I am so amazed that in this we are all so similar! Each time I read your
letters it is like I've written them myself.  

Another one is that even tho I can't feel anything on the bottoms of my feet
 if I step on something it shoots a spasm of pain right up my leg.  I also
have to watch my feet to see where they are.  I can walk without doing that
but only in my house.  I step out on the porch and my eyes go right down to
my feet.  Jeanne

Message-------
 
From: kimr1...@bellsouth.net
Date: 4/16/2009 6:52:58 PM
To: bradebi;  balmat...@aol.com;  tmic-list;  jrushton
Subject: Re: [TMIC] leg and foot comfort in bed
 
I love summer as I can wear shorts and don't have anything touching my legs
!! I can not take ANYTHING touching my feet, no "soft socks" shoes even my
feet resting on the foot pegs on my wheel chair hurts.. the stinging inmy
feet somedays so unbearable but have learen to just cope and deal with it.
It is a comfort to have my extended TM family and know that I am not the
only one who goes thru this everyday, 
-------------- Original message from "bradebi" <brad...@gmail.com>:
-------------- 

I miss jeans (Levi's) the most...I have worn Jeans and a t-shirt all my life
.I cant wear shoes or socks or stand sheets or blankets on me, and if my
Husband rubs my back by going up my spine then it puts me in a spasm that is
very painful..I hate it..but I don't want my Husband to stop touching me.
Debi
T4 Spastic paraplegic
South Lake Tahoe, Ca.
 
-------Original Message-------
 
From: jrushton
Date: 4/15/2009 8:49:19 AM
To: balmat...@aol.com;  tmic
Subject: Re: [TMIC] leg and foot comfort in bed
 
One thing I did find is that I sure can't wear jeans anymore because the
denim causes immediate pain and leads to painful spasms.  There are a few
other fabrics that do the same thing.  The safest is lightweight cotton knit
  Jeanne
 
-------Original Message-------
 
From: balmat...@aol.com
Date: 04/15/09 00:23:53
To: tmic-list@eskimo.com
Subject: [TMIC] leg and foot comfort in bed
 
I think that this is something that most of us suffer from at some point
during our TM lives, skin sensitivity against fabric, and it's the worst
when we are trying to get some much needed sleep.

I have purchased so many sets of sheets and blankets over my TM years (T
8-10, 6/1/99), and I have had this sensitivity for most of that time.  It
started as sensitivity and is so often PAIN.  I've gone from egyptian cotton
 very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton.  In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey.  I'm not saying that I can
always have my legs against them, because I cannot, I lay on my back many
nights with my knees bent so nothing touches my legs.  Blankets are much
worse, so you need to get the most comfortable sheet you can near your skin.
 If you have any "old" pajama bottoms, those are also some of the most
comfortable, or I wear the short ones.  

I've bought some microfiber plush pants this year from OldNavy.com and they
have been warm on my legs and haven't irritated them.  I am very much
looking forward to warmer weather when I can wear short pants all the time
and not being uncomfortable.

Hugs to all, Barbara A in CA 



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