RE: [TMIC] RE: tmic-digest Digest V2009 #20
My daughter has had the treatment about 3 times now, at our home, via IGg America. The nurse comes straight to the home, stays the entire day for the treatment and then leaves and comes back the next day for however many days the treatment is for. My daughter had great results from this. Dr. Kerr is the one that suggested it. Hershey Medical had told us that it was a one and done type of treatment. Dr. Kerr disagreed and said that she would be able to have several different treatments. She gained more movement each time she had the treatment, although she ended up with ASeptic Meningitis after each treatment. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. From: marieke dufresne [mailto:marieke...@hotmail.com] Sent: Sunday, January 11, 2009 5:44 PM To: tmic-list@eskimo.com Subject: [TMIC] RE: tmic-digest Digest V2009 #20 RE: IVIG, I had it after the first 3 weeks of TM. I had it every day for 5 days. There is no reason to have it more often UNLESS you have a recurring autoimmune disorder, ie: if your TM is recurring. No point if you had ONE attack many years ago, it would not change anything now. I got some movement back following the IVIG, but no one knows if it was due to that or the steroids or Marieke RN TM @T1 since March 2004 Date: Sun, 11 Jan 2009 14:28:43 -0800 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #20 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 20 Today's Topics: [TMIC] Washington Post article/Intra [ Trudy Ogilvie mother...@gmail.co ] RE: [TMIC] Washington Post article/I [ Gerry Surette suret...@sympatico ] --Forwarded Message Attachment-- Date: Sun, 11 Jan 2009 13:16:24 -0500 From: mother...@gmail.com To: snow121...@hotmail.com CC: tmic-list@eskimo.com Subject: [TMIC] Washington Post article/Intravenous immune globulin Did anyone get a chance to read the Washington Post article I sent out. A young teenager was given intravenous immune globulin. at Children's hospital after he was diagnosed with Transverse Myelitis, when the steroids didn't work. Two weeks later he walked out and has made the basketball team at his college. I asked my neuro about this and she said that it was too late for me, but if I insisted she would help me work with Medicare (they really give you a hard time!) to give it a try. Tho she said I would have to have these infusions every 8 weeks or so for the rest of my life? She did say that she doubted very much that it would help at all. Has anyone here ever had these infusions...?? Carol I was wondering if you could talk to your neuro? Just a thought! Also I use the same quote as you but it's only on my Hotmail account.. It was nice to see it again! Trudy --Forwarded Message Attachment-- Date: Sun, 11 Jan 2009 15:47:55 -0500 From: suret...@sympatico.ca To: mother...@gmail.com CC: tmic-list@eskimo.com Subject: RE: [TMIC] Washington Post article/Intravenous immune globulin yes I have had that treatment twice; having had ItP this procedure helped raise my white blood cell count. It didn't help me otherwise; the treament last 4 to 5 hours intravenously from 3 to 5 days at a strech. If you go to the hospital to have the trreatments my hemotologist recemmended I have someone with me on my way home. Scince the bag is keept cold prior to use they usually cover you up with a blanket. otherwise I had no side effects. the nurse who gave me the treatment was gorgeous so the day went by fast From: Trudy Ogilvie mother...@gmail.com To: C E snow121...@hotmail.com CC: tmic-list@eskimo.com Subject: [TMIC] Washington Post article/Intravenous immune globulin Date: Sun, 11 Jan 2009 13:16:24 -0500 Did anyone get a chance to read the Washington Post article I sent out. A young teenager was given intravenous immune globulin. at Children's hospital after he was diagnosed with Transverse Myelitis, when the steroids didn't work. Two weeks later he walked out and has made the basketball team at his college. I asked my neuro about this and she said that it was too late for me, but if I insisted she would help me work with Medicare (they really give you a hard time!) to give it a try. Tho she said I would have to have these infusions every 8 weeks or so for the rest of my life? She did say that she doubted very much that it would help at all. Has anyone here ever had these infusions...??
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[TMIC] THIS WEEK IS CHRISTIAN WEEK!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! OT OT!!!!
DEAR FRIENDS, I DO NOT KNOW IF THE WHOLE US HAS CHRISTIAN WEEK. ITS REALLY LOVELY.YOU GO TO OTHER CHURCHES AND SEE THEIR SERVICES. THE MONSENIORS AND THE HIGHER UPS THEY MEET, THEY TALK ABOUT HOW WE CAN ALL WORK TOGETHER AND HELP EACH OTHER IN WHAT WAYS ARE NEEDED THE MOST. HERE ITS A TIME FOR MORE PRAYERS AND JUST BE KIND AND CONSIDERATE OF ALL RELIGIONS. I HAVE BEEN TO MANY OTHER CHURCHES THAN JUST CATHOLIC ONES. I WAS RAISED CATHOLIC BUT I DO NOT AGREE WITH EVERYTHING THEY DO .I STILL GO TO CATHOLIC CHURCH WHEN I WANT. YOU DO NOT HAVE TO BE A GOOD PERSON JUST BECAUSE YOU GO TO CHURCH. WE HAVE A LOVELY CHAPEL HERE THAT I LOVE TO GO TO, IT HAS ONLY FOUR PEWS AND SO MANY GORGEOUS PICTURES PAINTED ON THE WALLS. THEY HAVE ALL DIFFERENT CANDLES YOU CAN BUY AND SO MANY YOU CAN LIGHT. I LOVE MY CHAPEL BETTER THAN GOING TO CHURCH. I KNOW THAT SOUNDS STRANGE BUT I FEEL I GET MORE FROM PRAYERS IN THE CHAPEL AND LIGHT CANDLES FOR SO MANY WHO NEED THEM. DAN HAS MADE ME A TINY SPOT IN OUR HOME WITH CANDLES PICTURES OF MARY, JESUS THEY ARE SMALL STATUES, PRAYER BEADS FROM LOURDES AND THINGS FROM MEGIGORIA. I BELIEVE IN THE LORDES WATER. I USE IT AND GIVE IT TO PEOPLE WHO NEED IT. THIS IS A SPECIAL WEEK HERE. I WISH YOU ALL THE BEST IN THE NEW YEAR.LETS TRY TO THINK OF OTHERS WHICH I KNOW THIS SITE DOES. GOD BLESS YOU ALL MY FRIENDS OF ALL FAITHS!! SINCERELY TIAD PAM! **New year...new news. Be the first to know what is making headlines. (http://news.aol.com?ncid=emlcntusnews0002)
RE: [TMIC] IVIG
You are right about the biopsy, ones having TM doctors like to know if they can find out what caused it. But whatever the cause was, damage is done and that knowledge brings you noghing any further. The IVIG, as I understand, having solumedrol or stuff like that by IV, has beter results as oral medication. Most of the time you get a high dose for three or five days and in some cases medication to build it off. It is bad stuff, but most of us had a good benefit. Wim from Holland. Date: Sun, 11 Jan 2009 17:57:18 -0500 From: wolft...@optonline.net To: marieke...@hotmail.com; tmic-list@eskimo.com Subject: [TMIC] IVIG Does IVIG reduce inflammation? I think a doctor wants to try it on me, but they want me to have a nerve biopsy first and I don't want to because I've read that a nerve biopsy can cause permanent numbness in the biopsy site, and I don't want or need any more numbness. However, I may get desperate enough to do this because I don't want to live this way if there's a chance of improvement. Kevin marieke dufresne wrote: RE: IVIG, I had it after the first 3 weeks of TM. I had it every day for 5 days. There is no reason to have it more often UNLESS you have a recurring autoimmune disorder, ie: if your TM is recurring. No point if you had ONE attack many years ago, it would not change anything now. I got some movement back following the IVIG, but no one knows if it was due to that or the steroids or Marieke RN TM @T1 since March 2004 Date: Sun, 11 Jan 2009 14:28:43 -0800 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #20 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 20Today's Topics: [TMIC] Washington Post article/Intra [ Trudy Ogilvie mother...@gmail.co ] RE: [TMIC] Washington Post article/I [ Gerry Surette suret...@sympatico ] --Forwarded Message Attachment-- Date: Sun, 11 Jan 2009 13:16:24 -0500 From: mother...@gmail.com To: snow121...@hotmail.com CC: tmic-list@eskimo.com Subject: [TMIC] Washington Post article/Intravenous immune globulin Did anyone get a chance to read the Washington Post article I sent out. A young teenager was given intravenous immune globulin. at Children's hospital after he was diagnosed with Transverse Myelitis, when the steroids didn't work. Two weeks later he walked out and has made the basketball team at his college. I asked my neuro about this and she said that it was too late for me, but if I insisted she would help me work with Medicare (they really give you a hard time!) to give it a try. Tho she said I would have to have these infusions every 8 weeks or so for the rest of my life? She did say that she doubted very much that it would help at all. Has anyone here ever had these infusions...?? Carol I was wondering if you could talk to your neuro? Just a thought! Also I use the same quote as you but it's only on my Hotmail account.. It was nice to see it again! Trudy --Forwarded Message Attachment-- Date: Sun, 11 Jan 2009 15:47:55 -0500 From: suret...@sympatico.ca To: mother...@gmail.com CC: tmic-list@eskimo.com Subject: RE: [TMIC] Washington Post article/Intravenous immune globulin yes I have had that treatment twice; having had ItP this procedure helped raise my white blood cell count. It didn't help me otherwise; the treament last 4 to 5 hours intravenously from 3 to 5 days at a strech. If you go to the hospital to have the trreatments my hemotologist recemmended I have someone with me on my way home. Scince the bag is keept cold prior to use they usually cover you up with a blanket. otherwise I had no side effects. the nurse who gave me the treatment was gorgeous so the day went by fast From: Trudy Ogilvie mother...@gmail.com To: C E snow121...@hotmail.com CC: tmic-list@eskimo.com Subject: [TMIC] Washington Post article/Intravenous immune globulin Date: Sun, 11 Jan 2009 13:16:24 -0500Did anyone get a chance to read the Washington Post article I sent out. A young teenager was given intravenous immune globulin. at Children's hospital after he was diagnosed with Transverse Myelitis, when the steroids didn't work. Two weeks later he walked out and has made the basketball team at his college. I asked my neuro about this and she said that it was too late for me, but if I insisted she would help me work with Medicare (they really give you a hard time!) to give it a try. Tho she said I would have to have these infusions every 8 weeks or so for the rest of my life? She did say that she doubted very much that it would help at all. Has anyone here ever had these infusions...?? Carol I was wondering if you could talk to your neuro? Just a thought! Also I use the same quote as you but it's only on my Hotmail account.. It
