Re: Just thoughts

1998-07-23 Thread Reid Smith
Reid,
  I worry about you taking so many antibiotics. Do you not get herx reactions
with your CS and so you don't think it is doing any good or are you just so
determined to kill this damn bug? I know that the drugs do a number on your
immune system each time you use them and that is why I worry about you more.
Deb

  Well, I'm kinda stuck between a rock and a hard place. If I don't take
the antibotics then I'm like a zomby that can't even function enough to drive 
a car safely. If I do take them then I run the risk of depleting my immune
system down so far that a cold could kill me. I managed to get off them last
year by getting an IV for 3-4 months. That's the first time in over 8 years
that I was able to surive without them. If it hadn't been for a line 
infection that came up two weeks later I'd probally be off them now.
  One doctor told me he was afraid to change my antibotics because if
I keep changing then there might come a time where I get sick and nothing
will help. I explained to him later that if I don't kill this it's going
to kill me so I'll have to cross that bridge when I get there.

  The CS has very little effect on me. Between you me and the wall I've 
even injected it with no results. The only way that it might be effective
would be if I could inject it right into the skin. That's I won't try
anymore because I'm afraid of turning blue and still haveing the disease.

  Thank you for your concern but don't worry about me. I'm just doing what
I can to to stay alive.

Take Care 

Reid



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Re: Just thoughts

1998-07-23 Thread Debbie McDonald
Reid,
  I worry about you taking so many antibiotics. Do you not get herx reactions
with your CS and so you don't think it is doing any good or are you just so
determined to kill this damn bug? I know that the drugs do a number on your
immune system each time you use them and that is why I worry about you more.
Deb
-- 


 Debbie McDonald

 mailto:lullw...@flash.net


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Re: Just thoughts

1998-07-23 Thread Reid Smith
 Notice a lot of doctor bashing. Know there is room for change but ,go
to Bageldash and try it there. 

  Is it better over here Let me put you in my place and before you
answer that question. 

  Doctor put me on IV Unisen. 

  Working good took me off after two weeks.

  Three-four days later I went to use the bathroom and my legs quit couldn't
  even get off the stool. 

  Called doctor and he said go to the emergency room, in short I don't want to 
  see you any more . 

  Didn't go then few days later done the same thing and went to the ER.

  Told them that I was going to sit out in front of the head AMA doctors
  office with a sign if they didn't put me back on.

  They put me back on but the doctor doesn't want to treat me by himself.
  States he doesn't know what to do and I said I do give me what I need.
  States I can't if something happens then I'd be responcible. I state
  give me the papers to sign so that I'd be responcible.

  He sent me to an infectious disease specialest in St. Louis. I told them
  like I told my doctor 2 months ago. It's a bacterial infection because
  antibotics kills it. Told that doctor that it's lyme and might be a 
  secondary infection. That ignorant jerk said lyme is killed with two weeks 
  of antibotics so you don't have that. 
  
  Found a doctor in Nashville that sounds like he knows what is going on. 
  My doctor was going to keep me on the IV until I see him next month. His
  wife died and the doctor that was left in charge took me off the IV because
  the doctor in St. Louis said that I didn't need it. No problem though I
  was smart enough to go to Mexico and get the antibotics that I need to
  keep me going as a just in case they jerked me around again. See that's
  not the first time that they have taken me off before the antibotics 
  have time to kill the infection. About the 10th time if I remember right.

  So how do I know that I'm being taken off before it has time to kill
  the microbes in me? About a year ago I finally got one to keep me
  on for 3 months. That was having to go through about 3-4 different
  doctors before I got one that would listen. At the end of that period
  I was free, fealing good and starting back to school. Eager to go back
  to work. Got a line infection after they took me off that almost killed
  me and knocked me back down so I had to start over.

  When I first saw the doctor that I'm seeing now I talked him into running
  a blood culture. Main reason was to make sure that I didn't still have some
  of the staff infection that I got from an infected line months later. Nothing
  showed there so a RN said that nothing usually shows in the blood try a 
  tissue fluid sample. Tryed 3 months ago to get them to do that with no
  luck. Finally Monday I get that test ran


Ever notice that the rest of the world comes here for the best medical care. 
All the big mucky mucks come here for care,wonder why?

  Simple reputation! Wonder why there are alot of people that have cancer
that have to go to Mexico to get treated when the doctors here fail?
I wonder why the doctors persist in treating the symptoms and not the
cause? Wonder why when a person has all the money he needs or a good
insurance company he gets speacial treatment. I mean you tell the doctors
that you have personal insurance and they will bend over backwards to find
out what is wrong. Tell them you have medicare and see what happens. 
   
Take Care 

Reid



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Just thoughts

1998-07-22 Thread Tai-Pan
Hi Mike and listers, the doers and workers of wonders,
 Wow! Gone two weeks and came back to over five hundred postings. Will
take two weeks to go through them. But thats good ,cause that means
things are happening. Always love people that are *doing*. They are the
ones that make the world worth living in.
 My last post before leaving two weeks ago was about proportions (the
size of things).Someone has suggested I was cutting someone down. Don`t
have time to do such stuff. Went back and hunted for the original post
where I had picked up the number(blood cell size)used in the
discussion.  Found it was Susan. Now I want everyone to know I don`t
pick on people ,especially Susan.She has done more for this list than
any ten of us put together.I have the VERY highest appreciation and
respect for her.
 Have just seen that Candice has left us. Thats our loss. she is another
person thats done a lot for this list.
 Notice a lot of doctor bashing. Know there is room for change but ,go
to Bageldash and try it there. Ever notice that the rest of the world
comes here for the best medical care. All the big mucky mucks come here
for care,wonder why?
 See a thread on stirring. Haven`t read it yet but I stir things while 
making CS. Counter-clockwise(northern hemiphere) about twenty times
every five minutes.
  Need to get on to other things now.
   Bless you allBob Lee
 
-- 
oozing on the muggy shore of the gulf coast
  l...@fbtc.net


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