You are right about the biopsy, ones having TM doctors like to know if they can
find out what caused it. But whatever the cause was, damage is done and that
knowledge brings you noghing any further.
The IVIG, as I understand, having solumedrol or stuff like that by IV, has
beter results as oral medication. Most of the time you get a high dose for
three or five days and in some cases medication to build it off. It is bad
stuff, but most of us had a good benefit.
Wim from Holland.> Date: Sun, 11 Jan 2009 17:57:18 -0500> From:
wolft...@optonline.net> To: marieke...@hotmail.com; tmic-list@eskimo.com>
Subject: [TMIC] IVIG> > > Does IVIG reduce inflammation? I think a doctor wants
to try it on me, > but they> want me to have a nerve biopsy first and I don't
want to because I've > read that> a nerve biopsy can cause permanent numbness
in the biopsy site, and I don't> want or need any more numbness. However, I may
get desperate enough> to do this because I don't want to live this way if
there's a chance of > improvement.> > Kevin> > > > > > > marieke dufresne
wrote:> > RE: IVIG, I had it after the first 3 weeks of TM. I had it every day
> > for 5 days. There is no reason to have it more often UNLESS you have a > >
recurring autoimmune disorder, ie: if your TM is recurring. No point > > if you
had ONE attack many years ago, it would not change anything now.> > I got some
movement back following the IVIG, but no one knows if it > > was due to that or
the steroids or....> > Marieke RN> > TM @T1 since March 2004> >> >
------------------------------------------------------------------------> >
Date: Sun, 11 Jan 2009 14:28:43 -0800> > From: tmic-digest-requ...@eskimo.com>
> Subject: tmic-digest Digest V2009 #20> > To: tmic-dig...@eskimo.com> >> >> >>
> --Forwarded Message Attachment--> >> > tmic-digest Digest Volume 2009 : Issue
20> > > > Today's Topics:> > [TMIC] Washington Post article/Intra [ "Trudy
Ogilvie" <mother...@gmail.co ]> > RE: [TMIC] Washington Post article/I [ "Gerry
Surette" <suret...@sympatico ]> > > >> >> > --Forwarded Message Attachment--> >
Date: Sun, 11 Jan 2009 13:16:24 -0500> > From: mother...@gmail.com> > To:
snow121...@hotmail.com> > CC: tmic-list@eskimo.com> > Subject: [TMIC]
Washington Post article/Intravenous immune globulin> >> > Did anyone get a
chance to read the Washington Post article I sent > > out. A young teenager was
given intravenous immune globulin." at > > Children's hospital after he was
diagnosed with Transverse Myelitis, > > when the steroids didn't work. Two
weeks later he walked out and has > > made the basketball team at his college.
I asked my neuro about this > > and she said that it was too late for me, but
if I insisted she would > > help me work with Medicare (they really give you a
hard time!) to give > > it a try. Tho she said I would have to have these
infusions every 8 > > weeks or so for the rest of my life? She did say that she
doubted > > very much that it would help at all.....> > Has anyone here ever
had these infusions...??> >> > Carol I was wondering if you could talk to your
neuro? Just a thought!> >> > Also I use the same quote as you but it's only on
my Hotmail account.. > > It was nice to see it again!> > Trudy> >> >> >> >> >
--Forwarded Message Attachment--> > Date: Sun, 11 Jan 2009 15:47:55 -0500> >
From: suret...@sympatico.ca> > To: mother...@gmail.com> > CC:
tmic-list@eskimo.com> > Subject: RE: [TMIC] Washington Post article/Intravenous
immune globulin> >> > yes I have had that treatment twice; having had ItP this
procedure helped > > raise my white blood cell count. It didn't help me
otherwise; the treament > > last 4 to 5 hours intravenously from 3 to 5 days at
a strech. If you go to > > the hospital to have the trreatments my hemotologist
recemmended I have > > someone with me on my way home. Scince the "bag" is
keept cold prior to use > > they usually cover you up with a blanket. otherwise
I had no side effects. > > the nurse who gave me the treatment was gorgeous so
the day went by fast> > > > > > >From: "Trudy Ogilvie" <mother...@gmail.com>> >
>To: "C E" <snow121...@hotmail.com>> > >CC: tmic-list@eskimo.com> > >Subject:
[TMIC] Washington Post article/Intravenous immune globulin> > >Date: Sun, 11
Jan 2009 13:16:24 -0500> > >> > >Did anyone get a chance to read the Washington
Post article I sent out. A> > >young teenager was given intravenous immune
globulin." at Children's> > >hospital after he was diagnosed with Transverse
Myelitis, when the steroids> > >didn't work. Two weeks later he walked out and
has made the basketball team> > >at his college. I asked my neuro about this
and she said that it was too> > >late for me, but if I insisted she would help
me work with Medicare (they> > >really give you a hard time!) to give it a try.
Tho she said I would have > > >to> > >have these infusions every 8 weeks or so
for the rest of my life? She did> > >say that she doubted very much that it
would help at all..... Has anyone> > >here ever had these infusions...??> > >>
> >Carol I was wondering if you could talk to your neuro? Just a thought!> > >>
> >Also I use the same quote as you but it's only on my Hotmail account.. It> >
>was nice to see it again!> > >Trudy> > > >> >
------------------------------------------------------------------------>
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