Re: [QUAD-L] giving up

2012-09-15 Thread Bobbie Humphreys
Randal,
 I'm very excited for you, that's terrific! Bobbie


Sent from my iPad

On Sep 14, 2012, at 7:37 PM, Randal Rodgers  wrote:

> I just wrote a new book called the Ministry of Suffering. It will be an 
> encouragement to anyone. I am a C67 quad for 17 years. The book can be read 
> at http://www.imaquad.mysite.com/ 
> 
> From: Toby Ausbun 
> To: "quad-list@eskimo.com"  
> Cc: "daa...@aol.com" ; "wheelch...@aol.com" 
> ; "c1c2...@gmail.com" ; 
> "quad-list@eskimo.com"  
> Sent: Wednesday, September 12, 2012 6:23 AM
> Subject: Re: [QUAD-L] giving up
> 
> How often does anybody feel like just giving up on life because I know it's 
> hard everyday being a quad isn't easy but it gets even older everyday !  
> Living as a quad is a day by day life but it gets so old and feel like a 90 
> year old but only am 47 have been a quad for 21yrs and have had more problems 
> than u can wag a stick at . How does everyone stay positive ? Was in a car 
> wreak in 91 when I was 25 and it's been a long and tiering life ! Any 
> suggestions anyone ?
> 
> Sent from my iPad
> 
> On Sep 11, 2012, at 12:50 PM, Bobbie Humphreys  wrote:
> 
>> Carson, Welcome back! Bobbie 39 years post … Parsippany New Jersey 25 miles 
>> West of NYC
>>  
>> 
>> Sent from my iPad
>> 
>> On Sep 11, 2012, at 4:18 AM, daa...@aol.com wrote:
>> 
>>> Glad you're back. Carson.
>>> Dana C 4-5, 38 years post,
>>> Prairie village Kansas , Kansas City area
>>>  
>>> In a message dated 9/10/2012 8:59:23 P.M. Central Daylight Time, 
>>> wheelch...@aol.com writes:
>>> Hiya Kit!  Welcome Back.
>>> Best Wishes
>>>  
>>> In a message dated 9/10/2012 2:28:28 P.M. Central Daylight Time, 
>>> c1c2...@gmail.com writes:
>>> I have been on the list before, thought I should come back. I am high quad 
>>> for 15 years. I live in arizona.
>>> 
>>> Carson
> 
> 


Re: [QUAD-L] giving up

2012-09-15 Thread Quadius
I think a lot of us get this feeling every now and then Toby. If it
persists and your caregiver has about had it, as you indicated in your
first e-mail, you might want to see if there's any way you can see someone
to help you psychologically get through this. Perhaps the avenue which
wheelchair suggested would be one approach.

You need to be proactive though. I myself have began to feel this way over
the last week and I am going to be making an appointment to see someone if
I don't start feeling better by Monday.

I am a C2-3 incomplete quadriplegic 17 years post, but I have just about
the same return as you. Basically C4 and I am able to spend extended
periods of time alone at home so that my caregivers can do other things
besides take care of me. If you would like to ask questions, I would be
willing to talk to you about how I do it. I really don't want to put it on
the web for everyone to read, for purposes of security.

Take care of yourself and keep what wheelchair said.
Quadius

On Wed, Sep 12, 2012 at 7:23 AM, Toby Ausbun  wrote:

> How often does anybody feel like just giving up on life because I know
> it's hard everyday being a quad isn't easy but it gets even older everyday
> !  Living as a quad is a day by day life but it gets so old and feel
> like a 90 year old but only am 47 have been a quad for 21yrs and have had
> more problems than u can wag a stick at . How does everyone stay positive ?
> Was in a car wreak in 91 when I was 25 and it's been a long and tiering
> life ! Any suggestions anyone ?
>
> Sent from my iPad
>
> On Sep 11, 2012, at 12:50 PM, Bobbie Humphreys  wrote:
>
> Carson, Welcome back! Bobbie 39 years post … Parsippany New Jersey 25
> miles West of NYC
>
>
> Sent from my iPad
>
> On Sep 11, 2012, at 4:18 AM, daa...@aol.com wrote:
>
>  Glad you're back. Carson.
> Dana C 4-5, 38 years post,
> Prairie village Kansas , Kansas City area
>
>  In a message dated 9/10/2012 8:59:23 P.M. Central Daylight Time,
> wheelch...@aol.com writes:
>
>  Hiya Kit!  Welcome Back.
> Best Wishes
>
>  In a message dated 9/10/2012 2:28:28 P.M. Central Daylight Time,
> c1c2...@gmail.com writes:
>
> I have been on the list before, thought I should come back. I am high quad
> for 15 years. I live in arizona.
>
> Carson
>
>


Re: [QUAD-L] giving up

2012-09-14 Thread Randal Rodgers
I just wrote a new book called the Ministry of Suffering. It will be an 
encouragement to anyone. I am a C67 quad for 17 years. The book can be read at 
http://www.imaquad.mysite.com/ 




From: Toby Ausbun 
To: "quad-list@eskimo.com"  
Cc: "daa...@aol.com" ; "wheelch...@aol.com" 
; "c1c2...@gmail.com" ; 
"quad-list@eskimo.com"  
Sent: Wednesday, September 12, 2012 6:23 AM
Subject: Re: [QUAD-L] giving up


How often does anybody feel like just giving up on life because I know it's 
hard everyday being a quad isn't easy but it gets even older everyday !  
Living as a quad is a day by day life but it gets so old and feel like a 90 
year old but only am 47 have been a quad for 21yrs and have had more problems 
than u can wag a stick at . How does everyone stay positive ? Was in a car 
wreak in 91 when I was 25 and it's been a long and tiering life ! Any 
suggestions anyone ?

Sent from my iPad

On Sep 11, 2012, at 12:50 PM, Bobbie Humphreys  wrote:


Carson, Welcome back! Bobbie 39 years post … Parsippany New Jersey 25 miles 
West of NYC
> 
>
>Sent from my iPad
>
>On Sep 11, 2012, at 4:18 AM, daa...@aol.com wrote:
>
>
>Glad you're back. Carson.
>>Dana C 4-5, 38 years post,
>>Prairie village Kansas , Kansas City area
>>
>>In a message dated 9/10/2012 8:59:23 P.M. Central Daylight Time, 
>>wheelch...@aol.com writes:
>> Hiya Kit!  Welcome Back.
>>>Best Wishes
>>>
>>>In a message dated 9/10/2012 2:28:28 P.M. Central Daylight Time, 
>>>c1c2...@gmail.com writes:
>>>I have been on the list before, thought I should come back. I am high quad 
>>>for 15 years. I live in arizona. 
>>>>
>>>>
>>>>Carson

Re: [QUAD-L] Giving up

2012-09-13 Thread jume9999
Toby, 

I agree with Joan, it is awful to lose a good aide, almost as bad as a divorce 
but we as quads need to have at least 2 aides if not more depending on your 
needs. Also, it can be scary to be independent but people out there are 
helpful. Sometimes people fall all over themselves trying to help me in the 
grocery store (not always) Perhaps you can get a canine companion. Don't give 
up, this too shall pass.. 

Meredith 

- Original Message -
From: "Joan Anglin"  
To: "Toby Ausbun" , quad-list@eskimo.com 
Cc: quad-list@eskimo.com 
Sent: Thursday, September 13, 2012 8:16:07 AM 
Subject: RE: [QUAD-L] Giving up 










Toby, you have been very fortunate in having a consistent caregiver for so 
long. I was a caregiver for my mother for six years after she had a major 
stroke, and before I broke my neck. I am still a caregiver (although it is not 
a physical caregiving situation, but a supervisory directional caregiving 
instead), and it is difficult not to get burned out by the sameness and 
sometimes very frustrating feeling of helplessness that as a caregiver we can’t 
“fix” the problem. 

My family and I were counting up the number of caregivers that I have had in 
the last 22 years, and except for my youngest daughter who has on and off again 
been my caregiver it is close to 50! This includes some out of the caregivers 
who came and trained for a week or two and then we decided it was not going to 
work, and several who were with me for multiple years. The one thing I have 
learned over these years is that for me it is best to have at least three 
caregivers that I can count on to help out when life changes as it always does. 

My youngest daughter is again my main caregiver and works with me four days a 
week. I have another caregiver who comes four evenings a week and another who 
come in three days a week, returning in the evening for those three days. I 
have tried to keep in touch with my caregivers who have moved on as I have 
found that there are times when I run through all of the options available to 
me and need somebody for a day or two. I have been very lucky that I have a 
couple of ex caregivers who are willing to jump in and help if it is possible 
with their schedule. I find that I do much better and that I am more 
appreciative of each of their strengths when I do not depend upon one person. 

The only thing that we can count on in life is that there will always be 
change, and many times I have resisted the change only to find out that it was 
the best thing that could happen to me at that time of my life. 

It still is very scary to me to start to train a new caregiver, as I am a 
middle of the night “worst scenario possible nightmare type of person” and have 
to push myself to look for the positive and any new situation. My answer for 
myself is to keep busy and try very hard not to focus on the negative and try 
to remember that each of my top five caregivers of all time LOL were also 
completely new and green to my needs at one time. 

I’m trying to keep active outside of my family life so that I have unusual and 
different things to talk about with my family and attendants. I am still 
pushing myself to do things independently as much as possible, and have learned 
that most people in the community are very happy to help get something down 
from the shelves in the store, clerks are usually happy to put the things up on 
the scanner and cetera. I just have to swallow my pride and ask for help. The 
places that I go to on a regular basis are quite used to my needs and often ask 
if I need help long before I do. For instance, if I am at Home Depot I go 
around the store and look for the items that I want, and then go ask for help 
to put them in the cart and help me check out. If I have taken public 
transportation (we have a fabulous para transit system here in Reno) they will 
usually put my purchases aside until somebody can come pick them up. Just this 
little bit of independence really bolsters my self esteem and confidence level 
for the day. 

Sorry to go on and on, but yes there is plenty of life for even high quads like 
ourselves, but we have to look for it and find out what makes us the happiest. 
Or at least more content with what we have done that day which is never 
anything like what we were able to do before our injuries, or illnesses made 
such a dramatic change in our lives. Look for what makes you happy, and then go 
for it to the best of your ability. Good luck at this difficult time in your 
life. 

Joan 



Re: [QUAD-L] Giving up

2012-09-13 Thread wheelchair
Hi Toby,  My heart goes out to you and I hope you are able to develop  a 
resolve.  GOD, helps those who help themselves.
The League of Human Dignity-  Center for Independent Living
Norfolk, Ne800-843-5785  toll free telephone.
 
You have to make the original call to them.  They are the Federal  Funded 
Center closest to you.  They represent you and YOUR best  interest.  Please 
call them and introduce yourself and advise them of your  issues and 
concerns.  I can only wish you well.
 
Best Wishes
 
 
In a message dated 9/13/2012 6:56:01 A.M. Central Daylight Time,  
toby.aus...@yahoo.com writes:

Hi my name is Toby I'm from Columbus Nebraska I'm a c4 complete ,I only  
have a shrug in my shoulders am having a hard time right now finding a purpose 
 to go on!!! I don't know if I should go into a nursing home or what to 
do!!!  My care giver for the last 15 years has been their 24/7 365 days a year 
has  about had it with me and I haven't really had to depend on anybody but 
her for  a long time I'm scared more than anything but I don't know what 
to do  ??

Sent from my iPad

On Sep 12, 2012, at 11:22 PM, Nan <_nlg52352@yahoo.com_ 
(mailto:nlg52...@yahoo.com) >  wrote:





 
You are not being "weird" - she is!  My call is ... Totally  inappropriate!


Nan



 
  

 From: ~LittleQuad~ <_littlequad@yahoo.com_ (mailto:littleq...@yahoo.com) >
To: Wheelchair <_wheelchair@aol.com_ (mailto:wheelch...@aol.com) >; 
_kkbatte@yahoo.com_ (mailto:kkba...@yahoo.com) ; Quad-list post 
<_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) > 
Sent: Wednesday, September 12, 2012  1:36 PM
Subject: Re:  [QUAD-L] Is this inappropriate touching?


Yes, everything  W said! Except the crazy part!!
Lq


~LittleQuad~
Sent from  my BlackBerry

-Original Message-
From: _wheelchair@aol.com_ (mailto:wheelch...@aol.com) 
Date: Wed, 12  Sep 2012 13:17:44 
To: <_kkbatte@yahoo.com_ (mailto:kkba...@yahoo.com) >; 
<_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >; <_ericbatte@gmail.com_ 
(mailto:ericba...@gmail.com) >; <_lainiebatte@yahoo.com_ 
(mailto:lainieba...@yahoo.com) >; 
<_ms-quads@yahoogroups.com_ (mailto:ms-qu...@yahoogroups.com) >
Subject:  Re: [QUAD-L] Is this inappropriate touching?


You are crazy KK,  but that is another issue (smiling)

In the world of law, that action  would be considered, assault.  If the 
person touched you again  after any sign of disapproval, those actions 
would be considered,  assault and battery.  This alone would lead to 
police intervention,  a report, an arrest and money bond.  The case 
would have to be  heard by the court and a judgement.  These actions 
would also lead  to additional hearings, by the person's employment.
These types of  actions should not be tolerated by anyone, verbal or 
none  verbal.
Best Wishes

-Original Message-
From: KK <_kkbatte@yahoo.com_ (mailto:kkba...@yahoo.com) >
To:  quad-list <_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >; 
eric  <_ericbatte@gmail.com_ (mailto:ericba...@gmail.com) >; 
Lainie  Batte <_lainiebatte@yahoo.com_ (mailto:lainieba...@yahoo.com) >; MS 
 Quads 
<_ms-quads@yahoogroups.com_ (mailto:ms-qu...@yahoogroups.com) >
Sent:  Wed, Sep 12, 2012 9:21 am
Subject: [QUAD-L] Is this inappropriate  touching?

I am having a tough time deciding if this is wrong or I am  being crazy.

I have Multiple Sclerosis.  I am paralyzed from the  chest down except 
for my right arm.  No feeling at all.  I  also can not speak.  This aide 
has been with me about 2 months, M-F  5 hours a day.  Yesterday we went 
outside on the front porch &  she was talking to a neighbor.  Suddenly 
she took my keys & ran  them across my feet.  I did nothing.  Didn't 
feel it but saw  her movements.  She smiled & did it over & over again.   
It was like she did not believe I could not feel it. 

Now I  feel this was inappropriate but not sure what she expected to get 
out of  her actions.  It has made me feel uncomfortable & dread her  
coming today.

Maybe I am being weird.  What do you think  about  it?

KK









=


RE: [QUAD-L] Giving up

2012-09-13 Thread Joan Anglin
Toby, you have been very fortunate in having a consistent caregiver for so 
long.  I was a caregiver for my mother for six years after she had a major 
stroke, and before I broke my neck.  I am still a caregiver (although it is not 
a physical caregiving situation, but a supervisory directional caregiving 
instead), and it is difficult not to get burned out by the sameness and 
sometimes very frustrating feeling of helplessness that as a caregiver we can’t 
“fix” the problem.  

My family and I were counting up the number of caregivers that I have had in 
the last 22 years, and except for my youngest daughter who has on and off again 
been my caregiver it is close to 50!  This includes some out of the caregivers 
who came and trained for a week or two and then we decided it was not going to 
work, and several who were with me for multiple years.  The one thing I have 
learned over these years is that for me it is best to have at least three 
caregivers that I can count on to help out when life changes as it always does.

My youngest daughter is again my main caregiver and works with me four days a 
week.  I have another caregiver who comes four evenings a week and another who 
come in three days a week, returning in the evening for those three days.  I 
have tried to keep in touch with my caregivers who have moved on as I have 
found that there are times when I run through all of the options available to 
me and need somebody for a day or two.  I have been very lucky that I have a 
couple of ex caregivers who are willing to jump in and help if it is possible 
with their schedule.  I find that I do much better and that I am more 
appreciative of each of their strengths when I do not depend upon one person.

The only thing that we can count on in life is that there will always be 
change, and many times I have resisted the change only to find out that it was 
the best thing that could happen to me at that time of my life.

It still is very scary to me to start to train a new caregiver, as I am a 
middle of the night “worst scenario possible nightmare type of person” and have 
to push myself to look for the positive and any new situation.  My answer for 
myself is to keep busy and try very hard not to focus on the negative and try 
to remember that each of my top five caregivers of all time LOL were also 
completely new and green to my needs at one time.

I’m trying to keep active outside of my family life so that I have unusual and 
different things to talk about with my family and attendants.  I am still 
pushing myself to do things independently as much as possible, and have learned 
that most people in the community are very happy to help get something down 
from the shelves in the store, clerks are usually happy to put the things up on 
the scanner and cetera.  I just have to swallow my pride and ask for help.  The 
places that I go to on a regular basis are quite used to my needs and often ask 
if I need help long before I do.  For instance, if I am at Home Depot I go 
around the store and look for the items that I want, and then go ask for help 
to put them in the cart and help me check out.  If I have taken public 
transportation (we have a fabulous para transit system here in Reno) they will 
usually put my purchases aside until somebody can come pick them up.  Just this 
little bit of independence really bolsters my self esteem and confidence level 
for the day.

Sorry to go on and on, but yes there is plenty of life for even high quads like 
ourselves, but we have to look for it and find out what makes us the happiest.  
Or at least more content with what we have done that day which is never 
anything like what we were able to do before our injuries, or illnesses made 
such a dramatic change in our lives.  Look for what makes you happy, and then 
go for it to the best of your ability.  Good luck at this difficult time in 
your life.

Joan



Re: [QUAD-L] Giving up

2012-09-13 Thread Danny Hearn
If you don't get or keep a caregiver, then you may have to go to a home of some 
type---I met a quad from Florida once that told me he lived in an independent 
living facility for a number of years with some other disabled people, he said 
he really enjoyed his time there, plus they had a nurse or caregiver to help 
them when needed. I don't know if this option is available anymore or what 
states have this but it is worth checking into.  Dan H.





From: Toby Ausbun 
To: quad-list@eskimo.com
Cc: "quad-list@eskimo.com" 
Sent: Thu, September 13, 2012 6:56:32 AM
Subject: Re: [QUAD-L] Giving up


Hi my name is Toby I'm from Columbus Nebraska I'm a c4 complete ,I only have a 
shrug in my shoulders am having a hard time right now finding a purpose to go 
on!!! I don't know if I should go into a nursing home or what to do!!! My care 
giver for the last 15 years has been their 24/7 365 days a year has about had 
it 
with me and I haven't really had to depend on anybody but her for a long 
time I'm scared more than anything but I don't know what to do ??

Sent from my iPad

On Sep 12, 2012, at 11:22 PM, Nan  wrote:


You are not being "weird" - she is!  My call is ... Totally inappropriate!
>
>
>Nan
>
>
>

From: ~LittleQuad~ 
>To: Wheelchair ; kkba...@yahoo.com; Quad-list post 
> 
>
>Sent: Wednesday, September 12, 2012 1:36 PM
>Subject: Re: [QUAD-L] Is this inappropriate touching?
>
>Yes, everything W said! Except the crazy part!!
>Lq
>
>
>~LittleQuad~
>Sent from my BlackBerry
>
>-Original Message-
>From: wheelch...@aol.com
>Date: Wed, 12 Sep 2012 13:17:44 
>To: ; ; ; 
>; 
>Subject: Re: [QUAD-L] Is this inappropriate touching?
>
>
>You are crazy KK, but that is another issue (smiling)
>
>In the world of law, that action would be considered, assault.  If the 
>person touched you again after any sign of disapproval, those actions 
>would be considered, assault and battery.  This alone would lead to 
>police intervention, a report, an arrest and money bond.  The case 
>would have to be heard by the court and a judgement.  These actions 
>would also lead to additional hearings, by the person's employment.
>These types of actions should not be tolerated by anyone, verbal or 
>none verbal.
>Best Wishes
>
>-Original Message-
>From: KK 
>To: quad-list ; eric ; 
>Lainie Batte ; MS Quads 
>
>Sent: Wed, Sep 12, 2012 9:21 am
>Subject: [QUAD-L] Is this inappropriate touching?
>
>I am having a tough time deciding if this is wrong or I am being crazy.
>
>I have Multiple Sclerosis.  I am paralyzed from the chest down except 
>for my right arm.  No feeling at all.  I also can not speak.  This aide 
>has been with me about 2 months, M-F 5 hours a day.  Yesterday we went 
>outside on the front porch & she was talking to a neighbor.  Suddenly 
>she took my keys & ran them across my feet.  I did nothing.  Didn't 
>feel it but saw her movements.  She smiled & did it over & over again.  
>It was like she did not believe I could not feel it. 
>
>Now I feel this was inappropriate but not sure what she expected to get 
>out of her actions.  It has made me feel uncomfortable & dread her 
>coming today.
>
>Maybe I am being weird.  What do you think about it?
>
>KK
>
>
>
>
>

Re: [QUAD-L] Giving up

2012-09-13 Thread RONALD L PRACHT


Stay out of a nursing home as long as possible. Exhaust all options. There is 
hope !

ron c7



From: Toby Ausbun 
To: quad-list@eskimo.com
Cc: "quad-list@eskimo.com" 
Sent: Thu, September 13, 2012 6:56:30 AM
Subject: Re: [QUAD-L] Giving up


Hi my name is Toby I'm from Columbus Nebraska I'm a c4 complete ,I only have a 
shrug in my shoulders am having a hard time right now finding a purpose to go 
on!!! I don't know if I should go into a nursing home or what to do!!! My care 
giver for the last 15 years has been their 24/7 365 days a year has about had 
it 
with me and I haven't really had to depend on anybody but her for a long 
time I'm scared more than anything but I don't know what to do ??

Sent from my iPad

On Sep 12, 2012, at 11:22 PM, Nan  wrote:


You are not being "weird" - she is!  My call is ... Totally inappropriate!
>
>
>Nan
>
>
>

From: ~LittleQuad~ 
>To: Wheelchair ; kkba...@yahoo.com; Quad-list post 
> 
>
>Sent: Wednesday, September 12, 2012 1:36 PM
>Subject: Re: [QUAD-L] Is this inappropriate touching?
>
>Yes, everything W said! Except the crazy part!!
>Lq
>
>
>~LittleQuad~
>Sent from my BlackBerry
>
>-Original Message-
>From: wheelch...@aol.com
>Date: Wed, 12 Sep 2012 13:17:44 
>To: ; ; ; 
>; 
>Subject: Re: [QUAD-L] Is this inappropriate touching?
>
>
>You are crazy KK, but that is another issue (smiling)
>
>In the world of law, that action would be considered, assault.  If the 
>person touched you again after any sign of disapproval, those actions 
>would be considered, assault and battery.  This alone would lead to 
>police intervention, a report, an arrest and money bond.  The case 
>would have to be heard by the court and a judgement.  These actions 
>would also lead to additional hearings, by the person's employment.
>These types of actions should not be tolerated by anyone, verbal or 
>none verbal.
>Best Wishes
>
>-Original Message-
>From: KK 
>To: quad-list ; eric ; 
>Lainie Batte ; MS Quads 
>
>Sent: Wed, Sep 12, 2012 9:21 am
>Subject: [QUAD-L] Is this inappropriate touching?
>
>I am having a tough time deciding if this is wrong or I am being crazy.
>
>I have Multiple Sclerosis.  I am paralyzed from the chest down except 
>for my right arm.  No feeling at all.  I also can not speak.  This aide 
>has been with me about 2 months, M-F 5 hours a day.  Yesterday we went 
>outside on the front porch & she was talking to a neighbor.  Suddenly 
>she took my keys & ran them across my feet.  I did nothing.  Didn't 
>feel it but saw her movements.  She smiled & did it over & over again.  
>It was like she did not believe I could not feel it. 
>
>Now I feel this was inappropriate but not sure what she expected to get 
>out of her actions.  It has made me feel uncomfortable & dread her 
>coming today.
>
>Maybe I am being weird.  What do you think about it?
>
>KK
>
>
>
>
>

Re: [QUAD-L] Giving up

2012-09-13 Thread Toby Ausbun
Hi my name is Toby I'm from Columbus Nebraska I'm a c4 complete ,I only have a 
shrug in my shoulders am having a hard time right now finding a purpose to go 
on!!! I don't know if I should go into a nursing home or what to do!!! My care 
giver for the last 15 years has been their 24/7 365 days a year has about had 
it with me and I haven't really had to depend on anybody but her for a long 
time I'm scared more than anything but I don't know what to do ??

Sent from my iPad

On Sep 12, 2012, at 11:22 PM, Nan  wrote:

> You are not being "weird" - she is!  My call is ... Totally inappropriate!
> 
> Nan
> 
> From: ~LittleQuad~ 
> To: Wheelchair ; kkba...@yahoo.com; Quad-list post 
>  
> Sent: Wednesday, September 12, 2012 1:36 PM
> Subject: Re: [QUAD-L] Is this inappropriate touching?
> 
> Yes, everything W said! Except the crazy part!!
> Lq
> 
> 
> ~LittleQuad~
> Sent from my BlackBerry
> 
> -Original Message-
> From: wheelch...@aol.com
> Date: Wed, 12 Sep 2012 13:17:44 
> To: ; ; ; 
> ; 
> Subject: Re: [QUAD-L] Is this inappropriate touching?
> 
> 
> You are crazy KK, but that is another issue (smiling)
> 
> In the world of law, that action would be considered, assault.  If the 
> person touched you again after any sign of disapproval, those actions 
> would be considered, assault and battery.  This alone would lead to 
> police intervention, a report, an arrest and money bond.  The case 
> would have to be heard by the court and a judgement.  These actions 
> would also lead to additional hearings, by the person's employment.
> These types of actions should not be tolerated by anyone, verbal or 
> none verbal.
> Best Wishes
> 
> -Original Message-
> From: KK 
> To: quad-list ; eric ; 
> Lainie Batte ; MS Quads 
> 
> Sent: Wed, Sep 12, 2012 9:21 am
> Subject: [QUAD-L] Is this inappropriate touching?
> 
> I am having a tough time deciding if this is wrong or I am being crazy.
> 
> I have Multiple Sclerosis.  I am paralyzed from the chest down except 
> for my right arm.  No feeling at all.  I also can not speak.  This aide 
> has been with me about 2 months, M-F 5 hours a day.  Yesterday we went 
> outside on the front porch & she was talking to a neighbor.  Suddenly 
> she took my keys & ran them across my feet.  I did nothing.  Didn't 
> feel it but saw her movements.  She smiled & did it over & over again.  
> It was like she did not believe I could not feel it. 
> 
> Now I feel this was inappropriate but not sure what she expected to get 
> out of her actions.  It has made me feel uncomfortable & dread her 
> coming today.
> 
> Maybe I am being weird.  What do you think about it?
> 
> KK
> 
> 
> 
> 


Re: [QUAD-L] giving up

2012-09-12 Thread Danny Hearn
I can completely understand how you feel ! Our car wreck was August 3rd 1997. I 
was 40 and now i'm 55 years old. This morning we were both struggling to get up 
get going another day, My wife was in the accident with me and is my sole 
caregiver, She gets severe migraine headaches from the accident and must work 
full time plus take care of me and a grandson we must raise. My 1st 10 years as 
a quad was heavenly compared to now .  lol,  I feel like i'm like a feeble 
older 
80 plus year old man at times. I guess all we can do is try to stay positive, 
focus on the good things we have or can enjoy--I think we all gotta be tough 
mentally...We are not alone, as many of the quads on here face similar 
trials of life. Stay strong !  like I have found out thru the years-things 
could always be worse than most current situations, even when that seems hard 
to 
imagine at times. I have seen quads on T.V. in forein countries that are so 
poor 
they must be pulled around in a wagon because the terrain is bad and can't 
afford wheelchairs. When I think of poor folks like that...I realize how 
blessed 
I am. Dan H.* C-6 






From: Toby Ausbun 
To: "quad-list@eskimo.com" 
Cc: "daa...@aol.com" ; "wheelch...@aol.com" 
; "c1c2...@gmail.com" ; 
"quad-list@eskimo.com" 
Sent: Wed, September 12, 2012 6:24:51 AM
Subject: Re: [QUAD-L] giving up


How often does anybody feel like just giving up on life because I know it's 
hard 
everyday being a quad isn't easy but it gets even older everyday !  Living 
as a quad is a day by day life but it gets so old and feel like a 90 year old 
but only am 47 have been a quad for 21yrs and have had more problems than u can 
wag a stick at . How does everyone stay positive ? Was in a car wreak in 91 
when 
I was 25 and it's been a long and tiering life ! Any suggestions anyone ?

Sent from my iPad

On Sep 11, 2012, at 12:50 PM, Bobbie Humphreys  wrote:


Carson, Welcome back! Bobbie 39 years post … Parsippany New Jersey 25 miles 
West 
of NYC
> 
>
>Sent from my iPad
>
>On Sep 11, 2012, at 4:18 AM, daa...@aol.com wrote:
>
>
>Glad you're back. Carson.
>>Dana C 4-5, 38 years post,
>>Prairie village Kansas , Kansas City area
>>
>>In a message dated 9/10/2012 8:59:23 P.M. Central Daylight Time, 
>>wheelch...@aol.com writes:
>> Hiya Kit!  Welcome Back.
>>>Best Wishes
>>>
>>>In a message dated 9/10/2012 2:28:28 P.M. Central Daylight Time, 
>>>c1c2...@gmail.com writes:
>>>I have been on the list before, thought I should come back. I am high quad 
>>>for 
>>>15 years. I live in arizona. 
>>>
>>>>
>>>>
>>>>Carson

Re: [QUAD-L] giving up

2012-09-12 Thread Toby Ausbun
How often does anybody feel like just giving up on life because I know it's 
hard everyday being a quad isn't easy but it gets even older everyday !  
Living as a quad is a day by day life but it gets so old and feel like a 90 
year old but only am 47 have been a quad for 21yrs and have had more problems 
than u can wag a stick at . How does everyone stay positive ? Was in a car 
wreak in 91 when I was 25 and it's been a long and tiering life ! Any 
suggestions anyone ?

Sent from my iPad

On Sep 11, 2012, at 12:50 PM, Bobbie Humphreys  wrote:

> Carson, Welcome back! Bobbie 39 years post … Parsippany New Jersey 25 miles 
> West of NYC
>  
> 
> Sent from my iPad
> 
> On Sep 11, 2012, at 4:18 AM, daa...@aol.com wrote:
> 
>> Glad you're back. Carson.
>> Dana C 4-5, 38 years post,
>> Prairie village Kansas , Kansas City area
>>  
>> In a message dated 9/10/2012 8:59:23 P.M. Central Daylight Time, 
>> wheelch...@aol.com writes:
>> Hiya Kit!  Welcome Back.
>> Best Wishes
>>  
>> In a message dated 9/10/2012 2:28:28 P.M. Central Daylight Time, 
>> c1c2...@gmail.com writes:
>> I have been on the list before, thought I should come back. I am high quad 
>> for 15 years. I live in arizona.
>> 
>> Carson