Re: [QUAD-L] I am shriveling up
We're not exempt from illnesses or diseases either. Bobbie Smile Everyday On Nov 2, 2014, at 12:33 AM, Don Smith scamper2...@att.net wrote: I was injured in 88 and turned 50 this year, I have pretty much the same issues as you. Just bcuz we're quads don't exempt us from aging. Don in Calif. On Saturday, November 1, 2014 5:47 PM, greg g...@eskimo.com wrote: I was injured in 1982. I am 50 now. My age is catching up on me pretty fast. My feet swell and my toes like to curl up. My nails don't curl, but they are very thick. I try spreading my toes out, but they just pop back. I went years without lateral supports, so my spine is now curving bit. My eyes are getting worse. Things use to pop up often, and I haven't noticed it do that for a long time. And now I seem to have grown a 2nd chin/neck. Greg I am 42 years post now and and starting to shrivel up. It started with atrophy and my legs are getting very skinny. Then the scoliosis on my back where I lean over toward my left. I went to my podiatrist and he said I have bad foot drop and my toes are curling up on one foot and so are my toenails. It seems like the only place I am not shriveling, or curling, as my quad gut. Are any of the other older quads experiencing what I am? Bobbie Smile Everyday
Re: [QUAD-L] hemorrhoidectomy
Nicki, I have not had that procedure, but I have had plenty of surgeries through the years. The last time I had general anesthesia was in 1977. I ended up with pneumonia and almost died. Since then, I have opted for a spinal or epidural. Sedation can be added if you are nervous or apprehensive. I have had 2 children, a revision to my Koch Pouch (10 hour surgery), 3 flaps, and a complete hysterectomy along with many minor procedures without general anesthesia. Sometimes the doctors will tell you a general is necessary ... ask to talk to the anesthesiologist! All of the anesthesiologists I've dealt with were more than happy to avoid using general anesthesia on a quad. As you can tell, I am 100% in favor of the spinal option. I hope this helps. Good luck with your procedure. My prayers will be with you. Nan On Saturday, November 1, 2014 5:22 PM, zoocr...@windstream.net zoocr...@windstream.net wrote: Thanks Bob He is going to cut them out and suture.I explained all my concerns and he reassured me while it will be extensive I should recover fine. I had a DVT that broke off and went into my lungs so been there done that. I've put it off for 3 yearsnever again Bob Vogel rhvsh...@mac.com wrote: Back in my early days (about 8-years post injury--I'm a T10 complete para) I had several hemorrhoid bandings--the proctologist uses a special tool to put specially made, super-tight, rubber bands around the hemorrhoids, within a week they shrivel up and vanish. I never had any problems. HOWEVER, I had another friend that had a similar procedure and ended up with a blood clot that went to his heart--he recovered, but was fortunate he knew what his symptoms meant. A couple things I've learned--make sure your doctor knows about dealing with SCI and how we evacuate our bowels. I have spoken with a few proctologists that won't even consider dealing with SCI and hemorrhoids. Per blood thinners--the main thing is to be monitored. I am on blood thinners, and I have had to go off of them from time to time--for 3-5 days--due to various minor surgical procedures. No problem, but again, it is vital to communicate all of this to the various medical professionals. Hope this helps. Bob V On Nov 1, 2014, at 1:22 PM, zoocr...@windstream.net wrote: Has anyone had a hemorrhoidectomy and will you share your experience as far as general anesthesia versus spinal block and sedation, recovery time, etc. I am scheduled for surgery Dec. 8 and while it is an outpatient procedure we're doing it at the hospital just in case something goes wrong. I'm on blood thinner and nervous about going off of it even though he said we'd do lovinox shots the 3 days before surgery and after. Ready for relief! Nicki
Re: [QUAD-L] I am shriveling up
Just wait until you're in your 60's! Seriously, I hear you Bobbie, Larry, et al. I am 62 and my accident was 46 years ago. I used to be able to do SO much more than I can now. The most debilitating conditions affecting me now are scoliosis and edema/lymphedema in my feet. My only advice is to the younger (age + years post injury) quads - address these kind of problems before they occur. Be hyper vigilant - listen to the older quads and try to be proactive. Get a podiatrist if you don't have one. Address edema early - use compression stockings and use products that will keep your skin supple. Be aware of how you sit ... if you start to see curvature of your spine, address it immediately. Don't ignore little things - often they will only get worse with time. I wish I'd had older quads to listen to when I was younger - I always thought I could handle anything on my own. I was wrong! Nan On Sunday, November 2, 2014 12:33 AM, Don Smith scamper2...@att.net wrote: I was injured in 88 and turned 50 this year, I have pretty much the same issues as you. Just bcuz we're quads don't exempt us from aging. Don in Calif. On Saturday, November 1, 2014 5:47 PM, greg g...@eskimo.com wrote: I was injured in 1982. I am 50 now. My age is catching up on me pretty fast. My feet swell and my toes like to curl up. My nails don't curl, but they are very thick. I try spreading my toes out, but they just pop back. I went years without lateral supports, so my spine is now curving bit. My eyes are getting worse. Things use to pop up often, and I haven't noticed it do that for a long time. And now I seem to have grown a 2nd chin/neck. Greg I am 42 years post now and and starting to shrivel up. It started with atrophy and my legs are getting very skinny. Then the scoliosis on my back where I lean over toward my left. I went to my podiatrist and he said I have bad foot drop and my toes are curling up on one foot and so are my toenails. It seems like the only place I am not shriveling, or curling, as my quad gut. Are any of the other older quads experiencing what I am? Bobbie Smile Everyday
Re: [QUAD-L] Reclining?
Bobbie, Do you use a Roho? I do and I've found that they lose air after a while. This causes me to get sores - I've been sitting for so long my skin is incredibly fragile. What I've learned is that when this happens, I need another pressure mapping. Sometimes I have to fight to get one, but once I get it I can heal sores while in my chair. Sometimes I have to recline for a week or so - watch TV, listen to music ... but once a sore starts to heal, I can start living again. Have you had a pressure mapping recently? Nan On Saturday, November 1, 2014 10:35 PM, Gmail bobbiehumphre...@gmail.com wrote: I try to recline once an hour ... if I remember. I love to paint, and to put my brush down to recline takes the away the flow. And when I'm reading I would need to recline every chapter. I'm only up 7-8 hours and up one day then in 2-3 days for prevention. November 7th I have an appointment to see a wound Doctor because I have a very small area stage 1 or less. I'm using DuoDerm extra thin. But to tell you the truth, I'm sick and tired of needing to deal with all this shit. Bobbie Smile Everyday On Nov 1, 2014, at 9:00 PM, greg g...@eskimo.com wrote: How often do you recline your chair? I try to do it at leased every hour. I also am moving around a bit, bending forward a bit to read, etc. I doubt when I lean forward or sideways a bit, it is enough to move the pressure on my butt. After my bad pressure sore, I try to recline more often, but when I get into a good book, or am playing cribbage online on my Kindle, I can forget. I often have gone many hours without reclining. Greg
Re: [QUAD-L] Reclining?
Nan, I don't understand...if they do a pressure mapping, then what happens or what can be changed then?? I use Roho going on 18 years now. thank you Dan H** On Sunday, November 2, 2014 12:06 PM, Nan nlg52...@yahoo.com wrote: Bobbie, Do you use a Roho? I do and I've found that they lose air after a while. This causes me to get sores - I've been sitting for so long my skin is incredibly fragile. What I've learned is that when this happens, I need another pressure mapping. Sometimes I have to fight to get one, but once I get it I can heal sores while in my chair. Sometimes I have to recline for a week or so - watch TV, listen to music ... but once a sore starts to heal, I can start living again. Have you had a pressure mapping recently? Nan On Saturday, November 1, 2014 10:35 PM, Gmail bobbiehumphre...@gmail.com wrote: I try to recline once an hour ... if I remember. I love to paint, and to put my brush down to recline takes the away the flow. And when I'm reading I would need to recline every chapter. I'm only up 7-8 hours and up one day then in 2-3 days for prevention. November 7th I have an appointment to see a wound Doctor because I have a very small area stage 1 or less. I'm using DuoDerm extra thin. But to tell you the truth, I'm sick and tired of needing to deal with all this shit. Bobbie Smile Everyday On Nov 1, 2014, at 9:00 PM, greg g...@eskimo.com wrote: How often do you recline your chair? I try to do it at leased every hour. I also am moving around a bit, bending forward a bit to read, etc. I doubt when I lean forward or sideways a bit, it is enough to move the pressure on my butt. After my bad pressure sore, I try to recline more often, but when I get into a good book, or am playing cribbage online on my Kindle, I can forget. I often have gone many hours without reclining. Greg
Re: [QUAD-L] Reclining?
I have been in my chair going on 24 years. I have always used a reclining chair, never a tilt. I like that my knees get bending during raises and better blood flow for legs. I try and recline once a hour as well and even more when I'm on my putr just chillin' at home, but just like last night I was at a amusement park and only did 1 raise in 5 hours. So sometimes I'm bad. I have always done 14 hours up and 10 hours in bed. I start on my back in bed and turn on my side about 4 hours into the night. I have heard many horror stories about air cushions so I have stuck with Jay1, Jay2, and now Jay3 mud cushions. I only wear blue jeans. I rarely have any breakdown with this routine. If when I go to bed and there is any redness or openness we put Silver Sulfadazine and a 2x2 gauze patch over it and then more cream at bed time, so twice a day with cream. If it continues to be open or red I start only doing 8 hours up and 16 hours down with same cream and more time on side. This will clear it all up within a week for me. I know everyone has different reaction and situations but this has worked well for me SO FAR. As we age I think the skin breaks down and more issues will arise. I hope this information is helpful. Have some fun today, Donald C6 On Sunday, November 2, 2014 10:21 AM, Danny Hearn ddh...@sbcglobal.net wrote: Nan, I don't understand...if they do a pressure mapping, then what happens or what can be changed then?? I use Roho going on 18 years now. thank you Dan H** On Sunday, November 2, 2014 12:06 PM, Nan nlg52...@yahoo.com wrote: Bobbie, Do you use a Roho? I do and I've found that they lose air after a while. This causes me to get sores - I've been sitting for so long my skin is incredibly fragile. What I've learned is that when this happens, I need another pressure mapping. Sometimes I have to fight to get one, but once I get it I can heal sores while in my chair. Sometimes I have to recline for a week or so - watch TV, listen to music ... but once a sore starts to heal, I can start living again. Have you had a pressure mapping recently? Nan On Saturday, November 1, 2014 10:35 PM, Gmail bobbiehumphre...@gmail.com wrote: I try to recline once an hour ... if I remember. I love to paint, and to put my brush down to recline takes the away the flow. And when I'm reading I would need to recline every chapter. I'm only up 7-8 hours and up one day then in 2-3 days for prevention. November 7th I have an appointment to see a wound Doctor because I have a very small area stage 1 or less. I'm using DuoDerm extra thin. But to tell you the truth, I'm sick and tired of needing to deal with all this shit. Bobbie Smile Everyday On Nov 1, 2014, at 9:00 PM, greg g...@eskimo.com wrote: How often do you recline your chair? I try to do it at leased every hour. I also am moving around a bit, bending forward a bit to read, etc. I doubt when I lean forward or sideways a bit, it is enough to move the pressure on my butt. After my bad pressure sore, I try to recline more often, but when I get into a good book, or am playing cribbage online on my Kindle, I can forget. I often have gone many hours without reclining. Greg
Re: [QUAD-L] Reclining?
I do use a roho in my chair and bed. I/we check it regularly. Bobbie Smile Everyday On Nov 2, 2014, at 1:06 PM, Nan nlg52...@yahoo.com wrote: Bobbie, Do you use a Roho? I do and I've found that they lose air after a while. This causes me to get sores - I've been sitting for so long my skin is incredibly fragile. What I've learned is that when this happens, I need another pressure mapping. Sometimes I have to fight to get one, but once I get it I can heal sores while in my chair. Sometimes I have to recline for a week or so - watch TV, listen to music ... but once a sore starts to heal, I can start living again. Have you had a pressure mapping recently? Nan
Fwd: [QUAD-L] Reclining?
After 43 years, my skin is as thin and fragile as a soap bubble. I have a shallow but open wound on my butt that has plagued me for close to ten years. Also one on my left hip. Any wound I get on my feet/legs takes forever to heal, if it heals at all. My legs stay bent because of crushed knees. It is a bit of hell on a daily basis. Insert here a long line of $);/$!!! Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: donald scott rollingl...@yahoo.com Date: November 2, 2014 at 2:37:58 PM EST To: Danny Hearn ddh...@sbcglobal.net, quad-list@eskimo.com quad-list@eskimo.com Subject: Re: [QUAD-L] Reclining? Reply-To: donald scott rollingl...@yahoo.com I have been in my chair going on 24 years. I have always used a reclining chair, never a tilt. I like that my knees get bending during raises and better blood flow for legs. I try and recline once a hour as well and even more when I'm on my putr just chillin' at home, but just like last night I was at a amusement park and only did 1 raise in 5 hours. So sometimes I'm bad. I have always done 14 hours up and 10 hours in bed. I start on my back in bed and turn on my side about 4 hours into the night. I have heard many horror stories about air cushions so I have stuck with Jay1, Jay2, and now Jay3 mud cushions. I only wear blue jeans. I rarely have any breakdown with this routine. If when I go to bed and there is any redness or openness we put Silver Sulfadazine and a 2x2 gauze patch over it and then more cream at bed time, so twice a day with cream. If it continues to be open or red I start only doing 8 hours up and 16 hours down with same cream and more time on side. This will clear it all up within a week for me. I know everyone has different reaction and situations but this has worked well for me SO FAR. As we age I think the skin breaks down and more issues will arise. I hope this information is helpful. Have some fun today, Donald C6 On Sunday, November 2, 2014 10:21 AM, Danny Hearn ddh...@sbcglobal.net wrote: Nan, I don't understand...if they do a pressure mapping, then what happens or what can be changed then?? I use Roho going on 18 years now. thank you Dan H** On Sunday, November 2, 2014 12:06 PM, Nan nlg52...@yahoo.com wrote: Bobbie, Do you use a Roho? I do and I've found that they lose air after a while. This causes me to get sores - I've been sitting for so long my skin is incredibly fragile. What I've learned is that when this happens, I need another pressure mapping. Sometimes I have to fight to get one, but once I get it I can heal sores while in my chair. Sometimes I have to recline for a week or so - watch TV, listen to music ... but once a sore starts to heal, I can start living again. Have you had a pressure mapping recently? Nan
[QUAD-L] adema or swollen feet
I know some of us deal with swollen legs and feet, but about 2 months ago my feet have swollen real bad-I can only wear soft house slippers now..in the past we just had to elevate my legs some at night and they got better but now they stay very swelled up, my family doc. had me try Lasik A water pill I think plus had me try wearing compression hose stockings, but that did not help a whole lot, does anyone know what can be done or what type doctor can treat this?? We are not sure if is even treatable? Anyway's thanks for any information from any of you that deal with this or know any more that can be done/ ? thank you ! Dan H**
Re: [QUAD-L] adema or swollen feet
Dan, it appears to be a circulation issue. I'd consider a heart specialist. You might need a referral from your primary doc. Best Wishes In a message dated 11/2/2014 6:34:20 P.M. Central Standard Time, ddh...@sbcglobal.net writes: I know some of us deal with swollen legs and feet, but about 2 months ago my feet have swollen real bad-I can only wear soft house slippers now..in the past we just had to elevate my legs some at night and they got better but now they stay very swelled up, my family doc. had me try Lasik A water pill I think plus had me try wearing compression hose stockings, but that did not help a whole lot, does anyone know what can be done or what type doctor can treat this?? We are not sure if is even treatable? Anyway's thanks for any information from any of you that deal with this or know any more that can be done/ ? thank you ! Dan H**
Fwd: [QUAD-L] adema or swollen feet
Wow, stockings and elevation have always been my go-to. If possible, you should try to figure out WHY this has started. My left foot stays swollen like that. -- Forwarded message -- From: *Danny Hearn* ddh...@sbcglobal.net Date: Sunday, November 2, 2014 Subject: [QUAD-L] adema or swollen feet To: quad-list@eskimo.com quad-list@eskimo.com I know some of us deal with swollen legs and feet, but about 2 months ago my feet have swollen real bad-I can only wear soft house slippers now..in the past we just had to elevate my legs some at night and they got better but now they stay very swelled up, my family doc. had me try Lasik A water pill I think plus had me try wearing compression hose stockings, but that did not help a whole lot, does anyone know what can be done or what type doctor can treat this?? We are not sure if is even treatable? Anyway's thanks for any information from any of you that deal with this or know any more that can be done/ ? thank you ! Dan H**
Re: [QUAD-L] Reclining?
I have been pressure mapped a few times. It helps find the perfect amount of air to use, or how far you need to recline for best relief. But I got mapped on a few different Roho cushions. I found there were a few Rohos that did not give me good pressure relief. Different Rohos change your posture, etc. I really wanted the Roho that has the foam sides that keep your legs straight. But it just didn't work for me. Also, you can make changes to your chair's back or legrests and it changes your posture. Good to make those changes then get mapped. After I added Lateral supports it totally changed my mapping. I had to be careful to make sure I didn't move the pressure to where I had my previous sore. Greg Nan, I don't understand...if they do a pressure mapping, then what happens or what can be changed then?? I use Roho going on 18 years now. thank you Dan H** On Sunday, November 2, 2014 12:06 PM, Nan nlg52...@yahoo.com wrote: Bobbie, Do you use a Roho? I do and I've found that they lose air after a while. This causes me to get sores - I've been sitting for so long my skin is incredibly fragile. What I've learned is that when this happens, I need another pressure mapping. Sometimes I have to fight to get one, but once I get it I can heal sores while in my chair. Sometimes I have to recline for a week or so - watch TV, listen to music ... but once a sore starts to heal, I can start living again. Have you had a pressure mapping recently? Nan On Saturday, November 1, 2014 10:35 PM, Gmail bobbiehumphre...@gmail.com wrote: I try to recline once an hour ... if I remember. I love to paint, and to put my brush down to recline takes the away the flow. And when I'm reading I would need to recline every chapter. I'm only up 7-8 hours and up one day then in 2-3 days for prevention. November 7th I have an appointment to see a wound Doctor because I have a very small area stage 1 or less. I'm using DuoDerm extra thin. But to tell you the truth, I'm sick and tired of needing to deal with all this shit. Bobbie Smile Everyday On Nov 1, 2014, at 9:00 PM, greg g...@eskimo.com wrote: How often do you recline your chair? I try to do it at leased every hour. I also am moving around a bit, bending forward a bit to read, etc. I doubt when I lean forward or sideways a bit, it is enough to move the pressure on my butt. After my bad pressure sore, I try to recline more often, but when I get into a good book, or am playing cribbage online on my Kindle, I can forget. I often have gone many hours without reclining. Greg
