's Marty On Tue, Dec 11, 2012 at 10:19 AM, Susan Zimmerman rszim0...@aol.com wrote: It’s always so good and uplifting to hear from you, Marty!!! God bless. Hope you can take dialysis in your home as the new wave of care is happening. My friend does that and she is so much happier because of it. It works while you sleep during the night. ** ** 18’s, Susan zimmerman ** ** *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] *On Behalf Of *Marty Gartenberg *Sent:* Tuesday, December 11, 2012 9:34 AM *To:* cmlhope@googlegroups.com *Subject:* Re: [CMLHope] why are you on dialysis? ** ** Hi Jeanie, I'm not the warrior here because I have already gone through all of this. If anyone is a warrior here it is you and Millie and all the rest of the people with this disease. You are fighting and winning, and that is what this is all about isn't it? I read through all of the posts here and on other sites as well, and every one of them are warriors. I had to start on dialysis a little over one year ago. My kidneys have been failing for several years because of several factors. One being all of the radiation and chemotherapy I had almost twenty three years ago for my bone marrow transplant. Also as ageing comes about your kidneys become less effective. Not that I am an old fart but non the less it just happens. Who really knows, it could have been caused by many things but that is what I have, and I will just have to deal with it just as all of you have to deal with your problems. The trick to dealing with anything is to just accept it and simply go on with your life. No one ever said that life is a bowl of cherries. What actually brought my kidney failure was that my community puts down mulch around the houses here and there are always some bags left over that they leave in front of the garages. Since I have some property behind my home I decided to take and put that extra mulch there. Two days later I had a 104 fever and had to go to the hospital. I had double pneumonia and had to be in the hospital for three weeks. It was at that time my kidneys said good bye and I was started on dialysis while in the hospital. Maybe it also had something to do with my job and the fact that when I lived in Staten Island and there was an explosion of a benzine storage tank across the Author Kill River in New Jersey
