RE: [QUAD-L] syrinx
Yeah they are great, he did all of my neck surgeries and his nurse is definitely one of the best. I didn't have him do a surgery like the ones you guys are describing, but he did remove some of the fusing in my neck to give me left to right and up and down movement. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic. I had a Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator "woohoo" however only half of my diaphragm works right now "due to an asymmetric spinal cord injury." http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx -Original Message- From: Tod E. Santee [mailto:sant...@cox.net] Sent: Wednesday, August 12, 2009 9:37 AM To: Danny Hearn; quad-list@eskimo.com; RONALD L PRACHT Subject: Re: [QUAD-L] syrinx Quick Note / Option: Check into Dr. Scott Falci (Fal' chee) at Craig Rehab in Denver. His nurse, Charlotte, is a great help. I had a syrinx caused by "tethering" -- the cord was tethered --attached-- to the surrounding dura mater, the covering that surrounds the cord and brain and holds cerebrospinal fluid. This tethering is a common cause of quad-related syrinxes and often goes missed or misdiagnosed. In 1996, when I was diagnosed, Dr. Falci and Dr. Barth Green (at the Miami Project) were the only ones experienced in this UN-tethering of cervical syrinxes in quads with the purpose of (A) Relieving pain -AND- (B) Restoring some function! At the time, Falci had already done the procedure over 100 times with an excellent (and immediate!) success rate. Best of luck. I empathise and sympathise with your problems! Best wishes, --Tod Danny Hearn wrote: > I'll let you know Ron, We are trying to decide if I should see Picker at > St.Johns or Wright, who you told us about. I saw picker after first being > diagnossed with a syrinx in about 1999 or 2000. But my daughter works for > Washington University as a medical Assistant and seems to think I should see > Wright, thinking he may have more experience. I think both may be pretty > good. Dr. Wice said it seems there may be 2 things going on and that the > Sirinx is definitly growing also, and said go see a neuro to see what they > think. It will be about a month to get in to see them. All the serious back > pain and problems have started getting real bad this year--- It is real scary > , I feel pain in area's of my back that used to have no feeling.I hope I > don't loose function or ability to be transfered or load myself in our van. > For years my thinking was---being paralyzed sucks, it can't get much worse > than this ! ( But believe me I wish I could go back to prior this > year--those were the good ole days, lol ) I take pain meds every day now and > even driving around my neighborhood in my wheelchair I need to go slow over > bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know > when I see the neuro surgeon. Dan H. > > --- On Wed, 8/12/09, RONALD L PRACHT wrote: > > > From: RONALD L PRACHT > Subject: [QUAD-L] syrinx > To: quad-list@eskimo.com > Date: Wednesday, August 12, 2009, 1:22 AM > > > > > > > > Hey Dan H, > please let me know what you find out concerning your syrinx. Im going down > the same road as you...will be going to wice to find out if mine has > grown. Im interested in what the surgeons tell you in regards to what to do > at this point. I truely wish the best results for you. > > ron c7
Re: [QUAD-L] Going out to eat
wow did i miss something? Eric W Rudd c5sc...@gmail.com - Original Message - From: Greg To: quad-list@eskimo.com Sent: Wednesday, August 12, 2009 9:06 PM Subject: [QUAD-L] Going out to eat Hi, just a saving money tip on going out to eat. http://www.restaurant.com/ has lots of restaurants listed and you can buy $25 gift certificates for $10. Plus!!! They have a 80% sale going on. [Promotion code is: PORTION] So I bought a few $25 gift certificates for my favorite restaurant for $2 each. Some rules like dine in only, 18% tip, spend at least $35 (Some restaurants very this). You can buy $10 for $5 ($1 on sale). Just thought I'd mention this. Greg
Re: [QUAD-L] Need Help, too much fiber ..........
Well, Every program is different but with me there is always a hard section to start that needs to be pulled out then the looser stool starts coming out fairly easy. I take an orange bisacodyl pill, 2 majic cleanse, eat fiber cereal and fruit the night b4 and sometimes a beer. I use the majic bullet suppossitories, go every other day. Usually im on about an hour just to make sure its all out..at the end like a clear stuff will come out. Some folks try to run a looser program but then every time they bend over they get a surprise. ron c7 --- On Wed, 8/12/09, shellbell5...@aim.com wrote: From: shellbell5...@aim.com Subject: [QUAD-L] Need Help, too much fiber .. To: quad-list-requ...@eskimo.com, quad-list@eskimo.com Date: Wednesday, August 12, 2009, 8:56 PM What do you do when it's clear that you have eaten too much fiber and are having difficulty going. The only way to go is to (how do I say this and be polite??) "dig it out"? I am starting college full time in a couple of weeks, I can afford to spend 2 hours on the toilet each night. Honestly at the point of considering not eating to eliminate the problem. Any advice will be greatly appreciated. Thank you! Shelly C-6 C-7 3 years post injury
[QUAD-L] Going out to eat
Hi, just a saving money tip on going out to eat. http://www.restaurant.com/ has lots of restaurants listed and you can buy $25 gift certificates for $10. Plus!!! They have a 80% sale going on. [Promotion code is: PORTION] So I bought a few $25 gift certificates for my favorite restaurant for $2 each. Some rules like dine in only, 18% tip, spend at least $35 (Some restaurants very this). You can buy $10 for $5 ($1 on sale). Just thought I'd mention this. Greg
[QUAD-L] Need Help, too much fiber ..........
What do you do when it's clear that you have eaten too much fiber and are having difficulty going. The only way?to go is to (how do I say this and be polite??) "dig it out"? I am starting college full time in a couple of weeks, I can afford to spend 2 hours on the toilet each night.? Honestly at the point of considering not eating to eliminate the problem. ? Any advice will be greatly appreciated. ? Thank you! Shelly C-6 C-7 3 years post injury
RE: [QUAD-L] Magic Bullet Suppositories
I have the same problem, but I thought it was just me getting older and on pain meds. Greg _ In my opinion, you are 100% correct that the potency of the magic bullet has diminished significantly since it was pulled off the market some years ago. The worst part is the magic bullet has some sort of a addictive quality to it. I was unable to go effectively with any other suppository. The beginning of all of my bowel problems started when they pull these things off the market and even though I am doing considerably better now, I'm still not back to where I was back then. Then again I'm considerably older now.
Re: [QUAD-L] Magic Bullet Suppositories
In my opinion, you are 100% correct that the potency of the magic bullet has diminished significantly since it was pulled off the market some years ago. The worst part is the magic bullet has some sort of a addictive quality to it. I was unable to go effectively with any other suppository. The beginning of all of my bowel problems started when they pull these things off the market and even though I am doing considerably better now, I'm still not back to where I was back then. Then again I'm considerably older now. I have had pretty good luck with putting my suppositories in the refrigerator. It's best to put them as close as you can to the freezer and in the back of the fridge. It seems to help us keep them fresh longer. Quadius On Tue, Aug 11, 2009 at 4:05 PM, Lori Michaelson wrote: > When I first began using the Magic Bullet Suppositories around 1989/1990 - > I used to purchase them from the only place they were available (Concepts in > Confidence) and in the 100 count boxes. When the FDA began investigating > them for some ingredient and they were totally off the market for almost a > year (something like five years ago) I was glad I had so many. > > Then, other companies began selling them but like we have discussed here > before--they are not as potent or reliable as they used to be. Although no > company will admit it. Their shelf life is about 3 months now and several > years ago I began purchasing them via 10 packs. We have found the best > price for that amount (usually purchase 3 to 4 10 packs) by purchasing them > from Express Medical online. www.exmed.net The direct link for the magic > bullets is http://www.exmed.net/find_adv.asp?a=b Often there will be > times when I need many other supplies that they carry and, if you notice at > the top, there is free shipping for orders over $95. > > Every time I get ready to order a new batch of magic bullets - I always > call them to see when their expiration date is prior to ordering. They even > admit that there is a shelf life of only three months so that is when I > order them(approximately every three months anyway). > > Some people like to get them from www.allegro.com but I find them to be > more expensive. Ironically, Concepts in Confidence do not offer the 10 pack > option and they have charged more than ever before in their history of > selling them and them being the original makers of the product. > > Lori Michaelson > Age - 45 > C4/5 complete quad, 29 years post > Tucson, AZ > > > > On Mon, Aug 10, 2009 at 9:03 AM, Danny Hearn wrote: > >> *Hi, do any of you know where to buy the magic bullet suppositories in >> less than the 100 count box? We only use them a few times a month, when we >> are in a hurry to do bowel routine quickly, and 100 will go way past >> experation date for me. I had been buying them at allegro medical in packs >> of 10 but now their site say's $2.95 each or 100 for $83. I really need only >> 50 or less at a time. i did see that at (access to recreation..) the guy >> named Don runs, has the packs of 10 but the site say's they are closed >> until after August 15 for summer inventory-- I guess if I have too, i can >> wait and order them at that site later. If any of you know any other site or >> cheaper site let me know, thanks all-- Dan H. * > > > > >
[QUAD-L] syrinx
I want to go to Colorodo and get Falci to work on me. I already sent them my mri and they said I can be helped with the surgery. Prob was they wont take United Healthcare as insurance. The price you ask? 50,000 to start, lol. I pissed off my parents when I told them the price and it wasnt covered. But...I havent given up on the idea. Im reading everything and trying to figure an angle. ron c7
Re: [QUAD-L] syrinx
> Dan H., Ron & others, > > Like I have said here probably 50 times or more - my syringomyelia makes > quadriplegia look easy. However, unless I start to lose more movement or > feeling - no one is going to fiddle around with my spinal cord again. Not > even Dr. Falci at Craig Hospital. As far as going further and "untethering" > - even Craig Hospital admits that the end result of the surgery has a 50% > chance of helping. > > Good luck with whatever you decide to do! I am just hanging in there with > the pain and the body hypersensitiveness. > > Lori Michaelson > Age - 45 > C4/5 complete quad, 29 years post > Tucson, AZ > > > On Wed, Aug 12, 2009 at 5:26 AM, Danny Hearn wrote: > >> I'll let you know Ron, We are trying to decide if I should see Picker >> at St.Johns or Wright, who you told us about. I saw picker after first being >> diagnossed with a syrinx in about 1999 or 2000. But my daughter works for >> Washington University as a medical Assistant and seems to think I should see >> Wright, thinking he may have more experience. I think both may be pretty >> good. Dr. Wice said it seems there may be 2 things going on and that the >> Sirinx is definitly growing also, and said go see a neuro to see what they >> think. It will be about a month to get in to see them. All the serious back >> pain and problems have started getting real bad this year--- It is real >> scary , I feel pain in area's of my back that used to have no feeling.I hope >> I don't loose function or ability to be transfered or load myself in our >> van. For years my thinking was---being paralyzed sucks, it can't get much >> worse than this ! ( But believe me I wish I could go back to prior this >> year--those were the good ole days, lol ) I take pain meds every day now and >> even driving around my neighborhood in my wheelchair I need to go slow over >> bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know >> when I see the neuro surgeon. Dan H. >> >> --- On *Wed, 8/12/09, RONALD L PRACHT * wrote: >> >> >> From: RONALD L PRACHT >> Subject: [QUAD-L] syrinx >> To: quad-list@eskimo.com >> Date: Wednesday, August 12, 2009, 1:22 AM >> >>Hey Dan H, >> please let me know what you find out concerning your syrinx. Im going down >> the same road as you...will be going to wice to find out if mine has >> grown. Im interested in what the surgeons tell you in regards to what to do >> at this point. I truely wish the best results for you. >> >> ron c7 >> >> > > > -Slate -- Lori C4/5 complete quad, 27 years post Tucson, AZ
Re: [QUAD-L] syrinx
Yep, true Rondecided to see Wright today, my daughter took all the paper work to her job to begin setting up the appointment and getting them all my records. Probably be 3 or 4 weeks to see him they told us.--- man ...I sure wish we had Dr. Falci here near us. Dan ** --- On Wed, 8/12/09, RONALD L PRACHT wrote: From: RONALD L PRACHT Subject: Re: [QUAD-L] syrinx To: quad-list@eskimo.com Date: Wednesday, August 12, 2009, 1:18 PM The neuro at St. Johns your talking about is Selwyn Picker . He is from South Africa and is a very nice man. The problem I had with him is he keeps wanting to give lip service , but no real solutions. He is a firm believer in no surgery without function loss. What upsets me about some of these docs is they say well you dont know for sure the pain is coming from the cyst. Well when you have no pain for the first ten yrs then feel like you got punched in the stomach all the time a person knows something in their body has drastically changed...and if an obstruction in the cord called a syrinx is found soon after...thats the problem. I mean for instance if your driving your car and you start feeling a vibration.then you get out and see a screw in your tiremore chances than not the screw is the prob. It just isnt rocket science. ron c7 --- On Wed, 8/12/09, Danny Hearn wrote: From: Danny Hearn Subject: Re: [QUAD-L] syrinx To: quad-list@eskimo.com, "RONALD L PRACHT" Date: Wednesday, August 12, 2009, 7:26 AM I'll let you know Ron, We are trying to decide if I should see Picker at St.Johns or Wright, who you told us about. I saw picker after first being diagnossed with a syrinx in about 1999 or 2000. But my daughter works for Washington University as a medical Assistant and seems to think I should see Wright, thinking he may have more experience. I think both may be pretty good. Dr. Wice said it seems there may be 2 things going on and that the Sirinx is definitly growing also, and said go see a neuro to see what they think. It will be about a month to get in to see them. All the serious back pain and problems have started getting real bad this year--- It is real scary , I feel pain in area's of my back that used to have no feeling.I hope I don't loose function or ability to be transfered or load myself in our van. For years my thinking was---being paralyzed sucks, it can't get much worse than this ! ( But believe me I wish I could go back to prior this year--those were the good ole days, lol ) I take pain meds every day now and even driving around my neighborhood in my wheelchair I need to go slow over bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know when I see the neuro surgeon. Dan H. --- On Wed, 8/12/09, RONALD L PRACHT wrote: From: RONALD L PRACHT Subject: [QUAD-L] syrinx To: quad-list@eskimo.com Date: Wednesday, August 12, 2009, 1:22 AM Hey Dan H, please let me know what you find out concerning your syrinx. Im going down the same road as you...will be going to wice to find out if mine has grown. Im interested in what the surgeons tell you in regards to what to do at this point. I truely wish the best results for you. ron c7
Re: [QUAD-L] syrinx
The neuro at St. Johns your talking about is Selwyn Picker . He is from South Africa and is a very nice man. The problem I had with him is he keeps wanting to give lip service , but no real solutions. He is a firm believer in no surgery without function loss. What upsets me about some of these docs is they say well you dont know for sure the pain is coming from the cyst. Well when you have no pain for the first ten yrs then feel like you got punched in the stomach all the time a person knows something in their body has drastically changed...and if an obstruction in the cord called a syrinx is found soon after...thats the problem. I mean for instance if your driving your car and you start feeling a vibration.then you get out and see a screw in your tiremore chances than not the screw is the prob. It just isnt rocket science. ron c7 --- On Wed, 8/12/09, Danny Hearn wrote: From: Danny Hearn Subject: Re: [QUAD-L] syrinx To: quad-list@eskimo.com, "RONALD L PRACHT" Date: Wednesday, August 12, 2009, 7:26 AM I'll let you know Ron, We are trying to decide if I should see Picker at St.Johns or Wright, who you told us about. I saw picker after first being diagnossed with a syrinx in about 1999 or 2000. But my daughter works for Washington University as a medical Assistant and seems to think I should see Wright, thinking he may have more experience. I think both may be pretty good. Dr. Wice said it seems there may be 2 things going on and that the Sirinx is definitly growing also, and said go see a neuro to see what they think. It will be about a month to get in to see them. All the serious back pain and problems have started getting real bad this year--- It is real scary , I feel pain in area's of my back that used to have no feeling.I hope I don't loose function or ability to be transfered or load myself in our van. For years my thinking was---being paralyzed sucks, it can't get much worse than this ! ( But believe me I wish I could go back to prior this year--those were the good ole days, lol ) I take pain meds every day now and even driving around my neighborhood in my wheelchair I need to go slow over bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know when I see the neuro surgeon. Dan H. --- On Wed, 8/12/09, RONALD L PRACHT wrote: From: RONALD L PRACHT Subject: [QUAD-L] syrinx To: quad-list@eskimo.com Date: Wednesday, August 12, 2009, 1:22 AM Hey Dan H, please let me know what you find out concerning your syrinx. Im going down the same road as you...will be going to wice to find out if mine has grown. Im interested in what the surgeons tell you in regards to what to do at this point. I truely wish the best results for you. ron c7
Re: [QUAD-L] syrinx
due to severe burning pain I had an MRI taken a few years ago. The first radiologist to read it said "no abnormalities", everything looks normal. About a year later I took the images to a neurologist, he looked at them for a few seconds and told me I had a syrinx. After looking at syrinx images on the Internet and noticing they didn't look anything like my images, I sent them to Dr. Falci. He told me I had posttraumatic tethering due to SCI. No syrinx, no sign of a fluid filled cavity. Although he said there was nothing that could be done surgically because I wasn't losing any function, I was very surprised and grateful that he and his nurse took the time to look over the MRIs and give me his opinion without asking for anything in return. On Wed, Aug 12, 2009 at 9:36 AM, Tod E. Santee wrote: > Quick Note / Option: > > Check into Dr. Scott Falci (Fal' chee) at Craig Rehab in Denver. His > nurse, Charlotte, is a great help. I had a syrinx caused by "tethering" -- > the cord was tethered --attached-- to the surrounding dura mater, the > covering that surrounds the cord and brain and holds cerebrospinal fluid. > > This tethering is a common cause of quad-related syrinxes and often goes > missed or misdiagnosed. In 1996, when I was diagnosed, Dr. Falci and Dr. > Barth Green (at the Miami Project) were the only ones experienced in this > UN-tethering of cervical syrinxes in quads with the purpose of (A) Relieving > pain -AND- (B) Restoring some function! At the time, Falci had already done > the procedure over 100 times with an excellent (and immediate!) success > rate. > > Best of luck. I empathise and sympathise with your problems! > > Best wishes, > --Tod > > > --- >
Re: [QUAD-L] took a trip and didn't leave the house....
Wow Tim - what an adventure for sure. I tipped over backwards leaving my apartment in Phoenix in the summer many years ago. It was 9:00 am and already 100 degrees heading for 115. Luckily someone across the street saw the whole thing and came to my rescue. I had a few spills outside at night in the winter in Detroit too - got lucky to get help each time. There's something about being 'young n dumb'! Now I always have my cell phone in my pocket anywhere I go. I'm alone a lot and can't risk dying stupidly - you can't be lucky every time. AZDAVE -Original Message- From: t crook To: q-list Sent: Wed, Aug 12, 2009 8:53 am Subject: [QUAD-L] took a trip and didn't leave the house Yeah I took a trip and didn’t leave the house; I gave myself a nice hard push backwards from my living room into my den, my front wheels were caught on the threshold and down I went. I went down so damn quick that the only reaction I had was to block my knees from hitting me in the face after my head bounced off the floor. After that I had to get my right leg unstuck from between my armrest and backrest; I then had to get my chair out from under me. It became a matter of survival mode at this point; my phones were about fifteen feet away on my desk, I was home alone, it was 7:50 am and no one would be here until 2 in20the afternoon. My first thought was to try and get to my phone; I realized that would be nearly impossible, so I was able to get my arm under our futon and get up on my elbows. After getting to my elbows I then worked my way to a window; I saw my neighbor come out of his garage, so I started pounding on the window and yelling, my neighbor looked around and went back into his garage. So I started thinking I need to look for something to pad my hips from the hard floor. Just as I am looking around I saw my neighbor again; I started pounding and yelling again, this time he heard me. He came over with his cell and called my nurse; she arrived, and they picked me up. And believe it or not I was down only about ten minutes! I was pretty dang lucky; no injuries or bruises, just some sore muscles today. NOW- when nobody is home; my cell will hang from the back of my chair! ~peace~ Tim c5-c6 http://whoopiekat.com/crockscrib/index.htm WhoopieKat.com
Re: [QUAD-L] syrinx
Quick Note / Option: Check into Dr. Scott Falci (Fal' chee) at Craig Rehab in Denver. His nurse, Charlotte, is a great help. I had a syrinx caused by "tethering" -- the cord was tethered --attached-- to the surrounding dura mater, the covering that surrounds the cord and brain and holds cerebrospinal fluid. This tethering is a common cause of quad-related syrinxes and often goes missed or misdiagnosed. In 1996, when I was diagnosed, Dr. Falci and Dr. Barth Green (at the Miami Project) were the only ones experienced in this UN-tethering of cervical syrinxes in quads with the purpose of (A) Relieving pain -AND- (B) Restoring some function! At the time, Falci had already done the procedure over 100 times with an excellent (and immediate!) success rate. Best of luck. I empathise and sympathise with your problems! Best wishes, --Tod Danny Hearn wrote: > I'll let you know Ron, We are trying to decide if I should see Picker at > St.Johns or Wright, who you told us about. I saw picker after first being > diagnossed with a syrinx in about 1999 or 2000. But my daughter works for > Washington University as a medical Assistant and seems to think I should see > Wright, thinking he may have more experience. I think both may be pretty > good. Dr. Wice said it seems there may be 2 things going on and that the > Sirinx is definitly growing also, and said go see a neuro to see what they > think. It will be about a month to get in to see them. All the serious back > pain and problems have started getting real bad this year--- It is real scary > , I feel pain in area's of my back that used to have no feeling.I hope I > don't loose function or ability to be transfered or load myself in our van. > For years my thinking was---being paralyzed sucks, it can't get much worse > than this ! ( But believe me I wish I could go back to prior this > year--those were the good ole days, lol ) I take pain meds every day now and > even driving around my neighborhood in my wheelchair I need to go slow over > bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know > when I see the neuro surgeon. Dan H. > > --- On Wed, 8/12/09, RONALD L PRACHT wrote: > > > From: RONALD L PRACHT > Subject: [QUAD-L] syrinx > To: quad-list@eskimo.com > Date: Wednesday, August 12, 2009, 1:22 AM > > > > > > > > Hey Dan H, > please let me know what you find out concerning your syrinx. Im going down > the same road as you...will be going to wice to find out if mine has > grown. Im interested in what the surgeons tell you in regards to what to do > at this point. I truely wish the best results for you. > > ron c7
Re: [QUAD-L] took a trip and didn't leave the house....
I have had quite a few in my 21 years as well. But after this last one; I have learned a lesson, I am getting to old for these chair to floor encounters! ~peace~ Tim c5-c6 http://whoopiekat.com/crockscrib/index.htm WhoopieKat.com --- On Wed, 8/12/09, Don Smith wrote: Sounds like a quad adventure to me. I've had my share of them in the past 21 years. When I'm in my wheelchair I have my cellphone hanging around my neck. --- On Wed, 8/12/09, t crook wrote: From: t crook Subject: [QUAD-L] took a trip and didn't leave the house To: "q-list" Date: Wednesday, August 12, 2009, 8:53 AM Yeah I took a trip and didn’t leave the house; I gave myself a nice hard push backwards from my living room into my den, my front wheels were caught on the threshold and down I went. I went down so damn quick that the only reaction I had was to block my knees from hitting me in the face after my head bounced off the floor. After that I had to get my right leg unstuck from between my armrest and backrest; I then had to get my chair out from under me. It became a matter of survival mode at this point; my phones were about fifteen feet away on my desk, I was home alone, it was 7:50 am and no one would be here until 2 in the afternoon. My first thought was to try and get to my phone; I realized that would be nearly impossible, so I was able to get my arm under our futon and get up on my elbows. After getting to my elbows I then worked my way to a window; I saw my neighbor come out of his garage, so I started pounding on the window and yelling, my neighbor looked around and went back into his garage. So I started thinking I need to look for something to pad my hips from the hard floor. Just as I am looking around I saw my neighbor again; I started pounding and yelling again, this time he heard me. He came over with his cell and called my nurse; she arrived, and they picked me up. And believe it or not I was down only about ten minutes! I was pretty dang lucky; no injuries or bruises, just some sore muscles today. NOW- when nobody is home; my cell will hang from the back of my chair! ~peace~ Tim c5-c6 http://whoopiekat.com/crockscrib/index.htm WhoopieKat.com
Re: [QUAD-L] took a trip and didn't leave the house....
It was pretty freaky- I didn't panic; and yes I am in a manual chair and glad I wasn't belted in, I would have been stuck like chuck. ~peace~ Tim c5-c6 http://whoopiekat.com/crockscrib/index.htm WhoopieKat.com --- On Wed, 8/12/09, Danny Hearn wrote: From: Danny Hearn Subject: Re: [QUAD-L] took a trip and didn't leave the house To: "q-list" , "t crook" Date: Wednesday, August 12, 2009, 11:04 AM Wow, Tim that was quite a story with a happy fast endingfreak things can happen so fast for us quads , when you least expect it too. Are you in a manual chair??? i'm in a power chair with a seat belt--- Dan H. --- On Wed, 8/12/09, t crook wrote: From: t crook Subject: [QUAD-L] took a trip and didn't leave the house To: "q-list" Date: Wednesday, August 12, 2009, 10:53 AM Yeah I took a trip and didn’t leave the house; I gave myself a nice hard push backwards from my living room into my den, my front wheels were caught on the threshold and down I went. I went down so damn quick that the only reaction I had was to block my knees from hitting me in the face after my head bounced off the floor. After that I had to get my right leg unstuck from between my armrest and backrest; I then had to get my chair out from under me. It became a matter of survival mode at this point; my phones were about fifteen feet away on my desk, I was home alone, it was 7:50 am and no one would be here until 2 in the afternoon. My first thought was to try and get to my phone; I realized that would be nearly impossible, so I was able to get my arm under our futon and get up on my elbows. After getting to my elbows I then worked my way to a window; I saw my neighbor come out of his garage, so I started pounding on the window and yelling, my neighbor looked around and went back into his garage. So I started thinking I need to look for something to pad my hips from the hard floor. Just as I am looking around I saw my neighbor again; I started pounding and yelling again, this time he heard me. He came over with his cell and called my nurse; she arrived, and they picked me up. And believe it or not I was down only about ten minutes! I was pretty dang lucky; no injuries or bruises, just some sore muscles today. NOW- when nobody is home; my cell will hang from the back of my chair! ~peace~ Tim c5-c6 http://whoopiekat.com/crockscrib/index.htm WhoopieKat.com
Re: [QUAD-L] took a trip and didn't leave the house....
Wow, Tim that was quite a story with a happy fast endingfreak things can happen so fast for us quads , when you least expect it too. Are you in a manual chair??? i'm in a power chair with a seat belt--- Dan H. --- On Wed, 8/12/09, t crook wrote: From: t crook Subject: [QUAD-L] took a trip and didn't leave the house To: "q-list" Date: Wednesday, August 12, 2009, 10:53 AM Yeah I took a trip and didn’t leave the house; I gave myself a nice hard push backwards from my living room into my den, my front wheels were caught on the threshold and down I went. I went down so damn quick that the only reaction I had was to block my knees from hitting me in the face after my head bounced off the floor. After that I had to get my right leg unstuck from between my armrest and backrest; I then had to get my chair out from under me. It became a matter of survival mode at this point; my phones were about fifteen feet away on my desk, I was home alone, it was 7:50 am and no one would be here until 2 in the afternoon. My first thought was to try and get to my phone; I realized that would be nearly impossible, so I was able to get my arm under our futon and get up on my elbows. After getting to my elbows I then worked my way to a window; I saw my neighbor come out of his garage, so I started pounding on the window and yelling, my neighbor looked around and went back into his garage. So I started thinking I need to look for something to pad my hips from the hard floor. Just as I am looking around I saw my neighbor again; I started pounding and yelling again, this time he heard me. He came over with his cell and called my nurse; she arrived, and they picked me up. And believe it or not I was down only about ten minutes! I was pretty dang lucky; no injuries or bruises, just some sore muscles today. NOW- when nobody is home; my cell will hang from the back of my chair! ~peace~ Tim c5-c6 http://whoopiekat.com/crockscrib/index.htm WhoopieKat.com
[QUAD-L] took a trip and didn't leave the house....
Yeah I took a trip and didn’t leave the house; I gave myself a nice hard push backwards from my living room into my den, my front wheels were caught on the threshold and down I went. I went down so damn quick that the only reaction I had was to block my knees from hitting me in the face after my head bounced off the floor. After that I had to get my right leg unstuck from between my armrest and backrest; I then had to get my chair out from under me. It became a matter of survival mode at this point; my phones were about fifteen feet away on my desk, I was home alone, it was 7:50 am and no one would be here until 2 in the afternoon. My first thought was to try and get to my phone; I realized that would be nearly impossible, so I was able to get my arm under our futon and get up on my elbows. After getting to my elbows I then worked my way to a window; I saw my neighbor come out of his garage, so I started pounding on the window and yelling, my neighbor looked around and went back into his garage. So I started thinking I need to look for something to pad my hips from the hard floor. Just as I am looking around I saw my neighbor again; I started pounding and yelling again, this time he heard me. He came over with his cell and called my nurse; she arrived, and they picked me up. And believe it or not I was down only about ten minutes! I was pretty dang lucky; no injuries or bruises, just some sore muscles today. NOW- when nobody is home; my cell will hang from the back of my chair! ~peace~ Tim c5-c6 http://whoopiekat.com/crockscrib/index.htm WhoopieKat.com
Re: [QUAD-L] syrinx
I'll let you know Ron, We are trying to decide if I should see Picker at St.Johns or Wright, who you told us about. I saw picker after first being diagnossed with a syrinx in about 1999 or 2000. But my daughter works for Washington University as a medical Assistant and seems to think I should see Wright, thinking he may have more experience. I think both may be pretty good. Dr. Wice said it seems there may be 2 things going on and that the Sirinx is definitly growing also, and said go see a neuro to see what they think. It will be about a month to get in to see them. All the serious back pain and problems have started getting real bad this year--- It is real scary , I feel pain in area's of my back that used to have no feeling.I hope I don't loose function or ability to be transfered or load myself in our van. For years my thinking was---being paralyzed sucks, it can't get much worse than this ! ( But believe me I wish I could go back to prior this year--those were the good ole days, lol ) I take pain meds every day now and even driving around my neighborhood in my wheelchair I need to go slow over bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know when I see the neuro surgeon. Dan H. --- On Wed, 8/12/09, RONALD L PRACHT wrote: From: RONALD L PRACHT Subject: [QUAD-L] syrinx To: quad-list@eskimo.com Date: Wednesday, August 12, 2009, 1:22 AM Hey Dan H, please let me know what you find out concerning your syrinx. Im going down the same road as you...will be going to wice to find out if mine has grown. Im interested in what the surgeons tell you in regards to what to do at this point. I truely wish the best results for you. ron c7
