Re: [TMIC] leg and foot comfort in bed
Gilly, I love your way of explaining what we all have experiencing.reading you makes it sound like we've had fun trying to find what works for us and really, that's the way we should look at it..I could just see that mother centipede putting shoes on each foot, then having to change to another shoe!! Laughter is the Best Medicine!! Thanks for being you!! Hugs, jan --- On Wed, 4/15/09, Gillian Clark mingalett...@activ8.net.au wrote: G'day Barb and everyone, Over the last nearly 8 years, I've been like you. I've purchased more pairs of shoes than a mother of growing centipedes could possibly need, more clothes that just hurt too much (yep, certainly jeans). I've found with the sheets that as long as they are warm, as long as they have no wrinkles and as long as I don't move, I don't have too much pain or too many spasms :)). Another thing is that sleeping on my own is an absolute essential now for me. A strange little thing I've found lately that helps is having a pillow over my feet. I have no idea why. Of course Barb, I reckon the brownies help a lot with the sleeping. I've found that I have to have mule type shoes, socks worn inside out, no dresses, no stockings, no jeans. T-shirt material or jersey is the easiest to wear. Wouldn't you just like Trinny and Susannah try and make us look like a million dollars with our restrictions? gentle hugs to all Gilly
Re: [TMIC] leg and foot comfort in bed
I miss jeans (Levi's) the most...I have worn Jeans and a t-shirt all my life .I cant wear shoes or socks or stand sheets or blankets on me, and if my Husband rubs my back by going up my spine then it puts me in a spasm that is very painful..I hate it..but I don't want my Husband to stop touching me. Debi T4 Spastic paraplegic South Lake Tahoe, Ca. ---Original Message--- From: jrushton Date: 4/15/2009 8:49:19 AM To: balmat...@aol.com; tmic Subject: Re: [TMIC] leg and foot comfort in bed One thing I did find is that I sure can't wear jeans anymore because the denim causes immediate pain and leads to painful spasms. There are a few other fabrics that do the same thing. The safest is lightweight cotton knit Jeanne ---Original Message--- From: balmat...@aol.com Date: 04/15/09 00:23:53 To: tmic-list@eskimo.com Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479
Re: [TMIC] leg and foot comfort in bed
I love summer as I can wear shorts and don't have anything touching my legs !! I can not take ANYTHING touching my feet, no "soft socks" shoes even my feet resting on the foot pegs on my wheel chair hurts.. the stinging inmy feet somedays so unbearable but have learen to just cope and deal with it. It is a comfort to have my extended TM family and know that I am not the only one who goes thru this everyday, -- Original message from "bradebi" brad...@gmail.com: -- I miss jeans (Levi's) the most...I have worn Jeans and a t-shirt all my life..I cant wear shoes or socks or stand sheets or blankets on me, and if my Husband rubs my back by going up my spine then it puts me in a spasm that is very painful..I hate it..but I don't want my Husband to stop touching me. Debi T4 Spastic paraplegic South Lake Tahoe, Ca. ---Original Message--- From: jrushton Date: 4/15/2009 8:49:19 AM To: balmat...@aol.com; tmic Subject: Re: [TMIC] leg and foot comfort in bed One thing I did find is that I sure can't wear jeans anymore because the denim causes immediate pain and leads to painful spasms. There are a few other fabrics that do the same thing. The safest is lightweight cotton knit. Jeanne ---Original Message--- From: balmat...@aol.com Date: 04/15/09 00:23:53 To: tmic-list@eskimo.com Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep.I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable.Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479
Re: [TMIC] leg and foot comfort in bed
I am so amazed that in this we are all so similar! Each time I read your letters it is like I've written them myself. Another one is that even tho I can't feel anything on the bottoms of my feet if I step on something it shoots a spasm of pain right up my leg. I also have to watch my feet to see where they are. I can walk without doing that but only in my house. I step out on the porch and my eyes go right down to my feet. Jeanne Message--- From: kimr1...@bellsouth.net Date: 4/16/2009 6:52:58 PM To: bradebi; balmat...@aol.com; tmic-list; jrushton Subject: Re: [TMIC] leg and foot comfort in bed I love summer as I can wear shorts and don't have anything touching my legs !! I can not take ANYTHING touching my feet, no soft socks shoes even my feet resting on the foot pegs on my wheel chair hurts.. the stinging inmy feet somedays so unbearable but have learen to just cope and deal with it. It is a comfort to have my extended TM family and know that I am not the only one who goes thru this everyday, -- Original message from bradebi brad...@gmail.com: -- I miss jeans (Levi's) the most...I have worn Jeans and a t-shirt all my life .I cant wear shoes or socks or stand sheets or blankets on me, and if my Husband rubs my back by going up my spine then it puts me in a spasm that is very painful..I hate it..but I don't want my Husband to stop touching me. Debi T4 Spastic paraplegic South Lake Tahoe, Ca. ---Original Message--- From: jrushton Date: 4/15/2009 8:49:19 AM To: balmat...@aol.com; tmic Subject: Re: [TMIC] leg and foot comfort in bed One thing I did find is that I sure can't wear jeans anymore because the denim causes immediate pain and leads to painful spasms. There are a few other fabrics that do the same thing. The safest is lightweight cotton knit Jeanne ---Original Message--- From: balmat...@aol.com Date: 04/15/09 00:23:53 To: tmic-list@eskimo.com Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479
Re: [TMIC] leg and foot comfort in bed
It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position. I can't sleep with them bent up though Barb, that causes huge spasms. Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to. Not only what you wear but where you are walking, avoiding anything that will brush on you. Shopping is a nightmare when someone brushes past etc. Since I was born being unconventional a lot of things came easily for me. If you were not born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the normal people are doing. I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. hugs all Gilly - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479 -- Why pay full price? Check out this month's deals on the new AOL Shopping.
Re: [TMIC] Balance
So does this mean you think that PT is meaningless? Why do my legs feel better after a work out than when I get up from my chair after 2 hours of answering e-mail, paying the bills, throwing out all the junk mail and making doctor appointments. Do you honestly feel that it's a waste of time??? Seriously my friend, I am interested in your opinion in whether PT is worth the effort. I thought you once said that exercise was very important for us?? I could be wrong, it's happened maybe once before :) Trudy P.S. You never did announce the winner of what to do about your falling down and really injuring yourself but I'll forgive you I guess it was much more serious than you thought originally. I am so sorry you wound up in the hospital. I hope you are doing better. On Tue, Apr 14, 2009 at 4:12 PM, fr...@franksheldon.com fr...@franksheldon.com wrote: Lack of Proprioception Proprioception is the ability to know where each and every part of your body is spatially. Before TM I typed 70 words per minute with few mistakes. I took the typing course in junior high school, then decided to be an English Major in College, and just got better and better. I took a 23 year breather while practicing medicine, then got back into writing (Typing) only to be struck down with TM 15 months later, Aug 2000. Within several months my typing was down to 5, five, words per minutes with constant mistakes. My fingers had lost the ability to fly out and down to hit the right key. I had, have, to look at my fingers, so don't see my mistakes on the screen. Practice does not make my finger do any better. I hope that helps F
Re: [TMIC] PT worthwhile / Balance
Look, some folks gain, some lose with PT. Sometimes the effort results in a net loss. Stretching to keep limber, maybe. Workouts? No way. It might be different if I had access to a heated pool, but I don't so I won't sweat it. It works for you, that's great, but everyone has a different experience with this damn disease. To each her own. - Original Message - From: Trudy Ogilvie To: fr...@franksheldon.com Cc: Pieter and Heather ; tmic-list@eskimo.com Sent: Thursday, April 16, 2009 11:12 PM Subject: Re: [TMIC] Balance So does this mean you think that PT is meaningless? Why do my legs feel better after a work out than when I get up from my chair after 2 hours of answering e-mail, paying the bills, throwing out all the junk mail and making doctor appointments. Do you honestly feel that it's a waste of time??? Seriously my friend, I am interested in your opinion in whether PT is worth the effort. I thought you once said that exercise was very important for us?? I could be wrong, it's happened maybe once before :) Trudy P.S. You never did announce the winner of what to do about your falling down and really injuring yourself but I'll forgive you I guess it was much more serious than you thought originally. I am so sorry you wound up in the hospital. I hope you are doing better. On Tue, Apr 14, 2009 at 4:12 PM, fr...@franksheldon.com fr...@franksheldon.com wrote: Lack of Proprioception Proprioception is the ability to know where each and every part of your body is spatially. Before TM I typed 70 words per minute with few mistakes. I took the typing course in junior high school, then decided to be an English Major in College, and just got better and better. I took a 23 year breather while practicing medicine, then got back into writing (Typing) only to be struck down with TM 15 months later, Aug 2000. Within several months my typing was down to 5, five, words per minutes with constant mistakes. My fingers had lost the ability to fly out and down to hit the right key. I had, have, to look at my fingers, so don't see my mistakes on the screen. Practice does not make my finger do any better. I hope that helps F
Re: [TMIC] leg and foot comfort in bed
Gilly, I know what you mean about the wrinkles in the bed.? It actually causes pain with the wrinkles, like something is stabbing you.? Using the knit sheets makes them?warmer, and it's so hard for me to imagine you with the pillow on?your feet.? I?cannot stand?much weight on me at all,?especially my feet.??I love my down blanket, nice and lightweight, yet warm. The warmer weather brings less clothes, no blankets, and?a?happier me!? Come on summer! Warm hugs?you Gilly, and all, Barbara A? -Original Message- From: Gillian Clark mingalett...@activ8.net.au To: TM list tmic-list@eskimo.com Sent: Thu, 16 Apr 2009 8:04 pm Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position.? I can't sleep with them bent up though Barb, that causes huge spasms. ? Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it?? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to.? Not only what you wear but where you are walking, avoiding anything that will brush on you.? Shopping is a nightmare when someone brushes past etc. ? Since I was born being unconventional a lot of things came easily for me.? If you were not? born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the normal people are doing. ? I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. ? hugs all Gilly ? - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit.? Such a miraculous fiber.? Isn't it great when we find something that works for us, most of the time? It's just amazing!? It's definately a game of trial and error, that's for sure.??Life is so much fun when you have TM.? The majority of my sensitivity is in the evening and during the night.? There are times when I cannot even?stand skin to skin contact.? That's why I sleep on my back with my knees bent many nights.? Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too.?? But, I have no problem with sheets and blankets on me at nite.?? I sleep with a pillow between my knees and that takes care of any problems I guess.? I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time.? It started as sensitivity and is so often PAIN.? I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton.? In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey.? I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs.? Blankets are much worse, so you need to get the most comfortable sheet you can near your skin.? If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones.? I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them.? I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479 Why pay full price? Check out this month's deals on the new AOL Shopping.
