Re: [CMLHope] CBC results 7/17

2015-07-21 Thread bkbarney via CMLHope
Go Greenie go
Way to go...thanks for sharing...keep us posted!!! Beth


-Original Message-
From: Richard H rbhuffm...@gmail.com
To: cmlhope cmlhope@googlegroups.com
Sent: Sat, Jul 18, 2015 10:17 pm
Subject: Re: [CMLHope] CBC results 7/17


 
  Thanks Greenie. It is great to hear that you are at that wonderful  O.  I 
agree all labs are different but This is the same one week after week.  I 
should be about there after the last one was .2%.  There will be lots of 
talking in about 5 weeks, when I see the ONC.  My fluid levels stay about 1 all 
the time.  I have had 5 by-passes (24 years), added a 2 prong pacemaker (about 
5 years ago) because scar tissue.  
  
On Saturday, July 18, 2015 at 6:50:33 AM UTC-5, greenie wrote:  

  
  After starting Gleevec in Jan. of 2000 my RBC have always been on the low 
side 3.64 and the norm on the low side is 4.20 to 5.80.  No matter what lab you 
go to their counts are always different.  By the way when I went to Chicago the 
first week in June for my blood work they called me a few days later to tell me 
the no cancer cells are showing up which is nice to here.  I am having a 
problem with fluid down around my feet and ankles so the NP wanted me to get a 
Echocardiogram and the test results I'm down loading for you all to see.  Other 
wise I'm doing find.  Everyone take care of yourselfs. 
  

  
  Greenie 
  
  Club member 48 
  
  
  
   
In a message dated 7/18/2015 12:27:02 A.M. Eastern Daylight Time,
rbhuf...@gmail.com writes:  
   

  
  After all the weeks working to get my RBC up to 12.3 it has started 
dropping again. Two weeks ago it was at 12.0, and today's count was down to 
11.1. So it appears that I will be playing with attempting to keep my counts 
up.  I will have my next BCR-ABR 2nd week of Aug and get the results 2 weeks 
later.   
  
  
 
  
  Richard H. 
  
  
 

 
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Re: [CMLHope] CBC results 7/17

2015-07-20 Thread 'Susan Zimmerman' via CMLHope
Great news, Greenie!  Sorry to have missed your trip to Chicago this time.  
We've all been very busy enjoying our brief time without snow, I guess.  Enjoy 
summer, dance today!  I am going to get so healthy with the new discoveries 
I've learned that you all will be blown away!

18's and happiness,  (Life and happiness)



Susan F. Zimmerman





-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Sun, Jul 19, 2015 5:00 pm
Subject: Re: [CMLHope] CBC results 7/17


 
Great news Greenie!! 
 
I is what we all want to hear.  Good to hear from you.  
 
Richard I got my hmg up to 14 but it dropped to 13.  It had been about 11 for a 
long time.  
 
These counts are a battle that's for sure.  
 
Happy Sunday every one.   
  
My Motto: Faith and Pills  
Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s
Dx 1/2004. CML Leukemia   
   
Started Gleevec 2/2004   
   
Started Tasigna  9/2009   
   
Started Sprycel 11/2009   
   
Started Ponatinib January 2015   
   
Dr Balducci Moffitt Cancer Center   
  
 
 
  
On Jul 19, 2015, at 12:17 AM, Richard H   rbhuffm...@gmail.com wrote:  
  
 
 
  
   
Thanks Greenie. It is great to hear that you are at that wonderful  O.  I 
agree all labs are different but This is the same one week after week.  I 
should be about there after the last one was .2%.  There will be lots of 
talking in about 5 weeks, when I see the ONC.  My fluid levels stay about 1 all 
the time.  I have had 5 by-passes (24 years), added a 2 prong pacemaker (about 
5 years ago) because scar tissue.

On Saturday, July 18, 2015 at 6:50:33 AM UTC-5, greenie wrote:
  
  
After starting Gleevec in Jan. of 2000 my RBC have always been on the 
low side 3.64 and the norm on the low side is 4.20 to 5.80.  No matter what lab 
you go to their counts are always different.  By the way when I went to Chicago 
the first week in June for my blood work they called me a few days later to 
tell me the no cancer cells are showing up which is nice to here.  I am having 
a problem with fluid down around my feet and ankles so the NP wanted me to get 
a Echocardiogram and the test results I'm down loading for you all to see.  
Other wise I'm doing find.  Everyone take care of yourselfs.   



Greenie   

Club member 48   



 
In a message dated 7/18/2015 12:27:02 A.M. Eastern Daylight Time,  
rbhuf...@gmail.com writes:
 


After all the weeks working to get my RBC up to 12.3 it has started 
dropping again. Two weeks ago it was at 12.0, and today's count was down to 
11.1. So it appears that I will be playing with attempting to keep my counts 
up.  I will have my next BCR-ABR 2nd week of Aug and get the results 2 weeks 
later. 


   

Richard H.   


   
  
 
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Re: [CMLHope] CBC results 7/17

2015-07-19 Thread 'Icandoallttc' via CMLHope
Great news Greenie!!
I is what we all want to hear.  Good to hear from you. 
Richard I got my hmg up to 14 but it dropped to 13.  It had been about 11 for a 
long time. 
These counts are a battle that's for sure. 
Happy Sunday every one. 

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

 On Jul 19, 2015, at 12:17 AM, Richard H rbhuffm...@gmail.com wrote:
 
 Thanks Greenie. It is great to hear that you are at that wonderful  O.  I 
 agree all labs are different but This is the same one week after week.  I 
 should be about there after the last one was .2%.  There will be lots of 
 talking in about 5 weeks, when I see the ONC.  My fluid levels stay about 1 
 all the time.  I have had 5 by-passes (24 years), added a 2 prong pacemaker 
 (about 5 years ago) because scar tissue.
 
 On Saturday, July 18, 2015 at 6:50:33 AM UTC-5, greenie wrote:
 After starting Gleevec in Jan. of 2000 my RBC have always been on the low 
 side 3.64 and the norm on the low side is 4.20 to 5.80.  No matter what lab 
 you go to their counts are always different.  By the way when I went to 
 Chicago the first week in June for my blood work they called me a few days 
 later to tell me the no cancer cells are showing up which is nice to here.  
 I am having a problem with fluid down around my feet and ankles so  the NP 
 wanted me to get a Echocardiogram and the test results I'm down loading for 
 you all to see.  Other wise I'm doing find.  Everyone take care of yourselfs.
  
 Greenie
 Club member 48
  
 In a message dated 7/18/2015 12:27:02 A.M. Eastern Daylight Time, 
 rbhuf...@gmail.com writes:
 After all the weeks working to get my RBC up to 12.3 it has started dropping 
 again. Two weeks ago it was at 12.0, and today's count was down to 11.1. So 
 it appears that I will be playing with attempting to keep my counts up.  I 
 will have my next BCR-ABR 2nd week of Aug and get the results 2 weeks later. 
 
 Richard H.
 
 -- 
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Re: [CMLHope] CBC results 7/17

2015-07-18 Thread Marty Gartenberg
Hi Richard,

since your white counts reflect any ware from 12 to around 10, I may not be
understanding  your meaning of a low white count is. That may be in the
metric system but I am not sure,

I have a white count of
RGB4.20 - 6.00 m/uL  6.00 n/ul which is considered normal. Mine is usually
low

18,s

Marty. 3.43


On Sat, Jul 18, 2015 at 7:50 AM, Myvety2k via CMLHope 
cmlhope@googlegroups.com wrote:

  After starting Gleevec in Jan. of 2000 my RBC have always been on the
 low side 3.64 and the norm on the low side is 4.20 to 5.80.  No matter what
 lab you go to their counts are always different.  By the way when I went to
 Chicago the first week in June for my blood work they called me a few days
 later to tell me the no cancer cells are showing up which is nice to here.
 I am having a problem with fluid down around my feet and ankles so the NP
 wanted me to get a Echocardiogram and the test results I'm down loading for
 you all to see.  Other wise I'm doing find.  Everyone take care of
 yourselfs.

 Greenie
 Club member 48

  In a message dated 7/18/2015 12:27:02 A.M. Eastern Daylight Time,
 rbhuffm...@gmail.com writes:

  After all the weeks working to get my RBC up to 12.3 it has started
 dropping again. Two weeks ago it was at 12.0, and today's count was down to
 11.1. So it appears that I will be playing with attempting to keep my
 counts up.  I will have my next BCR-ABR 2nd week of Aug and get the results
 2 weeks later.

 Richard H.

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Re: [CMLHope] CBC results 7/17

2015-07-18 Thread 'Icandoallttc' via CMLHope
Good luck Richard.  
Eat some liver and spinach.  Make sure your diet is good and full of nutrition. 
adding nuts and seeds brought mine up. 

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

 On Jul 18, 2015, at 12:26 AM, Richard H rbhuffm...@gmail.com wrote:
 
 After all the weeks working to get my RBC up to 12.3 it has started dropping 
 again. Two weeks ago it was at 12.0, and today's count was down to 11.1. So 
 it appears that I will be playing with attempting to keep my counts up.  I 
 will have my next BCR-ABR 2nd week of Aug and get the results 2 weeks later. 
 
 Richard H.
 
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Re: [CMLHope] CBC results 7/17

2015-07-18 Thread Richard H
Sorry, I meant HGM is has fallen from 12. to 11.1 in 2 weeks.  My white 
counts is staying 4 to 5.5, that being the low side of normal.  Transfusion 
point for me is HMG 7.9.  

On Saturday, July 18, 2015 at 10:08:23 AM UTC-5, wa2yyx wrote:

 Hi Richard,

 since your white counts reflect any ware from 12 to around 10, I may not 
 be understanding  your meaning of a low white count is. That may be in the 
 metric system but I am not sure,

 I have a white count of 
 RGB4.20 - 6.00 m/uL  6.00 n/ul which is considered normal. Mine is 
 usually low

 18,s 

 Marty. 3.43
   

 On Sat, Jul 18, 2015 at 7:50 AM, Myvety2k via CMLHope 
 cml...@googlegroups.com javascript: wrote:

  After starting Gleevec in Jan. of 2000 my RBC have always been on the 
 low side 3.64 and the norm on the low side is 4.20 to 5.80.  No matter what 
 lab you go to their counts are always different.  By the way when I went to 
 Chicago the first week in June for my blood work they called me a few days 
 later to tell me the no cancer cells are showing up which is nice to here.  
 I am having a problem with fluid down around my feet and ankles so the NP 
 wanted me to get a Echocardiogram and the test results I'm down loading for 
 you all to see.  Other wise I'm doing find.  Everyone take care of 
 yourselfs.
  
 Greenie
 Club member 48
  
  In a message dated 7/18/2015 12:27:02 A.M. Eastern Daylight Time, 
 rbhuf...@gmail.com javascript: writes:

  After all the weeks working to get my RBC up to 12.3 it has started 
 dropping again. Two weeks ago it was at 12.0, and today's count was down to 
 11.1. So it appears that I will be playing with attempting to keep my 
 counts up.  I will have my next BCR-ABR 2nd week of Aug and get the results 
 2 weeks later.  

 Richard H.

 -- 
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Re: [CMLHope] CBC results 7/17

2015-07-18 Thread Richard H
Thanks Greenie. It is great to hear that you are at that wonderful  O.  I 
agree all labs are different but This is the same one week after week.  I 
should be about there after the last one was .2%.  There will be lots of 
talking in about 5 weeks, when I see the ONC.  My fluid levels stay about 1 
all the time.  I have had 5 by-passes (24 years), added a 2 prong pacemaker 
(about 5 years ago) because scar tissue.

On Saturday, July 18, 2015 at 6:50:33 AM UTC-5, greenie wrote:

  After starting Gleevec in Jan. of 2000 my RBC have always been on the 
 low side 3.64 and the norm on the low side is 4.20 to 5.80.  No matter what 
 lab you go to their counts are always different.  By the way when I went to 
 Chicago the first week in June for my blood work they called me a few days 
 later to tell me the no cancer cells are showing up which is nice to here.  
 I am having a problem with fluid down around my feet and ankles so the NP 
 wanted me to get a Echocardiogram and the test results I'm down loading for 
 you all to see.  Other wise I'm doing find.  Everyone take care of 
 yourselfs.
  
 Greenie
 Club member 48
  
  In a message dated 7/18/2015 12:27:02 A.M. Eastern Daylight Time, 
 rbhuf...@gmail.com javascript: writes:

  After all the weeks working to get my RBC up to 12.3 it has started 
 dropping again. Two weeks ago it was at 12.0, and today's count was down to 
 11.1. So it appears that I will be playing with attempting to keep my 
 counts up.  I will have my next BCR-ABR 2nd week of Aug and get the results 
 2 weeks later.  

 Richard H.

 -- 
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Re: [CMLHope] CBC results 7/17

2015-07-18 Thread Richard H
I do like liver and eat a little spinach.  But I did find an article that 
when we have a medicine causing the problem there is no way you can get 
enough iron that way.  I was taking a 65mg Iron pill daily and a Procrit 
shot weekly (and paying the penalty for too much iron) to turn this around 
2 months ago.

Richard H.

On Saturday, July 18, 2015 at 10:27:59 AM UTC-5, Icandoallttc wrote:

 Good luck Richard.  
 Eat some liver and spinach.  Make sure your diet is good and full of 
 nutrition. adding nuts and seeds brought mine up. 

 My Motto: Faith and Pills
 Jeanie 18,s 
 Dx 1/2004. CML Leukemia
 Started Gleevec 2/2004
 Started Tasigna  9/2009
 Started Sprycel 11/2009
 Started Ponatinib January 2015
 Dr Balducci Moffitt Cancer Center

 On Jul 18, 2015, at 12:26 AM, Richard H rbhuf...@gmail.com javascript: 
 wrote:

 After all the weeks working to get my RBC up to 12.3 it has started 
 dropping again. Two weeks ago it was at 12.0, and today's count was down to 
 11.1. So it appears that I will be playing with attempting to keep my 
 counts up.  I will have my next BCR-ABR 2nd week of Aug and get the results 
 2 weeks later.  

 Richard H.

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Re: [CMLHope] CBC results 7/17

2015-07-17 Thread 'Marcie Goodman' via CMLHope
Richard,

Thoughts and prayers coming your way for the RBC counts to rise quickly. 
Sometimes I feel like a yo-yo the way my counts rise and fall. Take good care. 

Marcie

Sent from my iPad

 On Jul 18, 2015, at 12:26 AM, Richard H rbhuffm...@gmail.com wrote:
 
 After all the weeks working to get my RBC up to 12.3 it has started dropping 
 again. Two weeks ago it was at 12.0, and today's count was down to 11.1. So 
 it appears that I will be playing with attempting to keep my counts up.  I 
 will have my next BCR-ABR 2nd week of Aug and get the results 2 weeks later. 
 
 Richard H.
 
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