[TMIC] TM Pregnancy
Hi Everyone, I was wondering if there was anyone out there that has been pregnant and had a child since they've had TM? Was your pregnancy normal? Did you have any times where the TM got worse? I have a pretty mild case and am contemplating 1 more child. Thanks for all your help! Jill www.greatamericanbeanbag.com
Re: [TMIC] TM Pregnancy
Yep, I got pregnant and had a daughter two years ago (diagnosed with TM in 2001). My symptoms got worse in the first months. I was exhausted and sick from the pregnancy and that made my TM symptoms flare up. By the time I got to my 3rd trimester, though, my TM symptoms were much, much better and stayed that way even after I delivered (and even now, knock on wood!). I had a C-section. Good luck! Cossy --- Jill Z [EMAIL PROTECTED] wrote: Hi Everyone, I was wondering if there was anyone out there that has been pregnant and had a child since they've had TM? Was your pregnancy normal? Did you have any times where the TM got worse? I have a pretty mild case and am contemplating 1 more child. Thanks for all your help! Jill www.greatamericanbeanbag.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [TMIC] Meeting @ 11:00
If a message does not directly relate to TM, can we please use the OT label in the subject? I get so many of these unwanted electronic chain letters and do not wish to receive additional ones through the TMIC site. Thanks. - Original Message - From: Candis Kalley To: tmic-list Sent: Sunday, April 15, 2007 8:56 PM Subject: [TMIC] Meeting @ 11:00 Meeting @ 11:00 This morning when the Lord opened a window to Heaven, He saw me, and asked: My child, what is your greatest wish for today? I responded: Lord please, take care of the person who is reading this message, their family and their special friends they deserve it and I love them very much. The love of God is like the ocean, you can see its beginning, but not its end. This message works on the day you receive it. Let us see if it is true. Pass this on to your true friends. Something good will happen to you at 11:00 in the morning; something that you have been waiting to hear. This is not a joke; someone will call you by phone or will speak to you about something that you were waiting to hear. Do not break this prayer; send it to a minimum of 5 people. Candis Kalley [EMAIL PROTECTED] EarthLink Revolves Around You.
Re: [TMIC] thanks for rollator suggestions!
Oh Dear, I guess I have mislead you Kevin. I do not have 'hand brakes'. I guess mine are just parking brakes. I hope this had cleared up my information to you. Heather in Calgary - Original Message - From: Butcher, Bernie [SFS] To: Kevin Wolfthal ; Heather Pieter ; tmic-list@eskimo.com Sent: Monday, April 16, 2007 6:03 AM Subject: RE: [TMIC] thanks for rollator suggestions! My rollator has individual brakes upon squeezing, the problem is, when I sit (on a chair) my rollator rollates away from me. no parking brake. It would also be nice to have a parking brake so I could use the rollator like a regular walker when I want to. BERNARD BUTCHER -- From: Kevin Wolfthal [mailto:[EMAIL PROTECTED] Sent: Sunday, April 15, 2007 6:35 PM To: Heather Pieter; tmic-list@eskimo.com Subject: Re: [TMIC] thanks for rollator suggestions! Heather, I wish that I would be able to engage both brakes with one hand, so I may have to re-think the Hugo. I'm pretty sure there are such rollators. I'm glad yours has helped you and your Mom. Take care, Kevin Heather Pieter wrote: Kevin, My walker is not called a Hugo, can't remember the name right now but looks much like the Hugo. My brakes can be engaged one brake at a time. So you can hook your cane onto the handle if need be and do one brake at a time. My mother with diabetic neuropathy uses her walker 'all the time' in her home and out. She just does not walk without it at all. My sister with MS uses hers when need be and I use mine when shopping alone or going for a walk. I don't need mine in the house just yet but perhaps in a few years I might. Hope you enjoy yours. Heather in Calgary - Original Message - From: Kevin Wolfthal To: [EMAIL PROTECTED] ; Tmic-list@eskimo.com Sent: Sunday, April 15, 2007 3:01 AM Subject: Re: [TMIC] thanks for rollator suggestions! Hi again, One more question, can the brakes be operated with either hand, or do you have to press them both together. I may use it sometimes with a cane in one hand. Thanks, Kevin Candis Kalley wrote: I think so. I can lift at max 10# or so and I lift my Hugo into my SUV. On Hugo, you lift the seat up and there is a strap that you pull and the Hugo folds right up. I usually have to study myself against the back of the car to lift but like I said I am limited on my lifting. I live by myself so I'm very in independant and manage just fine. The only times I've had problems is when someone tries to help. It throws my rhythm off of lifting and turning to get Hugo into the car. You will always have a seat available with Hugo plus the added support to walk and carry things. I have carried a whole car load of groceries on Hugo. 2 bags on each handle and several on the seat. Hugo also has great side and back bags. I always keep an umbrella in the back pack plus a folding cane so that I can use the cane when I go on the airplane because the airlines put Hugo in the cargo hold. Also, when you go thru the checker, security will take Hugo thru while you have to go thru walking - so I've found the folding cane helpful in those instances. There are some benefits to being handicap - at the airlines the lines are shorter. In the front of the back pack are several compartments for pens, small pads and the such. Other models I looked at charged extra for the back pack (bag). I have also used Hugo to carry heavy boxes when I go to the post office. Larger boxes fit right across the handles and you can still use the handles. Hugo also has helped carry things out to curbside for trash pickup, carry the laundry basket and all kinds of uses. Hugo is a great helper. Hope you enjoy. Candy K. - Original Message - From: Kevin Wolfthal To: [EMAIL PROTECTED];tmic-list@eskimo.com Sent: 4/14/2007 11:28:00 PM Subject: Re: [TMIC] thanks for rollator suggestions! Hi Candy, I'm glad! Is it easy to fold up if you take it in a car? Thanks! Kevin Candis Kalley wrote: I have the Hugo and LOVE it. I think you will be very happy with it. Candy K. [Original Message] From: Kevin Wolfthal [EMAIL PROTECTED] To: Tmic-list@eskimo.com Date: 4/14/2007 10:57:26 PM Subject: [TMIC] thanks for rollator suggestions! Thanks to everyone who replied re: rollators. I am having second thoughts about the 'Dannie', because as someone suggested, the reverse brakes might be hard on my already painful hands. Thank you to whoever brought that to my attention. (I'm sorry I can't thank everyone individually, typing with one finger
[TMIC] straight cath
Hello everyone, I have not logged in recently but I read as much as possible. But I do have a question that I hope someone out there has an answer...one I want to hear! But first let me recap I was first diagnosed with TM after being in Temple hospital for over 6 weeks back in Sept of 2006. I recently visited Johns Hopkins in MD and was told by Dr. Greenburg that he was not sure that I had TM. I might have an AVM. Arterial Vascular Malformation. Temple hospital thought that as well but could not prove it so they diagnosed me with TM. Dr. Greenburg wants to do another angiogram in June to see if Temple missed the AVM. I was told by Dr. Greenburg that there are two ways to determine TM. One is with an MRI and the other is from the fluid from a spinal tap. Both were done at Temple Hospital and both did not show TM. I am numb from the waist down to my toes and must straight cath at least 4 times a day. Now to my question. Has anyone had problems urinating and then had the bladder come back and was able to urinate on their own again? Lately I have been able to urinate a little on my own but it is psoriatic. Is this a good sign or just a fluke? Thanks for letting me vent. Mark Marlton, NJ ** See what's free at http://www.aol.com.
[TMIC] TM question
Question for all of you. I just got back from the Orthotist, with my daughter, Ashlee, and was just told that my daughter may have a fungus of some sort in her AFO. Have any of you ever dealt with this before??? She has a rash on each side of her leg where the brace touches her. She took them off on Friday night and didn't put them back on until today to go to school and I could still see the outline of her brace (from the rash). They want me to take her to a dermatologist but our local facilities are scheduling 6-8 weeks out. I am contemplating calling her family physician to see what he thinks but thought I would check on here first. The Orthotist took the brace from her and is sending away to have the straps and padding replaced in hopes that he can rid the fungus that way. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. OffiSupp.gif Description: OffiSupp.gif
Re: [TMIC] TM Pregnancy
there's a whole section on Obstetric issues in the next journal. Since you asked now, you can read it online here: http://www.myelitis.org/newsletters/journal-2-toc.htm At 03:55 AM 4/16/2007, Jill Z wrote: Hi Everyone, I was wondering if there was anyone out there that has been pregnant and had a child since they've had TM? Was your pregnancy normal? Did you have any times where the TM got worse? I have a pretty mild case and am contemplating 1 more child. Thanks for all your help! Jill http://www.greatamericanbeanbag.comwww.greatamericanbeanbag.com Jim Lubin [EMAIL PROTECTED] http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] TM question
The AFO blocks the escape of moisture and heat - the result is warm, moist skin - enough to delight any fungus or yeast. I wear a knee high terry stocking every day. Still, get her to a doctor for a Rx. Alton, a walking fungus farm
Re: [TMIC] thanks for rollator suggestions!
Heather, Actually, I'm more confused than before, LOL. How do you engage the parking brake? Isn't it with grips on the handles? Kevin Heather Pieter wrote: Oh Dear, I guess I have mislead you Kevin. I do not have 'hand brakes'. I guess mine are just parking brakes. I hope this had cleared up my information to you. Heather in Calgary - Original Message - *From:* Butcher, Bernie [SFS] mailto:[EMAIL PROTECTED] *To:* Kevin Wolfthal mailto:[EMAIL PROTECTED] ; Heather Pieter mailto:[EMAIL PROTECTED] ; tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Sent:* Monday, April 16, 2007 6:03 AM *Subject:* RE: [TMIC] thanks for rollator suggestions! My rollator has individual brakes upon squeezing, the problem is, when I sit (on a chair) my rollator rollates away from me. no parking brake. It would also be nice to have a parking brake so I could use the rollator like a regular walker when I want to. */BERNARD BUTCHER/* *From:* Kevin Wolfthal [mailto:[EMAIL PROTECTED] *Sent:* Sunday, April 15, 2007 6:35 PM *To:* Heather Pieter; tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Subject:* Re: [TMIC] thanks for rollator suggestions! Heather, I wish that I would be able to engage both brakes with one hand, so I may have to re-think the Hugo. I'm pretty sure there are such rollators. I'm glad yours has helped you and your Mom. Take care, Kevin Heather Pieter wrote: Kevin, My walker is not called a Hugo, can't remember the name right now but looks much like the Hugo. My brakes can be engaged one brake at a time. So you can hook your cane onto the handle if need be and do one brake at a time. My mother with diabetic neuropathy uses her walker 'all the time' in her home and out. She just does not walk without it at all. My sister with MS uses hers when need be and I use mine when shopping alone or going for a walk. I don't need mine in the house just yet but perhaps in a few years I might. Hope you enjoy yours. Heather in Calgary - Original Message - *From:* Kevin Wolfthal mailto:[EMAIL PROTECTED] *To:* [EMAIL PROTECTED] mailto:[EMAIL PROTECTED] ; Tmic-list@eskimo.com mailto:Tmic-list@eskimo.com *Sent:* Sunday, April 15, 2007 3:01 AM *Subject:* Re: [TMIC] thanks for rollator suggestions! Hi again, One more question, can the brakes be operated with either hand, or do you have to press them both together. I may use it sometimes with a cane in one hand. Thanks, Kevin Candis Kalley wrote: I think so. I can lift at max 10# or so and I lift my Hugo into my SUV. On Hugo, you lift the seat up and there is a strap that you pull and the Hugo folds right up. I usually have to study myself against the back of the car to lift but like I said I am limited on my lifting. I live by myself so I'm very in independant and manage just fine. The only times I've had problems is when someone tries to help. It throws my rhythm off of lifting and turning to get Hugo into the car. You will always have a seat available with Hugo plus the added support to walk and carry things. I have carried a whole car load of groceries on Hugo. 2 bags on each handle and several on the seat. Hugo also has great side and back bags. I always keep an umbrella in the back pack plus a folding cane so that I can use the cane when I go on the airplane because the airlines put Hugo in the cargo hold. Also, when you go thru the checker, security will take Hugo thru while you have to go thru walking - so I've found the folding cane helpful in those instances. There are some benefits to being handicap - at the airlines the lines are shorter. In the front of the back pack are several compartments for pens, small pads and the such. Other models I looked at charged extra for the back pack (bag). I have also used Hugo to carry heavy boxes when I go to the post office. Larger boxes fit right across the handles and you can still use the handles. Hugo also has helped carry things out to curbside for trash pickup, carry the laundry basket and all kinds of uses. Hugo is a great helper. Hope you enjoy. Candy K. - Original Message - *From:* Kevin Wolfthal mailto:[EMAIL PROTECTED] *To: [EMAIL PROTECTED]
Re: [TMIC] thanks for rollator suggestions!
Gunny, Thanks for the suggestion. Kevin Gunny wrote: Kevin: Your feet are not supposed to be pointed straight out when you walk anyway. They should be from a 5 to 15 degree outward point from the ankle. Try to train yourself to walk this way and your joints wont pay for it. Only models walk with thier feet straight out, and that's for runway showings, plus, they put one foot in front of the other, directly in front which is not correct, just for show. Your ankles give out because your Peroneal muscle is weak. This muscle is located in front of your Gastrox, directly behind the Tibia, which is the shin bone. The Peroneal muscle is the one that locks the ankle in place. There is an exercise to strengthen that muscle but you need one of the rubber bands I use to accomplish that. It's a simple exercise and it works. I can jump in the air, not high mind you, and come down landing on the outside of my weak foot, the right one, and not break bones or unlock the ankle. Thinks about it. Gunny -Original Message- From: Kevin Wolfthal Sent: Apr 15, 2007 6:30 PM To: [EMAIL PROTECTED], Tmic-list@eskimo.com Subject: Re: [TMIC] thanks for rollator suggestions! Candis wrote: Kevin, I'm not sure why you would want to use a cane with the Hugo. Candy, I can explain this. I have found that even when I walk with a shopping cart, my feet tend to hit the back wheels of the cart. This is because I walk with my feet turned out because of my poor balance and my ankles tendency to give out. It is my way of compensating for the bad wiring in my spine that TM has caused. So by holding a shopping cart with my left hand, and a cane with my right hand, my feet don't bang into the back wheels. Now, I have been told by a neurologist that if I continue to walk with my feet turned out, I will wear out my knees and hips prematurely, but what is my alternative, walking with my feet straight, losing my balance and falling down. Maybe the rollator will allow me to walk with my feet straight and not use the cane, and not worry about falling. I have had years of physical therapy, but my ankles still want to 'give out'. So we all compensate in our own ways I guess. Take care, Kevin Candis Kalley wrote: Kevin and Nataline Plus Anyone else looking at the Hugo or rollator I love the Hugo. Unless you need it delivered, you will find better prices at Walmart Super Store or Sam's club - $110 to $115. I have used my Hugo to walk around in the yard. The larger wheels allow this. There are times that I have had to lift it to get out of a big hole covered by grass but other wise it is very handy. I keep my Hugo in my SUV so that it is always on the outside of the house. I have 3 steps into my house and as yet have not had a ramp installed and while I probably could lift it up those 3 steps I try not to take too many risks. Inside my house, I use 3 rolling office chairs. I am able to take several steps - at most 10 feet - unaided but I really have to concentrate on where I am going and take every brain cell to accomplish this. I found this out the hard way - no multi tasking in thinking and concentrating because I fell and did something to my little toe. It then took another 3 falls to figure out that the pain was making my legs give out. This wiring in the spine is crazy! After 16 months still learning what is what and still there are differences day by day. Anyway, back to the Hugo and rolling office chairs. Other than the brakes, I find the rolling office chairs easier in the house because the handles on the Hugo wouldn't allow me to get close to cabinets and such. Since I'm short - 5'1 - I have short arms and the Hugo in the house made it even more difficult to try to cook and work at cabinets. At one time I kept a regular rolling 4 wheel walker in the house and the Hugo in the SUV. Having the same difficulties, and having a friend of a friend worse off financially, I gave the 4 wheel walker to her. After my fall, I decided that I did need something in the house to help carry and sit so I started using my rolling office chair and that's when I found that they work in the house. I have 3 rolling office chairs. They are narrower than the Hugo and they make tighter turns. Therefore, I find the rolling office chair better in the house. With the rolling office chairs, I sit higher and can do a little better with regular cabinet heights and get closer. I also use the rolling office chairs just like my Hugo - carry things on the seat and push the office chiar from the back support which I have set so that it doesn't give. I also use the rolling
