Re: [QUAD-L] Contacting pharmaceutical company
I think most drug companies might have a program for medication. A sister of a friend of mine has written pharmaceutical companies for drugs she could not get Or afford. Dana Sent from my iPhone On Mar 26, 2014, at 9:02 PM, Gmail bobbiehumphre...@gmail.com wrote: Has anybody ever contacted a pharmaceutical company to request a discount on a medication? I use Pennsaid 1.5% every single day for pain in my neck lower back ... it works extremely well for me. Pennsaid cost $200 per bottle, it lasts me about 1 1/2 months. Bobbie Smile Everyday
[QUAD-L] What is MS was NORMAL?
Mar 26, 2014 09:34PMJUST PASSING IT ON *HAVE YOU ALL CONSIDERED THIS!?!?!?!?!?!...just saying!!That, maybe, what we are now experiencing with our MS symptoms is what we humanoids were suppose to be like all along!?!?!?!?!!I mean, think about itWasn't it a bitch to have to learn to walk in the first place.!?!!!?! What's wrong with just providing infants 'power chairs' during that toddling phase or whatever the Dr. Spooks call it, and leave it alone. NO FALLS!!!NO TWO YEAR OLDS SCREAMING BECAUSE THEY BUST THEIR ASS ON THE FLOORNO TRYING TO PROVE 'GRAVITY' WRONG TALK ABOUT GOING AGAINST NATURE!!!Then, can anyone tell me who came up with this crazy idea that incontinence isn't the way to go!?!?!?!?!?!??!DHH!!Hell!!! I bet Dyson could come up with something to suction the piddles and poop up if the 'compulsive'/'obsessive' crowd want to make a STINK over itBIG DEAL!!Here again, allowing the 'NATURAL' flow of things occur seems only right, doesn't it!?!?!?The DAMN power chairs could be built with a chute out the back from the seat and if Dyson or Electrolux or Bissell or Hoover don't want society's business, so be it!! What's wrong with having a little 'collection' bag attached to that chute?HUH!?!?!?!!? UH-HUH! NOT BAD!!! ALL ALONG HUMANITY HAS BEEN FIGHTING THE 'NATURAL' COURSE OF HOW CERTAIN 'FACTS OF LIFE' SHOULD HAVE BEEN ALL ALONGHEY!! HEY!! HEY!!! THINK ABOUT IT!!!This way ALL the parking places could be designated 'HANDICAPPED'right!!!???!!!This way ALL buildings and doorways and kitchens would be designed as 'accessible'...what da ya think!!?!?This way ALL the stalls in the restrooms would be 'handicapped' accessible...but even better; if we got the 'collection' bags at the back of our power chair seats, NO body would need public restrooms anymore!!!...in fact, it'd do away with all that small talk at really bad cocktail parties about which of the restroomsmale or femaleare usually the filthiestDoes your MS symptom journey involve vision nuances!?!?!?!?BIG DEAL!!! Power chairs would come equipped with GPS and sonar as standard!!MY GOODNESS!!! Do I have to imagine everything!!?!?!?What about our brothers and sisters who have grasping and dropsy as their periodic systems?Betcha you thought that I'd forgot about you folkhuh!?!?!!NEVERCan't button those shirts Can't tie those shoes? Fastening that bra too much of an effort without assistancePutting one foot at a time into the pant legs and pulling up the boot straps a thing of the past?Do you hate what elastic waist clothing does for your fashion silhouette!?!?!?!SCREW IT I don't remember coming down the birth canal wearing Armani!?!?!?!DID YOU!?!?!?!?!?!?!Well, there you go!!! Why bother with the zippers and laces and buttons and clasps!?!?!?! GET OVER IT If you're spiritual, then what are you doing anyway when theology teaches that GOD made no mistakes in designing us and our bodies; so who in the devil does Chanel and Gucci and Lauren think they are in trying to improve GOD's work!!!?!!REALLY...and then look at all the duplication and cost in holding TWO separate Olympics...one for those 'NORMALS' and then immedicately afterward, doing the Para whatever Games! If everyone is in an adaptive mobility device to begin with; SHOOT We can start having just one Olympic games and get over this focusing of people's differences!Besides, doesn't our democracy teach that 'everyone' is suppose to be 'EQUAL'!?!?!?EH!?!?!?! I've got a point there, don't I!!?!MS Fatigue No problems there!!!Society will come to realize that this is a preferred way to live as dictated by Karma in telling the 'human race' that we need to slow the HELL down and take life at a more 'scenic route' kind of lifestyle!The ones of us with 'actual' MS that experience the 'fatigue' will be considered Shaman or some such guru and will be followed for our wisdom in providing enlightenment as to how we should enjoy our time on earth!SCREW MARTHA STEWART!!OH MY GOODNESS!!! I have rattled on here, haven't I!?!?!It's probably that MS Cognitive Dysfunction stuffoh, well!!Now, what was my point!!?!?GEE!!!NEVER MIND!!!just saying!SHEP
Re: [QUAD-L] What is MS was NORMAL?
Interesting. I met a woman just yesterday who is plus 40, with MS onset that began just 2 years ago. Before that she was without symptoms. Today, she lives by herself, with a powered wheelchair and very depressed. I tried to refer her to a CIL, MS Support Groups and Voc Rehab. I hope the best for her, but I doubt that she will follow up on my suggestion. She appeared to have some home care, but I don't think she has much support. MS-Onset can do that... Best Wishes In a message dated 3/27/2014 11:13:43 A.M. Central Daylight Time, kkba...@outlook.com writes: _Mar 26, 2014 09:34PM_ (http://www.patientslikeme.com/forum/progressivems/topics/119445?post_id=2062843page=24#post-2062843) JUST PASSING IT ON * HAVE YOU ALL CONSIDERED THIS!?!?!?!?!?!...just saying!! That, maybe, what we are now experiencing with our MS symptoms is what we humanoids were suppose to be like all along!?!?!?!?!! I mean, think about it Wasn't it a bitch to have to learn to walk in the first place.!?!!!?! What's wrong with just providing infants 'power chairs' during that toddling phase or whatever the Dr. Spooks call it, and leave it alone. NO FALLS!!! NO TWO YEAR OLDS SCREAMING BECAUSE THEY BUST THEIR ASS ON THE FLOOR NO TRYING TO PROVE 'GRAVITY' WRONG TALK ABOUT GOING AGAINST NATURE!!! Then, can anyone tell me who came up with this crazy idea that incontinence isn't the way to go!?!?!?!?!?!??! DHH!! Hell!!! I bet Dyson could come up with something to suction the piddles and poop up if the 'compulsive'/'obsessive' crowd want to make a STINK over itBIG DEAL!! Here again, allowing the 'NATURAL' flow of things occur seems only right, doesn't it!?!?!? The DAMN power chairs could be built with a chute out the back from the seat and if Dyson or Electrolux or Bissell or Hoover don't want society's business, so be it!! What's wrong with having a little 'collection' bag attached to that chute? HUH!?!?!?!!? UH-HUH! NOT BAD!!! ALL ALONG HUMANITY HAS BEEN FIGHTING THE 'NATURAL' COURSE OF HOW CERTAIN 'FACTS OF LIFE' SHOULD HAVE BEEN ALL ALONG HEY!! HEY!! HEY!!! THINK ABOUT IT!!! This way ALL the parking places could be designated 'HANDICAPPED'right!!!???!!! This way ALL buildings and doorways and kitchens would be designed as 'accessible'...what da ya think!!?!? This way ALL the stalls in the restrooms would be 'handicapped' accessible...but even better; if we got the 'collection' bags at the back of our power chair seats, NO body would need public restrooms anymore!!! ...in fact, it'd do away with all that small talk at really bad cocktail parties about which of the restroomsmale or femaleare usually the filthiest Does your MS symptom journey involve vision nuances!?!?!?!? BIG DEAL!!! Power chairs would come equipped with GPS and sonar as standard!! MY GOODNESS!!! Do I have to imagine everything!!?!?!? What about our brothers and sisters who have grasping and dropsy as their periodic systems? Betcha you thought that I'd forgot about you folkhuh!?!?!! NEVER Can't button those shirts Can't tie those shoes? Fastening that bra too much of an effort without assistance Putting one foot at a time into the pant legs and pulling up the boot straps a thing of the past? Do you hate what elastic waist clothing does for your fashion silhouette!?!?!?! SCREW IT I don't remember coming down the birth canal wearing Armani!?!?!?! DID YOU!?!?!?!?!?!?! Well, there you go!!! Why bother with the zippers and laces and buttons and clasps!?!?!?! GET OVER IT If you're spiritual, then what are you doing anyway when theology teaches that GOD made no mistakes in designing us and our bodies; so who in the devil does Chanel and Gucci and Lauren think they are in trying to improve GOD's work!!!?!! REALLY ...and then look at all the duplication and cost in holding TWO separate Olympics...one for those 'NORMALS' and then immedicately afterward, doing the Para whatever Games! If everyone is in an adaptive mobility device to begin with; SHOOT We can start having just one Olympic games and get over this focusing of people's differences! Besides, doesn't our democracy teach that 'everyone' is suppose to be 'EQUAL'!?!?!? EH!?!?!?! I've got a point there, don't I!!?! MS Fatigue No problems there!!! Society will come to realize that this is a preferred way to live as dictated by Karma in telling the 'human race' that we need to slow the HELL down and take life at a more 'scenic route' kind of lifestyle! The ones of us with 'actual' MS that experience the 'fatigue' will be considered Shaman or some such guru and will be followed for our wisdom in providing enlightenment as to how we should enjoy our time
Re: [QUAD-L] What is MS was NORMAL?
Bravo!! You made me laugh and think a bit good stuff!! Your point is actually quite similar to a tenet of Independent Living philosophy: disability is a natural part of life and people with disabilities are not necessarily broken, in need of fixing, but rather the environment around us needs to be changed to accommodate people of all kinds. Allowing all people choice and control in their lives is critical. Sorry to switch to 'serious' mode--your essay had me laughing. Don. On Thursday, March 27, 2014 9:35 AM, wheelch...@aol.com wheelch...@aol.com wrote: Interesting. I met a woman just yesterday who is plus 40, with MS onset that began just 2 years ago. Before that she was without symptoms. Today, she lives by herself, with a powered wheelchair and very depressed. I tried to refer her to a CIL, MS Support Groups and Voc Rehab. I hope the best for her, but I doubt that she will follow up on my suggestion. She appeared to have some home care, but I don't think she has much support. MS-Onset can do that... Best Wishes In a message dated 3/27/2014 11:13:43 A.M. Central Daylight Time, kkba...@outlook.com writes: Mar 26, 2014 09:34PM JUST PASSING IT ON * HAVE YOU ALL CONSIDERED THIS!?!?!?!?!?!...just saying!! That, maybe, what we are now experiencing with our MS symptoms is what we humanoids were suppose to be like all along!?!?!?!?!! I mean, think about it Wasn't it a bitch to have to learn to walk in the first place.!?!!!?! What's wrong with just providing infants 'power chairs' during that toddling phase or whatever the Dr. Spooks call it, and leave it alone. NO FALLS!!! NO TWO YEAR OLDS SCREAMING BECAUSE THEY BUST THEIR ASS ON THE FLOOR NO TRYING TO PROVE 'GRAVITY' WRONG TALK ABOUT GOING AGAINST NATURE!!! Then, can anyone tell me who came up with this crazy idea that incontinence isn't the way to go!?!?!?!?!?!??! DHH!! Hell!!! I bet Dyson could come up with something to suction the piddles and poop up if the 'compulsive'/'obsessive' crowd want to make a STINK over itBIG DEAL!! Here again, allowing the 'NATURAL' flow of things occur seems only right, doesn't it!?!?!? The DAMN power chairs could be built with a chute out the back from the seat and if Dyson or Electrolux or Bissell or Hoover don't want society's business, so be it!! What's wrong with having a little 'collection' bag attached to that chute? HUH!?!?!?!!? UH-HUH! NOT BAD!!! ALL ALONG HUMANITY HAS BEEN FIGHTING THE 'NATURAL' COURSE OF HOW CERTAIN 'FACTS OF LIFE' SHOULD HAVE BEEN ALL ALONG HEY!! HEY!! HEY!!! THINK ABOUT IT!!! This way ALL the parking places could be designated 'HANDICAPPED'right!!!???!!! This way ALL buildings and doorways and kitchens would be designed as 'accessible'...what da ya think!!?!? This way ALL the stalls in the restrooms would be 'handicapped' accessible...but even better; if we got the 'collection' bags at the back of our power chair seats, NO body would need public restrooms anymore!!! ...in fact, it'd do away with all that small talk at really bad cocktail parties about which of the restroomsmale or femaleare usually the filthiest Does your MS symptom journey involve vision nuances!?!?!?!? BIG DEAL!!! Power chairs would come equipped with GPS and sonar as standard!! MY GOODNESS!!! Do I have to imagine everything!!?!?!? What about our brothers and sisters who have grasping and dropsy as their periodic systems? Betcha you thought that I'd forgot about you folkhuh!?!?!! NEVER Can't button those shirts Can't tie those shoes? Fastening that bra too much of an effort without assistance Putting one foot at a time into the pant legs and pulling up the boot straps a thing of the past? Do you hate what elastic waist clothing does for your fashion silhouette!?!?!?! SCREW IT I don't remember coming down the birth canal wearing Armani!?!?!?! DID YOU!?!?!?!?!?!?! Well, there you go!!! Why bother with the zippers and laces and buttons and clasps!?!?!?! GET OVER IT If you're spiritual, then what are you doing anyway when theology teaches that GOD made no mistakes in designing us and our bodies; so who in the devil does Chanel and Gucci and Lauren think they are in trying to improve GOD's work!!!?!! REALLY ...and then look at all the duplication and cost in holding TWO separate Olympics...one for those 'NORMALS' and then immedicately afterward, doing the Para whatever Games! If everyone is in an adaptive mobility device to begin with; SHOOT We can start having just one Olympic games and get over this focusing of people's differences! Besides, doesn't our democracy teach that 'everyone' is suppose to be 'EQUAL'!?!?!? EH!?!?!?! I've got a point there, don't I!!?! MS
RE: [QUAD-L] What is MS was NORMAL?
The guy who wrote this is just now getting into wheelchair full time. He still thinks he can keep up with his bladder issues. Losing ground rather quickly. Give me your friends email address maybe we can chat a bit. Plenty of groups chats out there for us MSer's. KK Date: Thu, 27 Mar 2014 10:18:09 -0700 From: donpric...@yahoo.com Subject: Re: [QUAD-L] What is MS was NORMAL? To: wheelch...@aol.com; kkba...@outlook.com; ms-qu...@yahoogroups.com; quad-list@eskimo.com Bravo!!You made me laugh and think a bit good stuff!!Your point is actually quite similar to a tenet of Independent Living philosophy: disability is a natural part of life and people with disabilities are not necessarily broken, in need of fixing, but rather the environment around us needs to be changed to accommodate people of all kinds. Allowing all people choice and control in their lives is critical.Sorry to switch to 'serious' mode--your essay had me laughing. Don. On Thursday, March 27, 2014 9:35 AM, wheelch...@aol.com wheelch...@aol.com wrote: Interesting. I met a woman just yesterday who is plus 40, with MS onset that began just 2 years ago. Before that she was without symptoms. Today, she lives by herself, with a powered wheelchair and very depressed. I tried to refer her to a CIL, MS Support Groups and Voc Rehab. I hope the best for her, but I doubt that she will follow up on my suggestion. She appeared to have some home care, but I don't think she has much support. MS-Onset can do that... Best Wishes In a message dated 3/27/2014 11:13:43 A.M. Central Daylight Time, kkba...@outlook.com writes: Mar 26, 2014 09:34PM JUST PASSING IT ON* HAVE YOU ALL CONSIDERED THIS!?!?!?!?!?!...just saying!! That, maybe, what we are now experiencing with our MS symptoms is what we humanoids were suppose to be like all along!?!?!?!?!! I mean, think about it Wasn't it a bitch to have to learn to walk in the first place.!?!!!?! What's wrong with just providing infants 'power chairs' during that toddling phase or whatever the Dr. Spooks call it, and leave it alone. NO FALLS!!! NO TWO YEAR OLDS SCREAMING BECAUSE THEY BUST THEIR ASS ON THE FLOOR NO TRYING TO PROVE 'GRAVITY' WRONG TALK ABOUT GOING AGAINST NATURE!!! Then, can anyone tell me who came up with this crazy idea that incontinence isn't the way to go!?!?!?!?!?!??! DHH!! Hell!!! I bet Dyson could come up with something to suction the piddles and poop up if the 'compulsive'/'obsessive' crowd want to make a STINK over itBIG DEAL!! Here again, allowing the 'NATURAL' flow of things occur seems only right, doesn't it!?!?!? The DAMN power chairs could be built with a chute out the back from the seat and if Dyson or Electrolux or Bissell or Hoover don't want society's business, so be it!! What's wrong with having a little 'collection' bag attached to that chute? HUH!?!?!?!!? UH-HUH! NOT BAD!!! ALL ALONG HUMANITY HAS BEEN FIGHTING THE 'NATURAL' COURSE OF HOW CERTAIN 'FACTS OF LIFE' SHOULD HAVE BEEN ALL ALONG HEY!! HEY!! HEY!!! THINK ABOUT IT!!! This way ALL the parking places could be designated 'HANDICAPPED'right!!!???!!! This way ALL buildings and doorways and kitchens would be designed as 'accessible'...what da ya think!!?!? This way ALL the stalls in the restrooms would be 'handicapped' accessible...but even better; if we got the 'collection' bags at the back of our power chair seats, NO body would need public restrooms anymore!!! ...in fact, it'd do away with all that small talk at really bad cocktail parties about which of the restroomsmale or femaleare usually the filthiest Does your MS symptom journey involve vision nuances!?!?!?!? BIG DEAL!!! Power chairs would come equipped with GPS and sonar as standard!! MY GOODNESS!!! Do I have to imagine everything!!?!?!? What about our brothers and sisters who have grasping and dropsy as their periodic systems? Betcha you thought that I'd forgot about you folkhuh!?!?!! NEVER Can't button those shirts Can't tie those shoes? Fastening that bra too much of an effort without assistance Putting one foot at a time into the pant legs and pulling up the boot straps a thing of the past? Do you hate what elastic waist clothing does for your fashion silhouette!?!?!?! SCREW IT I don't remember coming down the birth canal wearing Armani!?!?!?! DID YOU!?!?!?!?!?!?! Well, there you go!!! Why bother with the zippers and laces and buttons and clasps!?!?!?! GET OVER IT If you're spiritual, then what are you doing anyway when theology teaches that GOD made no mistakes in
Re: [QUAD-L] Contacting pharmaceutical company
Hi Bobbie Does the Pennsaid take the place of the Morphine you were taking? thanks Lindaf
Re: [QUAD-L] Contacting pharmaceutical company
No, I take both and the pain is still very bad. I'm working with my pain management Doctor to come up with an additional pain med. Bobbie Smile Everyday On Mar 27, 2014, at 3:40 PM, linda...@comcast.net wrote: Hi Bobbie Does the Pennsaid take the place of the Morphine you were taking? thanks Lindaf
[QUAD-L] Fw: SCI Project
Passing this along: Good afternoon, I’m writing to you today to discuss a project that I recently initiated - SCI Video Blog. As the name suggests, it’s a video hub for all the spinal cord patients around the world. SCI Video Blog is a collection of tutorial videos posted by SCI patients of all different levels of injury to visually demonstrate how they perform their daily life activities. The website would allow the new patients to search for videos based on their level of injury, ASIA level, completeness of the injury, and SCI complications, among other things. The website would also allow writers and bloggers to share with the world their knowledge or story. For patients or family members with a language barrier, the website would allow subtitles in many languages as well. To make this happen, we're looking forward to building a team with individuals who would be willing to help the SCI community all around the globe. We're also looking for SCI individuals who would be willing to contribute with their homemade videos and/or articles related to SCI, and organizations which could bridge such individuals with this project. We would be able to provide an email address and a profile page for the contributors on our domain name. (e.g. x...@scivideoblog.com). In order to focus better on the needs of the SCI individuals, we have put together a 2-3 minutes survey. I would really appreciate it if you could fill it out and forward it to other SCI individuals. The link to the survey is: https://docs.google.com/forms/d/1F0cT75bS5jmQ4OvD9HPK-VKTjqlKT-X87_XvMzyqJa0/viewform. I would really appreciate if you could help us reach out to SCI patients and potential volunteers, and get this project started. This would help the entire SCI community tremendously. If you have any comments or suggestions, or would like to be a part of our team, please don’t hesitate to contact me. Website (Coming soon page): www.scivideoblog.com Prototype: www.scivideoblog.com/prototype Survey link: https://docs.google.com/forms/d/1F0cT75bS5jmQ4OvD9HPK-VKTjqlKT-X87_XvMzyqJa0/viewform A little about myself: My name is Ather Sharif and I’m a C5/C6 quadriplegic. I got injured on March 15th, 2013 as a result of a car accident and was a patient at Magee Rehabilitation Hospital, Philadelphia. I’m a graduate student at University of North Dakota but have relocated to Philly since my accident. Currently, I’m a part of the Patient and Staff Advisory Council at Magee Rehabilitation Hospital, Night of Champions Committee at Magee Rehabilitation Hospital, SCI Recreation Group at Magee Outpatient Center, and Philadelphia Eagles Quad Rugby Team. I’m also helping various organizations/individuals with their websites, databases and software development and maintenance. My future endeavors include being a part of the Peer Mentor Program at Christopher Reeve Foundation, Magee Rehabilitation Hospital and ABC Medical, and going back to school to complete my graduate degree. Regards, Ather Sharif Co-Founder, Contributor Blogger Spinal Cord Injury Video Blog +1 701.610.9061 www.athersharif.com www.scivideoblog.com ather.sha...@scivideoblog.com LinkedIn: linkedin.com/in/athersharif
[QUAD-L] Pain medicine
I heard Dr. Sanjay Gupta say that pain medicine over time induces pain. I always suspected that was true but never heard a Dr. admit it. I have noticed it myself. I am not judging anyone here but what are your experiences? Do you feel that pain medicine can can induce pain? Or is it just tolerance? Meredith - Original Message - From: Gmail bobbiehumphre...@gmail.com To: quad-list quad-list@eskimo.com Sent: Wednesday, March 26, 2014 7:02:46 PM Subject: [QUAD-L] Contacting pharmaceutical company Has anybody ever contacted a pharmaceutical company to request a discount on a medication? I use Pennsaid 1.5% every single day for pain in my neck lower back ... it works extremely well for me. Pennsaid cost $200 per bottle, it lasts me about 1 1/2 months. Bobbie Smile Everyday
Re: [QUAD-L] Pain medicine
What happens with pain meds is your body gets addicted to the drug, then you don't know the difference between the real pain and the withdrawal...its a bad situation to get in, but a lot of people have no choice. The same amount of any pain med will never be enough over the period of yrs or decades. I almost think marijuana for pain is a better, less damaging route, but has a stigma attached to it. Ron From: jume9...@comcast.net jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Thursday, March 27, 2014 5:44 PM Subject: [QUAD-L] Pain medicine I heard Dr. Sanjay Gupta say that pain medicine over time induces pain. I always suspected that was true but never heard a Dr. admit it. I have noticed it myself. I am not judging anyone here but what are your experiences? Do you feel that pain medicine can can induce pain? Or is it just tolerance? Meredith From: Gmail bobbiehumphre...@gmail.com To: quad-list quad-list@eskimo.com Sent: Wednesday, March 26, 2014 7:02:46 PM Subject: [QUAD-L] Contacting pharmaceutical company Has anybody ever contacted a pharmaceutical company to request a discount on a medication? I use Pennsaid 1.5% every single day for pain in my neck lower back ... it works extremely well for me. Pennsaid cost $200 per bottle, it lasts me about 1 1/2 months. Bobbie Smile Everyday
Fwd: [QUAD-L] Pain medicine
Meredith, I've taken pain meds for over 20 years. I don't think I could function without them, especially the first two hours of the day. I do have a lot more pain than I used to, but I am 62 so it could just be aging. I don't know that meds induce pain, but they certainly magnify it. A small pain feels bigger. I guess you could call it rebound pain. I know that doesn't answer the question, but that's my story...and I'm sticking to it. :) -- Forwarded message -- From: *jume9...@comcast.net jume9...@comcast.net* jume9...@comcast.net Date: Thursday, March 27, 2014 Subject: [QUAD-L] Pain medicine To: quad-list quad-list@eskimo.com I heard Dr. Sanjay Gupta say that pain medicine over time induces pain. I always suspected that was true but never heard a Dr. admit it. I have noticed it myself. I am not judging anyone here but what are your experiences? Do you feel that pain medicine can can induce pain? Or is it just tolerance? Meredith -- *From: *Gmail bobbiehumphre...@gmail.comjavascript:_e(%7B%7D,'cvml','bobbiehumphre...@gmail.com'); *To: *quad-list quad-list@eskimo.comjavascript:_e(%7B%7D,'cvml','quad-list@eskimo.com'); *Sent: *Wednesday, March 26, 2014 7:02:46 PM *Subject: *[QUAD-L] Contacting pharmaceutical company Has anybody ever contacted a pharmaceutical company to request a discount on a medication? I use Pennsaid 1.5% every single day for pain in my neck lower back ... it works extremely well for me. Pennsaid cost $200 per bottle, it lasts me about 1 1/2 months. Bobbie Smile Everyday
Re: [QUAD-L] Pain medicine
Most Quad Doc's start you off gradually and increase over time as needed Ron, that's why I was surprised when you told me how much you had started out on from the onset of using pain meds. Everyones pain can vary, But my 1st -10 years as a quad with a Syrinx, I needed little or no meds...but at around age 50 after 10 years of quad life my pain was getting worse and my Syrinx was Elongating or Spreading. At 1st I only needed hydrocodone in lower doses a few times per week, after a few years I had to go to Oxycodone and needed it each day as my pains grew worse. Even now I only try to take enough to get by but not be a zombie. I take 10mg of (elavil)= amitriptyline at night to help sleep-many quads take this in higher doses. I take 15mg of oxycodone for severe pain and can take up to 3 a day if needed. I know many quads need much higher doses and other pain meds also. The sad part is that the meds help but never make all the pain go away, and as with all drugs most have side effects also such as poorer circulation and so on. DH** From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com quad-list@eskimo.com Sent: Thursday, March 27, 2014 6:18 PM Subject: Re: [QUAD-L] Pain medicine What happens with pain meds is your body gets addicted to the drug, then you don't know the difference between the real pain and the withdrawal...its a bad situation to get in, but a lot of people have no choice. The same amount of any pain med will never be enough over the period of yrs or decades. I almost think marijuana for pain is a better, less damaging route, but has a stigma attached to it. Ron From: jume9...@comcast.net jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Thursday, March 27, 2014 5:44 PM Subject: [QUAD-L] Pain medicine I heard Dr. Sanjay Gupta say that pain medicine over time induces pain. I always suspected that was true but never heard a Dr. admit it. I have noticed it myself. I am not judging anyone here but what are your experiences? Do you feel that pain medicine can can induce pain? Or is it just tolerance? Meredith From: Gmail bobbiehumphre...@gmail.com To: quad-list quad-list@eskimo.com Sent: Wednesday, March 26, 2014 7:02:46 PM Subject: [QUAD-L] Contacting pharmaceutical company Has anybody ever contacted a pharmaceutical company to request a discount on a medication? I use Pennsaid 1.5% every single day for pain in my neck lower back ... it works extremely well for me. Pennsaid cost $200 per bottle, it lasts me about 1 1/2 months. Bobbie Smile Everyday
Fwd: [QUAD-L] Pain medicine
I usually take two oxy 40's and two percocet 500's per day. I still hurt terribly and for the last two weeks I've broken out in hives every time I take one. Can't win. -- Forwarded message -- From: *Larry Willis* lwillis82...@gmail.com Date: Thursday, March 27, 2014 Subject: [QUAD-L] Pain medicine To: quad-list@eskimo.com Meredith, I've taken pain meds for over 20 years. I don't think I could function without them, especially the first two hours of the day. I do have a lot more pain than I used to, but I am 62 so it could just be aging. I don't know that meds induce pain, but they certainly magnify it. A small pain feels bigger. I guess you could call it rebound pain. I know that doesn't answer the question, but that's my story...and I'm sticking to it. :) -- Forwarded message -- From: *jume9...@comcast.net javascript:_e(%7B%7D,'cvml','jume9...@comcast.net');* jume9...@comcast.net javascript:_e(%7B%7D,'cvml','jume9...@comcast.net'); Date: Thursday, March 27, 2014 Subject: [QUAD-L] Pain medicine To: quad-list quad-list@eskimo.comjavascript:_e(%7B%7D,'cvml','quad-list@eskimo.com'); I heard Dr. Sanjay Gupta say that pain medicine over time induces pain. I always suspected that was true but never heard a Dr. admit it. I have noticed it myself. I am not judging anyone here but what are your experiences? Do you feel that pain medicine can can induce pain? Or is it just tolerance? Meredith -- *From: *Gmail bobbiehumphre...@gmail.com *To: *quad-list quad-list@eskimo.com *Sent: *Wednesday, March 26, 2014 7:02:46 PM *Subject: *[QUAD-L] Contacting pharmaceutical company Has anybody ever contacted a pharmaceutical company to request a discount on a medication? I use Pennsaid 1.5% every single day for pain in my neck lower back ... it works extremely well for me. Pennsaid cost $200 per bottle, it lasts me about 1 1/2 months. Bobbie Smile Everyday
: [QUAD-L] Pain medicine
Pain is such a personal fight within oneself that you cant possibly make anyone, especially someone that's never had pain understand. You do what you have to in order to live your life as best you can with as little suffering as possible. Everyone has an opinion on how much, what to take, when, where atyou must take all this in and plow your own way. I thought the bowell routines were a quads toughest battle, I was wrong...chronic pain is a game changer. The being in a wheelchair is nothing compared to all the baggage no one knows about. RON From: Larry Willis lwillis82...@gmail.com To: quad-list@eskimo.com Sent: Thursday, March 27, 2014 7:14 PM Subject: Fwd: [QUAD-L] Pain medicine I usually take two oxy 40's and two percocet 500's per day. I still hurt terribly and for the last two weeks I've broken out in hives every time I take one. Can't win. -- Forwarded message -- From: Larry Willis lwillis82...@gmail.com Date: Thursday, March 27, 2014 Subject: [QUAD-L] Pain medicine To: quad-list@eskimo.com Meredith, I've taken pain meds for over 20 years. I don't think I could function without them, especially the first two hours of the day. I do have a lot more pain than I used to, but I am 62 so it could just be aging. I don't know that meds induce pain, but they certainly magnify it. A small pain feels bigger. I guess you could call it rebound pain. I know that doesn't answer the question, but that's my story...and I'm sticking to it. :) -- Forwarded message -- From: jume9...@comcast.net jume9...@comcast.net Date: Thursday, March 27, 2014 Subject: [QUAD-L] Pain medicine To: quad-list quad-list@eskimo.com I heard Dr. Sanjay Gupta say that pain medicine over time induces pain. I always suspected that was true but never heard a Dr. admit it. I have noticed it myself. I am not judging anyone here but what are your experiences? Do you feel that pain medicine can can induce pain? Or is it just tolerance? Meredith From: Gmail bobbiehumphre...@gmail.com To: quad-list quad-list@eskimo.com Sent: Wednesday, March 26, 2014 7:02:46 PM Subject: [QUAD-L] Contacting pharmaceutical company Has anybody ever contacted a pharmaceutical company to request a discount on a medication? I use Pennsaid 1.5% every single day for pain in my neck lower back ... it works extremely well for me. Pennsaid cost $200 per bottle, it lasts me about 1 1/2 months. Bobbie Smile Everyday
