Re: [TMIC] A thought-OT
Ya know why men don't marry sheep, because they flatulate in bed, then try to direct the smell out from under the sheets- or is that why sheep don't marry men?? pH
Re: [TMIC] another story
I have hand controls in my van although I do not use them. Tobe, I live in Woodbury , Long Island and use a company called Accessible Vans and Mobility in Bethpage (J. bussani, Inc.) tel # 516-938-5207. They would be able to tell you where to go in Brooklyn. I think the cost was about $850. When I purchased the van which is wheelchair accessible Chyrsler gave me a rebate of $1000. Take care, Rosalie In a message dated 11/22/2008 12:45:01 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Tobe, Did you know that you can have hand controls put on your car? It would definitely be a wild ride if I ever tried itI also can't feel my feet nor do I know where they are unless I'm looking right at them. One of the reasons that I now hate the dark. I certainly feel lots of pain but that's about it. I had hand controls put on my car and it sure made my life so much better. In some states you can get some help paying for it. Tho I was not able to get it here in Virginia. Please let me know if there is anything I can do to help you with this? I think if you type in hand controls for the handicapped you might find a list in New York. If you're interested let me know and I'll help you find some info on it. Have a great Thanksgiving Trudy On Fri, Nov 21, 2008 at 9:30 AM, T Kanon [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) wrote: Hi Everyone, I have another story about how a friend interpreted our illness. Unfortunately I can no longer drive due to TM. I can't feel my feet. So I applied for and received a special permit that allows me to put up to ten license numbers on it. I listed several friends who take me places and they can park at meters without paying or on alternate side days. One friend asked me if she could borrow it and not knowing how to say no I lent it to her. She continued to ask me for it and I said I can't. I could lose the priviledge and it is not meant to lend out. She asked me whom did I know to get a permit like that and passed the word around that I was selfish. Lately I find people very annoying Tobe Brooklyn NY:O) **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
[TMIC] hand controls
Dear Group, I want to thank everyone who suggested I use hand controls. I am very embarrassed to say that I did try them soon after I came home from the hospital, thinking the independence would be great for me. Unfortunately I am too uncoordinated.. even though I was telling my brain my hands were now in control, the message would go to my feet. I couldn't figure it out! I was actually in a minor accident so I decided to forget about driving and concentrate on walking!!! The roads are alot safer without me on them. Always with love and appreciation, Tobe Brooklyn NY :O)
Re: [TMIC] Caregivers and life
In response to: Jeanne: I see why he not only loves you but likes you too. Just by communicating via a few e-mail these past weeks, I can see you love life and have a wonderful sense of humor. Too bad we all live so far apart and too bad it took TM for us to meet. Have a great and Happy Thanksgiving. Patti in Wisconsin Yes, Patti, it is too bad we all live so far apart. I've just started 'facebook' and have been able to 'meet' some of you with our posted pictures. Now when we 'chat' on our TMIC, I can see who I'm talking to. It makes it more personal. I hope you have a wonderful holiday, also!!! Jeanne in Dayton
[TMIC] Spinal Stimulator
Sandy and Terry, I'm finally getting back with you on this!!! Am I slow, or what?? I just had my first visit for the TM with a new provider and was I ever happy with her! Instead of asking me what I wanted to do, she jumped right in there with both feet and gave me all sorts of recommendations! Plus I got my meds right away instead of having to wait 6 weeks! The meds that I have been on for a long time with the TM is: Lexapro 10mg, 1 every AM for depression. That has just recently been changed to Cymbalta 50mg, 1 every AM. She felt it was worth changing because the Cymbals is supposed to also help with pain. Clonazepam mug, an anti-seizure med sometimes used for RILLS. 1 every night before sleep for Restless Leg Syndrome and spasms. It does help and it also has been great for helping me get a good night's sleep. Lyrical 75mg, 1 tab AM, noon, and before bed. This helps with the neuropathy and horrible pain which is a big problem with the 'band' around my chest at the T4 area where the lesion is, on down to my toes. It doesn't take it away completely but does take the edge off of it. She added Ramada Hal (Untraced) 50mg 1-2 tabs up to 3 times a day for the pain and by starting with 1 tab in the AM, noon, and before bed. It really does seem to help. She said to try it different ways and I don't want to use any more than I need so I'm starting out low. Today I'm trying only AM and 1 before sleep and I can already tell it's too long between the two so that noon one did help. Torpor XL 25mg, 1 every other night for heart palpitations. I was taking this every night but my BP and pulse were way too low so she wants to see if taking them every other night will help with that and also help alleviate the fatigue. I also have to take Lamaism 250mg, 1 every day for nail fungus. Shortly after I got TM, I lost three toenails to fungus and now have problems with two more. It could have been a coincidence but the fungus has gotten into my system now and we with TM do not need something like that floating around our systems waiting for another auto-immune problem. It makes me so sick with headaches and nausea that I am taking it every other day and it is a bit easier to tolerate especially since it has to be taken for so long. Sandy, my quality of life was really suffering from the increased pain so I'm glad for the addition of the Ramada. I already have to watch the liver function because of the Lamaism and that is one of the contraindications so if it becomes an issue, we'll have to make a change again. Sorry for taking up so much of your time but I am hoping it may help you, Terry, in some way... Hugs..jEmoticon1.gif
Re: [TMIC] Anybody else been there?
Jeanne, I took a lot of convincing to take the anti depressants and only did because I've known my doctor for many many years. I'm so pleased he convinced me, they have been wonderful for me and since TMer's have the highest percentage of suicides (apparently) we should all be on them. I would suspect that most of our carer's should be too :-)). Just digressing a little now while I'm thinking of it. After all the discussion we've had lately about carers, I've been thinking back to when that was my job. I loved it but with many apologies to those with MS, the patients I found most difficult were those with MS. That could be because I didn't have any with TM! The point of telling you this is that we can make our lives and our carers much easier by letting go of very many things. Because we get frustrated that we can't do things and others aren't doing them just the way we want and when we want is no reason to take it out on everybody. Set yourself new priorities and remember, the world still turns no matter if you do things or don't and how those things are done if somebody else does them. Another 2c worth from me Gilly - Original Message - From: jrushton To: Gillian Clark ; TMIC Sent: Sunday, November 23, 2008 10:48 AM Subject: Re: [TMIC] Anybody else been there? Just a note on the antidepressants... When I was in ICU and getting ready to be discharged the neurologist insisted that I do not be without them. He said people with issues like we have really do need them and since then, I can understand it. It isn't something to be ashamed of and there are so many different kinds now that if one doesn't seem to work, you can try another one. Growing up in the 50's and 60's, if you went to your doctor and told him/her (mostly him at that time) that you were depressed he would tell you it was all in your mind and if a person insisted on getting something you would be given Valium. Thank God they have finally come so far! They have also helped women with PMS big time. j
