Re: [QUAD-L] whats up with Dawn?

2014-01-27 Thread Dana Wray
Thank you Bobbie that is such wonderful advice. Are you able to get onto a 
State program for getting care? You would need To qualify for Medicaid. See if 
your state has self-directed care?
Dana

Sent from my iPhone

On Jan 25, 2014, at 4:42 PM, Gmail  wrote:

> Ron,
>  Start making friends of every age and anywhere. Church's, clubs of 
> different kinds, start a club of your own (i've done this to make more 
> friends) join all kinds of organization's. When you meet people, invite them 
> over for lunch or dinner and ask for a little assistance - then they will see 
> what your needs are and what your capable of.
> Bobbie 
> 
> Smile Everyday
> 
> On Jan 24, 2014, at 11:35 PM, Danny Hearn  wrote:
> 
>> Yes, Ron.. I can understand that worry about your Dad passing, that's why I 
>> sure hope I go before my wife. One good thing about your situation of the 
>> house being paid for is that you can get a live in caregiver and work out a 
>> deal for free room and board, over the years i've heard of quads doing this, 
>> I guess you just gotta find the right caregivers. Maybe  even one that works 
>> part time or hours that would work out for you both. Another good Idea is to 
>> get a retired person or one on social security or disabled that can help 
>> with your care...then they could save their money they pay on home or 
>> apartment rent themselves.   Just tossing out suggestions.  Dan H***
>> 
>> From: RONALD L PRACHT 
>> To: "quad-list@eskimo.com"  
>> Sent: Friday, January 24, 2014 5:12 AM
>> Subject: Re: [QUAD-L] whats up with Dawn?
>> 
>> It will be so weird when my dad passes. I will suddenly be all alone to 
>> figure things out or not, it will be up to me and my ability to adapt and 
>> figure things out. Some things can be overcome, some will require hired 
>> help. The older I get, the harder it will be to make the changes needed . I 
>> remember in 99 my mom told me she was divorcing my father and leaving. At 
>> that point I was about a year post injury. I called my dad and told him "mom 
>> left and shes not coming back". Everybody thought I wouldn't be able to take 
>> care of myself because my dad works nights and I would be alone. I was 21 
>> then and wasn't scared a bit, I looked at that like an opportunity to show 
>> people what can be done. I learned to wear a seatbelt, don't do foolish 
>> things you cant get out of. I was driving my old 84 Ford van everywhere and 
>> figuring out one problem at a time. At 37 yrs old things aren't as easy as 
>> they were then. I don't have tons of friends anymore, a bunch of physical 
>> ailments have popped up since then, but I have more knowledge at least. We 
>> will see what the future brings. You can only prepare for it so much.
>> 
>> 
>> Ron 
>> 
>> 
>> 
>> 
>> 
>> 
>> 
>> 
>> From: Don Smith 
>> To: RONALD L PRACHT  
>> Sent: Thursday, January 23, 2014 2:00 PM
>> Subject: Re: [QUAD-L] whats up with Dawn?
>> 
>> Do you qualify for ihss hours, if so maybe now would be a good time to find 
>> someone to come in on a part tme bases to help you with things you need help 
>> with.  It well give your dad some relief and backup for you if and when 
>> needed.
>> 
>> 
>> From: RONALD L PRACHT 
>> To: "quad-list@eskimo.com"  
>> Sent: Thursday, January 23, 2014 12:23 AM
>> Subject: Re: [QUAD-L] whats up with Dawn?
>> 
>> That's terrible. I would have never guessed she would be having so many 
>> issues. The good part is she is thankful to Pete, she is going to need more 
>> help now than ever. Her abdominal pain/ function loss in the right hand 
>> sounds like it could be a fluid filled cyst in the center of the spine at 
>> the initial injury site called a spinal syrinx. A simple mri of her back 
>> would reveal this.
>> 
>> Im concerned right now, my father who is 66 yrs old with a history of heart 
>> problems is having hot flashes, dizziness and feeling faint. He already has 
>> had 5 shunts put in his arteries to keep them open. He is a machine 
>> repairman and is trying to keep going to work. Im not sure what I will do 
>> when/if my dad gets put out of commission. I can get myself in/out of the 
>> bed and take a shower once in awhile on my own ( although the transfer to my 
>> shower chair is risky due to the design of the shower chair), but I do have 
>> a roll in shower. My bowell routines which are every other day will be the 
>> issue. I need help with that. I can get dressed on my 

Re: [QUAD-L] whats up with Dawn?

2014-01-25 Thread Gmail
Ron,
 Start making friends of every age and anywhere. Church's, clubs of 
different kinds, start a club of your own (i've done this to make more friends) 
join all kinds of organization's. When you meet people, invite them over for 
lunch or dinner and ask for a little assistance - then they will see what your 
needs are and what your capable of.
Bobbie 

Smile Everyday

> On Jan 24, 2014, at 11:35 PM, Danny Hearn  wrote:
> 
> Yes, Ron.. I can understand that worry about your Dad passing, that's why I 
> sure hope I go before my wife. One good thing about your situation of the 
> house being paid for is that you can get a live in caregiver and work out a 
> deal for free room and board, over the years i've heard of quads doing this, 
> I guess you just gotta find the right caregivers. Maybe  even one that works 
> part time or hours that would work out for you both. Another good Idea is to 
> get a retired person or one on social security or disabled that can help with 
> your care...then they could save their money they pay on home or apartment 
> rent themselves.   Just tossing out suggestions.  Dan H***
> 
> From: RONALD L PRACHT 
> To: "quad-list@eskimo.com"  
> Sent: Friday, January 24, 2014 5:12 AM
> Subject: Re: [QUAD-L] whats up with Dawn?
> 
> It will be so weird when my dad passes. I will suddenly be all alone to 
> figure things out or not, it will be up to me and my ability to adapt and 
> figure things out. Some things can be overcome, some will require hired help. 
> The older I get, the harder it will be to make the changes needed . I 
> remember in 99 my mom told me she was divorcing my father and leaving. At 
> that point I was about a year post injury. I called my dad and told him "mom 
> left and shes not coming back". Everybody thought I wouldn't be able to take 
> care of myself because my dad works nights and I would be alone. I was 21 
> then and wasn't scared a bit, I looked at that like an opportunity to show 
> people what can be done. I learned to wear a seatbelt, don't do foolish 
> things you cant get out of. I was driving my old 84 Ford van everywhere and 
> figuring out one problem at a time. At 37 yrs old things aren't as easy as 
> they were then. I don't have tons of friends anymore, a bunch of physical 
> ailments have popped up since then, but I have more knowledge at least. We 
> will see what the future brings. You can only prepare for it so much.
> 
> 
> Ron 
> 
> 
> 
> 
> 
> 
> 
> 
> From: Don Smith 
> To: RONALD L PRACHT  
> Sent: Thursday, January 23, 2014 2:00 PM
> Subject: Re: [QUAD-L] whats up with Dawn?
> 
> Do you qualify for ihss hours, if so maybe now would be a good time to find 
> someone to come in on a part tme bases to help you with things you need help 
> with.  It well give your dad some relief and backup for you if and when 
> needed.
> 
> 
> From: RONALD L PRACHT 
> To: "quad-list@eskimo.com"  
> Sent: Thursday, January 23, 2014 12:23 AM
> Subject: Re: [QUAD-L] whats up with Dawn?
> 
> That's terrible. I would have never guessed she would be having so many 
> issues. The good part is she is thankful to Pete, she is going to need more 
> help now than ever. Her abdominal pain/ function loss in the right hand 
> sounds like it could be a fluid filled cyst in the center of the spine at the 
> initial injury site called a spinal syrinx. A simple mri of her back would 
> reveal this.
> 
> Im concerned right now, my father who is 66 yrs old with a history of heart 
> problems is having hot flashes, dizziness and feeling faint. He already has 
> had 5 shunts put in his arteries to keep them open. He is a machine repairman 
> and is trying to keep going to work. Im not sure what I will do when/if my 
> dad gets put out of commission. I can get myself in/out of the bed and take a 
> shower once in awhile on my own ( although the transfer to my shower chair is 
> risky due to the design of the shower chair), but I do have a roll in shower. 
> My bowell routines which are every other day will be the issue. I need help 
> with that. I can get dressed on my own and make basic survival meals using 
> the microwave or sandwiches. Im 16 yrs into my injury and things could get 
> scary really quickly. The house Im living in is paid off and so is my van.
> 
> Ronny
> 
> 
> 
> 
> From: Gmail 
> To: RONALD L PRACHT  
> Cc: "quad-list@eskimo.com"  
> Sent: Wednesday, January 22, 2014 9:31 PM
> Subject: Re: [QUAD-L] whats up with Dawn?
> 
> Ron,
>  Something has happened to change her was within the past 6 months. For 
> the very first time she gave Pete a Birthday day gift (his birthday is Dec

Re: [QUAD-L] whats up with Dawn?

2014-01-25 Thread wheelchair
Thanks Bob.  The article is just as relevant today as it was in  01.
 
Best Wishes
 
 
In a message dated 1/24/2014 7:51:23 P.M. Central Standard Time,  
rhvsh...@pacbell.net writes:

 
Concering a syrinx.  From what I've heard from Dr. Falci, a  neurosurgeon 
that has operated and
untethered  over 1000 syrinx's, a patient history, symptoms and exam is 
much more  important
than  an MRI for a syrinx.   I wrote an article about this in New Mobility 
(see below).
I hope it helps.


Bob Vogel
http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/






 
  

 From:  Gmail 
To: RONALD L PRACHT   
Cc: "quad-list@eskimo.com"   
Sent: Thursday, January 23, 2014 1:06  PM
Subject: Re: [QUAD-L]  whats up with Dawn?



 
I am familiar with the syrinx, because I have one. Doing is not allowed  to 
get an MRI because her accident was due to kids playing with a gun in the  
house and she was accidentally shot in the neck, she has metal fragments 
from  the bullet in her neck.
She also has a UTI about every 6 to 8 weeks like clockwork. Her GP is  
completely useless as far as following up with the UTI checks and she won't go  
to a urologist unless it is absolutely necessary.


When I went to college and stayed in a dorm I was seven years post and  
could get myself in bed, on dress, dress, and transfer into my chair and also  
I could take a shower by myself. When I moved into my apartment 10 years 
post  I could transfer in and out of bed but had a tub in my apartment. So I 
know  what it is like to be able to take care of myself if I have to, although 
in  the past 25+ years I've had Pete with me and he has spoiled me so 
terribly  that I don't do anything for myself anymore.


I asked my family not too long ago "What am I going to do if anything  
happens to Pete?" My youngest sister DeeDee said she would take me in and take  
care of me. It was such a load off my mind and I had always feared that I  
would be put in a nursing home.


Ron, I think this is a conversation you need to have with your family now  
and not wait till you may not have a choice.


Bobbie 

Smile Everyday

On Jan 23, 2014, at 3:23 AM, RONALD L PRACHT <_r.pracht@sbcglobal.net_ 
(mailto:r.pra...@sbcglobal.net) >  wrote:




 

That's terrible. I would have never guessed she would be having so many  
issues. The good part is she is thankful to Pete, she is going to need more  
help now than ever. Her abdominal pain/ function loss in the right hand  
sounds like it could be a fluid filled cyst in the center of the spine at  the 
initial injury site called a spinal syrinx. A simple mri of her back  would 
reveal this.


Im concerned right now, my father who is 66 yrs old with a history of  
heart problems is having hot flashes, dizziness and feeling faint. He  already 
has had 5 shunts put in his arteries to keep them open. He is a  machine 
repairman and is trying to keep going to work. Im not sure what I  will do 
when/if my dad gets put out of commission. I can get myself in/out  of the bed 
and take a shower once in awhile on my own ( although the  transfer to my 
shower chair is risky due to the design of the shower chair),  but I do have a 
roll in shower. My bowell routines which are every other day  will be the 
issue. I need help with that. I can get dressed on my own and  make basic 
survival meals using the microwave or sandwiches. Im 16 yrs into  my injury and 
things could get scary really quickly. The house Im living in  is paid off 
and so is my van.


Ronny









 
 

From: Gmail <_bobbiehumphreys7@gmail.com_ 
(mailto:bobbiehumphre...@gmail.com) >
To: RONALD L PRACHT <_r.pracht@sbcglobal.net_ 
(mailto:r.pra...@sbcglobal.net) >  
Cc: "_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) " 
<_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >  
Sent: Wednesday, January  22, 2014 9:31 PM
Subject:  Re: [QUAD-L] whats up with Dawn?



 
Ron,
 Something has happened to change her was within the  past 6 months. 
For the very first time she gave Pete a Birthday day gift  (his birthday is 
Dec. 15th) she brought him a gift card to his favorite  eatery and right 
before that we had a snow storm, after Pete cleaned her van  off, she called 
him 
to say " Thank-you" She did this without my asking her  to.
This past summer she told me that the money from her law suit, from her  
accident back in 1991, is all but gone. She will not have enough money to  buy 
a news van and her family can't help her. The mini van she has now, a  2002 
Chrysler ramp-van, has about 135,000K on it. She doesn't work so I have  
know idea where she drives. But all of a sudden she is not going out much at  
all. 
She also has quite a bit of some heavy duty properties right now like  
gallstones, severe abdominal pains that she's been struggling with for about  
one year. She is a C-7,8 and use to have mo

Re: [QUAD-L] whats up with Dawn?

2014-01-24 Thread Danny Hearn
Yes, Ron.. I can understand that worry about your Dad passing, that's why I 
sure hope I go before my wife. One good thing about your situation of the house 
being paid for is that you can get a live in caregiver and work out a deal for 
free room and board, over the years i've heard of quads doing this, I guess you 
just gotta find the right caregivers. Maybe  even one that works part time or 
hours that would work out for you both. Another good Idea is to get a retired 
person or one on social security or disabled that can help with your 
care...then they could save their money they pay on home or apartment rent 
themselves.   Just tossing out suggestions.  Dan H***

 


 From: RONALD L PRACHT 
To: "quad-list@eskimo.com"  
Sent: Friday, January 24, 2014 5:12 AM
Subject: Re: [QUAD-L] whats up with Dawn?
  


It will be so weird when my dad passes. I will suddenly be all alone to figure 
things out or not, it will be up to me and my ability to adapt and figure 
things out. Some things can be overcome, some will require hired help. The 
older I get, the harder it will be to make the changes needed . I remember in 
99 my mom told me she was divorcing my father and leaving. At that point I was 
about a year post injury. I called my dad and told him "mom left and shes not 
coming back". Everybody thought I wouldn't be able to take care of myself 
because my dad works nights and I would be alone. I was 21 then and wasn't 
scared a bit, I looked at that like an opportunity to show people what can be 
done. I learned to wear a seatbelt, don't do foolish things you cant get out 
of. I was driving my old 84 Ford van everywhere and figuring out one problem at 
a time. At 37 yrs old things aren't as easy as they were then. I don't have 
tons of friends anymore, a bunch of physical
 ailments have popped up since then, but I have more knowledge at least. We 
will see what the future brings. You can only prepare for it so much.


Ron 







 


 From: Don Smith 
To: RONALD L PRACHT  
Sent: Thursday, January 23, 2014 2:00 PM
Subject: Re: [QUAD-L] whats up with Dawn?
  


Do you qualify for ihss hours, if so maybe now would be a good time to find 
someone to come in on a part tme bases to help you with things you need help 
with.  It well give your dad some relief and backup for you if and when needed.


 


 From: RONALD L PRACHT 
To: "quad-list@eskimo.com"  
Sent: Thursday, January 23, 2014 12:23 AM
Subject: Re: [QUAD-L] whats up with Dawn?
  


That's terrible. I would have never guessed she would be having so many issues. 
The good part is she is thankful to Pete, she is going to need more help now 
than ever. Her abdominal pain/ function loss in the right hand sounds like it 
could be a fluid filled cyst in the center of the spine at the initial injury 
site called a spinal syrinx. A simple mri of her back would reveal this.

Im concerned right now, my father who is 66 yrs old with a history of heart 
problems is having hot flashes, dizziness and feeling faint. He already has had 
5 shunts put in his arteries to keep them open. He is a machine repairman and 
is trying to keep going to work. Im not sure what I will do when/if my dad gets 
put out of commission. I can get myself in/out of the bed and take a shower 
once in awhile on my own ( although the transfer to my shower chair is risky 
due to the design of the shower chair), but I do have a roll in shower. My 
bowell routines which are every other day will be the issue. I need help with 
that. I can get dressed on my own and make basic survival meals using the 
microwave or sandwiches. Im 16 yrs into my injury and things could get scary 
really quickly. The house Im living in is paid off and so is my van.

Ronny



 


 From: Gmail 
To: RONALD L PRACHT  
Cc: "quad-list@eskimo.com"  
Sent: Wednesday, January 22, 2014 9:31 PM
Subject: Re: [QUAD-L] whats up with Dawn?
  


Ron,
     Something has happened to change her was within the past 6 months. For the 
very first time she gave Pete a Birthday day gift (his birthday is Dec. 15th) 
she brought him a gift card to his favorite eatery and right before that we had 
a snow storm, after Pete cleaned her van off, she called him to say " 
Thank-you" She did this without my asking her to.
This past summer she told me that the money from her law suit, from her 
accident back in 1991, is all but gone. She will not have enough money to buy a 
news van and her family can't help her. The mini van she has now, a 2002 
Chrysler ramp-van, has about 135,000K on it. She doesn't work so I have know 
idea where she drives. But all of a sudden she is not going out much at all. 
She also has quite a bit of some heavy duty properties right now like 
gallstones, severe abdominal pains that she's been strug

Re: [QUAD-L] whats up with Dawn?

2014-01-24 Thread Bob Vogel
Concering a syrinx.  From what I've heard from Dr. Falci, a neurosurgeon that 
has operated and
untethered over 1000 syrinx's, a patient history, symptoms and exam is much 
more important
than an MRI for a syrinx.   I wrote an article about this in New Mobility (see 
below).
I hope it helps.

Bob Vogel
http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/





 From: Gmail 
To: RONALD L PRACHT  
Cc: "quad-list@eskimo.com"  
Sent: Thursday, January 23, 2014 1:06 PM
Subject: Re: [QUAD-L] whats up with Dawn?
 


I am familiar with the syrinx, because I have one. Doing is not allowed to get 
an MRI because her accident was due to kids playing with a gun in the house and 
she was accidentally shot in the neck, she has metal fragments from the bullet 
in her neck.
She also has a UTI about every 6 to 8 weeks like clockwork. Her GP is 
completely useless as far as following up with the UTI checks and she won't go 
to a urologist unless it is absolutely necessary.

When I went to college and stayed in a dorm I was seven years post and could 
get myself in bed, on dress, dress, and transfer into my chair and also I could 
take a shower by myself. When I moved into my apartment 10 years post I could 
transfer in and out of bed but had a tub in my apartment. So I know what it is 
like to be able to take care of myself if I have to, although in the past 25+ 
years I've had Pete with me and he has spoiled me so terribly that I don't do 
anything for myself anymore.

I asked my family not too long ago "What am I going to do if anything happens 
to Pete?" My youngest sister DeeDee said she would take me in and take care of 
me. It was such a load off my mind and I had always feared that I would be put 
in a nursing home.

Ron, I think this is a conversation you need to have with your family now and 
not wait till you may not have a choice.

Bobbie 

Smile Everyday

On Jan 23, 2014, at 3:23 AM, RONALD L PRACHT  wrote:


That's terrible. I would have never guessed she would be having so many issues. 
The good part is she is thankful to Pete, she is going to need more help now 
than ever. Her abdominal pain/ function loss in the right hand sounds like it 
could be a fluid filled cyst in the center of the spine at the initial injury 
site called a spinal syrinx. A simple mri of her back would reveal this.
>
>
>Im concerned right now, my father who is 66 yrs old with a history of heart 
>problems is having hot flashes, dizziness and feeling faint. He already has 
>had 5 shunts put in his arteries to keep them open. He is a machine repairman 
>and is trying to keep going to work. Im not sure what I will do when/if my dad 
>gets put out of commission. I can get myself in/out of the bed and take a 
>shower once in awhile on my own ( although the transfer to my shower chair is 
>risky due to the design of the shower chair), but I do have a roll in shower. 
>My bowell routines which are every other day will be the issue. I need help 
>with that. I can get dressed on my own and make basic survival meals using the 
>microwave or sandwiches. Im 16 yrs into my injury and things could get scary 
>really quickly. The house Im living in is paid off and so is my van.
>
>
>Ronny
>
>
>
>
>
>
>
>
>From: Gmail 
>To: RONALD L PRACHT  
>Cc: "quad-list@eskimo.com"  
>Sent: Wednesday, January 22, 2014 9:31 PM
>Subject: Re: [QUAD-L] whats up with Dawn?
> 
>
>
>Ron,
>     Something has happened to change her was within the past 6 months. For 
>the very first time she gave Pete a Birthday day gift (his birthday is Dec. 
>15th) she brought him a gift card to his favorite eatery and right before that 
>we had a snow storm, after Pete cleaned her van off, she called him to say " 
>Thank-you" She did this without my asking her to.
>This past summer she told me that the money from her law suit, from her 
>accident back in 1991, is all but gone. She will not have enough money to buy 
>a news van and her family can't help her. The mini van she has now, a 2002 
>Chrysler ramp-van, has about 135,000K on it. She doesn't work so I have know 
>idea where she drives. But all of a sudden she is not going out much at all. 
>She also has quite a bit of some heavy duty properties right now like 
>gallstones, severe abdominal pains that she's been struggling with for about 
>one year. She is a C-7,8 and use to have movement of her fingers on her right 
>hand but she's lost that function and doesn't know why ... I think it's carpal 
>tunnel syndrome. She wears a size 12 shoe, as a women that size is extremely 
>rare. So her has NEVER worn shoes ever since her accident (she wears slippers) 
>resulting in the toes on both her feet to curl under severely. Enough that her 
>podiatr

Re: [QUAD-L] whats up with Dawn?

2014-01-24 Thread RONALD L PRACHT
It will be so weird when my dad passes. I will suddenly be all alone to figure 
things out or not, it will be up to me and my ability to adapt and figure 
things out. Some things can be overcome, some will require hired help. The 
older I get, the harder it will be to make the changes needed . I remember in 
99 my mom told me she was divorcing my father and leaving. At that point I was 
about a year post injury. I called my dad and told him "mom left and shes not 
coming back". Everybody thought I wouldn't be able to take care of myself 
because my dad works nights and I would be alone. I was 21 then and wasn't 
scared a bit, I looked at that like an opportunity to show people what can be 
done. I learned to wear a seatbelt, don't do foolish things you cant get out 
of. I was driving my old 84 Ford van everywhere and figuring out one problem at 
a time. At 37 yrs old things aren't as easy as they were then. I don't have 
tons of friends anymore, a bunch of physical
 ailments have popped up since then, but I have more knowledge at least. We 
will see what the future brings. You can only prepare for it so much.


Ron 







 


 From: Don Smith 
To: RONALD L PRACHT  
Sent: Thursday, January 23, 2014 2:00 PM
Subject: Re: [QUAD-L] whats up with Dawn?
  


Do you qualify for ihss hours, if so maybe now would be a good time to find 
someone to come in on a part tme bases to help you with things you need help 
with.  It well give your dad some relief and backup for you if and when needed.


 


 From: RONALD L PRACHT 
To: "quad-list@eskimo.com"  
Sent: Thursday, January 23, 2014 12:23 AM
Subject: Re: [QUAD-L] whats up with Dawn?
  


That's terrible. I would have never guessed she would be having so many issues. 
The good part is she is thankful to Pete, she is going to need more help now 
than ever. Her abdominal pain/ function loss in the right hand sounds like it 
could be a fluid filled cyst in the center of the spine at the initial injury 
site called a spinal syrinx. A simple mri of her back would reveal this.

Im concerned right now, my father who is 66 yrs old with a history of heart 
problems is having hot flashes, dizziness and feeling faint. He already has had 
5 shunts put in his arteries to keep them open. He is a machine repairman and 
is trying to keep going to work. Im not sure what I will do when/if my dad gets 
put out of commission. I can get myself in/out of the bed and take a shower 
once in awhile on my own ( although the transfer to my shower chair is risky 
due to the design of the shower chair), but I do have a roll in shower. My 
bowell routines which are every other day will be the issue. I need help with 
that. I can get dressed on my own and make basic survival meals using the 
microwave or sandwiches. Im 16 yrs into my injury and things could get scary 
really quickly. The house Im living in is paid off and so is my van.

Ronny



 


 From: Gmail 
To: RONALD L PRACHT  
Cc: "quad-list@eskimo.com"  
Sent: Wednesday, January 22, 2014 9:31 PM
Subject: Re: [QUAD-L] whats up with Dawn?
  


Ron,
     Something has happened to change her was within the past 6 months. For the 
very first time she gave Pete a Birthday day gift (his birthday is Dec. 15th) 
she brought him a gift card to his favorite eatery and right before that we had 
a snow storm, after Pete cleaned her van off, she called him to say " 
Thank-you" She did this without my asking her to.
This past summer she told me that the money from her law suit, from her 
accident back in 1991, is all but gone. She will not have enough money to buy a 
news van and her family can't help her. The mini van she has now, a 2002 
Chrysler ramp-van, has about 135,000K on it. She doesn't work so I have know 
idea where she drives. But all of a sudden she is not going out much at all. 
She also has quite a bit of some heavy duty properties right now like 
gallstones, severe abdominal pains that she's been struggling with for about 
one year. She is a C-7,8 and use to have movement of her fingers on her right 
hand but she's lost that function and doesn't know why ... I think it's carpal 
tunnel syndrome. She wears a size 12 shoe, as a women that size is extremely 
rare. So her has NEVER worn shoes ever since her accident (she wears slippers) 
resulting in the toes on both her feet to curl under severely. Enough that her 
podiatrists wants to amputat ALL HER TOES!! She also has an open sore on her 
heal. 
She live alone and NOBODY EVER comes to visit her ... not even family. She can 
get herself in bed at night, which she dose around 4:09-5:00am everyday. She 
dose not cook and nerve, ever has her aids cook for her, so her nutrition is 
hideous.
Pete and I TRY to help her out whenever we can but she doesn't like anybody to 
help. I really do feel ba

Re: [QUAD-L] whats up with Dawn?

2014-01-23 Thread Gmail
I am familiar with the syrinx, because I have one. Doing is not allowed to get 
an MRI because her accident was due to kids playing with a gun in the house and 
she was accidentally shot in the neck, she has metal fragments from the bullet 
in her neck.
She also has a UTI about every 6 to 8 weeks like clockwork. Her GP is 
completely useless as far as following up with the UTI checks and she won't go 
to a urologist unless it is absolutely necessary.

When I went to college and stayed in a dorm I was seven years post and could 
get myself in bed, on dress, dress, and transfer into my chair and also I could 
take a shower by myself. When I moved into my apartment 10 years post I could 
transfer in and out of bed but had a tub in my apartment. So I know what it is 
like to be able to take care of myself if I have to, although in the past 25+ 
years I've had Pete with me and he has spoiled me so terribly that I don't do 
anything for myself anymore.

I asked my family not too long ago "What am I going to do if anything happens 
to Pete?" My youngest sister DeeDee said she would take me in and take care of 
me. It was such a load off my mind and I had always feared that I would be put 
in a nursing home.

Ron, I think this is a conversation you need to have with your family now and 
not wait till you may not have a choice.

Bobbie 

Smile Everyday

> On Jan 23, 2014, at 3:23 AM, RONALD L PRACHT  wrote:
> 
> That's terrible. I would have never guessed she would be having so many 
> issues. The good part is she is thankful to Pete, she is going to need more 
> help now than ever. Her abdominal pain/ function loss in the right hand 
> sounds like it could be a fluid filled cyst in the center of the spine at the 
> initial injury site called a spinal syrinx. A simple mri of her back would 
> reveal this.
> 
> Im concerned right now, my father who is 66 yrs old with a history of heart 
> problems is having hot flashes, dizziness and feeling faint. He already has 
> had 5 shunts put in his arteries to keep them open. He is a machine repairman 
> and is trying to keep going to work. Im not sure what I will do when/if my 
> dad gets put out of commission. I can get myself in/out of the bed and take a 
> shower once in awhile on my own ( although the transfer to my shower chair is 
> risky due to the design of the shower chair), but I do have a roll in shower. 
> My bowell routines which are every other day will be the issue. I need help 
> with that. I can get dressed on my own and make basic survival meals using 
> the microwave or sandwiches. Im 16 yrs into my injury and things could get 
> scary really quickly. The house Im living in is paid off and so is my van.
> 
> Ronny
> 
> 
> 
> 
> From: Gmail 
> To: RONALD L PRACHT  
> Cc: "quad-list@eskimo.com"  
> Sent: Wednesday, January 22, 2014 9:31 PM
> Subject: Re: [QUAD-L] whats up with Dawn?
> 
> Ron,
>  Something has happened to change her was within the past 6 months. For 
> the very first time she gave Pete a Birthday day gift (his birthday is Dec. 
> 15th) she brought him a gift card to his favorite eatery and right before 
> that we had a snow storm, after Pete cleaned her van off, she called him to 
> say " Thank-you" She did this without my asking her to.
> This past summer she told me that the money from her law suit, from her 
> accident back in 1991, is all but gone. She will not have enough money to buy 
> a news van and her family can't help her. The mini van she has now, a 2002 
> Chrysler ramp-van, has about 135,000K on it. She doesn't work so I have know 
> idea where she drives. But all of a sudden she is not going out much at all. 
> She also has quite a bit of some heavy duty properties right now like 
> gallstones, severe abdominal pains that she's been struggling with for about 
> one year. She is a C-7,8 and use to have movement of her fingers on her right 
> hand but she's lost that function and doesn't know why ... I think it's 
> carpal tunnel syndrome. She wears a size 12 shoe, as a women that size is 
> extremely rare. So her has NEVER worn shoes ever since her accident (she 
> wears slippers) resulting in the toes on both her feet to curl under 
> severely. Enough that her podiatrists wants to amputat ALL HER TOES!! She 
> also has an open sore on her heal. 
> She live alone and NOBODY EVER comes to visit her ... not even family. She 
> can get herself in bed at night, which she dose around 4:09-5:00am everyday. 
> She dose not cook and nerve, ever has her aids cook for her, so her nutrition 
> is hideous.
> Pete and I TRY to help her out whenever we can but she doesn't like anybody 
> to help. I really do feel bad for her because of all she's going through 
> ALONE!

Re: [QUAD-L] whats up with Dawn?

2014-01-23 Thread RONALD L PRACHT
That's terrible. I would have never guessed she would be having so many issues. 
The good part is she is thankful to Pete, she is going to need more help now 
than ever. Her abdominal pain/ function loss in the right hand sounds like it 
could be a fluid filled cyst in the center of the spine at the initial injury 
site called a spinal syrinx. A simple mri of her back would reveal this.

Im concerned right now, my father who is 66 yrs old with a history of heart 
problems is having hot flashes, dizziness and feeling faint. He already has had 
5 shunts put in his arteries to keep them open. He is a machine repairman and 
is trying to keep going to work. Im not sure what I will do when/if my dad gets 
put out of commission. I can get myself in/out of the bed and take a shower 
once in awhile on my own ( although the transfer to my shower chair is risky 
due to the design of the shower chair), but I do have a roll in shower. My 
bowell routines which are every other day will be the issue. I need help with 
that. I can get dressed on my own and make basic survival meals using the 
microwave or sandwiches. Im 16 yrs into my injury and things could get scary 
really quickly. The house Im living in is paid off and so is my van.

Ronny



 


 From: Gmail 
To: RONALD L PRACHT  
Cc: "quad-list@eskimo.com"  
Sent: Wednesday, January 22, 2014 9:31 PM
Subject: Re: [QUAD-L] whats up with Dawn?
  


Ron,
     Something has happened to change her was within the past 6 months. For the 
very first time she gave Pete a Birthday day gift (his birthday is Dec. 15th) 
she brought him a gift card to his favorite eatery and right before that we had 
a snow storm, after Pete cleaned her van off, she called him to say " 
Thank-you" She did this without my asking her to.
This past summer she told me that the money from her law suit, from her 
accident back in 1991, is all but gone. She will not have enough money to buy a 
news van and her family can't help her. The mini van she has now, a 2002 
Chrysler ramp-van, has about 135,000K on it. She doesn't work so I have know 
idea where she drives. But all of a sudden she is not going out much at all. 
She also has quite a bit of some heavy duty properties right now like 
gallstones, severe abdominal pains that she's been struggling with for about 
one year. She is a C-7,8 and use to have movement of her fingers on her right 
hand but she's lost that function and doesn't know why ... I think it's carpal 
tunnel syndrome. She wears a size 12 shoe, as a women that size is extremely 
rare. So her has NEVER worn shoes ever since her accident (she wears slippers) 
resulting in the toes on both her feet to curl under severely. Enough that her 
podiatrists wants to amputat ALL HER TOES!! She also has an open sore on her 
heal. 
She live alone and NOBODY EVER comes to visit her ... not even family. She can 
get herself in bed at night, which she dose around 4:09-5:00am everyday. She 
dose not cook and nerve, ever has her aids cook for her, so her nutrition is 
hideous.
Pete and I TRY to help her out whenever we can but she doesn't like anybody to 
help. I really do feel bad for her because of all she's going through ALONE!
Bobbie 

Smile Everyday

On Jan 22, 2014, at 8:10 PM, RONALD L PRACHT  wrote:


do you have any new stories about dawn and her selfish activities
>
>
>ronny
> 
>
>
> From: Gmail 
>To: RONALD L PRACHT  
>Cc: "quad-list@eskimo.com"  
>Sent: Wednesday, January 22, 2014 2:32 PM
>Subject: Re: [QUAD-L] Handcycle Dan hearn
>  
>
>
>Ron,
>      Good for you! I love to hear clods working out in any way shape or form. 
>It is so much fun to physically do something ... again, isn't it?
>Bobbie 
>
>Smile Everyday
>
>On Jan 22, 2014, at 5:42 AM, RONALD L PRACHT  wrote:
>
>
>I was going to buy a handcycle back in 09. I did a lot of research and figured 
>out I needed one that had a transfer level about the same height as my 
>wheelchair. I was going to buy a quickie mach 2 in toxic green. Then I ran 
>across a company called Rio Mobilty out of California. They had this 
>attachable handbike called a rio dragonfly. Once you attach four brackets to 
>your manual chair and do some adjusting, you can take the bike on and off in 
>about 5 minutes unassisted. It has seven gears, a brake and c5 quad grips to 
>propel the trike. Whats great about it that you are still in your chair with 
>your cushion and everything so no worries about skin breakdown or falling out 
>of the bike. I purchased it for around 1000.00 dollars and have been using it 
>ever since. in fact, ive already worn a tire off of it. I use it 30-40 times a 
>year because its so simple to take on and off the chair. Those pa

Re: [QUAD-L] whats up with Dawn?

2014-01-22 Thread Gmail
Ron,
 Something has happened to change her was within the past 6 months. For the 
very first time she gave Pete a Birthday day gift (his birthday is Dec. 15th) 
she brought him a gift card to his favorite eatery and right before that we had 
a snow storm, after Pete cleaned her van off, she called him to say " 
Thank-you" She did this without my asking her to.
This past summer she told me that the money from her law suit, from her 
accident back in 1991, is all but gone. She will not have enough money to buy a 
news van and her family can't help her. The mini van she has now, a 2002 
Chrysler ramp-van, has about 135,000K on it. She doesn't work so I have know 
idea where she drives. But all of a sudden she is not going out much at all. 
She also has quite a bit of some heavy duty properties right now like 
gallstones, severe abdominal pains that she's been struggling with for about 
one year. She is a C-7,8 and use to have movement of her fingers on her right 
hand but she's lost that function and doesn't know why ... I think it's carpal 
tunnel syndrome. She wears a size 12 shoe, as a women that size is extremely 
rare. So her has NEVER worn shoes ever since her accident (she wears slippers) 
resulting in the toes on both her feet to curl under severely. Enough that her 
podiatrists wants to amputat ALL HER TOES!! She also has an open sore on her 
heal. 
She live alone and NOBODY EVER comes to visit her ... not even family. She can 
get herself in bed at night, which she dose around 4:09-5:00am everyday. She 
dose not cook and nerve, ever has her aids cook for her, so her nutrition is 
hideous.
Pete and I TRY to help her out whenever we can but she doesn't like anybody to 
help. I really do feel bad for her because of all she's going through ALONE!
Bobbie 

Smile Everyday

> On Jan 22, 2014, at 8:10 PM, RONALD L PRACHT  wrote:
> 
> do you have any new stories about dawn and her selfish activities
> 
> ronny
> From: Gmail 
> To: RONALD L PRACHT  
> Cc: "quad-list@eskimo.com"  
> Sent: Wednesday, January 22, 2014 2:32 PM
> Subject: Re: [QUAD-L] Handcycle Dan hearn
> 
> Ron,
>   Good for you! I love to hear clods working out in any way shape or 
> form. It is so much fun to physically do something ... again, isn't it?
> Bobbie 
> 
> Smile Everyday
> 
>> On Jan 22, 2014, at 5:42 AM, RONALD L PRACHT  wrote:
>> 
>> I was going to buy a handcycle back in 09. I did a lot of research and 
>> figured out I needed one that had a transfer level about the same height as 
>> my wheelchair. I was going to buy a quickie mach 2 in toxic green. Then I 
>> ran across a company called Rio Mobilty out of California. They had this 
>> attachable handbike called a rio dragonfly. Once you attach four brackets to 
>> your manual chair and do some adjusting, you can take the bike on and off in 
>> about 5 minutes unassisted. It has seven gears, a brake and c5 quad grips to 
>> propel the trike. Whats great about it that you are still in your chair with 
>> your cushion and everything so no worries about skin breakdown or falling 
>> out of the bike. I purchased it for around 1000.00 dollars and have been 
>> using it ever since. in fact, ive already worn a tire off of it. I use it 
>> 30-40 times a year because its so simple to take on and off the chair. Those 
>> paras you see at creve couer park are led by the same man that runs the 
>> disabled swim organization I was involved with. we should meet over there 
>> one afternoon Dan this year.
>> 
>> Ron
>> 
>> 
>> 
>> 
>> 
>> 
>>rom: Danny Hearn 
>> To: RONALD L PRACHT ; "quad-list@eskimo.com" 
>>  
>> Sent: Tuesday, January 21, 2014 3:31 PM
>> Subject: Re: [QUAD-L] stationary hand bike
>> 
>> Yeah, Ron- I got cabin fever from the winter also, Can't wait until spring 
>> gets here ! My pain is usually worse in the winter alsoHey do you have 
>> one of those 3 wheeled hand bikes? A few years back I met some para's and 
>> quads all riding those at Creve Couer Lake, they told me to buy one and ride 
>> the trails around the Lake--said they meet on like 2 days a week..One was 
>> thursday but can't remember the other day. I watched them ride and chatted 
>> with them, it did seem cool, I never got around to buying the trike, but at 
>> times I go there and ride around in my power chairNow I will soon be 
>> able to ride the trail they have built down the street by aquaport and 
>> dogport.. I heard that it is another extension to the Katie Trail. Later, 
>> Dan H***
>> 
>> From: RONALD L PRACHT 
>> To: "quad-list@eskimo.com"  
>> Sent: Tuesday, January 21, 2014 2:24 PM
>> Subject: [QUAD-L] stationary hand bike
>> 
>> Hey guys. im going crazy with this cold winter. Does anybody have a 
>> stationary handbike/armbike that they are willing to sell? Something decent 
>> quality, not the 39.99 job. I was looking on ebay and like the sci/fit 
>> bikes, but would consider anything. Ive got a prefect easystand 5000 with 
>> the mobility option Im willing to sell or trade

Re: [QUAD-L] whats up with Dawn?

2014-01-22 Thread RONALD L PRACHT
do you have any new stories about dawn and her selfish activities

ronny
 


 From: Gmail 
To: RONALD L PRACHT  
Cc: "quad-list@eskimo.com"  
Sent: Wednesday, January 22, 2014 2:32 PM
Subject: Re: [QUAD-L] Handcycle Dan hearn
  


Ron,
      Good for you! I love to hear clods working out in any way shape or form. 
It is so much fun to physically do something ... again, isn't it?
Bobbie 

Smile Everyday

On Jan 22, 2014, at 5:42 AM, RONALD L PRACHT  wrote:


I was going to buy a handcycle back in 09. I did a lot of research and figured 
out I needed one that had a transfer level about the same height as my 
wheelchair. I was going to buy a quickie mach 2 in toxic green. Then I ran 
across a company called Rio Mobilty out of California. They had this attachable 
handbike called a rio dragonfly. Once you attach four brackets to your manual 
chair and do some adjusting, you can take the bike on and off in about 5 
minutes unassisted. It has seven gears, a brake and c5 quad grips to propel the 
trike. Whats great about it that you are still in your chair with your cushion 
and everything so no worries about skin breakdown or falling out of the bike. I 
purchased it for around 1000.00 dollars and have been using it ever since. in 
fact, ive already worn a tire off of it. I use it 30-40 times a year because 
its so simple to take on and off the chair. Those paras you see at creve couer 
park are led by the same man that runs
 the disabled swim organization I was involved with. we should meet over there 
one afternoon Dan this year.
>
>
>Ron
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>  rom: Danny Hearn 
>To: RONALD L PRACHT ; "quad-list@eskimo.com" 
> 
>Sent: Tuesday, January 21, 2014 3:31 PM
>Subject: Re: [QUAD-L] stationary hand bike
>  
>
>
>Yeah, Ron- I got cabin fever from the winter also, Can't wait until spring 
>gets here ! My pain is usually worse in the winter alsoHey do you have one 
>of those 3 wheeled hand bikes? A few years back I met some para's and quads 
>all riding those at Creve Couer Lake, they told me to buy one and ride the 
>trails around the Lake--said they meet on like 2 days a week..One was thursday 
>but can't remember the other day. I watched them ride and chatted with them, 
>it did seem cool, I never got around to buying the trike, but at times I go 
>there and ride around in my power chairNow I will soon be able to ride the 
>trail they have built down the street by aquaport and dogport.. I heard that 
>it is another extension to the Katie Trail. Later, Dan H***
>
> 
>
>
> From: RONALD L PRACHT 
>To: "quad-list@eskimo.com"  
>Sent: Tuesday, January 21, 2014 2:24 PM
>Subject: [QUAD-L] stationary hand bike
>  
>
>
>Hey guys. im going crazy with this cold winter. Does anybody have a stationary 
>handbike/armbike that they are willing to sell? Something decent quality, not 
>the 39.99 job. I was looking on ebay and like the sci/fit bikes, but would 
>consider anything. Ive got a prefect easystand 5000 with the mobility option 
>Im willing to sell or trade.
>
>
>
>
>Ron
>
>   
>
>