[TMIC] Kate's question
Kate.. Was hoping someone would reply to you since I have the same questions but no answers. It does make sense that the more you use your legs the better off you would be. Hopefully someone who knows the answers to your questions will reply. Is there any documentation on TM - specifically on the pain aspect and physiotherapy - that I could print out to give them? (Also; is this a valid point; in that the muscle wastage will prevent me from walking if I don't overcome the pain and keep going before it gets too severe? Apparently I have quite a bit of muscle wastage on my legs already, and whilst doing all the exercises helps a bit; the physio thinks I need to keep trying to walk, in spite of the pain, if possible). I will print out the info files that are on this site, but if there is anything specifically relating to the rehabilitation and physiotherapy aspects, that would be very helpful! I don't think the medical profession here (esp. those in public health system), really knows what to do with this situation; and each different (public health) physiotherapist that gets assigned to me seems to have totally different ideas, method and approach. All have said that they've never treated anyone with TM before, and don't
Re: [TMIC] Kate's question
I've done the exercising, rehab and I still can only walk so far before muscle fatigue strikes my legs and I have to sit for a minute or so to recoup and then I can go again.. I have no answers, but I've learned to live with this fact for ten years.last Sat was my tenth anniversary...and I'm still fighting janh Stillwater, OK[EMAIL PROTECTED] wrote:Kate.. Was hoping someone would reply to you since I have the same questions but no answers. It does make sense that the more you use your legs the better off you would be. Hopefully someone who knows the answers to your questions will reply.Is there any documentation on TM - specifically on the pain aspect and physiotherapy - that I could print out to give them? (Also; is this a valid point; in that the muscle wastage will prevent me from walking if I don't overcome the pain and keep going before it gets too severe? Apparently I have quite a bit of muscle wastage on my legs already, and whilst doing all the exercises helps a bit; the physio thinks I need to keep trying to walk, in spite of the pain, if possible). I will print out the info files that are on this site, but if there is anything specifically relating to the rehabilitation and physiotherapy aspects, that would be very helpful! I don't think the medical profession here (esp. those in public health system), really knows what to do with this situation; and each different (public health) physiotherapist that gets assigned to me seems to have totally different ideas, method and approach. All have said that they've never treated anyone with TM before, and don't
Re: [TMIC] Kate's question
Kate, walk as much as you can. If you don't: Your muscles will indeed atrophy, You will lose the calcium in your leg bones Alton, who should have done this himself
[TMIC] Mr. Graves info?
Can anyone give me an address to contact this Mr. Graves that you are all talking about. I would like to know what the Miami project is. I stay in southern Florida for the winter and am thinking of going to the Cleveland Clinic which is near Miami. Maybe they can tell me what I have. Of course so far I have no diagnosis. First thought it was Guilliane-Barre Syndrome, then TM, but my neurologist says it was a spinal cord stroke and is quite sure about it. In any case I have most of the symptons that most of you have but fortunately not alot of pain. Some nerve pain that is like sciatic pain but only in the evening. Also, the more I lie around the worse I feel. If I spend more time walking (with a walker of course and using mostly hands) then I dont get as stiff and ill feeling. I cant stand on my own yet but am working on it and thats because the muscles in my butt and my hamstrings are not working, Thanks, Rosalie
[TMIC] Is Anyone Getting My E-Mails???
Hi, My name is Anne Shreve. I live in North Carolina. I had tm in 1975 when I was 22. I was hospitalized for 4 months and gradually over the next year or so made a full recovery. There's alot I would like to share with you. If anyone gets this message I would truly appreciate it if someone would reply just to let me know they received it. Take Care and God Bless you all. Anne My e-mail is [EMAIL PROTECTED]. Thanks again. Get amazing travel prices for air and hotel in one click on Yahoo! FareChase
[TMIC] Re: tmic-digest Digest V2006 #20
I sent an e-mail to the Montel Williams Show a few years ago, but never got a response. Perhaps if we all send an e-mail, he will grease the "squeaky wheel"!
