My daughter has had the treatment about 3 times now, at our home, via IGg America. The nurse comes straight to the home, stays the entire day for the treatment and then leaves and comes back the next day for however many days the treatment is for. My daughter had great results from this. Dr. Kerr is the one that suggested it. Hershey Medical had told us that it was a "one and done" type of treatment. Dr. Kerr disagreed and said that she would be able to have several different treatments. She gained more movement each time she had the treatment, although she ended up with ASeptic Meningitis after each treatment. Tracey L. Black Certified Insurance Service Representative Hockley & O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717-334-3414
Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. ________________________________ From: marieke dufresne [mailto:marieke...@hotmail.com] Sent: Sunday, January 11, 2009 5:44 PM To: tmic-list@eskimo.com Subject: [TMIC] RE: tmic-digest Digest V2009 #20 RE: IVIG, I had it after the first 3 weeks of TM. I had it every day for 5 days. There is no reason to have it more often UNLESS you have a recurring autoimmune disorder, ie: if your TM is recurring. No point if you had ONE attack many years ago, it would not change anything now. I got some movement back following the IVIG, but no one knows if it was due to that or the steroids or.... Marieke RN TM @T1 since March 2004 ________________________________ Date: Sun, 11 Jan 2009 14:28:43 -0800 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #20 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 20 Today's Topics: [TMIC] Washington Post article/Intra [ "Trudy Ogilvie" <mother...@gmail.co ] RE: [TMIC] Washington Post article/I [ "Gerry Surette" <suret...@sympatico ] --Forwarded Message Attachment-- Date: Sun, 11 Jan 2009 13:16:24 -0500 From: mother...@gmail.com To: snow121...@hotmail.com CC: tmic-list@eskimo.com Subject: [TMIC] Washington Post article/Intravenous immune globulin Did anyone get a chance to read the Washington Post article I sent out. A young teenager was given intravenous immune globulin." at Children's hospital after he was diagnosed with Transverse Myelitis, when the steroids didn't work. Two weeks later he walked out and has made the basketball team at his college. I asked my neuro about this and she said that it was too late for me, but if I insisted she would help me work with Medicare (they really give you a hard time!) to give it a try. Tho she said I would have to have these infusions every 8 weeks or so for the rest of my life? She did say that she doubted very much that it would help at all..... Has anyone here ever had these infusions...?? Carol I was wondering if you could talk to your neuro? Just a thought! Also I use the same quote as you but it's only on my Hotmail account.. It was nice to see it again! Trudy --Forwarded Message Attachment-- Date: Sun, 11 Jan 2009 15:47:55 -0500 From: suret...@sympatico.ca To: mother...@gmail.com CC: tmic-list@eskimo.com Subject: RE: [TMIC] Washington Post article/Intravenous immune globulin yes I have had that treatment twice; having had ItP this procedure helped raise my white blood cell count. It didn't help me otherwise; the treament last 4 to 5 hours intravenously from 3 to 5 days at a strech. If you go to the hospital to have the trreatments my hemotologist recemmended I have someone with me on my way home. Scince the "bag" is keept cold prior to use they usually cover you up with a blanket. otherwise I had no side effects. the nurse who gave me the treatment was gorgeous so the day went by fast >From: "Trudy Ogilvie" <mother...@gmail.com> >To: "C E" <snow121...@hotmail.com> >CC: tmic-list@eskimo.com >Subject: [TMIC] Washington Post article/Intravenous immune globulin >Date: Sun, 11 Jan 2009 13:16:24 -0500 > >Did anyone get a chance to read the Washington Post article I sent out. A >young teenager was given intravenous immune globulin." at Children's >hospital after he was diagnosed with Transverse Myelitis, when the steroids >didn't work. Two weeks later he walked out and has made the basketball team >at his college. I asked my neuro about this and she said that it was too >late for me, but if I insisted she would help me work with Medicare (they >really give you a hard time!) to give it a try. Tho she said I would have >to >have these infusions every 8 weeks or so for the rest of my life? She did >say that she doubted very much that it would help at all..... Has anyone >here ever had these infusions...?? > >Carol I was wondering if you could talk to your neuro? Just a thought! > >Also I use the same quote as you but it's only on my Hotmail account.. It >was nice to see it again! >Trudy ________________________________
