Re: [TMIC] Spasticity
I don't believe that I have had Spasticity. I would have one spasms here or there, but not a lot at one time. What I have found to help with stiffness in my legs is to be laying down, like a bed and have a person stand at the end of the bed. That person but your heal their left hand and pull really hard slowly while they push really hard slowly with their right hand. Your legs may spasms, but won't be bad the rest of the day. This exercise was showed to us, by one of my PT. Billy would do this exercise every morning at 5:00 am before going to work. About five hours later, I would get up and I could tell that I could walk better, than days we didn't stretch out my legs. Todd in CC, TX [EMAIL PROTECTED] wrote: I have been taking Zanaflex for the spasticity in my legs but it have found it doesn't help. Does anyone have any exercises to alleviate the spasticity/stiffiness in the legs? ** See what's new at http://www.aol.com
[TMIC] Thanks!
Thanks Jude... and the other folks who have welcomed me into this community. I have been lurking and learning about how to cope with TM since July and I have to say you are an amazing group of people. I don't have much wisdom to offer (okay, I did email Frank about Hen3ry and Tom Lehrer as my husbands a fan and has the complete collection) but that's about it. and I haven't tipped over backwards in a wheelchair yet but if my sense of balance takes one more hit I'm gonna need a cane to avoid embarrassing encounters with lampposts and local officers (this college town has a real reputation for being a party school) I see my neuro Oct 1 and am trying to think of all the questions I could possibly write down to ask him about meds, treatments, recovery etc. Anybody have suggestions for my list? Mindy the artisan
[TMIC] Provigil
Candy, Why does your doctor recommend Provigil? I once complained to the neuro about being so tired all the time. She thought Provigil would help. It didn't. I think that the fatigue is part of our neurological disease, I can't imagine why Provigil would help. It didn't help me and I didn't like the side effects. My daughter takes it and likes it for Attention Deficit. Incidentally, imagine a big meeting with many executives in a conference room with managers around the table making their presentations. One of them, a dear friend of mine, would fall asleep at the table. It was funny, but it wasn't, and very embarrassing. It took a long time to figure out he wasn't partying all night, he had a sleeping disorder for which Provigil among other things could have been appropriate. Just my experience. Perhaps someone else would advise you to try it. Take care Candy, R
Re: [TMIC] Spasticity
Hi Todd, My PT also did a similar exercise with my legs. We would do it both before my PT workout, and after. I really think it helped. She also told me, that often it is helpful to try to break up the spasm at the point of origin, in order to keep it from spreading. Whenever I would start to get hit (Mine were tonic spasms.) my daughter would lay me down on the floor and start massaging and pulling my feet, really hard. Often, that would keept me from getting hit with the big ones. The big ones were nasty, as not only was there a lot of pain, but also posturing which often caused me to fall. Grace
Re: [TMIC] my introduction to the group
Hi Mindy, I don't post often and I should be more active but I get caught up in other things and by the time I get to email, I'm overwhelmed. Anyhow, I got ADEM in 01 and it paralyzed me at T7. You are fortunate but still have the after affects as everyone else does. Lyrica is fairly new and proves to be good for neuropathic pain. I love it and used to be on neurontin. I see a pain specialist and if you are having any sort of pain issues, it might be a good idea. That is what they are trained for. Welcome, Stacy - Original Message - From: Lawrence Kingmailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Cc: Lawrence Kingmailto:[EMAIL PROTECTED] Sent: Tuesday, September 11, 2007 11:14 PM Subject: [TMIC] my introduction to the group Hello everyone, I guess I’m ready to introduce myself. I just got the results of my 3rd MRI and the evidence clearly supports my June 25th 2007 TM diagnosis. My attack happened around the 7th of March 2007. It started with numbness and tingling in my legs for a few of days with the sense that a couple of times I thought my legs might give out on me. I blamed it all on the fact that my time spent on the computer had quadrupled the same week and because I had a lumpectomy (not cancerous!) scheduled on the 15th of March. Began to feel a tingling sensation when I tipped my head down a few days before surgery and blamed it on the lack of sleep and the stress and fear of surgery. Didn’t notice much beyond the pain and bruising of having a ¼ cup of breast tissue scooped out for the next week but when that pain subsided I felt a continuous sense of shivering or buzzing and an electrical shock down to my finger tips and toes every time I tipped my head down with excessive tingling down my left arm. We now know the name for this symptom is called Lhermitte’s sign. Did not get to see a Neurologist until May1. At first the surgery department was blamed for giving me a “stinger” neck injury while under anesthesia. Then an MRI revealed a mass or lesion at the c4/c5 level, MS, tumors and TM were all considered. A lumbar puncture did not show evidence of a tumor, cancerous or otherwise but proteins associated with an attack of the myelin sheath were found. MS was dismissed because of my age (46) and absolute absence of lesions in my brain. My slow onset, extenuating circumstances and lack of dramatic symptoms made for a drawn-out diagnosis. I’ve never had walking difficulties nor many of the other issues TM survivors face and after reading these posts for the last few months I think I have no right to complain even though electrocuting yourself every time you tip your head down is no fun, found Lyrica on my own and asked my doctor for it but I’m wondering if there is something better I’d also love to hear if anyone else has had Lhermittes sign and if their symptoms improved over time? Mindy the Artisan Mindy King www.chairweaver.com www.mirthworkscreations.com
Re: [TMIC] my introduction to the group
HI Mindy, I haven't posted lately myself and I'm in about the same boat as you are. I have had Lhermette's sign on a few occasions in my 2 years of TM. I actually had it before then and blew it off because it went away. I have not had ANY symptoms in a while thank God. I just wanted to get back to you and let you know that is a symptom of mine that I've had more than once. Usually it's worse when I am stressed or sick etc. Hope that helps Jill Stacy Harim [EMAIL PROTECTED] wrote: Hi Mindy, I don't post often and I should be more active but I get caught up in other things and by the time I get to email, I'm overwhelmed. Anyhow, I got ADEM in 01 and it paralyzed me at T7. You are fortunate but still have the after affects as everyone else does. Lyrica is fairly new and proves to be good for neuropathic pain. I love it and used to be on neurontin. I see a pain specialist and if you are having any sort of pain issues, it might be a good idea. That is what they are trained for. Welcome, Stacy - Original Message - From: Lawrence King To: tmic-list@eskimo.com Cc: Lawrence King Sent: Tuesday, September 11, 2007 11:14 PM Subject: [TMIC] my introduction to the group Hello everyone, I guess Im ready to introduce myself. I just got the results of my 3rd MRI and the evidence clearly supports my June 25th 2007 TM diagnosis. My attack happened around the 7th of March 2007. It started with numbness and tingling in my legs for a few of days with the sense that a couple of times I thought my legs might give out on me. I blamed it all on the fact that my time spent on the computer had quadrupled the same week and because I had a lumpectomy (not cancerous!) scheduled on the 15th of March. Began to feel a tingling sensation when I tipped my head down a few days before surgery and blamed it on the lack of sleep and the stress and fear of surgery. Didnt notice much beyond the pain and bruising of having a ¼ cup of breast tissue scooped out for the next week but when that pain subsided I felt a continuous sense of shivering or buzzing and an electrical shock down to my finger tips and toes every time I tipped my head down with excessive tingling down my left arm. We now know the name for this symptom is called Lhermittes sign. Did not get to see a Neurologist until May1. At first the surgery department was blamed for giving me a stinger neck injury while under anesthesia. Then an MRI revealed a mass or lesion at the c4/c5 level, MS, tumors and TM were all considered. A lumbar puncture did not show evidence of a tumor, cancerous or otherwise but proteins associated with an attack of the myelin sheath were found. MS was dismissed because of my age (46) and absolute absence of lesions in my brain. My slow onset, extenuating circumstances and lack of dramatic symptoms made for a drawn-out diagnosis. Ive never had walking difficulties nor many of the other issues TM survivors face and after reading these posts for the last few months I think I have no right to complain even though electrocuting yourself every time you tip your head down is no fun, found Lyrica on my own and asked my doctor for it but Im wondering if there is something better Id also love to hear if anyone else has had Lhermittes sign and if their symptoms improved over time? Mindy the Artisan Mindy King www.chairweaver.com www.mirthworkscreations.com www.greatamericanbeanbag.com
