[TMIC] Hi Everyone
How is Jude doing. I have'nt seen any postings for some reason or other. I had to subscribe again. I have been concerned about all.Jane in Splendora Tx **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
[TMIC] Trudy Ogilvie has sent you an ecard from AmericanGreetings.com
Trudy Ogilvie (mother...@gmail.com) has sent you an ecard. To view your ecard, choose from the options below. Click on the following link: http://www.americangreetings.com/ecards/view.pd?i=486931093m=3275rr=ysource=ag999 For your security, if you'd prefer not to click on links within this email: 1. Type http://www.americangreetings.com/?source=ag999rr=y into your web browser 2. Locate the ecard pickup link in the upper right-hand corner of the page 3. Enter the following code -- 4869310933275 Please do not reply to this email. To help resolve your issue or question, go to: http://www.americangreetings.com/help/index.pd?source=ag999 We have an extensive help center that may answer your questions, or you can choose to email us from there. To read about email protection, type http://www.americangreetings.com/emailprotection into your web browser. Thank you! Your friends at AmericanGreetings.com
Re: [TMIC] Hi Everyone
Hi!I am Janice from Missouri.Been a 62- year old TM victim for 2 years and just venturing out on the computer to meet others with TM. Hope you are doing well. - Original Message - From: celr...@aol.com To: TMIC-LIST@eskimo.com Sent: Tuesday, March 17, 2009 8:27 AM Subject: [TMIC] Hi Everyone How is Jude doing. I have'nt seen any postings for some reason or other. I had to subscribe again. I have been concerned about all.Jane in Splendora Tx -- Feeling the pinch at the grocery store? Make dinner for $10 or less.
RE: [TMIC] Hi Everyone
Welcome to the group! I am Barney in NY, Long Island, 56. Tm since 2002, MS since 2008. I thought TM MS happened to only younger people (?) Barney From: Janice [mailto:jan...@centurytel.net] Sent: Tuesday, March 17, 2009 11:43 AM To: celr...@aol.com; TMIC-LIST@eskimo.com Subject: Re: [TMIC] Hi Everyone Hi!I am Janice from Missouri.Been a 62- year old TM victim for 2 years and just venturing out on the computer to meet others with TM. Hope you are doing well. - Original Message - From: celr...@aol.com To: TMIC-LIST@eskimo.com Sent: Tuesday, March 17, 2009 8:27 AM Subject: [TMIC] Hi Everyone How is Jude doing. I have'nt seen any postings for some reason or other. I had to subscribe again. I have been concerned about all. Jane in Splendora Tx Feeling the pinch at the grocery store? Make dinner for $10 or less http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001 .
RE: [TMIC] Hi Everyone
Hi Janice. Glad to meet you. I am Tami from Arkansas. I am 42 and have had TM for 1 ½ years. _ From: Janice [mailto:jan...@centurytel.net] Sent: Tuesday, March 17, 2009 10:43 AM To: celr...@aol.com; TMIC-LIST@eskimo.com Subject: Re: [TMIC] Hi Everyone Hi!I am Janice from Missouri.Been a 62- year old TM victim for 2 years and just venturing out on the computer to meet others with TM. Hope you are doing well. - Original Message - From: celr...@aol.com To: TMIC-LIST@eskimo.com Sent: Tuesday, March 17, 2009 8:27 AM Subject: [TMIC] Hi Everyone How is Jude doing. I have'nt seen any postings for some reason or other. I had to subscribe again. I have been concerned about all.Jane in Splendora Tx _ Feeling the pinch at the grocery store? Make dinner http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001 for $10 or less.
Re: [TMIC] Hi Everyone
Hi Janice! Welcome to the group... I am Trudy ... 62yrs. young! TM hit me in the middle of the night from hell... 2002. MS arrived in 2008... You will find a great group of people here and don't hesitate to ask any questions.. We've all been there. I live in Virginia. Tho I am a born and raised New Yorker! :) Again.. Welcome!Trudy On Tue, Mar 17, 2009 at 11:42 AM, Janice jan...@centurytel.net wrote: Hi!I am Janice from Missouri.Been a 62- year old TM victim for 2 years and just venturing out on the computer to meet others with TM. Hope you are doing well. - Original Message - *From:* celr...@aol.com *To:* TMIC-LIST@eskimo.com *Sent:* Tuesday, March 17, 2009 8:27 AM *Subject:* [TMIC] Hi Everyone How is Jude doing. I have'nt seen any postings for some reason or other. I had to subscribe again. I have been concerned about all.Jane in Splendora Tx -- Feeling the pinch at the grocery store? Make dinner for $10 or lesshttp://food.aol.com/frugal-feasts?ncid=emlcntusfood0001 .
[TMIC] Pain
I hate to keep bugging you all with questions, so I hope you don't mind and will take a minute to answer. Several of you have talked about the pain that you have, apparantly even after several years of TM. I am assuming we are all talking about nerve pain - which I have in my legs and back and use a spinal cord stimulator for.Is this correct or is there something else out there causing this? Also, would you please give me the name of the medicine you take for pain? I have another appointment with my neuro on April 1 and would like a little backup as to what else is out there that is working for others. My stimulator is working pretty well, but the TM is really aggravating the arthrtis that I have in the lumbar region. That is the only question I have for now, but I am sure I will have more later - if you don't mind. Janice
Re: [TMIC] Pain
Janice,I take 150mg. of Lyrica 2x a day. I also take 90mg. Cymbalta. I also have been given vicodin if it really gets bad. I have a great deal of nerve pain from the waist down. Fatigue is a huge problem. I'm sure the arthritis doesn't help much! I have just begun a new exercise program to strengthen my legs. I walk with a walker. Take care! Trudy On Tue, Mar 17, 2009 at 12:07 PM, Janice jan...@centurytel.net wrote: I hate to keep bugging you all with questions, so I hope you don't mind and will take a minute to answer. Several of you have talked about the pain that you have, apparantly even after several years of TM. I am assuming we are all talking about nerve pain - which I have in my legs and back and use a spinal cord stimulator for.Is this correct or is there something else out there causing this? Also, would you please give me the name of the medicine you take for pain? I have another appointment with my neuro on April 1 and would like a little backup as to what else is out there that is working for others. My stimulator is working pretty well, but the TM is really aggravating the arthrtis that I have in the lumbar region. That is the only question I have for now, but I am sure I will have more later - if you don't mind. Janice
Re: [TMIC] Hi Everyone
Hi Janice - Candy K here in Naples, FL - 60 years young . First episode of TM hit, age 57, on 2/5/06, bra line down, then 2nd on 2/30/06, neck down. I had PLEX, Plasma Exchange, treatments on 2nd round. I am a walking wounded - walk with cane or walker short distances but need electric cart or chair for distances longer than 20 feet. I do drive but very short distances - longer than 30 miles and it feels like 3000+ -I get all stiff and any movement cause severe pain upon getting out of vehicle. Terrible back pain controlled somewhat with Cymbalta 60 mg. (helps despression and nerve pain), Zanaflex (Tizanidine) 12mg daily - 4mg in AM and 8mg in PM, Tramadol HCL 50mg and a TENS machine sometimes constantly. I have constant tingling in L arm/hand which I have little or no feeling in. I also have spasms daily in L arm/hand and occasionally in R. The spasms occur whenever I use my hands too much - typing, cutting food, etc. I do have more strength in R hand approx. 60% normal while the L has approx. 30% normal. I also have little or no feeling in either leg/foot. My R leg/foot is the weakest which I can't raise past 3 or so and it drags while walking but I have spotty feeling in R foot. The worst spasms occur in the R leg at any time. I have no feeling in L leg/foot but it is the strongest and does spasms occasionally especially if I'm tired or stressed. I can raise the L leg straight out/up most of the time Besides the terrible back pain, my other chief complaint is fatigue which I haven't found anything to counter-act. I do take Amantadine 100mg 2X daily. I also take Super Guarana 1200mg 2X daily and drink sports drinks daily. All that helps but there are days when I do sleep 20+ hours especially after any strenious activity. Any strenious activity may take me 2 days to a week to recover. This includes going to Dr. visits and grocery shopping. I can't sit in a regular chair more than 15 minutes then I must get my legs up either in my recliner or laying on sofa or my bed. It has taken me awhile to even write this. I've found that the meds, TM, and age is really playing a number on my memory and mind. Thank GOD for spell check. For my entertainment, I have cable. I also have my maltese, Zeus, plus I was lucky enough to rescue a parrot 2 weeks ago. He was in a home that had 2 little girls and he had a terrible fear of hands and would bite something fierce! In the past 2 weeks, I've got him to come and land on my hand and in the past 3 days he really loves to have his head rubbed and kissed. He does talk but only when he wants to. He has increased his vocabulary but he still prefers to squawk mainly in the morning which I think is because he hears the birds outside. I do tend to carry on - sorry. This is really a great group. Any and all questions are answered - any one of us has been there at one time or another. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice jan...@centurytel.net To: celr...@aol.com, TMIC-LIST@eskimo.com Sent: Tuesday, March 17, 2009 11:42:47 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Hi Everyone Hi! I am Janice from Missouri. Been a 62- year old TM victim for 2 years and just venturing out on the computer to meet others with TM. Hope you are doing well. - Original Message - From: celr...@aol.com To: TMIC-LIST@eskimo.com Sent: Tuesday, March 17, 2009 8:27 AM Subject: [TMIC] Hi Everyone How is Jude doing. I have'nt seen any postings for some reason or other. I had to subscribe again. I have been concerned about all. Jane in Splendora Tx Feeling the pinch at the grocery store? Make dinner for $10 or less .
[TMIC] OPRAH - Montel with MS
I'm watching Oprah and she has Montel on telling about MS. While some of don't have MS, so many of the symptoms of MS are the same as TM - the pain, depression, feelings, etc. While I'm not recording it today, I will tomorrow morning on another station. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] Judes Update
Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping and Praying to wake up after surgery, Jude **Feeling the pinch at the grocery store? Make meals for Under $10. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0002)
Re: [TMIC] Judes Update
Hey Jude, We're just quiet right now, I guess..but, be sure everyone is eager for every word about you and your progress!! Think only positive thoughts..it is frequently bad when you go searching for info, I think your best bet is to keep tied to us as we are ALL praying for your sucessful recovery!! Just try to feel our love and you'll be in a positive place!! Hugs, janh Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping and Praying to wake up after surgery, Jude
[TMIC] Judes Update
Hi Jude, You write beautiful and inspiring notes. I don't know where everyone is and I also miss having lots of posts to read when I check in. I think there are many of us who read, but sit quietly by while waiting for others to answer the questions that have been asked. March 20th sounded far away when you first told of your surgery date and its hard to believe its just three days away. I want to visit you before Friday and maybe I can bring my Mom this time. I'll give you a call around noon to see how you're doing. Love, Pattti
Re: [TMIC] Judes Update
Dearest Jude, I'm so glad you have written. I have not spoken with Patti for over a week. I see she is planning to visit you before you go to hospital for surgery. I will catch up from her then. Please know you are in my thoughts and prayers as you go into this surgery. We are all here for you always. With Luv 'n Hugs, Heather in Calgary - Original Message - From: alle...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, March 17, 2009 2:58 PM Subject: [TMIC] Judes Update Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping and Praying to wake up after surgery, Jude -- Feeling the pinch at the grocery store? Make meals for under $10.
Re: [TMIC] Judes Update
Jude, I am new to this bunch of great people. Have had TM for 2 years.When I joined this webside (about 2 weeks ago), it seemed that on a daily basis people were asking each other if there was any news about Jude.I could tell there was a lot of concern and love from all your friends on the list.Now, I too, am wishing you the very best of luck and may God bless you. Janice - Original Message - From: alle...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, March 17, 2009 3:58 PM Subject: [TMIC] Judes Update Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping and Praying to wake up after surgery, Jude -- Feeling the pinch at the grocery store? Make meals for under $10.
Re: [TMIC] OPRAH - Montel with MS
Hello Candy, I watch Oprah today as well, and it was a really good show.? I highly recommend all of us watch it, whether MS or TM.? There is a good deal of information that we can all get out of it.? It reminded me of?the level of depression that goes hand in hand for all of us.? I didn't know though that lots of the medication had depression as a side effect, so I learned a little today. Hugs to all, Barbara A? -Original Message- From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Tue, 17 Mar 2009 1:39 pm Subject: [TMIC] OPRAH - Montel with MS I'm watching Oprah and she has Montel on telling about MS. While some of don't have MS, so many of the symptoms of MS are the same as TM - the pain, depression, feelings, etc. While I'm not recording it today, I will tomorrow morning on another station. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Judes Update
Dear Jude, It does seem a bit quiet today; however, did you know that we have 5 NEW members? I see that one of them, Janice, has already posted to you - wishing you well and praying for you. So I think the list is going to be getting pretty busy again. See what you have to look forward to after your surgery? You will have so many posts to read it will probably take you days to get through all of them. And that's a good thing! You are such a blessing to our TM family, Jude. Please know that we think of you and pray for you each day. As you go into surgery just think of your TM family surrounding you with love and prayer. Nothing but positive thoughts - you are in God's hands. Love Prayers, Linda - Original Message - From: alle...@aol.commailto:alle...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, March 17, 2009 2:58 PM Subject: [TMIC] Judes Update Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping
