Re: [TMIC] TM
*Yes, a small lesion can affect a relatively small part of the body. Myelitis simply means inflammation of the spinal cord. Transverse, means *across*.* True transverse myelitis results in para or quadra plegia depending on the level of demyelination. I have a very small area of demyelination- C6, right side of spinal cord, size of a small pea- but it results affecting my whole body from my shoulders down. So you have a small lesion affecting an incredibly large area of the body. It's a bit like a gun shot wound- through my hand minimal treatment, through my heart maximum treatment, through my head death! My two cents F
Re: [TMIC] TM
But, if you both would have a small demyelination, how come one hand damage versus whole body damage? Janice - Original Message - From: fr...@franksheldon.com To: Grace M. grace...@gmail.com; Janice jan...@centurytel.net Cc: tmic-l...@eskimo.net Sent: Saturday, July 25, 2009 7:58 AM Subject: Re: [TMIC] TM *Yes, a small lesion can affect a relatively small part of the body. Myelitis simply means inflammation of the spinal cord. Transverse, means *across*.* True transverse myelitis results in para or quadra plegia depending on the level of demyelination. I have a very small area of demyelination- C6, right side of spinal cord, size of a small pea- but it results affecting my whole body from my shoulders down. So you have a small lesion affecting an incredibly large area of the body. It's a bit like a gun shot wound- through my hand minimal treatment, through my heart maximum treatment, through my head death! My two cents F
Re: [TMIC] TM
*Hi Janice, * *There are no fast and hard set rules about how much of the body is affected by any lesion. In my case (NMO) my lesion encompassed almost the whole of my Thoracic cord. I presented with Brown Sequard paralysis (Often referred to as Hemicord.) and I have been hit not just once, but three seperate times now with substantial paralysis and long hospitalisations each time. Yet, today I walk. Why do I walk, yet someone else with a similar lesion size and presentation cannot---no one really knows. It's a crap shoot. * *Gracie *
Re: [TMIC] TM
Whoa there! your statement regarding true TM and Paralysis is incorrect! Acute TM means damage is done in a matter of hours or days. Sub-acute TM means damage over weeks. The information my Neuro gave me at the time of diagnosis stated that the rate of paralysis from TM was 50/50 I suffered sub-acute TM at C4-C5 in the spring of 2007. The MRI's and Spinal Tap analysis were pretty conclusive that I had TM. My leg weakness was very small and passed within a matter of hours, I was never incapacitated. My bladder difficulties (I could always pee with effort) passed in the first 6 months. Body and hand weakness took more than a year. My worst symptom was and continues to be acute pain (Central Pain Syndrome) from the shoulders down. My suffering led to a contemplation of suicide. Those of us who fall into the CPS only sufferers are a small minority among TM survivors but as a whole our prognosis for recovery is poor. The good news is that my only major improvement in pain has come after my 2nd anniversary. Mindy the Artisan On Jul 25, 2009, at 8:58 AM, fr...@franksheldon.com wrote: *Yes, a small lesion can affect a relatively small part of the body. Myelitis simply means inflammation of the spinal cord. Transverse, means *across*.* True transverse myelitis results in para or quadra plegia depending on the level of demyelination. I have a very small area of demyelination- C6, right side of spinal cord, size of a small pea- but it results affecting my whole body from my shoulders down. So you have a small lesion affecting an incredibly large area of the body. It's a bit like a gun shot wound- through my hand minimal treatment, through my heart maximum treatment, through my head death! My two cents F
[TMIC] to stretch your calves(?)
Hope everyone is having a nice weekend. I got a book in the mail and seen this and was wondering if anyone uses something like this for a tight muscle in your leg (like a charley horse) and if it helps. Ella _Relief and Remedies - 24/7 Plantar Fasciitis System by Dream Products_ (http://www.reliefandremedies.net/details.cfm?item=10335) **A bad credit score is 600 below. Checking won't affect your score. See now! (http://pr.atwola.com/promoclk/100126575x1222585106x1201462830/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgI D=62bcd=JulyBadfooterNO62)
[TMIC] Re: Alton--NMO
*Hello Alton, NMO is an autoimmune CNS disease that causes relapsing LETM (Longitudinal Extensive Transverse Myelitis) in 90% of patients, relapsing ON (Optic Neuritis), and in 62% of patients, eventually brain lesions. It's a very serious disease and the prognosis is poor. Within five years, 50% of patients will be permanently blind in at least one eye (Often bilaterally.) and permanently parlayzed in at least one limb. (Often more.) There is a 33% mortality rate in the first five years, with death being caused by respiratory failure which is the result of a compromised brain stem. At ten years, the rate of serious disabilty is 50%. I failed on first line treatments and currently use Rituximab, a monoclonal antibody which is a chemo agent. It's no fun. :-( Grace *
Re: [TMIC] TM
Mindy, Technically, Frank is correct. Many neuros do not like to use the term TM but refer to it as simply myelitis instead. Yes, you are correct that an attack can be acute, or sub-acute. I suffered from acute myelitis, however my lesion was not Transverse (It was Brown Sequard) and thus there was hope that I would walk again. Had it been transverse, I would not have regained function. Respectfully, Grace
Re: [TMIC] TM
Grace, I have never heard of Brown Sequard.Is it when myelitis hits only one side of the spine? Janice - Original Message - From: Grace M. To: Lawrence King Cc: tmic-list@eskimo.com ; fr...@franksheldon.com Sent: Saturday, July 25, 2009 4:13 PM Subject: Re: [TMIC] TM Mindy, Technically, Frank is correct. Many neuros do not like to use the term TM but refer to it as simply myelitis instead. Yes, you are correct that an attack can be acute, or sub-acute. I suffered from acute myelitis, however my lesion was not Transverse (It was Brown Sequard) and thus there was hope that I would walk again. Had it been transverse, I would not have regained function. Respectfully, Grace
Re: [TMIC] TM
Wow.I am learning so much from each of you.Thank you. Janice - Original Message - From: Grace M. To: Janice Cc: tmic-list@eskimo.com Sent: Saturday, July 25, 2009 10:58 AM Subject: Re: [TMIC] TM Hi Janice, There are no fast and hard set rules about how much of the body is affected by any lesion. In my case (NMO) my lesion encompassed almost the whole of my Thoracic cord. I presented with Brown Sequard paralysis (Often referred to as Hemicord.) and I have been hit not just once, but three seperate times now with substantial paralysis and long hospitalisations each time. Yet, today I walk. Why do I walk, yet someone else with a similar lesion size and presentation cannot---no one really knows. It's a crap shoot. Gracie
Fwd: [TMIC] TM
Hi Janice, In my case, the lesion was more pronounced on one side than on the other, which left me paralyzed and without feeling on one side, and paralyzed with minimal sensitivity on the other. To this day, one side is much weaker than the other. The lesion began at T2, and as is often common with NMO, encompassed almost the entirety of the thoracic cord. Brown Sequard presentation is uncommon, and is usually the result of trauma. There are several members here who initially presented this way. Grace
Re: [TMIC] TM
The terms sure r confusing. They used terms multiple mylites, multiple scerosis, multple mylopothy, transverse mylopothy, and just mylites and mylopothy. My docs have never even use the term transverse mylitis. Sent from my Verizon Wireless BlackBerry -Original Message- From: Janice jan...@centurytel.net Date: Fri, 24 Jul 2009 16:12:21 To: tmic-l...@eskimo.net Subject: [TMIC] TM I have another question: A good friend of mine has MS and has had it for about 15 years. Now, last month her 35-year old son started having numbness in his left hand.They did many tests on him and after having a spinal tap, diagnosed him with TM.He has had no pain except for the band feeling around his back. They are giving him intervenous meds every few days and then will start him on Prednisone pills. His legs are fine, along with the other hand.They (doc's) say he may go into recurring TM and maybe develop MS later on - or this may be the only bout he has with TM. Have any of you ever heard of TM hitting so small a part of the body? I also should say that they call it a myelitis - not sure if they have said transverse myelitis and not sure if that makes any difference.I was really surprised by the way myelitis hit him and wondered if you all had ever heard of it happening that way. Janice
