Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Hi Nick and Elizabeth, yes that is neat! I went through this when I was on Gleevec and my hair did grow back. I take one day at a time and happy each day I am given. The ponatinib is a tiny little pill that you wouldn't think was big enough to heal anything but my blood that was way off is almost back to normal in 5 months. Maybe this is the pill that will be my healing. Hope you two are good. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 13, 2015, at 10:45 AM, NICK WOODS ksnwo...@prodigy.net wrote: Jeannie, sure understand the foggy brain symptoms with any CML RX. Hope your hair regrows soon. Had a friend who said, I went into the hospital with a high fever and a serious illness. My hair was black. Then it fell out. When I got well and left the hospital, my hair had grown back in and was red! I've been a redhead ever since! The man was in his early 70's when he shared this story with us. He still laughed about being a redhead. Hope this made you laugh a little bit, too. Elizabeth Nick On Tuesday, May 12, 2015 5:21 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics 5th month on Ponatinib - 1 Update Questions - 1 Update 5th month on Ponatinib Icandoallttc icandoall...@aol.com: May 11 03:28PM -0400 Hi all This is my 5th month on ponatinib and I am taking each day as it comes. My skin has quit peeling but my hair is still falling out. Chemo brain is with me most of the day. No rash or sores yet. Blood is almost normal but WBC is 1 point above normal. I am still on 1 15 mg pill. I hope every one is good today. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Back to top Questions Icandoallttc icandoall...@aol.com: May 11 11:05AM -0400 Hang in--it just takes time to heal. God bless. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Back to top You received this digest because you're subscribed to updates for this group. You can change your settings on the group membership page. To unsubscribe from this group and stop receiving emails from it send an email to cmlhope+unsubscr...@googlegroups.com. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Happy Thanksgiving to all. Sent from my iPhone On Nov 22, 2014, at 7:20 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Beth, Your right about our group. greenie In a message dated 11/22/2014 2:59:57 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Ditto what everyone else said..greenie...so glad you are in remission! and glad you have your sweetie who takes such good care of you! Sitting back and catching up on some of my emails..it's such a nice thing to read so many supportive outreaching..stay close...emails...this is such a lovely group..and I wish all of you..each and everyone..a pain free, peaceful Thanksgiving..I am thankful for all of you. Fondly,Beth -Original Message- From: icandoallttc via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Nov 14, 2014 1:29 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.comGoogle Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it does go
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Ditto what everyone else said..greenie...so glad you are in remission! and glad you have your sweetie who takes such good care of you! Sitting back and catching up on some of my emails..it's such a nice thing to read so many supportive outreaching..stay close...emails...this is such a lovely group..and I wish all of you..each and everyone..a pain free, peaceful Thanksgiving..I am thankful for all of you. Fondly,Beth -Original Message- From: icandoallttc via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Nov 14, 2014 1:29 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keepup your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Thank you Beth, Your right about our group. greenie In a message dated 11/22/2014 2:59:57 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Ditto what everyone else said..greenie...so glad you are in remission! and glad you have your sweetie who takes such good care of you! Sitting back and catching up on some of my emails..it's such a nice thing to read so many supportive outreaching..stay close...emails...this is such a lovely group..and I wish all of you..each and everyone..a pain free, peaceful Thanksgiving..I am thankful for all of you. Fondly,Beth -Original Message- From: icandoallttc via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Nov 14, 2014 1:29 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, _ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvi ew) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) * _Glivec and studies of stopping the drug_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0) - 1 Update * _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#grou p_thread_1) - 1 Update _Glivec and studies of stopping the drug _ (http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email) Richard H _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) : Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: _Back to top_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top) _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics _ (http://groups.google.com/group/cmlhope/t/6cf9af24d4b963a7?utm_source=digestutm_medium= email) Sue _hol...@iinet.net.au_ (mailto:hol...@iinet.net.au) : Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) - 6 updates in 2 topics _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digest utm_medium=email Glivec and studies of stopping the drug Shannon L _shannonl.camden
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
I knew I could count on you, Marty These are perfect, seen before, but very very pertinent! Thanks also for the kudos. Everyone, let's enjoy those times He carries usso very often. Susan F. Zimmerman Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Nov 18, 2014 5:50 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics Hi Susan, Here are those footprints you wanted. 18's, Marty Footprints in the Sand On Tue, Nov 18, 2014 at 9:24 AM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: So glad you are negative, too, Greenie!!! Let's do the happy dance togetherwish I knew how to put footprints on here! 18's, Susan -Original Message- From: Myvety2k via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Nov 11, 2014 4:05 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keepup your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
So glad you are negative, too, Greenie!!! Let's do the happy dance togetherwish I knew how to put footprints on here! 18's, Susan -Original Message- From: Myvety2k via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Nov 11, 2014 4:05 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keepup your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it does
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Well thank you Susan. greenie In a message dated 11/18/2014 9:25:11 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: So glad you are negative, too, Greenie!!! Let's do the happy dance togetherwish I knew how to put footprints on here! 18's, Susan -Original Message- From: Myvety2k via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Nov 11, 2014 4:05 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, _ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvie w) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) * _Glivec and studies of stopping the drug_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0) - 1 Update * _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#grou p_thread_1) - 1 Update _Glivec and studies of stopping the drug _ (http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email) Richard H _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) : Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: _Back to top_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top) _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics _ (http://groups.google.com/group/cmlhope/t/6cf9af24d4b963a7?utm_source=digestutm_m edium=email) Sue _hol...@iinet.net.au_ (mailto:hol...@iinet.net.au) : Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) - 6 updates in 2 topics _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digest utm_medium=email Glivec and studies of stopping the drug Shannon L _shannonl.camden@gmail.com_ (mailto:shannonl.cam...@gmail.com) mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Susan: So terrific that you are doing and feeling so well. You look great in all of your FB pictures and I'm so happy to see that! Marcie -Original Message- From: Myvety2k via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Nov 18, 2014 10:59 am Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics Well thank you Susan. greenie In a message dated 11/18/2014 9:25:11 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: So glad you are negative, too, Greenie!!!Let's do the happy dance togetherwish I knew how to put footprints on here! 18's, Susan -Original Message- From: Myvety2k via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Nov 11, 2014 4:05 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Hi Susan, Here are those footprints you wanted. 18's, Marty Footprints in the Sand [image: palm tree craft] On Tue, Nov 18, 2014 at 9:24 AM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: So glad you are negative, too, Greenie!!! Let's do the happy dance togetherwish I knew how to put footprints on here! 18's, Susan -Original Message- From: Myvety2k via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Nov 11, 2014 4:05 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview [image: https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview] https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics - Glivec and studies of stopping the drug https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0 - 1 Update - Digest for cmlhope@googlegroups.com - 6 updates in 2 topics https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_1 - 1 Update Glivec and studies of stopping the drug http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics http://groups.google.com/group/cmlhope/t/6cf9af24d4b963a7?utm_source=digestutm_medium=email Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
I love that!! Thanks so much Marty! Sent from my iPhone On Nov 18, 2014, at 5:50 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Susan, Here are those footprints you wanted. 18's, Marty Footprints in the Sand On Tue, Nov 18, 2014 at 9:24 AM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: So glad you are negative, too, Greenie!!! Let's do the happy dance togetherwish I knew how to put footprints on here! 18's, Susan -Original Message- From: Myvety2k via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Nov 11, 2014 4:05 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.comGoogle Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it does go into detail. Good luck to you, and I have always said there will be a cure for CML in our lifetimes. If you follow any of my posts I always end them with two numbers. They are 18 which is the symbol for life. 18's to you Shannon Marty PS Shannon I encourage you to post any time that you like. There will usually be someone that may be able to answer your questions. Besides that we are all here to learn
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral that's next in line and I'll be Captain Dave. When I first started flying real planes my instructor used to call me Capt. Dave. So when I started flying RC airplanes last year I crashed a lot so one of the guy's would call me Danger Dave. Of course now I can fly as good as the rest of the guys. But their used to be a lot of broken plane parts on the field. greenie In a message dated 11/14/2014 10:51:23 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, _wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, _ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvi ew) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) * _Glivec and studies of stopping the drug_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0) - 1 Update * _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#grou p_thread_1) - 1 Update _Glivec and studies of stopping the drug _ (http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email) Richard H _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) : Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: _Back to top_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top) _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics _
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Hi Greenie, This ship that we are all in command of is a very special ship. Do you want to know why? Well, it is always afloat and never sinks. Even if you have some bad days, and I can certainly attest to that, then we also have those good days. So we seem to be sailing in the right direction. My father once taught me that every day is a good day as long as none of our loved ones dies. I was in that plastic bubble when he came and sat right in front of it. I was kind of feeling really bad until he told me that. GOD rest his soul... 18's, Marty On Sat, Nov 15, 2014 at 7:20 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral that's next in line and I'll be Captain Dave. When I first started flying real planes my instructor used to call me Capt. Dave. So when I started flying RC airplanes last year I crashed a lot so one of the guy's would call me Danger Dave. Of course now I can fly as good as the rest of the guys. But their used to be a lot of broken plane parts on the field. greenie In a message dated 11/14/2014 10:51:23 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview [image: https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview] https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics - Glivec and studies of stopping the drug https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0 - 1 Update - Digest for cmlhope@googlegroups.com - 6 updates in 2 topics https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_1 - 1 Update Glivec and studies of stopping the drug http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Marty, very well spoken. greenie In a message dated 11/15/2014 8:43:02 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, This ship that we are all in command of is a very special ship. Do you want to know why? Well, it is always afloat and never sinks. Even if you have some bad days, and I can certainly attest to that, then we also have those good days. So we seem to be sailing in the right direction. My father once taught me that every day is a good day as long as none of our loved ones dies. I was in that plastic bubble when he came and sat right in front of it. I was kind of feeling really bad until he told me that. GOD rest his soul... 18's, Marty On Sat, Nov 15, 2014 at 7:20 AM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral that's next in line and I'll be Captain Dave. When I first started flying real planes my instructor used to call me Capt. Dave. So when I started flying RC airplanes last year I crashed a lot so one of the guy's would call me Danger Dave. Of course now I can fly as good as the rest of the guys. But their used to be a lot of broken plane parts on the field. greenie In a message dated 11/14/2014 10:51:23 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, _wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, _ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvi ew) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) * _Glivec and studies of stopping the drug_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0) - 1 Update * _Digest for cmlhope@googlegroups.com - 6 updates in
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Thank you Greenie..I was dx in 1977... they could not find anyone longer without remission...was on myleran for 27 of those years every year. But please I was in the ranksnever wanted to be in charge. Like us all we are in one giant circle. Each one holding each other afloat, I may dip under the waves but all of you bring me back up.. and then another dip under the waves and Marty or you or someone always pull us by or bootstraps. I think of these groups like that.I do not have the words of Marty but like the little fox said to the little Princeit is only with the heart one see rightly, what is essential is invisible to the eye may you all have good health and loveSkipD dxed 1977 been on all the different chemos just like school I failed every one From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Saturday, November 15, 2014 9:42 AM Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics Hi Greenie, This ship that we are all in command of is a very special ship. Do you want to know why? Well, it is always afloat and never sinks. Even if you have some bad days, and I can certainly attest to that, then we also have those good days. So we seem to be sailing in the right direction. My father once taught me that every day is a good day as long as none of our loved ones dies. I was in that plastic bubble when he came and sat right in front of it. I was kind of feeling really bad until he told me that. GOD rest his soul... 18's, Marty On Sat, Nov 15, 2014 at 7:20 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral that's next in line and I'll be Captain Dave. When I first started flying real planes my instructor used to call me Capt. Dave. So when I started flying RC airplanes last year I crashed a lot so one of the guy's would call me Danger Dave. Of course now I can fly as good as the rest of the guys. But their used to be a lot of broken plane parts on the field. greenie In a message dated 11/14/2014 10:51:23 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: | cmlhope@googlegroups.com | Google Groups | | Topic digest View all topics - Glivec and studies of stopping the drug - 1 Update - Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug | Richard H rbhuffm...@gmail.com: Nov 10 09:05PM
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Hey Skip, you say been on all the different chemos just like school I failed every one Well, you may have been on all of them but you didn't fail. And do you want to know why? Hey your still here after all of these years. [?] I think that sending you those 18's really speaks volumes. Skip you need to make awareness of CML as probably the longest person in the world alive with CML. Ever think about contacting the Guiness world book of records? 18's, Marty On Sat, Nov 15, 2014 at 8:46 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Marty, very well spoken. greenie In a message dated 11/15/2014 8:43:02 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, This ship that we are all in command of is a very special ship. Do you want to know why? Well, it is always afloat and never sinks. Even if you have some bad days, and I can certainly attest to that, then we also have those good days. So we seem to be sailing in the right direction. My father once taught me that every day is a good day as long as none of our loved ones dies. I was in that plastic bubble when he came and sat right in front of it. I was kind of feeling really bad until he told me that. GOD rest his soul... 18's, Marty On Sat, Nov 15, 2014 at 7:20 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral that's next in line and I'll be Captain Dave. When I first started flying real planes my instructor used to call me Capt. Dave. So when I started flying RC airplanes last year I crashed a lot so one of the guy's would call me Danger Dave. Of course now I can fly as good as the rest of the guys. But their used to be a lot of broken plane parts on the field. greenie In a message dated 11/14/2014 10:51:23 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview [image: https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview] https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics - Glivec and studies of stopping the drug
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Marty, that's not a bad idea, he should contact them. greenie In a message dated 11/15/2014 10:31:59 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hey Skip, you say been on all the different chemos just like school I failed every one Well, you may have been on all of them but you didn't fail. And do you want to know why? Hey your still here after all of these years. I think that sending you those 18's really speaks volumes. Skip you need to make awareness of CML as probably the longest person in the world alive with CML. Ever think about contacting the Guiness world book of records? 18's, Marty On Sat, Nov 15, 2014 at 8:46 AM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Marty, very well spoken. greenie In a message dated 11/15/2014 8:43:02 A.M. Eastern Standard Time, _wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) writes: Hi Greenie, This ship that we are all in command of is a very special ship. Do you want to know why? Well, it is always afloat and never sinks. Even if you have some bad days, and I can certainly attest to that, then we also have those good days. So we seem to be sailing in the right direction. My father once taught me that every day is a good day as long as none of our loved ones dies. I was in that plastic bubble when he came and sat right in front of it. I was kind of feeling really bad until he told me that. GOD rest his soul... 18's, Marty On Sat, Nov 15, 2014 at 7:20 AM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral that's next in line and I'll be Captain Dave. When I first started flying real planes my instructor used to call me Capt. Dave. So when I started flying RC airplanes last year I crashed a lot so one of the guy's would call me Danger Dave. Of course now I can fly as good as the rest of the guys. But their used to be a lot of broken plane parts on the field. greenie In a message dated 11/14/2014 10:51:23 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, _wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, _ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
It would surely bring up a lot of attention to CML and it's victims. Most people don't realize much about it. 18's, Marty On Sat, Nov 15, 2014 at 10:41 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Marty, that's not a bad idea, he should contact them. greenie In a message dated 11/15/2014 10:31:59 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hey Skip, you say been on all the different chemos just like school I failed every one Well, you may have been on all of them but you didn't fail. And do you want to know why? Hey your still here after all of these years. [?] I think that sending you those 18's really speaks volumes. Skip you need to make awareness of CML as probably the longest person in the world alive with CML. Ever think about contacting the Guiness world book of records? 18's, Marty On Sat, Nov 15, 2014 at 8:46 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Marty, very well spoken. greenie In a message dated 11/15/2014 8:43:02 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, This ship that we are all in command of is a very special ship. Do you want to know why? Well, it is always afloat and never sinks. Even if you have some bad days, and I can certainly attest to that, then we also have those good days. So we seem to be sailing in the right direction. My father once taught me that every day is a good day as long as none of our loved ones dies. I was in that plastic bubble when he came and sat right in front of it. I was kind of feeling really bad until he told me that. GOD rest his soul... 18's, Marty On Sat, Nov 15, 2014 at 7:20 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral that's next in line and I'll be Captain Dave. When I first started flying real planes my instructor used to call me Capt. Dave. So when I started flying RC airplanes last year I crashed a lot so one of the guy's would call me Danger Dave. Of course now I can fly as good as the rest of the guys. But their used to be a lot of broken plane parts on the field. greenie In a message dated 11/14/2014 10:51:23 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics Google Groups
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Love it, Captain Dave! Marcie Sent from my iPhone On Nov 15, 2014, at 7:20 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral that's next in line and I'll be Captain Dave. When I first started flying real planes my instructor used to call me Capt. Dave. So when I started flying RC airplanes last year I crashed a lot so one of the guy's would call me Danger Dave. Of course now I can fly as good as the rest of the guys. But their used to be a lot of broken plane parts on the field. greenie In a message dated 11/14/2014 10:51:23 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
The guys in town are trying to get a handle on all of this to write an article in medical papers. I do not like to make too big of a deal about this as I am getting up in years and like Zavie I could get something like the flu, everyone would blame CML and all the drugs I've been on so I would not want that. No good to make CML a terrible problem when so many now are doing so well.. As you said there will be a cure.. so I will like all old soldiers fade away when its my time From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Saturday, November 15, 2014 11:31 AM Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics Hey Skip, you say been on all the different chemos just like school I failed every one Well, you may have been on all of them but you didn't fail. And do you want to know why? Hey your still here after all of these years. I think that sending you those 18's really speaks volumes. Skip you need to make awareness of CML as probably the longest person in the world alive with CML. Ever think about contacting the Guiness world book of records? 18's, Marty On Sat, Nov 15, 2014 at 8:46 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Marty, very well spoken. greenie In a message dated 11/15/2014 8:43:02 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, This ship that we are all in command of is a very special ship. Do you want to know why? Well, it is always afloat and never sinks. Even if you have some bad days, and I can certainly attest to that, then we also have those good days. So we seem to be sailing in the right direction. My father once taught me that every day is a good day as long as none of our loved ones dies. I was in that plastic bubble when he came and sat right in front of it. I was kind of feeling really bad until he told me that. GOD rest his soul... 18's, Marty On Sat, Nov 15, 2014 at 7:20 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral that's next in line and I'll be Captain Dave. When I first started flying real planes my instructor used to call me Capt. Dave. So when I started flying RC airplanes last year I crashed a lot so one of the guy's would call me Danger Dave. Of course now I can fly as good as the rest of the guys. But their used to be a lot of broken plane parts on the field. greenie In a message dated 11/14/2014 10:51:23 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it does go into detail. Good luck to you, and I have always said there will be a cure for CML in our lifetimes. If you follow any of my posts I always end them with two numbers. They are 18 which is the symbol for life. 18's to you Shannon Marty PS Shannon I encourage you to post any time that you like. There will usually be someone that may be able to answer your questions. Besides that we are all here to learn from and help each other Can Imatinib Be Stopped? Goodwin, Peter Article Outline [image: Collapse Box]Author Information ASH Abstracts 186 and 187 SAN FRANCISCO—The early promise of the tyrosine kinase inhibitor (TKI) imatinib for treating chronic myeloid leukemia (CML) has continued to be fulfilled following the release of seven-year follow-up data at the ASH Annual Meeting here from the International Randomized Study of Interferon versus STI 571 (imatinib) (IRIS) with 553 patients. With diminishing rates of progression each year beyond year three, the case
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Thank you Jeanie greenie In a message dated 11/14/2014 2:29:41 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, _ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvi ew) _Topic digest _ () _View all topics_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) * _Glivec and studies of stopping the drug_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0) - 1 Update * _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#grou p_thread_1) - 1 Update () _Glivec and studies of stopping the drug _ (http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email) Richard H _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) : Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: _Back to top_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top) () _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics _ (http://groups.google.com/group/cmlhope/t/6cf9af24d4b963a7?utm_source=digestutm_med ium=email) Sue _hol...@iinet.net.au_ (mailto:hol...@iinet.net.au) : Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) - 6 updates in 2 topics _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digest utm_medium=email Glivec and studies of stopping the drug Shannon L _shannonl.camden@gmail.com_ (mailto:shannonl.cam...@gmail.com) mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Dear Greenie, HOORAY FOR YOU!!! I am celebrating and doing the happy dance with you, too!!! Susan F. Zimmerman -Original Message- From: Myvety2k via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Nov 14, 2014 2:31 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics Thank you Jeanie greenie In a message dated 11/14/2014 2:29:41 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview [image: https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview] https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics - Glivec and studies of stopping the drug https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0 - 1 Update - Digest for cmlhope@googlegroups.com - 6 updates in 2 topics https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_1 - 1 Update Glivec and studies of stopping the drug http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics http://groups.google.com/group/cmlhope/t/6cf9af24d4b963a7?utm_source=digestutm_medium=email Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Congratulations, Greenie! Great news. Marcie Sent from my iPad On Nov 14, 2014, at 7:35 PM, Marty Gartenberg wa2...@gmail.com wrote: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it does go into detail. Good luck to you, and I have always said there will be a cure for CML in our lifetimes. If you follow any of my posts I always end them with two numbers. They are 18 which is the symbol for life. 18's to you Shannon Marty PS Shannon I encourage you to post any time that you like. There will usually be someone that may be able to answer your questions. Besides that we are all here to learn from and help each other Can Imatinib Be Stopped? Goodwin, Peter Article Outline [image: Collapse Box]Author Information ASH Abstracts 186 and 187 SAN FRANCISCO—The early promise of the tyrosine kinase inhibitor (TKI) imatinib for treating chronic
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, _ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvi ew) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) * _Glivec and studies of stopping the drug_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0) - 1 Update * _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#grou p_thread_1) - 1 Update _Glivec and studies of stopping the drug _ (http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email) Richard H _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) : Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: _Back to top_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top) _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics _ (http://groups.google.com/group/cmlhope/t/6cf9af24d4b963a7?utm_source=digestutm_medium= email) Sue _hol...@iinet.net.au_ (mailto:hol...@iinet.net.au) : Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) - 6 updates in 2 topics _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, _ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvi ew) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) * _Glivec and studies of stopping the drug_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0) - 1 Update * _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#grou p_thread_1) - 1 Update _Glivec and studies of stopping the drug _ (http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email) Richard H _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) : Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: _Back to top_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top) _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics _ (http://groups.google.com/group/cmlhope/t/6cf9af24d4b963a7?utm_source=digestutm_medium= email) Sue _hol...@iinet.net.au_ (mailto:hol...@iinet.net.au) : Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) - 6 updates in 2 topics _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Topic
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I would like to thank each and everyone of you for your warm hearted replies. greenie In a message dated 11/14/2014 9:36:20 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Thank you Marty, I should have added that I went into remission within 6 months after starting Gleevec. I was having to get blood work every 3 months now I get blood work every 6 months. I've had 27 BMB's so I'm glad they do it by testing your blood. We all have our good days and then their are a few bad days to so like my late Aunt used to say just take one day at a time. And that's what I do. Today was one of those bad days but tomorrow I'm sure will be better it always is. Everyone please take care of yourself's I'm so lucky my wife Grace who takes good care of me. greenie In a message dated 11/14/2014 7:35:36 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Yahoo Greenie So happy for you!! Blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.comGoogle Groups Topic digest View all topics * Glivec and studies of stopping the drug - 1 Update * Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it does go into detail. Good luck to you, and I have always said there will be a cure for CML in our lifetimes. If you follow any of my posts I always end them with two numbers. They are 18 which is the symbol for life. 18's to you Shannon Marty PS Shannon I encourage you to post any time that you like. There will usually be someone that may be able to answer your questions. Besides that we are all here to learn from and help each other Can Imatinib Be Stopped? Goodwin, Peter Article Outline [image: Collapse Box]Author Information ASH Abstracts 186 and 187 SAN FRANCISCO—The early promise of the tyrosine kinase inhibitor (TKI) imatinib for treating chronic myeloid leukemia (CML) has continued to be fulfilled following the release of seven-year follow-up data at the ASH Annual Meeting here from the International Randomized Study of Interferon versus STI 571 (imatinib) (IRIS) with 553 patients. With diminishing rates of progression each year beyond year three, the case for stopping imatinib altogether was also discussed at the meeting following release of results from two studies in which the drug was discontinued among patients who had achieved enduring complete molecular responses to it for more than two years. IRIS investigator Stephen G. O'Brien MD, PhD, Senior Lecturer in Experimental Hematology at Northern Institute for Cancer Research of University of Newcastle upon Tyne, UK, gave the latest IRIS results to a packed audience at the meeting, showing an event-free survival rate of 81%, freedom from progression to accelerated phase/blast crisis of 93%, and an estimated overall survival rate of 86%, from the standard dose of 400 mg imatinib daily. And in the presentation that followed, François-Xavier Mahon, MD, Professor at Victor Ségalen
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvie w) _Topic digest _ () _View all topics_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) * _Glivec and studies of stopping the drug_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0) - 1 Update * _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group _thread_1) - 1 Update () _Glivec and studies of stopping the drug _ (http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email) Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: _Back to top_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top) () _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics _ (http://groups.google.com/group/cmlhope/t/6cf9af24d4b963a7?utm_source=digestutm_med ium=email) Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digest utm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it does go into detail. Good luck to you, and I have always said there will be a cure for CML in our lifetimes. If you follow any of my posts I always end them with two numbers. They are 18 which is the symbol for life. 18's to you Shannon Marty PS Shannon I encourage you to post any time that you like. There will usually be someone that may be able to answer your questions. Besides that we are all here to learn from and help each other Can Imatinib Be Stopped? Goodwin, Peter Article Outline [image: Collapse Box]Author Information ASH Abstracts 186 and 187 SAN FRANCISCO—The early promise of the tyrosine kinase inhibitor (TKI) imatinib for treating chronic myeloid leukemia (CML) has continued to be fulfilled following the release of
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Hi Elizabeth I had to have transfusions on Tasigna. My onc didn't like my Number to go under 8. I Believe he could have just taken Me off the drug to correct the Problem but who knows I fought having the transfusions But finally gave in. That was about 5 years ago Good luck and blessing Jeanie Sent from my iPhone On Nov 11, 2014, at 2:00 PM, Pete Pabon nyc...@hotmail.com wrote: From: cmlhope@googlegroups.com Date: Tue, 11 Nov 2014 13:56:06 -0500 Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics To: cmlhope@googlegroups.com Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it does go into detail. Good luck to you, and I have always said there will be a cure for CML in our lifetimes. If you follow any of my posts I always end them with two numbers. They are 18 which is the symbol for life. 18's to you Shannon Marty PS Shannon I encourage you to post any time that you like. There will usually be someone that may be able to answer your questions. Besides that we are all here to learn from and help each other Can Imatinib Be Stopped? Goodwin, Peter Article Outline [image: Collapse Box]Author Information ASH Abstracts 186 and 187 SAN FRANCISCO—The early promise of the tyrosine kinase inhibitor (TKI) imatinib for treating chronic myeloid leukemia (CML) has continued to be fulfilled following the release of seven-year follow-up data at the ASH Annual Meeting here from the International Randomized Study of Interferon versus STI 571 (imatinib) (IRIS) with 553 patients. With diminishing rates of progression each year
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it does go into detail. Good luck to you, and I have always said there will be a cure for CML in our lifetimes. If you follow any of my posts I always end them with two numbers. They are 18 which is the symbol for life. 18's to you Shannon Marty PS Shannon I encourage you to post any time that you like. There will usually be someone that may be able to answer your questions. Besides that we are all here to learn from and help each other Can Imatinib Be Stopped? Goodwin, Peter Article Outline [image: Collapse Box]Author Information ASH Abstracts 186 and 187 SAN FRANCISCO—The early promise of the tyrosine kinase inhibitor (TKI) imatinib for treating chronic myeloid leukemia (CML) has continued to be fulfilled following the release of seven-year follow-up data at the ASH Annual Meeting here from the International Randomized Study of Interferon versus STI 571 (imatinib) (IRIS) with 553 patients. With diminishing rates of progression each year beyond year three, the case for stopping imatinib altogether was also discussed at the meeting following release of results from two studies in which the drug was discontinued among patients who had achieved enduring complete molecular responses to it for more than two years. IRIS investigator Stephen G. O'Brien MD, PhD, Senior Lecturer in Experimental Hematology at Northern Institute for Cancer Research of University of
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, _ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keep up your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvie w) _Topic digest _ () _View all topics_ (https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics) * _Glivec and studies of stopping the drug_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#group_thread_0) - 1 Update * _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#grou p_thread_1) - 1 Update () _Glivec and studies of stopping the drug _ (http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email) Richard H _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) : Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: _Back to top_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc.rand=8fv0d9j9nknkk#digest_top) () _Digest for cmlhope@googlegroups.com - 6 updates in 2 topics _ (http://groups.google.com/group/cmlhope/t/6cf9af24d4b963a7?utm_source=digestutm_med ium=email) Sue _hol...@iinet.net.au_ (mailto:hol...@iinet.net.au) : Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) - 6 updates in 2 topics _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overv iew Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digest utm_medium=email Glivec and studies of stopping the drug Shannon L _shannonl.camden@gmail.com_ (mailto:shannonl.cam...@gmail.com) mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg _wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about Imatinib being stopped. It is kind of lengthily however it
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics
Dear Greenie that is great news! HI to Marty,still praying for the kidney transplant to happen!!! and hi Jeannie, and all...also to Elizabeth Woods, we are keeping Nick in our thoughts and prayers. -Original Message- From: Myvety2k via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Nov 11, 2014 3:05 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics I received my results back from my 6 month blood work today and I'm Negative on BCR-ABL. greenie In a message dated 11/11/2014 2:14:49 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy Veterans Day to all Jeanie Sent from my iPhone On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Thank you Elizabeth, I served 6 years in the Navy. greenie In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time, ksnwo...@prodigy.net writes: Thinking of you all. Nick is critically anemic due to Gleevec. Hope Richard H., Shannon, Bobbie Doyle, and all keepup your sharing of info. thanks so much Marty for the reports from the clinical trials to reduce or stop Gleevec. Thank you to all Veterans on this day. Elizabeth Woods On Tuesday, November 11, 2014 4:32 AM, cmlhope@googlegroups.com cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Glivec and studies of stopping the drug - 1 Update Digest for cmlhope@googlegroups.com - 6 updates in 2 topics - 1 Update Glivec and studies of stopping the drug Richard H rbhuffm...@gmail.com: Nov 10 09:05PM -0800 Yes. This was the reason I stopped Gleevec. I was also had Iron Deficient Anemia. I had to infuse the iron to help try to recover my RBC count because was below 9. I was also still taking Gleevec while doing this. On Monday, November 10, 2014 12:56:18 AM UTC-6, Shannon L wrote: Back to top Digest for cmlhope@googlegroups.com - 6 updates in 2 topics Sue hol...@iinet.net.au: Nov 10 07:13PM +0800 Hi Shannon There is also the Destiny Trial in the UK which is reduction down to 200mg for 12 months and then stop (there has been no report until after Dec 2014) The next Trial is named Spirit3 to see if people are being over medicated The Australian Survey will have 600 participants Sue Hurt (Australian) From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: Monday, 10 November 2014 6:22 PM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics * Glivec and studies of stopping the drug - 5 Updates * Glivec and studies of stopping the drug - 1 Update http://groups.google.com/group/cmlhope/t/839da881a2e6e455?utm_source=digestutm_medium=email Glivec and studies of stopping the drug Shannon L shannonl.cam...@gmail.com mailto:shannonl.cam...@gmail.com : Nov 09 03:58AM -0800 Hi All My name is Shannon I live in Sydney Australia Its been awhile since I have posted. I was diagnosed 1998 and after a few years went onto sti571 (glivec) and achieved remission within 2 months and I have been it ever since about 14 yrs. They are inviting participants (in Australia) to take a survey of stopping glivec I image they will do a study of stopping the drug. My question is does everyone know of the study done in USA of the stats of stopping they have indicated in this survey info that the percentage of success is 30-40% to me that SEEMS LOW what do you think. I do have some problems but I am stable on glivec. I hope this emil finds everyone well Shannon Marty Gartenberg wa2...@gmail.com mailto:wa2...@gmail.com : Nov 09 07:46AM -0500 Hi Shannon, there is a study called the STIM that is going on in the UK and it talks about
