Re: [TMIC] Arthritis
Janice, I looked at the website earlier when somebody suggested it and they use it personally.? What I read on the website is that they have a bottom of the jar guarantee.? I was going to try myself as a local drug store carries it, but haven't been there yet. Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: kevin weilacher hwyfli...@yahoo.com; tmic-l...@eskimo.net Sent: Mon, Aug 24, 2009 7:59 pm Subject: Re: [TMIC] Arthritis Obviously Kevin needs to get a life!!? Janice - Original Message - From: kevin weilacher To: Janice ; tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:23 PM Subject: Re: [TMIC] Arthritis Off topic here.but I read that first sentence.and saw Australian Dream and thought you were talking about our lovable Gilly..*hope she doesn't smack me for that...* Kevin From: Janice jan...@centurytel.net To: tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:54:45 PM Subject: [TMIC] Arthritis Has anyone tried the Australian Dream the has emu oil in it? I don't know if it is a cream or pill - I think cream. One of our pharmacies carries it, but don't want to put the money,? $30.00, in it if it is just a pipe dream. Have tried several arthritis creams and not satisfied yet. ? Thanks, Janice
[TMIC] able to move
Jim, Tears came to my eyes as I read your message and then when I saw the video, it was so awesome to see.? Move Jim, Move Jim, it was like Run Forest, Run!? Over and over again, amazing, and so thrilling for you.? I couldn't be happier for you.? Yet another message that I had to read outloud to my family!? And, I believe that I'll also be sharing with my friends and family. Oh Jim, I quickly forwarded your message to my son?Adam once I read it, so he could see the good news as well.? Just so this makes sense to those reading this, my son plays Mafia Wars with Jim. Especially BIG HUGS to you Jim, Barbara A
Re: [TMIC] That banding feeling
I didn't know there were meds that could lessen the tight banding feeling and would love to hear feedback on what meds work and of any side-effects from them. Never heard of Tegretol before but will look into it. Thanks! On Mon, Aug 17, 2009 at 5:09 PM, heyjude48...@aol.com wrote: *Hi Jeanne,* ** *The banding has been exactly the same for me. It has been with me since day one and starts underneath my breasts and goes all the way around my abdomen. When it gets real bad, it continues downward until I feel completely enveloped by it. Sometimes it hurts so badly it hurts to even breathe.* ** *I don't let TM or anything get me down, but I am beginning to feel angry, after seven years. I am pissed because I cannot work in the garden and go places without it being a big deal to get dressed, fix my hair and sometimes put on make up so the pain doesn't show so badly. I was told that I looked old when I am in pain...by a sweet 14 year old boy. Thank you very much. * ** *For the constipation problem, for years I have used Fish Oil capsules, one per day and I get them from the health food store or my pharmacy. They work like a dream. And I have the kind of bowel that moves the poop down to the vault, but will not push it out, so I have done digital removable for ever and ever. It's not fun, but we need to do what we need to do...* ** *Love and Prayers,* *Jude* In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne *---Original Message---* *From:* laura.eich...@gmail.com *Date:* 8/10/2009 10:56:05 PM *To:* tmic-list@eskimo.com *Subject:* [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura -- 01_side.gif
RE: [TMIC] able to move slightly
UNBELIEVEABLE!!! THIS IS TOTALLY AWESOME TO HEAR!!! -Original Message- From: Jim Lubin [mailto:jlu...@eskimo.com] Sent: Monday, August 24, 2009 4:26 PM To: tmic-list@eskimo.com Subject: [TMIC] able to move slightly The past two weeks I started feeling a tingling in my right lower back. When I feel this I am able to move my left thumb! It's been 20 yrs, 4 mos since I was paralyzed from the neck down due to TM. When I recline the tingling stops and I can not move my thumb no matter how much I try to. To show that I was actually moving and not just having involuntary twitching, I had my nurse tell me when to move and I moved it. Here is the video http://www.youtube.com/watch?v=Tw__9ZDv_hU Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org http://www.makoa.org/
Re: [TMIC] Arthritis
It is a cream. I have used this for about 4 years and it helps quite a bit. I use it mainly on my right hip and hands. Lynne --- On Mon, 8/24/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: [TMIC] Arthritis To: tmic-l...@eskimo.net Date: Monday, August 24, 2009, 3:54 PM Has anyone tried the Australian Dream the has emu oil in it? I don't know if it is a cream or pill - I think cream. One of our pharmacies carries it, but don't want to put the money, $30.00, in it if it is just a pipe dream. Have tried several arthritis creams and not satisfied yet. Thanks, Janice
[TMIC] VICTORY JUNCTION - part 2
Hello all! I have to say that Debbie Capen pretty much covered what was truly an awesome experience for those of us who were blessed to be at Victory Junction with the TM families. We were able to watch these kids take part in camping activities that they might never be able to their entire lives. There were so many first times for all of them. Huge smiles on their faces when getting to ride a horse, or doing the bullseye dance when they hit the center of the target in archery. Playing baseball on a diamond that they could use their wheelchairs onand wheel around the bases with them. Using an air gun to take the lug nuts off the wheels of a racecar, or taking a hot air balloon ride. The making uggy faces when their lips touched a fish before they threw it back in the lake. Being able to take part in a skit and be on a real stage in a real theatre in front of a real audience. All of these experiences as well as many others were shared with other kids who have the same issues that they do. What a great opportunity also for the siblings to meet other siblings and for the parents to be able to talk to the doctors (who brought their families as well) about their concerns. The officers of the TMA should be so proud that they were able to arrange this camp again. They are in incredible group of people who are dedicated to making things happen for the TM community. And in case you don't all know it, Sandy Siegel is the most caring, kind hearted and soft spoken man you could ever meet. We are a fortunate community indeed.
Re: [TMIC] Arthritis
Thank you so much - I am going to try it. Janice - Original Message - From: lynne myers To: tmic Sent: Tuesday, August 25, 2009 7:17 AM Subject: Re: [TMIC] Arthritis It is a cream. I have used this for about 4 years and it helps quite a bit. I use it mainly on my right hip and hands. Lynne --- On Mon, 8/24/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: [TMIC] Arthritis To: tmic-l...@eskimo.net Date: Monday, August 24, 2009, 3:54 PM Has anyone tried the Australian Dream the has emu oil in it? I don't know if it is a cream or pill - I think cream. One of our pharmacies carries it, but don't want to put the money, $30.00, in it if it is just a pipe dream. Have tried several arthritis creams and not satisfied yet. Thanks, Janice
Re: [TMIC] Arthritis
So far, with all my phone calls to pharmacies, Walgreen is the main carrier, at least in Missouri. Janice - Original Message - From: balmat...@aol.com To: jan...@centurytel.net ; tmic-list@eskimo.com Sent: Tuesday, August 25, 2009 1:58 AM Subject: Re: [TMIC] Arthritis Janice, I looked at the website earlier when somebody suggested it and they use it personally. What I read on the website is that they have a bottom of the jar guarantee. I was going to try myself as a local drug store carries it, but haven't been there yet. Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: kevin weilacher hwyfli...@yahoo.com; tmic-l...@eskimo.net Sent: Mon, Aug 24, 2009 7:59 pm Subject: Re: [TMIC] Arthritis Obviously Kevin needs to get a life!! Janice - Original Message - From: kevin weilacher To: Janice ; tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:23 PM Subject: Re: [TMIC] Arthritis Off topic here.but I read that first sentence.and saw Australian Dream and thought you were talking about our lovable Gilly..*hope she doesn't smack me for that...* Kevin From: Janice jan...@centurytel.net To: tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:54:45 PM Subject: [TMIC] Arthritis Has anyone tried the Australian Dream the has emu oil in it? I don't know if it is a cream or pill - I think cream. One of our pharmacies carries it, but don't want to put the money, $30.00, in it if it is just a pipe dream. Have tried several arthritis creams and not satisfied yet. Thanks, Janice
Re: [TMIC] able to move slightly
Wonderful news Jim. I am so happy for you. You know the games may have some benefit as well. Read this article from the papers today here in Wisconsin. I wonder if your game playing is similar to what they are doing here. http://www.jsonline.com/features/health/54545577.html Keep it up Jim! As always you are an inspiration to us all! Sandy in Wisconsin Where we have loved our cool summer.except for all the still green tomatoes. - Original Message - From: Jim Lubin To: bradebi ; tmic-list@eskimo.com Sent: Monday, August 24, 2009 6:05 PM Subject: Re: [TMIC] able to move slightly hehe, I wonder. That is really the only thing I have been doing differently lately is playing all those games on Facebook. At 03:46 PM 8/24/2009, bradebi wrote: Jim it could be all the Mafia wars you play on facebook!!! Debi W ---Original Message--- From: Jim Lubin Date: 8/24/2009 1:38:52 PM To: tmic-list@eskimo.com Subject: [TMIC] able to move slightly The past two weeks I started feeling a tingling in my right lower back. When I feel this I am able to move my left thumb! It's been 20 yrs, 4 mos since I was paralyzed from the neck down due to TM. When I recline the tingling stops and I can not move my thumb no matter how much I try to. To show that I was actually moving and not just having involuntary twitching, I had my nurse tell me when to move and I moved it. Here is the video http://www.youtube.com/watch?v=Tw__9ZDv_hU Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] Arthritis
Australian Dream is also available online at Walgreens. There are several Walgreens here in Naples, FL that carry it. I haven't tried it as my Dr. gave a prescription of Voltaren Gel (Voltaren Emulgel) which runs approx. the same. The Voltaren Gel does work on joint pain. I have also used it on my hands when they are cramping and drawing up and it helps! But, like anythig with TM, what works one time doesn't alway work but the Voltaren Gel does MOST of the time. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice jan...@centurytel.net To: tmic-list@eskimo.com, balmat...@aol.com Sent: Tuesday, August 25, 2009 9:58:22 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Arthritis So far, with all my phone calls to pharmacies, Walgreen is the main carrier, at least in Missouri. Janice - Original Message - From: balmat...@aol.com To: jan...@centurytel.net ; tmic-list@eskimo.com Sent: Tuesday, August 25, 2009 1:58 AM Subject: Re: [TMIC] Arthritis Janice, I looked at the website earlier when somebody suggested it and they use it personally. What I read on the website is that they have a bottom of the jar guarantee. I was going to try myself as a local drug store carries it, but haven't been there yet. Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: kevin weilacher hwyfli...@yahoo.com ; tmic-l...@eskimo.net Sent: Mon, Aug 24, 2009 7:59 pm Subject: Re: [TMIC] Arthritis Obviously Kevin needs to get a life!! Janice - Original Message - From: kevin weilacher To: Janice ; tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:23 PM Subject: Re: [TMIC] Arthritis Off topic here.but I read that first sentence.and saw Australian Dream and thought you were talking about our lovable Gilly..*hope she doesn't smack me for that...* Kevin From: Janice jan...@centurytel.net To: tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:54:45 PM Subject: [TMIC] Arthritis Has anyone tried the Australian Dream the has emu oil in it? I don't know if it is a cream or pill - I think cream. One of our pharmacies carries it, but don't want to put the money, $30.00, in it if it is just a pipe dream. Have tried several arthritis creams and not satisfied yet. Thanks, Janice
Re: [TMIC] Update on Jim
Will be praying. I love what you said about there is still time for more. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) In a message dated 8/24/2009 8:09:17 A.M. Eastern Daylight Time, cjb...@aol.com writes: We are still in a holding pattern and has been getting harder for me to keep up my hopes. But have decided today I will BELIEVE. I will be heading down to Pontiac soon and will present my case, again, to both hospitals( the one he is in and the one I am hoping he will be in. He is getting very discouraged. I must find something in myself to encourage him. I want to grow old with him. I know some of my friends would say I already have, but there is still time for more. Please enjoy every minute you have. Keep the prayers coming. carol and jim **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=115bcd =JulystepsfooterNO115)
Re: [TMIC] Update on Jim
Carol and Jim, I have you in my prayer box and continue to pray for you often. Don't give up, because you are right there is still time for more! Catherine In a message dated 8/24/2009 8:09:17 A.M. Eastern Daylight Time, cjb...@aol.com writes: We are still in a holding pattern and has been getting harder for me to keep up my hopes. But have decided today I will BELIEVE. I will be heading down to Pontiac soon and will present my case, again, to both hospitals( the one he is in and the one I am hoping he will be in. He is getting very discouraged. I must find something in myself to encourage him. I want to grow old with him. I know some of my friends would say I already have, but there is still time for more. Please enjoy every minute you have. Keep the prayers coming. carol and jim
Re: [TMIC] Update on Jim
Carol you keep your hopes and prayers upward and we are behind you and Jim with our prayers that it will be alright. Sending my prayers and positive thoughts your way.Ella
Re: [TMIC] That banding feeling
Connie, I take 10mg Baclofen 3 times daily and 100mg Lyrica approx every 8 hours. I think the Baclofen helps the most with the banding and know I would be bed- ridden without it. I've been on Baclofen for five years and on this dose for the last three. Patti - Michigan connie markovich connie...@gmail.com wrote: I didn't know there were meds that could lessen the tight banding feeling and would love to hear feedback on what meds work and of any side-effects from them. Never heard of Tegretol before but will look into it. Thanks! On Mon, Aug 17, 2009 at 5:09 PM, heyjude48...@aol.com wrote: *Hi Jeanne,* ** *The banding has been exactly the same for me. It has been with me since day one and starts underneath my breasts and goes all the way around my abdomen. When it gets real bad, it continues downward until I feel completely enveloped by it. Sometimes it hurts so badly it hurts to even breathe.* ** *I don't let TM or anything get me down, but I am beginning to feel angry, after seven years. I am pissed because I cannot work in the garden and go places without it being a big deal to get dressed, fix my hair and sometimes put on make up so the pain doesn't show so badly. I was told that I looked old when I am in pain...by a sweet 14 year old boy. Thank you very much. * ** *For the constipation problem, for years I have used Fish Oil capsules, one per day and I get them from the health food store or my pharmacy. They work like a dream. And I have the kind of bowel that moves the poop down to the vault, but will not push it out, so I have done digital removable for ever and ever. It's not fun, but we need to do what we need to do...* ** *Love and Prayers,* *Jude* In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne *---Original Message---* *From:* laura.eich...@gmail.com *Date:* 8/10/2009 10:56:05 PM *To:* tmic-list@eskimo.com *Subject:* [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura --
[TMIC]
I am here again asking all the people that I trust about this option. Dennis has been in the hospital for the last month. This is after he got back for 8 hours and rushed back to the hospital. His major problem is the 3 wounds that he has. Today we had a discussion with a wound care nurse. She feels his wounds can not heal if we don't find something else to help Dennis. What we were told to think about was tendons being clipped. Last time I asked about amputation and I got many replies. Now I am asking if anyone knows anything about tendons being clipped. I see so many things coming up with Dennis' health. His legs are getting tighter and causing problems now and will get worse. As a mom I am so afraid that he will not get over this. I watched, read and prayed for Jude during her fight with her battle with wounds. I almost don't want to think about what can happen. He is so brave as many of you are. If I could I would get all of you together and wave a magic wand to get you well and be happy, that would be the best dream I've ever had. I know this sounds child like but I am not handling this very well. My husband is in the beginning of Alzheimer and is not able to give me support. I am handicapped and try to make it seem effortless in my daily life. WOW, I have not talked like this to anyone. I guess I needed to vent. I also know I will get answers that are thought out and with concern. I thank everyone of you for giving me advice and hope. All of you have a good day, Rebecca
