[QUAD-L] Proposed Washington State facial recognition and data privacy law stalls in House | Biometric Update

[daanoo53]

https://www.biometricupdate.com/201904/proposed-washington-state-facial-recognition-and-data-privacy-law-stalls-in-house


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[QUAD-L] Should you pay for Dragon Anywhere? – TRAINING YOUR DRAGON with SCOTT BAKER

[daanoo53]

https://scottbakerbooks.com/2016/06/01/should-you-pay-for-dragon-anywhere/


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[QUAD-L] Tempur-pedic peanut pillow

[daanoo53]

Hi fellowQuad-list Members
I am providing aWebsite for Tempur-pedicThat areBuy one get one free There is a 
pillowCalled a peanut pillow I use It’s for everything 
1.On my armrests
2.  To position my feet
3.Between my legs.
4.Above my Right heelThat doesn’t have any tissueAnd had to have skin graft 
.You cut it to the appropriate size To be placed  above Where I lost Part of my 
heelBecause the fixatorWas left on  Extremely tight Causing gangrene is a long 
story.

+1 (631) 769-2090
It comes with its own cover. After it is cut in pieces,I use a Black aloe Socks 
from Kohls.com
Thank you, Dana C4-5 44 years post

https://www.tempurpedic.com/shop-pillows/all/


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Re: [QUAD-L] Iron for healing

[daanoo53]

I take iron from the doctor. I'm glad it promotes healing. I also take zinc.
Has anybody called their senators? Dana

Sent from my iPhone

> On Sep 20, 2017, at 9:33 PM, Bobbie Humphreys  
> wrote:
> 
> Even since I started taking Iron pills to promote healing ... I read it on 
> the internet.
> It WORKS!!
> Does anybody else take Iron for healing?
> Bobbie 
> 
> "Be the change you want to see in the world". Gandhi

Re: [QUAD-L] Avocados to the Rescue - New Mobility

[daanoo53]

Jim,
Thank you for that article I knew avocados were good for you but not all those 
details and how it relates to spinal cord injury.
Dana  C 4-5 complete 43 years post."

Sent from my iPhone

> On Aug 16, 2017, at 4:27 PM, Jim Lubin  wrote:
> 
> http://www.newmobility.com/2017/08/avocados-to-the-rescue/

[QUAD-L] Call Senators-No cuts or Cuts to Medicaid

[daanoo53]

>> Please go to adapt and see what Medicaid cut and Caps are about to be voted 
>> on by or Senators.

Please call your Senators and ask them to vote against no cuts or caps on 
Medicaid. It is dramatic to make phone call or write letters to your senators.
The congressional hotline phone number is
(866) 922-4970

Thank you for making the phone calls.
Cervical level 4-5, it will be 43 years in July 26.

Re: [QUAD-L] Fwd: How to Control Your Android Device Entirely with Your Voice

[daanoo53]

Do you know if it will work on an iPhone 6 Plus. Thank you
Dana 

Sent from my iPhone

> On Dec 3, 2016, at 9:06 PM, Jim Lubin  wrote:
> 
> I just installed this free app from Google on my Nexus 5x. Amazing! Once 
> installed, setup and "Ok Google" is set to always listening, I am able to use 
> my phone completely hands-free by voice. It puts numbers next to everything 
> then you just say the number next to the item.
> 
> https://support.google.com/accessibility/android/#topic=6151842
> 
> https://play.google.com/apps/testing/com.google.android.apps.accessibility.voiceaccess
> 
> -- Forwarded message --
> From: Jim Lubin 
> Date: Sat, Dec 3, 2016 at 12:00 AM
> Subject: How to Control Your Android Device Entirely with Your Voice
> 
> 
> http://www.makeuseof.com/tag/control-android-device-entirely-voice/
> 

Re: [QUAD-L] Wheelchair cushion's

[daanoo53]

I tried the number of years ago but when I got home after the fitting it made a 
pressure area so I took it back. I prefer the Roho and I have used for decades 
they are good except for when the Cushion deflates and you do not know it. You 
must check every day. Dana 

Sent from my iPhone

> On Nov 6, 2016, at 3:17 PM, Lori Michaelson  wrote:
> 
> Hi Glenn,
> 
> I have had so much happen to me over the last eight months and been so busy 
> that I can't remember who actually wrote to me about something they use when 
> the Roho no longer worked for them but, in any case, that person thought that 
> the Ride Designs cushions offered the best for stability and pressure relief, 
> etc. etc. etc.
> 
> http://www.ridedesigns.com/
> 
> http://www.ridedesigns.com/wheelchair-cushions
> 
> http://www.ridedesigns.com/custom-cushion
> 
> http://www.ridedesigns.com/forward-cushion
> 
> I don't know what we are going to do with what the future is going to bring 
> re: pain for durable medical equipment. Medicare alone is covering less and 
> less and less and although many feel safe being on some sort of Medicaid... 
> that is not going to always be available in my humble opinion. 
> 
> ~Lori
> 
>> On Sun, Nov 6, 2016 at 1:10 PM, glenn henry  wrote:
>> Other than the Roho pad, does anyone else use a different type of cushion? 
>> The Roho pad does not work for me and I am looking for an alternative.
>> 
>> Other suggestion:
>> Otto Block Terra Flair
>>  Comfort Company, M2
>> Vector
>>  
>> I looked at the information on the vector, it almost seems to simple to be 
>> effective.
>> 
>> Thanks for your help,
>> 
>> Glenn
> 
> 
> 
> -- 
> "Petting, scratching and cuddling a dog could be soothing to the mind and 
> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
> Koontz

Sent from my iPhone

> On Nov 6, 2016, at 3:28 PM, jume9...@comcast.net  wrote:
> 
> 
> . Here in California it actually benefits one to have Medi-Medi when it comes 
> to supplies but it takes awhile for the billing. 
> 
> Meredith
> 
> -- Original message--
> From: Lori Michaelson
> Date: Sun, Nov 6, 2016 1:17 PM
> To: glenn henry;quad-list;
> Subject:Re: [QUAD-L] Wheelchair cushion's
> 
> Hi Glenn,
> 
> I have had so much happen to me over the last eight months and been so busy 
> that I can't remember who actually wrote to me about something they use when 
> the Roho no longer worked for them but, in any case, that person thought that 
> the Ride Designs cushions offered the best for stability and pressure relief, 
> etc. etc. etc.
> 
> http://www.ridedesigns.com/
> 
> http://www.ridedesigns.com/wheelchair-cushions
> 
> http://www.ridedesigns.com/custom-cushion
> 
> http://www.ridedesigns.com/forward-cushion
> 
> I don't know what we are going to do with what the future is going to bring 
> re: pain for durable medical equipment. Medicare alone is covering less and 
> less and less and although many feel safe being on some sort of Medicaid... 
> that is not going to always be available in my humble opinion. 
> 
> ~Lori
> 
>> On Sun, Nov 6, 2016 at 1:10 PM, glenn henry  wrote:
>> Other than the Roho pad, does anyone else use a different type of cushion? 
>> The Roho pad does not work for me and I am looking for an alternative.
>> 
>> Other suggestion:
>> Otto Block Terra Flair
>>  Comfort Company, M2
>> Vector
>>  
>> I looked at the information on the vector, it almost seems to simple to be 
>> effective.
>> 
>> Thanks for your help,
>> 
>> Glenn
> 
> 
> 
> -- 
> "Petting, scratching and cuddling a dog could be soothing to the mind and 
> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
> Koontz

[QUAD-L] Call legislature

[daanoo53]

CRT Education and Advocacy in Washington, DC July 12-14

June 20, 2016

CRT Stakeholders,
 
This is a critical year for taking the CRT message to Congress. 
 
We need to build on the significant progress we have made and push for passage 
of legislation to prevent significant payment cuts to CRT wheelchair 
accessories on December 31 (H.R. 3229 and S. 2196) and to create a separate CRT 
benefit category (H.R. 1516 and S. 1013).
 
With that in mind, CRT stakeholders are encouraged to sign up for the "new and 
combined" 2016 Assistive Technology Conference being held July 12 to July 14at 
the Hyatt Regency Crystal City in Arlington, Virginia being presented by RESNA, 
NCART, and NRRTS.
 
Attendees will benefit from a continuation of sessions covering business topics 
for the management teams of CRT providers and manufacturers plus funding and 
advocacy topics for all CRT stakeholders regarding the latest CRT Medicare and 
Medicaid trends, issues, and advocacy strategies.
 
In addition, the CRT "business" sessions are now supplemented by great 
CEU-earning seating and mobility workshops designed for the practicing Rehab 
Technology Professional. 
 
Most importantly, July 14 will be Capitol Hill Day enabling everyone to take 
the CRT message directly to Congress. Providers, manufacturers, consumers, 
clinicians, and other advocates will spend the day making in-person visits to 
Members' offices. Once you sign up, we'll make the appointments for you.
 
So come join other CRT stakeholders for unparalleled continuing education, 
networking, and advocacy!
 
You can get more details and register online at 
http://www.ncart.us/crtconference.
Regards,

Don

Donald E. Clayback
Executive Director | NCART
Office 716-839-9728 | Cell 716-913-4754
dclayb...@ncart.us |www.ncart.us
See what's happening on our social media sites! 


National Coalition for Assistive and Rehab Technology
54 Towhee Court
 East Amherst NY 14051
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Sent from my iPhone

> On Jun 8, 2016, at 3:44 PM, Bobbie Humphreys  
> wrote:
> 
> At 3:30 in the afternoon it was 55° for a high for the day on June 8th
> People are walking around in their coats!!
> Bobbie
> 
> Smile Everyday

[QUAD-L] Please call senators and representatives to support The disability immigration act

[daanoo53]

Call 1866-922-4970, it seems to be open 24 hours a day to leave a message. 
Support the Disability Integration Act! Take Action Now!

http://cqrcengage.com/cdrnys/app/take-action?engagementId=220433=C2Flc0NpcGhlcjAx0BrZynBowXhgi0n3me9xNyjpWeL425_TZlT0LM2TERfsSTpUcg-8FyrumLXGgPYSgJbhSjeCXQ1dEVA6OVOwHzrsYnz24hNTM5cyjmlVdhM=0

The Disability Integration Act is new civil rights legislation which addresses 
the institutionalization of the Disability Community. The Disability 
Integration Act establishes in Federal statute that people with disabilities 
have a civil right to live and receive services and supports in the community 
rather than being forced into institutions just to receive those services.

While the Disability Integration Act has been introduced in the Senate, we are 
currently working with Representative Cárdenes on the introduction of the 
Disability Integration Act in the House. We need more Representatives in the 
House to sign on to the Disability Integration Act as initial cosponsors so 
that it will have a strong introduction!

CONTACT YOUR REPRESENTATIVE TODAY! Ask your representative to support the 
Disability Integration Act and to reach out to Rep. Cárdenes' office to be an 
initial cosponsor!

Take Action by clicking here: 
http://cqrcengage.com/cdrnys/app/take-action?engagementId=220433=C2Flc0NpcGhlcjAxGSaKdmSQEgKaM2TO4WcLjSbNkooSOEa09cWmaz7hfBBAsIQnunVHtCkjRXAQBXz3FQiwM1OmBXbV5PRBGzkfdyxKWNmVSe9A_NQqyzdm7rE=0

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Sent from my iPhone

> On Jun 8, 2016, at 3:44 PM, Bobbie Humphreys  
> wrote:
> 
> At 3:30 in the afternoon it was 55° for a high for the day on June 8th
> People are walking around in their coats!!
> Bobbie
> 
> Smile Everyday

Re: [QUAD-L] Question for everyone! Update on Nancy

[daanoo53]

Dana Wray 62 years old, date of injury July 26, 1974, C4-5 come plate I have a 
tracheostomy that requires suctioning throughout my days and currently has been 
going through chemotherapy after colon cancer and frequent UTIs. I have been in 
ER twice this week. The first antibiotic gave me diarrhea and now they have me 
on a different one. I had to get Bloodwork and and cultures for my Elio conduit 
. There was some little spot and my long for the second time that they don't 
know what it means.

Sent from my iPhone

> On May 5, 2016, at 10:29 PM, daano...@gmail.com wrote:
> 
> 
>   
> Nancy Davis Gillen8:06am May 5 
> I'm feeling much better, but im going on 7 months in bed because of a sore. 
> I'm going crazy! Please pass on to the quad list. Thanks for keeping me in 
> your thoughts.
> 
> View Conversation on Facebook
> This message was sent to daanoo2...@yahoo.com. If you don't want to receive 
> these emails from Facebook in the future, please unsubscribe.
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025
> Sent from my iPhone
> 
>> On Apr 30, 2016, at 4:33 PM, Lori Michaelson  wrote:
>> 
>> Greetings my quad list friends and friends [since 1995 for me],
>> 
>> Sometimes after so much time goes by and either we are kept busy doing happy 
>> things or are stuck in bed with a wound... we often lose track of each other 
>> and exactly who is who and what is about that person.
>> 
>> I know we have lost one of the most wonderful contributors here [Dave 
>> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told us 
>> of his wishes. This was back in 2009.
>> 
>> Having said that, here is what I would like from each one of you to refresh 
>> my old lady mind.  I feel like I have aged a lifetime over the last 4 years 
>> after losing my husband and unable to live with family any longer.
>> 
>> * Name 
>> 
>> * Age
>> 
>> * Date of injury
>> 
>> * Town and state where you are from (unless you would just like to state the 
>> state you are living in).
>> 
>> * Are you a quad or a para? If you are a quad ... what level of injury are 
>> you? 
>> 
>> * Complete or incomplete injury? 
>> 
>> And any other information you would like to offer. Thanks a bunch in advance!
>> 
>> Best to you all!
>> 
>> Lori Michaelson - age 51. How did that happen?!?!!!
>> C4/5 complete quad, 36 1/2 years post. Unable to drive.
>> 
>> I can feed myself if prepared and placed in front of me. Food needs to be 
>> cut up if necessary.
>> 
>> Grew up in a small town in New York State and lived there for 36 years but 
>> after meeting my husband he got transferred a couple times which first took 
>> us to Virginia and then to Tucson Arizona.
>> I was devastated with his unexpected passing at only 63 years old on June 
>> 11, 2012 and over 90% of me went with him.
>> Went to live with sister and brother-in-law in northeastern Pennsylvania for 
>> 3 years but, despite hiring morning and evening caregivers ... my sister and 
>> brother-in-law wanted me to move on for a myriad of reasons but primarily 
>> because my sister began having venous stasis and my brother-in-law wanted 
>> his house back without people coming and going. 
>> 
>> Needless to say I am very disappointed in them because they very well could 
>> have taken me on longer. I had I known it was only going to be for 3 years 
>> (even though was an emergency situation as I had nowhere to go) I wish I had 
>> found a live-in caregiver in Tucson where my husband and I have been living 
>> for 11 years.
>> 
>> Landed back in Tucson Arizona with a live-in caregiver in January 2016.
>> 
>> My story is a long one but I will stop there.
>> 
>> -- 
>> "Petting, scratching and cuddling a dog could be soothing to the mind and 
>> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
>> Koontz

Re: [QUAD-L] Question for everyone! Update on Nancy

[daanoo53]

Nancy Davis Gillen  8:06am May 5 
I'm feeling much better, but im going on 7 months in bed because of a sore. I'm 
going crazy! Please pass on to the quad list. Thanks for keeping me in your 
thoughts.

View Conversation on Facebook
This message was sent to daanoo2...@yahoo.com. If you don't want to receive 
these emails from Facebook in the future, please unsubscribe.
Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025
Sent from my iPhone

> On Apr 30, 2016, at 4:33 PM, Lori Michaelson  wrote:
> 
> Greetings my quad list friends and friends [since 1995 for me],
> 
> Sometimes after so much time goes by and either we are kept busy doing happy 
> things or are stuck in bed with a wound... we often lose track of each other 
> and exactly who is who and what is about that person.
> 
> I know we have lost one of the most wonderful contributors here [Dave Kelmer] 
> and I believe that Bill Jenkins (in Florida) was the one who told us of his 
> wishes. This was back in 2009.
> 
> Having said that, here is what I would like from each one of you to refresh 
> my old lady mind.  I feel like I have aged a lifetime over the last 4 years 
> after losing my husband and unable to live with family any longer.
> 
> * Name 
> 
> * Age
> 
> * Date of injury
> 
> * Town and state where you are from (unless you would just like to state the 
> state you are living in).
> 
> * Are you a quad or a para? If you are a quad ... what level of injury are 
> you? 
> 
> * Complete or incomplete injury? 
> 
> And any other information you would like to offer. Thanks a bunch in advance!
> 
> Best to you all!
> 
> Lori Michaelson - age 51. How did that happen?!?!!!
> C4/5 complete quad, 36 1/2 years post. Unable to drive.
> 
> I can feed myself if prepared and placed in front of me. Food needs to be cut 
> up if necessary.
> 
> Grew up in a small town in New York State and lived there for 36 years but 
> after meeting my husband he got transferred a couple times which first took 
> us to Virginia and then to Tucson Arizona.
> I was devastated with his unexpected passing at only 63 years old on June 11, 
> 2012 and over 90% of me went with him.
> Went to live with sister and brother-in-law in northeastern Pennsylvania for 
> 3 years but, despite hiring morning and evening caregivers ... my sister and 
> brother-in-law wanted me to move on for a myriad of reasons but primarily 
> because my sister began having venous stasis and my brother-in-law wanted his 
> house back without people coming and going. 
> 
> Needless to say I am very disappointed in them because they very well could 
> have taken me on longer. I had I known it was only going to be for 3 years 
> (even though was an emergency situation as I had nowhere to go) I wish I had 
> found a live-in caregiver in Tucson where my husband and I have been living 
> for 11 years.
> 
> Landed back in Tucson Arizona with a live-in caregiver in January 2016.
> 
> My story is a long one but I will stop there.
> 
> -- 
> "Petting, scratching and cuddling a dog could be soothing to the mind and 
> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
> Koontz

Re: [QUAD-L] 43 years today

[daanoo53]

Graduations Bobbie! We are so close in years paralyzed. It will be 42 years for 
me on July 26. Sometimes it seems like a century. LOL I know you have had many 
struggles with skin breakdown and I I hope they are OK. Thank you for 
everything you share about your life.
Dana 41 years, C4-5

Sent from my iPhone

> On Apr 17, 2016, at 2:09 PM, Gmail  wrote:
> 
> 
> Today marks 43 years since I had my accident.
> Wow, dose time fly.
> I've been so lucky for family and friends support and am greatfull for the 
> opportunity to experience the many events in the past 43 years that I almost 
> didn't survive to experience.
> I forgive the person who helped me to learn how to ride the motorcycle and 
> I'll never forget the friends that stood by my side through out the years.
> Bobbie 
> Smile Everyday

Re: [QUAD-L] UTI

[daanoo53]

I have a lot of UTIs and I have been told by infectious disease doctors at KU 
medical center that these drugs are usually not effective because we become we 
become immune to them. I have been on several daily antibiotics. I have been in 
the hospital 4 times in the hospital since November with UTIs.

Hi Dr. Ron and Sharon, I have not had the pleasure of knowing you on the list, 
it is nice to meet you.

I am not aware with your level of disability and years post.
because I have not been reading it a lot lately. I have been in the hospital 
and out so many times. Oral medications do not work on me anymore for UTIs. I 
have to go in the hospital for at least three day, Before the culture grows and 
they put me on a IV and then send me home with a midline or pic line. I then 
had home health to change the dressings and do bloodwork.
I do take a probiotic called Proural that a urologist told me to take more than 
a year ago. I order it online. I don't know if it helps, but he advised it 
after I've had 3 lithotripsy's for kidney stones. I had a fourth one in 
November 2015.
Dana C4-5 quadriplegic, 41 years post last July 26.
I have a tracheostomy button, ilio conduit it 86



Sent from my iPhone

> On Mar 25, 2016, at 5:46 PM, Dr.Ron and Sharion Austin 
>  wrote:
> 
> My wife SCI C5 is back in the hospital with AD very high BP and a UTI.
> Her BP has been as high as 200/100 and as low as 60/30 in the same day.
> Seems like  a UTI is a common thread when things get acute.  Here is the 
> question- is BP problems a common symptom with SCI?  Is the UTI a major cause 
> of AD?
> Has anyone tried a low dose of antibiotic/daily as a preventive med?  What 
> about a concentrated cranberry tablet?
> Thanks for any help
> 
> 
> -- 
> Living in God's Grace
> Ron

Re: [QUAD-L] Today is my 10 year aniversary of my injury

[daanoo53]

That was so well said Larry. Thank you I told agree with everything you say. 
Being ona ventilator is so difficult. I was on one for a few days after my 
colon cancer surgery in November 2015. 

Has anyone else experienced colon cancer and on chemotherapy. I have been on an 
oral medication but I've been in the hospital three times in the last month and 
a half with bleeding from UTIs.

Sent from my iPhone

> On Mar 8, 2016, at 10:10 PM, lwillis...@yahoo.com wrote:
> 
> To all of you guys on a vent -- God bless you. Your strength of spirit blows 
> me away and humbles me beyond words. I don't think I could do it. Love and 
> blessings to all of you. You are amazing.
> 
> Sent from my iPad
> 
> Begin forwarded message:
> 
>> Resent-From: quad-list@eskimo.com
>> From: Eric Olson 
>> Date: March 8, 2016 at 10:30:58 PM EST
>> To: quad-list@eskimo.com
>> Subject: Re: [QUAD-L] Today is my 10 year aniversary of my injury
>> 
>> Sorry and congratulations.  Seriously, I'm a C3 on a vent myself and many in 
>> our situation would have already succumbed to various maladies by now 
>> 
>>> On 3/5/2016 4:47 PM, Danny Espinoza wrote:
>>> 10 years ago today I became a c2 quadriplegic.
>>> -Danny
>> 
>> 
>> This email has been sent from a virus-free computer protected by Avast. 
>> www.avast.com

Re: [QUAD-L] Today is my 10 year aniversary of my injury

[daanoo53]

Congratulations on your 10 year anniversary. Hope you did something fun today. 
Dana 41 years post 

Sent from my iPhone

> On Mar 5, 2016, at 4:47 PM, Danny Espinoza  wrote:
> 
> 10 years ago today I became a c2 quadriplegic.
> -Danny

Re: [QUAD-L] please contact your representative to cosponsor HR 3229

[daanoo53]

September 28, 2015

CRT Stakeholders and Friends,

We have a limited window of time to resolve this major access threat and the 
solution depends on getting the support of Congress and the President. Thanks 
to those who are engaged in outreach activities already. Here are the two 
actions we need CRT stakeholders and friends to take.
 
ACTION 1:  Get your Representative to Co-Sponsor HR-3229
 
Visit http://cqrcengage.com/access2crt/HR3229 to view the list of current 
co-sponsors and see if your Representative has signed on yet. You can also 
access helpful documents on this issue like the Position Paper and the House of 
Representatives and Senate letters that were sent to CMS.
 
We currently have 15 Representatives signed on. If your Representative is not 
on the list at the website, call their office using the link provided. Just 
supply your home address and your Representative and contact information will 
be identified. There are simple talking points that you can use to make your 
request. While a phone call is most effective, you can also send an email using 
the email link. A templated message is provided to use as is or you can modify.

Remember Congress is a busy place. Continue to communicate until you get a yes 
or no.  We have seen proof that positive results will come from "polite 
persistence" with your Congressional offices.

ACTION 2:  Sign the National Petition to President Obama

A National Petition has been created at a "we the people" website created by 
President Obama to enable the public to bring critical matters to his 
attention. The petition calls for these cuts to be stopped. If we get 100,000 
signatures the President is required to formally respond to the request. We 
currently stand at approximately 5,000 signers.

You can access the petition at www.ProtectMyIndependence.com/LearnMore. This is 
one more vehicle we can use to elevate the awareness and urgency on this 
accessory issue. As noted above, be sure you are contacting your Representative 
regarding HR-3229 in addition to signing the petition.

Please share this information with other people and organizations who can be 
helpful. Thanks for taking these actions to help stop this major access threat!
Regards,

Don

Donald E. Clayback
Executive Director | NCART
Office 716-839-9728 | Cell 716-913-4754
dclayb...@ncart.us |www.ncart.us

P.S. If you know of other CRT stakeholders who would like to receive these 
types of updates please have them sign up at the NCART website. 


See what's happening on our social media sites! 






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Sent from my iPhone

> On Sep 28, 2015, at 7:22 AM, wheelch...@aol.com wrote:
> 
> Amen.
>  
> In a message dated 9/28/2015 6:23:35 A.M. Central Daylight Time, 
> lwillis82...@gmail.com writes:
> You guys remember the original Saturday Night Live cast? Gilda Radner played 
> a ditzy news reporter who always screwed things up. Her name was Roseann 
> Roseanna-danna. No matter how bad she screwed things up, she always ended 
> with this line:  "Just goes to show you -- its always somethin'!" Gilda 
> died of cancer at a young age. Her by-line though, is so true, especially for 
> us as we age. She is probably on YouTube. Think I'll go seecause it 
> really is aalways somethin'!
> 
> Larry Willis
> Retired and proud of it
> 
> 
>  

Re: [QUAD-L] pressure sore seating info

[daanoo53]

 Please email your Representives using he website information listed below. 
Call Their office in 1-2 days to prevent 20-40 cuts wheelchair and and W/C 
accessories for complex disabilities.


 

September 16, 2015

CRT Stakeholders and Friends,

The biggest threat to preserving access to CRT today is summed up in this 
question: Can we stop the devastating Medicare cuts to CRT wheelchair 
accessories scheduled for January 1, 2016?
 
The answer to that is, "it depends". It depends on the short-term actions of 
you and thousands of other CRT stakeholders across the country. If we get 
everyone engaged as described below the answer is yes.  If we don't, the answer 
is no.
 
As reported, without specific Congressional intervention Medicare payments for 
accessories used with individually configured Complex Rehab wheelchairs will be 
INAPPROPRIATELY cut by 20% to over 40% starting January 1. This is a result of 
CMS violating the intent of existing Congressional legislation and 
inappropriately using Medicare Competitive Bid Program pricing for "standard" 
wheelchair accessories to cut payments for "complex rehab" wheelchair 
accessories.
 
If Congressional legislation is not passed to prevent this, there will be 
devastating consequences to people with disabilities who rely on Complex Rehab 
wheelchairs to meet their medical needs and maximize their function and 
independence. It will not only negatively impact Medicare beneficiaries, but 
will extend to children and adults with disabilities covered under Medicaid and 
other health insurance programs as well.
 
The positive news is that legislation to stop these cuts has been introduced in 
the House of Representatives by Representative Lee Zeldin (R-NY). The 
legislation is bill number H.R. 3229. Our collective task is to get as many 
co-sponsors on this bill as we can over the next several weeks and get Congress 
to pass it as soon as possible.
 
Here is where your immediate help and that of others is needed.  The weeks 
ahead will be a very busy time for Congress. We need all CRT stakeholders and 
friends to contact their Representative today and be persistent in their 
outreach by following these simple steps:
 
1.) Visit the web page dedicated to this issue to access helpful background 
documents you can use in your outreach as needed. You can also view the list of 
current co-sponsors to verify your Representative has NOT signed on yet (this 
list will be updated daily as we get new co-sponsors).
2.) Send an Email: If your Representative has not signed on, use the link 
provided to send an email.  Just supply your home address and your 
Representative will be identified. A template message is provided to use as is 
or you can modify.
3.) Make a Call: Wait 24 to 48 hours after sending your email and then call 
your Representative's office using the guidelines provided on the web page.

Special Note: A copy of the April 20th House of Representatives' letter to CMS 
is available on the above web page. Check to see if your Representative was one 
of the 101 signers. These members should be particularly willing to co-sponsor 
H.R. 3229 since it was necessitated due to CMS' refusal to honor the 
Congressional request in the letter. Mention this in your outreach.
 
After starting your advocacy by sending the email, your follow up to get a 
"yes" answer is critical. Additional emails and phone calls may be required. 
Remember Congress is a busy place. But we have seen proof that positive results 
DO come from polite persistence with your Congressional offices.
 
Please share this Alert with other CRT stakeholder groups and individuals. 
We'll keep you updated on the progress and please let us know if you require 
any assistance.

Thanks for making this a priority and doing all we can to stop these cuts and 
prevent major access issues for the people with disabilities who depend on CRT. 
Regards,

Don

Donald E. Clayback
Executive Director | NCART
Office 716-839-9728 | Cell 716-913-4754
dclayb...@ncart.us | www.ncart.us

P.S. If you know of other CRT stakeholders who would like to receive these 
types of updates please have them register using the link below or have them 
sign up at the NCART website. 


 Register for CRT Updates 
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National Coalition for Assistive and Rehab Technology | 54 Towhee Court | East 
Amherst | NY | 14051
Sent from my iPhone

> On Sep 15, 2015, at 2:12 PM, Dave Krehbiel  wrote:
> 
> I got it
>  
> From: gah17...@aol.com [mailto:gah17...@aol.com] 
> Sent: Tuesday, September 15, 2015 2:09 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] pressure sore seating info
>  
> Good morning,
> 
> I’ve seen almost everyone on the quad site talk about pressure 

Fwd: [QUAD-L] problems with colostomy wafer

[daanoo53]

Sent from my iPhone

Begin forwarded message:

 From: daano...@gmail.com
 Date: June 12, 2015 at 10:17:27 PM CDT
 To: Quadius quad...@gmail.com, Quad List To Post quad_l...@eskimo.com
 Subject: Re: [QUAD-L] problems with colostomy wafer
 
 I don't know if this will help but I use 2 inch wide peach colored tape that 
 I get from Edgepark park. 
 Hy-tape latex free. I also use paste on my ostomy. You might ask the company 
 about trying a different brand of wafers. Edgepark will allow you try several 
 wafers and then get the order for the one you like. Sorry you're going 
 through this. The wafer must not be adhering to the skin properly. I wish I 
 knew more but I don't have a colostomy, but I have a oleo conduit.
 Dana
  
 Catalog Number #120 BLF and the phone number is 800-248-0101
 
 Sent from my iPhone
 
 On Jun 12, 2015, at 4:33 PM, Quadius quad...@gmail.com wrote:
 
 I hope you guys can help me out. I have had a urostomy for more than three 
 years now and have no problems with that wafer leaking or urine getting 
 underneath the wafer. I am, however, having nothing but difficulties with 
 the colostomy wafer. First thing to note is my urostomy wafer as a small 
 room on the inside with quite a bit left over to it here to the skin. The 
 colostomy one, on the other hand, has a lot bigger ring in the middle of it. 
 I believe it's 57 mm or 2 1/4 inch.
 
 Have a small indentation at one corner of my stoma and therefore they say I 
 need stoma paste. We've never had to use this on my urostomy, so were not 
 sure exactly how much to apply. The last two days we have had the colostomy 
 wafer leak and it appears like the fecal matter is immediately seeping under 
 the wafer and compromising the integrity of my skin. Not to mention it 
 stinks to high heaven.
 
 Any advice on how you guys do it or suggestions would be welcome. As far as 
 my urostomy, we basically use two or three skin preps, but they told us we 
 really didn't need to use them for the colostomy. Last night we decided to 
 go ahead and use skin prep on the colostomy as well as a little bit of stoma 
 paste where the intention is on my stoma.
 
 I want to thank you in advance for the help. Normally I'm able to call on a 
 nurse friend of mine who lives down the road to help me out, but she's out 
 of town on vacation right now.
 Quadius

Re: [QUAD-L] 47th Anniversary - 6/7/68 - Did anyone see my post?

[daanoo53]

Hi Nan,
So sorry to know that you have been having all these problems. I have had 
similar issues so I know how it feelsI have also gone to the wound so many 
times. I may write so close to the bone I had osteomyelitis, requiring surgery 
last year that has never completely healed. I have to wear a hard splint all 
the time and have lost range of motion. we older quads can have many 
complications. It is wonderful for us to be able to share our stories and learn 
from each other.
I am so grateful for everyone on the list, Especially you Nan. Thank you so 
much for reposting as I did not see this email. Love from a fellow member of 
our list. I am happy to be alive even with all the problems we have.
Dana (C4-5 quad 6/27/74 Prairie Village Kansas)
I am so glad that you have made it to 47 years post quadriplegic. Nan, this is 
a great accomplishment
Sent from my iPhone

 On Jun 12, 2015, at 7:16 PM, Nan nlg52...@yahoo.com wrote:
 
 I posted this on 6/7, but never saw it post to my email.  Just wondering if 
 folks saw it...
 
 On Jun 7, 2015, at 9:02 PM, Nan nlg52...@yahoo.com wrote:
 
 Well, another year down.  The last 6 months have been fraught with medical 
 problems ... 3+ weeks in ICU in December. Spiraled downhill after putting my 
 dog down.  Didn't eat or drink - ended up septic ... vent, pic line, feeding 
 tube, pull the plug discussions - the whole 9 yards.  Don't remember much 
 which I am very thankful for.  Another week in the hospital in March - my 
 potassium skyrocketed and they called me at 10PM to tell me to go to ED.   
 Got that under control.  Nurse smashed my knee while in during March, nice 
 sore there now.  My legs got so thin from being in bed, so now I have 3 sore 
 on my left leg, one is down to the bone. The Wound Care Clinic is beginning 
 to feel like home!  Feeling much better now.  Hopefully things will start to 
 look up now.
 
 Getting to be an old quad sucks ... but, I still think it's better than the 
 alternative!
 
 Hope everyone is well.
 
 Nan
 
 

Re: [QUAD-L] Hot tongue! Help!

[daanoo53]

Dr. Oz said to use sugar I'm not sure how much but I watched it on a show last 
week. You can probably look that up on his website.
Dana

Sent from my iPhone

 On Apr 27, 2015, at 9:15 PM, Larry Willis lwillis82...@gmail.com wrote:
 
 A very good article. Thanks.Larry
 
 Larry Willis
 Retired and proud of it
 
 
 Begin forwarded message:
 
 From: Lori Taylor llt1...@sbcglobal.net
 Date: April 27, 2015 at 9:36:08 PM EDT
 To: Danny Hearn ddh...@sbcglobal.net, Larry Willis 
 lwillis82...@gmail.com, quad-list@eskimo.com quad-list@eskimo.com
 Subject: Re: [QUAD-L] Hot tongue! Help!
 Reply-To: Lori Taylor llt1...@sbcglobal.net
 
 Home Remedies for Burning Tongue: Causes, Treatment, Symptoms, Relief
  
  
  
  
  
  
 Home Remedies for Burning Tongue: Causes, Treatment, Symptoms, Relief
 Burning tongue is persistent pain and burning sensations in the mouth, that 
 not only affects the tongue but other parts of the mouth as well. Read more
 View on www.home-remedies-for-you.com
 Preview by Yahoo
  
 
 
 
 
 On Monday, April 27, 2015 6:55 PM, Danny Hearn ddh...@sbcglobal.net wrote:
 
 
 I'm not sure what the cause is Larry but you may want to try some 
 cloriseptic not sure if i spelled it correctly but they sell it at walgreens 
 or most stores and it is pretty good for sore throat, lips gums etc., It 
 kind of numbs and helps sore area to feel better. good luck, Dan**
 
 
 
 On Monday, April 27, 2015 6:49 PM, Larry Willis lwillis82...@gmail.com 
 wrote:
 
 
 Well, peeps, another ailment. My lips/mouth/tongue have been sore for a 
 week. They feel scalded. Anything I put in my mouth except for warm water 
 burns like hot pepper. Even 7-up or cold water. Toothpaste is a killer. My 
 tongue and mouth look normal. Also, I barely taste anything. Tried to eat a 
 piece of cheese pizza a few minutes ago and got nothing but burn. Any of you 
 experienced this or heard of it? My first instinct says medicine reaction. 
 I've heard of getting a bit of hot tongue, but I don't believe this is it! 
 LOL. Larry
 
 
 
 

[QUAD-L] Subscribe

[daanoo53]

Sent from my iPhone

Re: [QUAD-L] Has anybody read When God Weeps?

[daanoo53]

I am not familiar with when God I would really like to read that. My toes are 
getting sent to Gmail so I have not been getting them. I signed up aolI don't 
know why they're going to Gmail.
Please forgive me for not responding to any emails.
Thank you,
Dana 
 C 4-5 quadriplegia, Prairie Village Kansas  40 years

Sent from my iPhone

 On Nov 19, 2014, at 12:52 PM, Larry Willis lwillis82...@gmail.com wrote:
 
 No, I'm the Larry in Campbellsville! Sorry I did not reply. I must have 
 overlooked it.
 
 Sent from my iPad
 
 Begin forwarded message:
 
 From: Gail Holmes fgdhol...@cox.net
 Date: November 19, 2014 at 1:09:32 PM EST
 To: Larry Willis lwillis82...@gmail.com
 Subject: Re: [QUAD-L] Has anybody read When God Weeps?
 
 Are you the Larry that lives in Pineville or thereabouts? 
 
 You spoke with Glenn, a quad in B.R.?  
 
 He is not on Quad List but I am and I emailed you once before with no reply.
 
 Did you get my email message?
 
 Gail Holmes
 
 fgdhol...@cox.net
 
 Ph (225)936-7544
 
 Sent from my iPhone
 
 On Nov 18, 2014, at 7:36 PM, Larry Willis lwillis82...@gmail.com wrote:
 
 I apologize for the following rant.
 
 
 I have read Joni's book. It is a good book, but I still have a hard time 
 seeing God's will in all this. And if it is God's will, I have a hard time 
 with Him. There is an old saying that the prettiest flowers grow on the 
 manure pile. This means great things can come from the worst circumstances. 
 True, no doubt. And some good things have come from my condition. However, 
 as I grow old, 62, I find myself becoming bitter and resentful. I think 
 about my life pre-injury, and I get overwhelmed with anger and despair. I 
 was only 19, cheated out of the best years of life. I know I am preaching 
 to the choir; many of you were injured even earlier. I have reached the 
 point, though, that I am tired of it all. I am tired of being a burden, of 
 depending on others, of being told I am selfish when I ask for help. I am 
 tired of hurting all the time. I am tired of pissing my pants and being 
 afraid to go anywhere because of it. I am tired of being useless. I am 
 tired of being a cripple and I am tired of life.
 
 Sent from my iPad
 
 Begin forwarded message:
 
 Resent-From: quad-list@eskimo.com
 From: RONALD L PRACHT r.pra...@sbcglobal.net
 Date: November 18, 2014 at 7:50:51 PM EST
 To: quad-list@eskimo.com quad-list@eskimo.com
 Subject: [QUAD-L] Has anybody read When God Weeps?
 Reply-To: RONALD L PRACHT r.pra...@sbcglobal.net
 
 I have been told many times the reason Im injured is because of the 
 soveirenty of god. The book by Joni Ericson Tada, When god Weeps explains 
 whats this means. Anybody read it?
 
 Ron 

Re: [QUAD-L] My Birthday is today!

[daanoo53]

Hi Bobbie,
The Quad-list is coming to Gmail and I haven't been seeing the post. I don't 
think I told you happy birthday. I want to wish you a happy birthday and many 
more I hope everything is well from you and your sores or healed please let me 
know how you are. I feel out of touch with everybody since I have not been 
Reading the emails  I don't go to Gmail much.
Dana


Sent from my iPhonei

 On Nov 15, 2014, at 12:37 PM, linda...@comcast.net wrote:
 
 Happy Birthday Bobbie!!!  Have a great time out celebrating with your 
 friends! God bless you with many more.
 Lindaf
 
 From: Gmail bobbiehumphre...@gmail.com
 To: quad-list quad-list@eskimo.com
 Sent: Saturday, November 15, 2014 12:30:37 PM
 Subject: [QUAD-L] My Birthday is today!
 
 Today I turned 59! Holly crap ... when did THAT happen!
 Tonight I'm going out to dinner with 5 of my closest friends, we're going to 
 have a blast!!!
 Bobbie 
 
 Smile Everyday
 

Re: [QUAD-L] Reclining?

[daanoo53]

I do the same thing sometimes it catches up with you. I am sure we all more. I 
just don't understand why Roho cannot make it gauge to let you know when you're 
losing air. They have been in business long enough and charge enough for their 
cushions to have gauges.
Dana

Sent from my iPhone

 On Nov 1, 2014, at 8:00 PM, greg g...@eskimo.com wrote:
 
 How often do you recline your chair?
 I try to do it at leased every hour. I also am moving around a bit, bending 
 forward a bit to read, etc.
 I doubt when I lean forward or sideways a bit, it is enough to move the 
 pressure on my butt.
 After my bad pressure sore, I try to recline more often, but when I get into 
 a good book, or am playing cribbage online on my Kindle, I can forget. I 
 often have gone many hours without reclining.
 Greg
 

[QUAD-L] PRAFO® Orthosis Ankle Foot Orthosis | Anatomical Concepts Inc. Orthotic Manufacturer, original designers of the PRAFO

[daanoo53]

I use these boots to try to keep my feet straight I get them from ortodist.
Dana
http://www.anatomicalconceptsinc.com/?q=/ankle-foot-orthoses/prafo


Sent from my iPhone

Re: [QUAD-L] Foot drop

[daanoo53]

www.anatomicalconceptsinc
Sent from my iPhone

 On Nov 4, 2014, at 8:56 PM, wheelch...@aol.com wrote:
 
 Bunny Shoes, Ron
 Best Wishes
  
 In a message dated 11/4/2014 8:49:45 P.M. Central Standard Time, 
 r.pra...@sbcglobal.net writes:
 I was given special boots to wear at night that were plastic with wool inside 
 that you Velcro strapped on. You can also do excercises everydayholding 
 back the end of the foot to a 90 degree angle. Im sure other people on here 
 have better things to suggest , I just give you what I know without the fancy 
 words.
 
 Ron
 
 
 On Tuesday, November 4, 2014 8:45 PM, Gmail bobbiehumphre...@gmail.com 
 wrote:
 
 
 What do any of you do or wear for foot drop? My podiatrist said that to go to 
 Kessler to get something for my foot drop. I have had special foods before 
 but I believe I need something stronger with more support and cushioning.
 I have an appointment for the Tuesday before Thanksgiving.  Bobbie 
 
 Smile Everyday
 

Re: [QUAD-L] Reclining?

[daanoo53]

What kind of Roho do you use in the bed Bobbie?
Dana
Sent from my iPhone

 On Nov 2, 2014, at 1:40 PM, Gmail bobbiehumphre...@gmail.com wrote:
 
 I do use a roho in my chair and bed. I/we check it regularly. 
 Bobbie 
 
 Smile Everyday
 
 On Nov 2, 2014, at 1:06 PM, Nan nlg52...@yahoo.com wrote:
 
 Bobbie,
 
 Do you use a Roho?  I do and I've found that they lose air after a while.  
 This causes me to get sores - I've been sitting for so long my skin is 
 incredibly fragile.  What I've learned is that when this happens, I need 
 another pressure mapping.  Sometimes I have to fight to get one, but once I 
 get it I can heal sores while in my chair.  Sometimes I have to recline for 
 a week or so - watch TV, listen to music ... but once a sore starts to heal, 
 I can start living again.
 Have you had a pressure mapping recently?
 
 Nan

[QUAD-L] Subscribe

[daanoo53]

Sent from my iPhone

Re: [QUAD-L] Anniversary and good Samaritans

[daanoo53]

Hi Joan,
Happy 24th anniversary. I always love hearing from you are so positive and 
warmhearted. I'm sorry what happened to you with your wheelchair boy you are 
brave. You had a guardian angel watching out for you thank God.
Love your fellow comrade on wheels

Sent from my iPhone

 On Oct 22, 2014, at 7:58 PM, Joan Anglin poaj...@sbcglobal.net wrote:
 
 It is an ongoing problem, no one can find the problem solution. What made it 
 most difficult was that I had forgotten to tighten up my control collar so 
 that I could easily turn the chair back on. And in the sunshine I could not 
 see where it was flashing, my bad. Joan
  
 From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
 Sent: Wednesday, October 22, 2014 4:57 PM
 To: poaj...@sbcglobal.net; quad-list@eskimo.com
 Subject: Re: [QUAD-L] Anniversary and good Samaritans
  
 I truly hope you got your chair fixed.  Was it a circuit breaker... or a bad 
 control module?
 Best Wishes
  
 In a message dated 10/22/2014 4:06:50 P.M. Central Daylight Time, 
 poaj...@sbcglobal.net writes:
 The 15th marked 24 years with SCI. It just so happened that we were out and 
 about that day and we are having a beautiful Indian summer with highs in the 
 sixties and no severe freeze so far.
 We finished shopping at Sam’s Club and I decided to just roll over to the 
 next place we were going which was only seven or eight blocks away. My 
 wheelchair has been behaving itself quite well so I felt confident I could 
 beat the others to the next store. I took off at a good clip (for an omega 
 track) and realized when I got there that the store had moved another eight 
 or 10 blocks away a couple of months ago. No problem, except that the 
 wheelchair decided to quit right as I was crossing the street. I was able to 
 flag down a pedestrian who restarted my chair. A little more cautiously I 
 kept on going, stopped again, a couple of people came over to ask if I needed 
 help-of course I did. Now I am being very cautious as I am realizing it is 
 quitting when I try to go faster. I’ve already given up on the challenge of 
 beating everyone else to the next store, just want to get there without 
 breaking down in the middle of the street again. I finally reach the parking 
 lot of the next shopping mall, which is quite empty, and get out to the 
 middle of the lot. Stopped again, this time there are no pedestrians, so I 
 resign myself to waiting until somebody misses me and comes to find me, 
 because they are in Walmart and the cell phones don’t work to reach them. 
 Suddenly a car veers over and a young man gets out. As he is walking over 
 three more cars come over and everyone gets out. I guess I was noticed, 
 because they all want to know if I’m OK and do I need help. The young man 
 gets to me first, starts my chair off, and I thank everyone, and leave for 
 the store. Then I noticed that the young man’s car is following me. He 
 escorts me to Wal-Mart, and then smiles and says have a great day and drives 
 off.
 Moral of the story, move out west to find plenty of good Samaritans. Have a 
 great day everyone, I sure did. Joan