[QUAD-L] Re: Quad Longevity
I see my urologist once a yr unless I'm experiencing problems. My primary comes here about 1x every 3 months but I rarely actually need to see him. As for gyno I've not had one of those appts in about 3 yrs simply because its become so difficult to transfer me to and from my chair. But, now that I realize it's been so long I'm going to make arrangements to go this Spring as the weather will be easier on me. Thanks for bringing up such a good point, Liz! Stephanie c4 quad Transverse Myelitis (1986) - Original Message - From: MissLiz To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Sunday, January 07, 2007 9:25 AM Subject: RE: [QUAD-L] Re: Quad Longevity I hope women see their gyno regularly and if not why not? Over 40 have mammogram I see my urologist 1 a year My primary if I'm sick. -- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, January 06, 2007 11:53 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Re: Quad Longevity In a message dated 1/6/2007 10:52:30 P.M. Central Standard Time, [EMAIL PROTECTED] writes: i see my doctor twice a yr for bloodwork unless i need to see him for a uti. Is that primary doctor or all doctors? W -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.16.7/619 - Release Date: 1/7/2007 6:29 PM
Re: [QUAD-L] new member
Welcome, Pete! I'm not much of a poster but have been a list member for a couple of years now and am very thankful for this list. I hope you will derive as much as I have from it's members and will be a part of our on line family for much time to come. :o) Stephanie http://360.yahoo.com/curly_top35
[QUAD-L] (P.S. Disclaimer) How to prank a Telemarketer
http://howtoprankatelemarketer.ytmnd.com/
[QUAD-L] Re: [QUAD) Colloidal Silver
I did a search on that term and found some information here: http://encyclopedia.thefreedictionary.com/Colloidal+silver if anyone's curious. Stephaniehttp://360.yahoo.com/curly_top35
Re: [QUAD-L] Whassup? S. Dial Test #1
I resubscribed earlier and am now getting quadlist mail but thank you for your help. :o) Steph On 9/20/2006 5:08:14 PM, Tim Thompson ([EMAIL PROTECTED]) wrote:> This is to check if dual replies are being filtered, and if you are> getting Quad-list.> > On 9/20/06, S. Dial <[EMAIL PROTECTED] [link: mailto:[EMAIL PROTECTED]]>> wrote: Hm, odd. I got your reply John from ur email but not mine or> anything else from quad-list.> > Steph
Re: [QUAD-L] Whassup?
Hm, odd. I got your reply John from ur email but not mine or anything else from quad-list. Steph
[QUAD-L] Whassup?
Haven't got any mail from quadlist in 5 days ... StephanieSwamp Sista http://360.yahoo.com/curly_top35
[QUAD-L] Dillion / Urine sediment
Dillion, I suffer constant sediment in my urine, too, and recently it's led to urethra leakage whenever I'm up in my chair and I'm trying to get an appointment with my urologist to see about scheduling a cystoscopy. Have you ever had one of these? I've been a quad twenty years on the 16th and it's been my experience that whenever I have heavy sediment + leaking it's usually bladder stones for me. Maybe you should see your urologist and find out if you have these or an infection. Good luck, hope your problems are resolved soon. StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] injections for a uti plus penicillin
I've received Roseffrin (sp?) injections several times for UTI's plus oral antibiotic. I tend to get two nasty bugs at once is why in my case. StephanieSwamp Sista http://360.yahoo.com/curly_top35
[QUAD-L] Antidepressants
I take Cymbalta, it's made a world of difference to me. StephanieSwamp Sista http://360.yahoo.com/curly_top35
[QUAD-L] What happen?
You didn't run anyone away, Carol. :o) I'm still here! I just don't have anything to say regarding politics or religion, but I'm game for other topics! Right now, I'm watching The Blue Men concert on PBS - anyone else viewing this? It's an awesome show, man, I'd love to be able to see these guys live! Steph
Re: [QUAD-L] Let's see if anyone is awake
I'm awake, lol. :-p We can always talk about sex, people! Who needs politics to argue over? Let's argue over who's getting it less or something equally as silly! StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] Wayward Spouses / Sex
I've never been married but have had several partners in the last 20 years. The longest relationship lasted 8 years and the sex was, as in any relationship, hot and heavy in the beginning then dwindled off to practically nothing in the last 2 years, which really irked me as I'd hit my 30s and went into hormone overload it seemed! In the 4 years we've been apart I've had sex only a few times and like Sandy I really miss having that intimacy. W: as far as your "rent a horny male crip" goes - the logistics of getting the two quads and or quad / para "together" usually requires involving other people and I, personally, dunno about the rest of you, have no intention of asking others to get involved in that aspect of my life. I already don't have enough privacy as it is! But, if you're aware of a "rent a horny AB" program (no, I don't mean prostitutes) let us know, ok? Stephanie C3-C4 quad
Re: [QUAD-L] Angelique and Sandy
W said "...btw, there are 8 women that post here on a regualr basis." Thanks for noticing us! I've not said anything much lately because I believe it's pointless to argue politics or religion but I'm still here. :o) StephanieSwamp Sista http://360.yahoo.com/curly_top35
[QUAD-L] The Cats in Heat ... Send Help ...
Y'all, Read both of these to get the full story. The second one had me laughing so much I was teary-eyed! It's sick yet funny and makes me very glad I've never had a female cat! Steph http://blog.360.yahoo.com/blog-wuYX4HM8d79lXOqdkUTO?p=871 http://blog.360.yahoo.com/blog-wuYX4HM8d79lXOqdkUTO?p=916
[QUAD-L] Carol
Welcome back to the list! Glad you made it through those difficulties and I hope you remain with us for a long time. StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] Google Earth
I'd love to use that but it only works with XP. Silly me, downloaded it without reading the specs a few months ago. D'oh! StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] Fwd: Stem Cell Vote Next Week!
I did mine ... :o) StephanieSwamp Sista http://360.yahoo.com/curly_top35
[QUAD-L] Best Quote Evah!!!
I nominate this for quote of the year. Smart, succinct and funny as hell to me. ;-) John said: "I want the robot arm to do a digital stim, not play games. I'd love to show the folks from the news what is really practical." John Re: http://www.newscientisttech.com/article.ns?id=mg19125606.200&feedId=health_rss20 Overcoming paralysis is a case of mind over matter StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] Keeping track of everyone's personal information
Well, I went there to try putting my info in but got this message: "The website you have requested has exceeded its daily bandwidth quota of 56MB and has been temporarily de-activated." It goes on to say he needs to upgrade to pricier plan, etc. So, seems this isn't working either, hm, maybe Jim Lubin could have a contact/info page on his site? Just a thought ... StephanieSwamp Sista http://360.yahoo.com/curly_top35
[QUAD-L] Art Berg - Fentanyl
Says here http://www.artberg.com/history.html Art Berg passed away from toxic reaction to the duragesic (Fentanyl) patch. I tried this for pain once, made me very ill. Any of y'all have bad reactions to this? StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] I miss Jerry C
This thread glaringly points out how easily people can disappear from our lives, I'd hate for that to happened again here. What can we do to keep better track of each other? I know I'm not a regular poster but I've been on this list about 2 years and genuinely care about and enjoy hearing from and about the people of this list and hate to think any of you may just slip away like Jerry C. StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] I miss Jerry C
What happen to him, Eric? I don't remember him posting here it makes me sad. StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] question
Austin, I've never heard of such! It's public transportation, right? What does it matter if you have access to a van or not? Our public transit can't refuse a seat to an able-bodied person if that person has a private vehicle. This sounds like hogwash to me. Maybe you should contact the head of the Department of Transportation in your state. Good luck! StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] this quad crap sucks
Bobbie, I'm just now checking my e-mail. Were you able to get ahold of anyone? Gosh, I feel for you, hon, I've been in that predicament several times myself. Was it an agency person? I'd try Stunt's? suggestion call and complain and ask for immediate help. StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] reply
I was teasing about the irking part. I'm really sorry about your marriage ending, I know how difficult it is to lose not only your long-term partner but your main care-giver. It's tough to realize but sometimes our significant others just burn out especially if they've had the sole brunt of our care for a long time. I'm not saying that's why your relationship is breaking up but it certainly contributed to mine. Is there any way y'all could get some counseling? StephanieSwamp Sista http://360.yahoo.com/curly_top35
Re: [QUAD-L] What's out your back door & down the street?
I live in a nursing home in a small rural town that's developing rapidly. A state road (228) runs in front of our home and is less than a mile to the highway express and when you're outside our front entrance or near our duck pond you can hear and watch the traffic as it heads into town or towards Jacksonville. Our back yard is a staff parking lot but outside my window, which faces north, used to be a quiet wooded area but has been mowed down and now there's hills of dirt growing and then disappearing as construction vehicles go back and forth busily preparing the once forested land for the town's newest bank. And early next year we're slated to have a super Walmart built about a half mile or so from us, we're very excited. Sad, isn't it? :-p Steph
Re: [QUAD-L] Comebacks_Re: Quality of Life and SCI ~~ Huh?
Yeah, but can't you just imagine the rest of that thought? "cuz I'd have rather died, been a vegetable, etc."? Some do say to me that they couldn't have been as strong as I and I just say I would have thought the same of myself had this never happen to me - I just dealt with what life gave me cuz it's not like I had a choice in the matter! Lol. Steph
Re: [QUAD-L] reply
Alan, If you hit reply to Bobbie it just goes to her. You have to put to quad-list@eskimo.com in address bar in order to see your reply on the list or hit reply all which sends to the list and each individual but then we'd all get doubles of ur messages and get really irked. :o) Steph
Re: [QUAD-L] Comebacks_Re: Quality of Life and SCI ~~ Huh?
Now that made me laugh, Bobbie! I always get this line "it's so amazing that you still smile or laugh." Huh? Steph I go on ~ one day at a time. Another comment I get when I meet people to is "What a shame, your so pretty" Is this a compliment? Bobbie
Re: [QUAD-L] reply: hiya
Welcome to the list, Angie, glad to have you with us. I'm a 38 yr old c3 quad from Transverse Myelitis and reside in FL. Stephanie
Re: [QUAD-L] Who lives where?
Macclenny, FL a few miles (30'ish?) west of Jacksonville and east of Lake City. Steph c3 since 1986
Re: [QUAD-L] Dr G. [Medical Examiner] and the circumstances surrounding a quadriplegic's death in Orlando, Florida
What did happen to Shannon Johnson? I don't get that channel but I did google her and went to the DHC website but it didn't specify what the findings were. It also said she died in a hospital? I thought she was found lying dead in the sand? Steph
Re: [QUAD-L] Mouthstick coverage
$400??? OMG, what all does it do? Gotta be something AWESOME. I always got mine from catalogs like Sammons for $20 - $25 (I get the lightweight aluminum ones) and the last one's I ordered were over 5 years ago I'm still using them. Steph c3 quad since '86
Re: [QUAD-L] Not seeing my posts!
Same here, Corie! It's shows in my sent box but a few never showed up on the list except of course for the "test" one. :p Steph
[QUAD-L] Fw: Barbara: Adaptive equipment
Trying to post this again - didn't go through 1st time. - Original Message - From: S. Dial To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Sunday, June 18, 2006 3:18 PM Subject: Barbara: Adaptive equipment Barb, Did you go to rehab after your injury? I saw c5'ers in mine being given adapted equipment that helped them to feed themselves, etc. I'm surprised you don't have a pen holder, at least. I googled Sammons catalog and here are some links for you. Writing Aids: http://www.sammonspreston.com/Supply/product-list.asp?subsection=1690 Oral care: http://www.sammonspreston.com/Supply/product-list.asp?subsection=1664 I couldn't find anything regarding adaptive equipment for make-up brushes or money holders but I'm sure the others know of such - hope this little bit helps though! Steph c3 quad from TM (1986)
[QUAD-L] Not seeing my posts!
Hmm? Testing!
[QUAD-L] Barbara: Adaptive equipment
Barb, Did you go to rehab after your injury? I saw c5'ers in mine being given adapted equipment that helped them to feed themselves, etc. I'm surprised you don't have a pen holder, at least. I googled Sammons catalog and here are some links for you. Writing Aids: http://www.sammonspreston.com/Supply/product-list.asp?subsection=1690 Oral care: http://www.sammonspreston.com/Supply/product-list.asp?subsection=1664 I couldn't find anything regarding adaptive equipment for make-up brushes or money holders but I'm sure the others know of such - hope this little bit helps though! Steph c3 quad from TM (1986)
[QUAD-L] Tank Chair
Thought it was a joke when I first saw it, it's not. :o) Stephhttp://www.tankchair.com/default.htm
Re: [QUAD-L] heel sore
Johnny, I've had that happen to both my heels and they finally had to be surgically debreided in '93 (sp?) tried ointment and stuff prior but it did little for mine. Mine was caused from constant chafing due to contracted legs spasming frequently had a tendonotomy done at same time I got heels done solved the heel problem. Steph
Re: [QUAD-L] Suffocation
My bad then, I misunderstood. I apologize. Steph
Re: [QUAD-L] I'm kinda new here
Begitee, I became a c3 quad in 1986 at 18 yrs old and like you, I felt scared and uncertain about how my life would play out. I've spent most of the last 20 years hiding away from society and myself and let depression and insecurity rule my life. I have been living in a nursing home for the last 4 years and will probably do so until my life ends, and for what? I'm not sure. I had opportunities to get my education and become a vital member of society but I squandered them due to foolishness regarding my disability. I have disabled friends who went on to get their degrees, good jobs and many are married with children and have homes and independence that I can only dream of -- don't be like me! Pursue all avenues available to you, in Vocational Rehabilitation, college grants or scholarships. Whatever you do don't let any opportunities for a positive independent life pass you by - you're young and most likely will live MANY more years - make them the best they can be for you! Best of luck, Stephanie
Re: [QUAD-L] Suffocation
I didn't say my experience was like an SCIs only that I knew what it was like to suffocate to death which I do, and yes, when I told them I was having difficulty breathing I was still able to breathe AT THAT POINT yet they continued to ignore me and not only let me lose conciousness from slowly suffocating but to even die - so what's your point, Eric? That I don't know what it is to suffocate? Bull. Steph
[QUAD-L] White light?
No, didn't see anything just had the sensation I was being carried away in someone's arms then that I was THROWN back and then it felt like lighting exploded in my head (I attribute this to defribillator shock) and then I was back among the living. Steph
[QUAD-L] Suffocation
Yup, when I became stricken with TM I kept telling the nursing and respiratory staff I couldn't breathe but they refused to believe me (cuz my color was good??) until I died and they had to resusitate me then put me on a vent that I stayed on for 6 months. But, the actual dying part wasn't so bad I just got very tired of struggling and simply lost conciousness and poof I was gone. Steph
[QUAD-L] Collective SCI years
Interesting also. Do you realize that a hundred of us will account for about 2000 collective years of SCI living? Jesus, that's a long time !!! :-) Dave [EMAIL PROTECTED] 39 Eric [EMAIL PROTECTED] 9 Michael Norville [EMAIL PROTECTED] 30 Houston [EMAIL PROTECTED] 8 Lori [EMAIL PROTECTED] 26 Byron King [EMAIL PROTECTED]3 Ray.T [EMAIL PROTECTED] 11 Bill: [EMAIL PROTECTED] 38 river [EMAIL PROTECTED] 20 carolyn, [EMAIL PROTECTED] 43 DANNY HEARN [EMAIL PROTECTED] 9 John [EMAIL PROTECTED] 30 Tom [EMAIL PROTECTED] 8 Houston [EMAIL PROTECTED] 8 Paul [EMAIL PROTECTED] 3 Bobbie Humphreys [EMAIL PROTECTED] 33 Stephanie 20 --- Total 339
[QUAD-L] Sexual Dreams
Yup, have those, too! Sometimes I'm even getting lucky with some famous hunks. So far I've had Brad Pitt, George Clooney and Tim McGraw and I keep hoping for Antonio Banderas but he just won't show up! Mostly though, my dreams feature whoever I'm with or past loves and yes, they're so intense that I wake up feeling pretty happy. ;-) Steph c3 quad Transverse Myelitis (1986)
Re: [QUAD-L] Anger Management
Bobbie, I have dreams like that, too, I believe it's our subconcious helping us release anger and frustrations in a way our bodies no longer can. I don't think it means you're a homocidal maniac, as I'm sure you may think, just that you've found a different way to vent. I appreciate my angry dreams because I feel like they help release that negative energy in a safe manner. So, don't feel bad, okay? You're not alone in these experiences and not as violent as some either! For ex: in my dreams I've spilt open a roommate's head with a hatchet, I've beat up my ex, and had fights with faceless strangers, etc. It sounds awful, I know, but, honestly, outside of my dreams I'm really nice! :o) Steph c3 quad - Transverse Myelitis (1986)
[QUAD-L] Partial Hoax - A TRAITOR IS ABOUT TO BE HONORED PLEASE READ IMPORTANT ! ! ! ! Dave
Silas, Too late. Fonda was honored in 1999. This is an old Internet hoax. The part about her taking slips of paper from POWs and giving them to the Viet-Cong is untrue. Steph http://www.snopes.com/military/fonda.asp Taken from article: Mike McGrath, President of NAM-POWs, has also stepped forward to disclaim the story: "Please excuse the generic response, but I have been swamped with so many e-mails on the subject of the Jane Fonda article (Carrigan, Driscoll, strips of paper, torture and deaths of POWs, etc.) that I have to resort to this pre-scripted rebuttal. The truth is that most of this never happened. This is a hoax story placed on the internet by unknown Fonda haters. No one knows who initiated the story. Please assist by not propagating the story. Fonda did enough bad things to assure her a correct place in the garbage dumps of history. We don't want to be party to false stories, which could be used as an excuse that her real actions didn't really happen either. I have spoken with all the parties named: Carrigan, Driscoll, et al. They all state that this particular internet story is a hoax and they wish to disassociate their names from the false story."
Re: [QUAD-L] marijuana
Smoked the ganja for years up until 2001 hoping it would reduce my pain and though I didn't smoke it for spasm relief I can not recall having any spasms while inebriated! Same thing happened when I'd drink alcohol - no spasms -and my limbs would get floppy instead of being stiff! Hope this helps, River! Steph
Re: [QUAD-L] Living alone and the future- slippery slope
John, What you said pretty much mirrors my experience regarding no friends and little contact with relatives beyond my Dad. I've often wondered was it just me, but the longer I'm in this chair, the more loneliness in this world I see, especially in the disabled and elderly community. Those of you with a family and friend support system - you're blessed. Hope you always have it. Steph c3 quad from TM (1986)
Re: [QUAD-L] Passed a milestone
Yep, passed that milestone last year myself. Steph c3 quad from TM (1986 at 18)
[QUAD-L] ~LittleQuad~
Who are they??? Oh, Amye, say you're just joking, kiddo! Just how young are you? Lol! Steph
[QUAD-L] Concerts
Wow, I'm envious of those who've seen so many greats! Groups like Led Zeppelin ... dang, they were kaputs by the time I could enjoy their music. I've not been to many concerts especially since being disabled but here's my paltry list! Ted Nugent Ozzy Osbourne Black Crows Whitesnake REO Speedwagon Yes Molly Hatchett Iron Maiden Van Halen (with DLR) Quiet Riot ... yes, I was a teen metal head in the 80s! Steph
Re: [QUAD-L] Any Moody Blues fans out there?
Though I was a teenager in the 80s my favorite music came from the 70s. I can remember being 8, 9, 10 years old dancing alone in my room to the songs of Wings, Lynyrd Skynyrd, ELO, Kansas, JD Souther, James Taylor and so many more. On my HD now I have songs by most of those artists I jam to them quite often. Steph
Re: [QUAD-L] Update
Eric, I'm being a buttinsky here, but why does her family even have her contact info (e-mail, phone, etc) if they're so adamant about not having anything to do with her? Why don't you & Amy change your e-mail addresses and whatever other contact info of your's these people have to ensure cruel outreaches such as these can't happen? As for Gramps - if I were Amy I'd want to hear it from HIM and ignore that heartless mother of hers - sheesh. Just my two nosy cents! Steph
Re: [QUAD-L] Need Advice
Stacy, Thank you for sharing your story with me, I am so sorry you were subjected to such callousness. Like you, I can clearly recall the names of the cruel ones. My first one was a Diane in ICU who continuously told me to shut up whenever I made the only sound I could (a tongue clicking) to signal for human contact. My time (9 days) in that ICU was the most frightening time of my life compounded by the restricted visiting hours and my inability to communicate to my family the extent of hell I was going through. I came back 3 months later looking for her though and she wasn't there, luckily for me, because all I had in mind to do was mow her down with my chair! I'd have been probably the 1st high-level quad in prison for assault with deadly intent, huh? Steph the Savage :op
[QUAD-L] Steph's letter to Administrator
How's this y'all? April 17, 2006 Rebecca Matheny, Administrator Ms. Matheny: I am writing in hopes that you can help me resolve the situation I was faced with today. As you may or may not be aware of my condition requires that I receive full assistance with all ADL's. When one is in this vulnerable position you hope not only to be cared for by competent people but by people you like and trust and that you have confidence in will conduct your care with respect and warmth. What a person of my vulnerability hopes not to encounter is a hostile or resentful caretaker which would make for an unpleasant life that no one disabled deserves. In my four years as a resident here I've enjoyed a pleasant life and gotten along well with the nursing and cna staff with the exception of Ms. Shelia Thompson a.k.a. Poochie. Our problems began during my first year when I filed a grievance against her for neglect and refusal of care. It was my understanding then that Ms. Thompson would continue to work here but would no longer be assigned to me. I was satisfied with this arrangement. Later Ms. Thompson was fired and it became a moot point. In all this time I have never filed another grievance nor had problems with any other aides. And I believe it's fair to say I'm a well-liked person that's considered easy to work with and that I've been a good resident of this nursing home. Today I discovered Ms. Thompson had been assigned to my hall and that she had refused to enter my room, feed or help in any way with my care. This part I have no problem with and actually am in agreement with Ms. Thompson about, however, it meant other aides from a different hall were obliged to do my care which they did with compassion and grace and I'm very appreciative of Meagan Johns and Donna Harris for their help. It is my request that Ms. Thompson not be assigned to my hall or me again in any capacity - this way no extra burden is imposed on the staff who do enjoy working with me and I them. As it stands Ms. Thompson is scheduled to be on my hall for two weeks and I feel very uneasy and stressed about how my care is to be managed. It is my hope we can resolve this quickly and without further incidence. Thank you for your time. Sincerely, Stephanie Dial
Re: [QUAD-L] Need Advice
How do I get in contact with State Dept? You're right about ombudsman - they're just nursing home lackeys, imo. Also, I've asked to look at my files several times over last 4 years and been put off or ignored. Steph
[QUAD-L] What's in a name? Lol
I'm composing a letter to administrator but as to owner, insurance carrier, etc, I've got no idea of how to find this info out? As for her name I assume it's cause she goes around with her lip pooched out? Lol, I dunno, I've often wondered myself about that!
Re: [QUAD-L] Need Advice
Hahaha, good one, Bobbie! Steph
Re: [QUAD-L] Need Advice
I will but the aide told me my wing's D.O.N. was spoken to, her suggestion? That Poochie and another female come in here! I was shocked. Ask to talk t the director of nursing and then the administrator.
Re: [QUAD-L] Today in my 33rd Annivarsary
Hope you keep going strong, Bobbie! Steph
[QUAD-L] Need Advice
Hey Gang, I'm having a problem and need to know what you think I should do. During my first year in this nursing home I had a problem with an aide named Poochie who I ended up filing a grievance on for neglect and refusal of care who was from then on not assigned to me, she was later caught sleeping on the job and let go, but has been hired back in recent weeks. Since her return I've been told of comments from her such as "You know I don't go in Stephanie's room!" regarding answering my light or coming in to care for my roommate. This doesn't bother as I prefer her as far away from me as possible, but today she and her partner, a young man named Jeremy, were assigned to my hall. An aide from another hall had to come feed me and informed me that Poochie had been assigned to feed me and do my care and had refused so that was why she was feeding me. Between having Poochie and this male aide on my hall I would have been effectively without care if it wasn't for the kindness of Meagan who fed me and then after finishing her people's care came back and got me up. I did complain to the charge nurse, Adam, and tell him what had transpired in the past and today and that basically I'd rather not have any dealings with this person and he said he'd file a grievance against her. I also tried contacting my social worker, Bambi Barber, to see if she could help my situation only to discover she isn't in today. I'm feeling really stressed and vulnerable over how my care is going to be managed over the next 2 weeks which is how long she'll be on my hall, if management won't agree to switch her. What can I do to solve this situation without undue drama that keeps this person away from me? Scared & Sad, Steph
Re: [QUAD-L] injection's for a uti medecation?
Many times. Steph
[QUAD-L] EHOB mattress
I took a look at them, not what I'm looking for that's not much better than a pool float, imho, I'm looking for an air filled complete bed mattress the kind that'll probably cost more than I could ever afford! :o) Thanks for info though, Eric! Steph C3 quad (TM - 1986)
Re: [QUAD-L] Planet mobility
What's the EHOB mattress and where can I find it? Steph
[QUAD-L] Dana here is the Helping Hands link
http://www.helpinghandsmonkeys.org/
Re: [QUAD-L] Need Answers
Write my congressman? And say what? Steph
[QUAD-L] Need Answers
Hey Everyone, As you all may or may not know I've been living in a nursing home for 4 years and when I first got on this list many here encouraged me to think about getting out of it. But, at the time, I wasn't ready. Well, call it an itch, call it craziness but I'm longing to be out in the world again but need advice - is it worth attempting? Where should I begin my journey? I live in rural North Florida near Jacksonville and know that Sec 8 housing there is backlogged, but maybe I can try? I'm not a SCI and don't qualify for the BSCIP programs. Give me pointers, ladies and gentlemen, please? :o) Steph
Re: [QUAD-L] American Idol track
I've got it, Smurf, and will send tonight. Cheers, Steph
Re: [QUAD-L] Dating & Marrige
I've had various relationships through the last twenty years, the longest being a 8yr live-in situation, we split four years ago and since then I've dated twice. Steph C3 quad with TM (9-16-86)
[QUAD-L] Age
38 years old, have had Transverse Myelitis 20 yrs this September. C3-C4 quad. Steph C3 quad with TM (09-16-86)
Re: [QUAD-L] unsubscribe
Gang, People just don't pay attention to instructions, do they? Lol! :o) Steph
Re: [QUAD-L] To all on list that have a Supra Pubic Catheter
Danny, I change bags/catheters once a month, but switch between leg and bed bags daily and so my aides clean both once a day. As to plugging catheter to allow bladder to fill, I've heard of it but never done it. I can barely take being irrigated much less being plugged up, I wet myself more easily than I did before the SP but I figure it might just be a factor of age and being female, dunno. Best, Steph
Re: [QUAD-L] BLADDER STONES
Lori, Bless your heart, you've had some awful experiences! I've had more cystoscopies than I can recall, actually and, luckily for me, never a bad experience with any of them. I usually have them to remove numerous large bladder stones but my last one (Oct 2005) was done along with my getting a supra pubic catheter. In every cystscopy instance though I've had it done outpatient at a hospital under general anesthesia. The only "crappy" effect I've ever felt was a temporary worsening of bladder spasms. Have you had the same dr perform your cystos? Do you know what anesthesia was used when you had an adverse reaction? I've heard, but don't know how true it is, of quads undergoing this with just a local and faring much better - wonder (if it's true) if this would work for you? Best of luck, Steph
[QUAD-L] Pretty & Beautiful
Dictionary definition: pret-ty adj. pret-ti-er, pret-ti-est 1. Pleasing or attractive in a graceful or delicate way. 2. Clever; adroit: a pretty maneuver. 3. Very bad; terrible: in a pretty predicament; a situation that has reached a pretty pass. 4. Ostensibly or superficially attractive but lacking substance or conviction: full of pretty phrases. 5. Informal. Considerable in size or extent: a pretty fortune. beau-ti-ful adj. 1. Having qualities that delight the senses, especially the sense of sight. 2. Excellent; wonderful. I'm just curious why you only care about the answer from the male point of view? Steph LittleQuad~ <[EMAIL PROTECTED]> wrote: Is there a difference between pretty and beautiful to men?
Re: [QUAD-L] MEDICARE
I am on the dippy duo. :o) Steph
Re: [QUAD-L] update
Eric, Her family dislikes you solely because you're disabled? Bizarre! Someone said they're reminded of "Flowers in the Attic," lol, I'm thinking more like a X-File episode but I won't say which one because it really is insulting, unfortunately, none of us can choose what family we're born into, but thankfully, we can grow up and choose to leave that family. It sounds like Amy's has made that choice for her but I think she and your child will only benefit from it. An innocent child doesn't need bigotry and ignorance from within it's own family, this world will show them that soon enough. Hope Amy pursues that therapy though, it can be very helpful in many ways. Best of luck, Steph
[QUAD-L] Unsubscribing
Hmmm, is right! Lol. I sent her an email with the correct link to unsubscribe earlier but she's not comprehending. She just keeps hitting Reply or Reply All. :D Steph
[QUAD-L] Hello KK
KK, Welcome to the list! I hope you don't experience any adverse reactions to it either, just be as sensitive to your body's signals as you can is my advice, and hopefully all will be fine. Take care, Steph
Re: [QUAD-L] levaquin adverse reactions...?
Re: Acidolphilous I take 2 capsules 3x daily it's a blessing because I stay on antibiotics now and about every 3 to 4 months I end up needing a round of intramuscular shots. Steph
Re: [QUAD-L] Birthdays - I'm another year older
Happy, happy birthday, Smurf!! I'm a February baby, too, mine's near the end though. Hope you're enjoying your first full day as a 22 yr old and have many happy returns! Steph
Re: [QUAD-L] Red spot
Hi Greg, If it's definitely not pressure from your chair's backrest then I'd hazard a guess it's your clothes. Do you wear denim jeans? Whenever I wore my Levi's I got redness from the thick seam work. Best of luck, Steph
[QUAD-L] Med Allergies
I'm allergic to Codeine, big time, as are many in my family, which really sucks when it comes to pain relief! I can't handle the synthetic codeine Loracet either. My other allergies are to sulfa drugs, IVP dye, Quinine and just recently Macrodatin. Steph
Re: [QUAD-L] levaquin adverse reactions...?
This is an eye-opening topic, wow, I've taken Levaquin many times over the years with no adverse reactions (knock on wood hope it stays that way!) and this is the first time I've heard of others having reactions to it. Steph
Re: [QUAD-L] uti's
When I lived at home I rarely got infections. I believe it had a lot to do with keeping the bags properly cleansed, too. At home my caretaker would rinse out my bags with hot water then half fill them with a equal mix of white vineagar and water then hang them over a towel rod in a way where the connector end came in touch with nothing - I stayed UTI free for years. Here when they do rinse it out it's not always throughly or with hot water and they're required to put them in plastic bags so I keep a steady UTI! I've put up written instructions, I've talked and tried to make them understand but it's hard because some care, some don't. Steph
Re: [QUAD-L] Medicaid to Medicare Part D
I'm like you Jim (dual-eligible) and I went with AARP seemed like the most cost effective one in my book, maybe our next Prez will ditch this entire crazy plan and put in sensible guidelines for Medicaid & Medicare, hah, I'm deaming! Steph
Re: [QUAD-L] Long-term antibiodic therapy
I'm taking Macrodantin, too, but breaking out on my chest, back and face so I guess it's back to the drawing board for me! Steph
Re: [QUAD-L] Bladder & bowel spasms
Lana, My dr gave me Belladonna suppositories once years ago when I had an infection that was causing severe bowel and bladder spasms they worked great for me. It sounds like Gabe might need another UA done to see if the infection isn't still present and causing these severe spasms. Best of luck, Steph
Re: [QUAD-L] printer ~friend question
Bobbie, Why not just be upfront and say "I don't mind you using my computer to go online but if you need to use my printer I'd appreciate if you brought your own paper and reimburse me for ink costs."? It's not unreasonable you're providing everything else! Or I suppose you could just hope she's not computer savvy and disable it through your Control Panel - Printers - Click File and uncheck Set as Default this might keep it from printing I would test it to be certain though. Steph
Re: [QUAD-L] Waxing for women
No, but if I could afford it money and embarrassment wise I'd go for one of those brazillian waxes! Steph
[QUAD-L] Testing ...
No posts in 2 days so testing. Steph
Re: [QUAD-L] Murderball
I saw Murderball last week, it was good, but I wish it had focused more on the actual sport though I got a laugh out of what I dubbed their "nationwide personal ad" they should take out a billboard with arrows pointing to their crotch saying "Ladies, IT works!" :o) I believe the sex video was from the rehab hospital, remember the doctor? Steph c3-c4 quad 09/16/86
[QUAD-L] Hollister leg bags
Hollister bags here for $7.95 versus $31 for Allegro product. Straps $5.95. http://www.homecaredelivered.com/catalog/prod722.php Steph
Re: [QUAD-L] LEG BAG STRAPS
Before nursing home life I used Hollister leg bags that came with cotton straps that clipped over a button attachment on the bag. Rubber straps always left deep welts in my legs - hated those things! Steph
Re: [QUAD-L] CELL PHONES
Honic, That's a Internet hoax here's the scoop: http://www.snopes.com/politics/business/cell411.asp Steph
Re: [QUAD-L] vitamins
Here we're given vitamin C and zinc supplements to promote skin healing. Steph
Re: [QUAD-L] Merry Christmas
Happy holidays everyone. :o) Steph
[QUAD-L] Movies (murderball)
Yeah, William's right. I have Netflix online rental service myself. Twenty bucks a month, unlimited movies, no late charges, etc., it's 'da bomb. :o) Steph
