Re: [TMIC] Feet
Yeah - LIFE with TM is never the same from one day to another let alone hour or minute. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice jan...@centurytel.net To: CANDIS KALLEY cakal...@embarqmail.com, TMIC-LIST@eskimo.com Sent: Tuesday, September 29, 2009 11:47:29 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet I drive my husband nuts when he asks me what is hurting or feeling weak and I tell him. Then 20 minutes later, I nearly fall because something else is a problem. He can't keep up with the different feelings/pain I have in any given hour! Ain't life great! Janice/Missouri - Original Message - From: CANDIS KALLEY To: TMIC-LIST@eskimo.com Sent: Tuesday, September 29, 2009 10:15 PM Subject: Re: [TMIC] Feet My R foot turns in - my bad leg/foot. When I sleep on my back, getting out of bed the next morning my R leg draws up to my chest and it takes both my hands to push it down. If I sleep on my side, the next morning my R toes turn under and will do so several times aday if I don't wear my shoes. Both of my feet always feel cold to the touch and they always feel as though they are in a bucket of ice - the colder my legs/feet feel the more I sweat from the shoulders up! Somedays I feel so confused - hot/cold or is it cold/hot? Guess it depends on which end is up! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: celr...@aol.com To: rp...@neillsupply.com, TMIC-LIST@eskimo.com Sent: Tuesday, September 29, 2009 10:37:48 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet WHEN I AM TIRIED I WALK WITH MY FEET OUT LIKE A DUCK. EVER SINCE THE PARALYSIS THE TOES MY LEFT FOOT TRY TO OVERLAP THE OTHER AND I HAVE A CALLUS ON TOP OF MY BIG TOE. WEIRD. JANE-SPLENDORA TX
Re: [TMIC] Feet
Janice, You are so funny! My feet have landed me in awkward positions! Both of my feet turn in ... as a child I looked like a pony when I ran. lol Love Catherine Life is short, Break the rules sometimes, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile From: Janice jan...@centurytel.net To: Catherine camoa...@yahoo.com; Todd Tarno toddtm2...@sbcglobal.net; Transverse Mylitis Group tmic-list@eskimo.com Sent: Tue, September 29, 2009 7:59:34 PM Subject: Re: [TMIC] Feet Do both of yours turn in or just one. My left in fine, my right sure wants to go right (outwards). We need to be able to control our feet or no telling what direction we will end up!! Janice, Missouri - Original Message - From: Catherine To: Todd Tarno ; Transverse Mylitis Group Sent: Tuesday, September 29, 2009 5:22 PM Subject: Re: [TMIC] Feet Hey Janice, mine turn in as well. Love Catherine Life is short, Break the rules sometimes, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, September 29, 2009 3:22:07 PM Subject: Re: [TMIC] Feet Hey Janice, Both of my feet turn inward. My walk is more scissors walk. Todd in CC, TX --- On Mon, 9/28/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: [TMIC] Feet To: tmic-l...@eskimo.net Date: Monday, September 28, 2009, 9:47 PM Hello All, I was wondering if any of you had one or both feet that wants to turn out.My right foot leans to the right instead of walking straight.When I straighten it, it feels like I am walking pigeon-toed.Do any of you have something like that? Janice, Missouri
RE: [TMIC] Feet
Debi -I have noticed that my toes on my left foot (this is the strong side) are curling up. It involved my big toe and the toe right next to it. As a result, they rub in my shoe so I put a soft pad on them. I thought it might be arthritis in those toes, but maybe it is a result of TM. At times, those toes ache especially at night. So far they don't cramp up and I can't uncurl them. I noticed the joint in the toes seems larger than the others that is why I thought of arthritis. Patti Wisconsin From: Debi [mailto:brad...@gmail.com] Sent: Tuesday, September 29, 2009 1:22 PM To: tmic-l...@eskimo.net Subject: [TMIC] Feet My doctor told me I have club foot on my right foot...and I am having a new thing happen...my toes will curl under and give me a cramp in the bottom of my feet...and I actually have to un curl my toes and hold them up and far as I can for the cramp to stop...it happens several times a day and it wakes me up at night.does anyone else have this? Debi Wall South Lake Tahoe Ca Hello All, I was wondering if any of you had one or both feet that wants to turn out. My right foot leans to the right instead Of walking straight.When I straighten it, it feels like I am walking pigeon-toed.Do any of you have something Like that? Janice, Missouri
RE: [TMIC] New Medications
Hey Priscilla: Thank you for the reply. I will now bring you up to date. When i first started the Cymbalta I was pretty nautious for about a weekthis has since subsided...I have now been on the full dose of Cymbalta which is 60 mg and so far the results for me have been outstanding! I am taking 300 mg of Lyrica which I have reduced from 450 mg..anyway it appears that this new combination of drugs Lyrica Cymbalta has had a major effect in reducing the banding in both legs. In fact this is the best my legs have felt in more than 11 years! The only side effect I am seeing from the Cymbalta is a slight loss of appetite and a much more mellow mood. At this point I could not be more pleased. Rob in New Jersey PS: I also rejoined the gym by my house and I am swimming at least 3 times a week! From: Priscilla Keene [mailto:pkeen...@yahoo.com] Sent: Tuesday, September 29, 2009 6:37 PM To: Robert Pall Subject: Re: [TMIC] New Medications Hi Rob, The nausea and lethargy will eventually subside. I have been on Lyrica and Cymbalta for quite a while (don't remember) and it works for me. Just give it a little time. Good luck... Have a wonderful day! Priscilla From: Robert Pall rp...@neillsupply.com To: pjv1...@chartermi.net Cc: tmic-l...@eskimo.net Sent: Tuesday, September 22, 2009 2:54:42 PM Subject: RE: [TMIC] New Medications Hey Patti: Thought I would give you an update. I am now taking 300 mg of Lyrica (150 MG TWICE A DAY) and I have been on Cymbalta (30mg) for the past weekit has certainly helped on the banding but it does make me nautious and somewhat lethargic...and throw in constipation as well. I am supposed to go to 60 mg of Cymbalta starting next week. Dr Kerr said he expects the nausa to subside within a few weeks...I hope so. It does seem to be making me somewhat mellow...can't wait until I go to 60mg...I will probably fall asleep at workand I also take 20mg of diazapan each daywelcome to the wonderful world of TM! All the best! Rob in New jersey -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, September 05, 2009 8:05 AM To: Robert Pall; tmic-list@eskimo.com Subject: Re: [TMIC] New Medications I take both Lyrica and Cymbalta, however, I also take Baclofen. I take 100mg Lyrica x3, 10mg Baclofen x3, and 60mg Cymbalta in the morning, 30mg Cymbalta in the afternoon. I tried an increase of 120mg Cymbalta in the morning and got brain zaps (Google the term - it's not fun) so I dropped back to 60mg. My Neuro was surprised that I couldn't tolerate 120mg. Duh, it took talking with another doctor to realize I should have split the dosage. That dr came up with the increase to 90mg daily by splitting the dose and it worked with no additional side effects. TM is tolerable on these dosages. The side effects are constipation and ringing in my ears. I take all three pills together in the morning then split the rest through out the day and evening. Banding is minimal, pain is tolerable, amd my brain functions. Life is good! Patti - Michigan Robert Pall rp...@neillsupply.com wrote: Readers of my postings will remember that I saw Dr Kerr in July and we decided to wean myself off of 2 of my medications. The first one I went off of was 4-Aminopyridine (a Potassium channel blocker) and the second med is Lyrica. Anyway I did not notice any change in my banding going off of the 4-AP however once I reduced the Lyrica from 450 mg per day (3 pills) to 150 mg per day (1 pill) the banding in both legs became much worse. Per Dr. Kerr I went back to 300 mg of Lyrica but the banding is still much worse. The new approach is to go back to my original meds and original dosagesbut before Dr Kerr has me go back on the 4-AP he wants me to try adding Cymbalta to the Lyrica and see if that will reduce the banding. Question...do any of you take both Lyrica and Cymbalta and if so with what kind of results. If you only take Cymbalta has it helped and if so in what waylastly what dosage do you take and are there negative side effects. Rob in New Jersey
[TMIC] Feet to Hands problems/solutions?
OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
RE: [TMIC] Feet
Yeah your toes do sound like arthritis but tell your doctor about it and they can give you something for the pain. Altho my big toe on my right side and the next toe is stuck in the up position too. So I must have arthritis going on there too. Debi South Lake Tahoe Ca Debi I have noticed that my toes on my left foot (this is the strong side) are curling up. It involved my big toe and the toe right next to it. As a result, they rub in my shoe so I put a soft pad on them. I thought it might be arthritis in those toes, but maybe it is a result of TM. At times, those toes ache especially at night. So far they dont cramp up and I cant uncurl them. I noticed the joint in the toes seems larger than the others that is why I thought of arthritis. Patti Wisconsin From: Debi [mailto:brad...@gmail.com] Sent: Tuesday, September 29, 2009 1:22 PM To: tmic-l...@eskimo.net Subject: [TMIC] Feet My doctor told me I have club foot on my right foot...and I am having a new thing happen...my toes will curl under and give me a cramp in the bottom of my feet...and I actually have to un curl my toes and hold them up and far as I can for the cramp to stop...it happens several times a day and it wakes me up at night.does anyone else have this? Debi Wall South Lake Tahoe Ca Hello All, I was wondering if any of you had one or both feet that wants to turn out. My right foot leans to the right instead Of walking straight.When I straighten it, it feels like I am walking pigeon-toed.Do any of you have something Like that? Janice, Missouri
[TMIC] Feet to Hands problems/solutions?
Yes I had this same thing happen to me my right hand went into a clinch and I couldn't get it to open so I went to the emergency room...and a doctor there told me I was a scitzo! And wouldn't give me rehab so now I have ulnar nerve damage...and I have been known to throw a can of Pepsi across the room From a spasm.. I haven't had one in a while now and I can grasp things and release ok now...I cant hold on to anything with weight my right hand will drop it, but I can open a door with the round nobs now..and being I am right handed I had to change the way I wrote I write just with my thumb and first and middle fingers I also type just with the three fingers on my right and normal on the left. Debi South Lake Tahoe Ca OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Feet to Hands problems/solutions?
Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. I will go out in public with you anytime. We can do fried chicken, ribs, corn on the cob or even a nice juicy steak. Get out when you can, Todd in CC, TX --- On Wed, 9/30/09, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Feet to Hands problems/solutions? To: TMIC-LIST TMIC-LIST@eskimo.com Date: Wednesday, September 30, 2009, 11:10 AM OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Feet to Hands problems/solutions?
Todd you crack me up Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. I will go out in public with you anytime. We can do fried chicken, ribs, corn on the cob or even a nice juicy steak. Get out when you can, Todd in CC, TX --- On Wed, 9/30/09, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Feet to Hands problems/solutions? To: TMIC-LIST TMIC-LIST@eskimo.com Date: Wednesday, September 30, 2009, 11:10 AM OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Feet to Hands problems/solutions?
I am so sorry you are having problems with hands too.So far, mine is just arthritis and right now, they are doing pretty good.I probably just jinxed myself!!By the way, how far up did your TM go that it might be affecting your hands?Don't tell me T/L - just tell me the part of the body.Mine went up to my shoulder blades. Janice, Missouri - Original Message - From: CANDIS KALLEY cakal...@embarqmail.com To: TMIC-LIST TMIC-LIST@eskimo.com Sent: Wednesday, September 30, 2009 11:10 AM Subject: [TMIC] Feet to Hands problems/solutions? OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Feet to Hands problems/solutions?
Debi, you really wanted to be able to use the computer!Good for you, although I know it can't be easy. That doctor should be shot! Janice, Missouri - Original Message - From: Debi To: tmic-list Sent: Wednesday, September 30, 2009 3:09 PM Subject: [TMIC] Feet to Hands problems/solutions? Yes I had this same thing happen to me my right hand went into a clinch and I couldn't get it to open so I went to the emergency room...and a doctor there told me I was a scitzo! And wouldn't give me rehab so now I have ulnar nerve damage...and I have been known to throw a can of Pepsi across the room. From a spasm.. I haven't had one in a while now and I can grasp things and release ok now...I cant hold on to anything with weight my right hand will drop it, but I can open a door with the round nobs now..and being I am right handed I had to change the way I wrote I write just with my thumb and first and middle fingers I also type just with the three fingers on my right and normal on the left. Debi South Lake Tahoe Ca OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Feet to Hands problems/solutions?
Todd, well said Janice, Missouri - Original Message - From: Todd Tarno To: TMIC-LIST ; CANDIS KALLEY Sent: Wednesday, September 30, 2009 4:19 PM Subject: Re: [TMIC] Feet to Hands problems/solutions? Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. I will go out in public with you anytime. We can do fried chicken, ribs, corn on the cob or even a nice juicy steak. Get out when you can, Todd in CC, TX --- On Wed, 9/30/09, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Feet to Hands problems/solutions? To: TMIC-LIST TMIC-LIST@eskimo.com Date: Wednesday, September 30, 2009, 11:10 AM OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Feet
Mine are just like yours! Have a wonderful day! Priscilla From: Janice jan...@centurytel.net To: Catherine camoa...@yahoo.com; Todd Tarno toddtm2...@sbcglobal.net; Transverse Mylitis Group tmic-list@eskimo.com Sent: Tue, September 29, 2009 7:59:34 PM Subject: Re: [TMIC] Feet Do both of yours turn in or just one. My left in fine, my right sure wants to go right (outwards). We need to be able to control our feet or no telling what direction we will end up!! Janice, Missouri - Original Message - From: Catherine To: Todd Tarno ; Transverse Mylitis Group Sent: Tuesday, September 29, 2009 5:22 PM Subject: Re: [TMIC] Feet Hey Janice, mine turn in as well. Love Catherine From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, September 29, 2009 3:22:07 PM Subject: Re: [TMIC] Feet Hey Janice, Both of my feet turn inward. My walk is more scissors walk. Todd in CC, TX --- On Mon, 9/28/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: [TMIC] Feet To: tmic-l...@eskimo.net Date: Monday, September 28, 2009, 9:47 PM Hello All, I was wondering if any of you had one or both feet that wants to turn out. My right foot leans to the right instead of walking straight. When I straighten it, it feels like I am walking pigeon-toed. Do any of you have something like that? Janice, Missouri Life is short, Break the rules sometimes, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile
Re: [TMIC] Feet to Hands problems/solutions?
My whole world is on the computer, I always make sure I can fix my computer when needed LOL. I wanted to do something to him and the hospital after I got my diagnoses that proved I wasn't scitzo. But that would have just made me go down to his level and I am better then that! You know what I mean? Debi Debi, you really wanted to be able to use the computer!Good for you, although I know it can't be easy. That Doctor should be shot! Janice, Missouri - Original Message - From: Debi To: tmic-list Sent: Wednesday, September 30, 2009 3:09 PM Subject: [TMIC] Feet to Hands problems/solutions? Yes I had this same thing happen to me my right hand went into a clinch and I couldn't get it to open so I went to the emergency room...and a doctor there told me I was a scitzo! And wouldn't give me rehab so now I have ulnar nerve damage...and I have been known to throw a can of Pepsi across the room From a spasm.. I haven't had one in a while now and I can grasp things and release ok now...I cant hold on to anything with weight my right hand will drop it, but I can open a door with the round nobs now..and being I am right handed I had to change the way I wrote I write just with my thumb and first and middle fingers I also type just with the three fingers on my right and normal on the left. Debi South Lake Tahoe Ca OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Fwd: [TMIC] Feet to Hands problems/solutions?
- Forwarded Message - From: CANDIS KALLEY cakal...@embarqmail.com To: Todd Tarno toddtm2...@sbcglobal.net Sent: Wednesday, September 30, 2009 10:20:13 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet to Hands problems/solutions? Well any time you're in SW FL, Ft. Myers/Naples, let me know. Can you cut-up my steak for me? That's the one I've had the most trouble with. The only other problem I've had when me hands cramp up, is I've thrown or dropped my silverware. And, Ive screamed several times - sure as heck scares my dog and parrot! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC-LIST TMIC-LIST@eskimo.com, CANDIS KALLEY cakal...@embarqmail.com Sent: Wednesday, September 30, 2009 5:19:44 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet to Hands problems/solutions? Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. I will go out in public with you anytime. We can do fried chicken, ribs, corn on the cob or even a nice juicy steak. Get out when you can, Todd in CC, TX --- On Wed, 9/30/09, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Feet to Hands problems/solutions? To: TMIC-LIST TMIC-LIST@eskimo.com Date: Wednesday, September 30, 2009, 11:10 AM OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Feet
I am assuming that the feet were not a problem before TM. Janice, Missouri - Original Message - From: Priscilla Keene To: Janice ; tmic-list@eskimo.com Sent: Wednesday, September 30, 2009 8:07 PM Subject: Re: [TMIC] Feet Mine are just like yours! Have a wonderful day! Priscilla -- From: Janice jan...@centurytel.net To: Catherine camoa...@yahoo.com; Todd Tarno toddtm2...@sbcglobal.net; Transverse Mylitis Group tmic-list@eskimo.com Sent: Tue, September 29, 2009 7:59:34 PM Subject: Re: [TMIC] Feet Do both of yours turn in or just one. My left in fine, my right sure wants to go right (outwards). We need to be able to control our feet or no telling what direction we will end up!! Janice, Missouri - Original Message - From: Catherine To: Todd Tarno ; Transverse Mylitis Group Sent: Tuesday, September 29, 2009 5:22 PM Subject: Re: [TMIC] Feet Hey Janice, mine turn in as well. Love Catherine Life is short, Break the rules sometimes, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, September 29, 2009 3:22:07 PM Subject: Re: [TMIC] Feet Hey Janice, Both of my feet turn inward. My walk is more scissors walk. Todd in CC, TX --- On Mon, 9/28/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: [TMIC] Feet To: tmic-l...@eskimo.net Date: Monday, September 28, 2009, 9:47 PM Hello All, I was wondering if any of you had one or both feet that wants to turn out.My right foot leans to the right instead of walking straight.When I straighten it, it feels like I am walking pigeon-toed.Do any of you have something like that? Janice, Missouri
Re: [TMIC] Feet to Hands problems/solutions?
Yes, but what a temptation!! Janice - Original Message - From: Debi To: tmic-list Sent: Wednesday, September 30, 2009 8:52 PM Subject: Re: [TMIC] Feet to Hands problems/solutions? My whole world is on the computer, I always make sure I can fix my computer when needed LOL. I wanted to do something to him and the hospital after I got my diagnoses that proved I wasn't scitzo. But that would have just made me go down to his level and I am better then that! You know what I mean? Debi Debi, you really wanted to be able to use the computer!Good for you, although I know it can't be easy. That Doctor should be shot! Janice, Missouri - Original Message - From: Debi To: tmic-list Sent: Wednesday, September 30, 2009 3:09 PM Subject: [TMIC] Feet to Hands problems/solutions? Yes I had this same thing happen to me my right hand went into a clinch and I couldn't get it to open so I went to the emergency room...and a doctor there told me I was a scitzo! And wouldn't give me rehab so now I have ulnar nerve damage...and I have been known to throw a can of Pepsi across the room. From a spasm.. I haven't had one in a while now and I can grasp things and release ok now...I cant hold on to anything with weight my right hand will drop it, but I can open a door with the round nobs now..and being I am right handed I had to change the way I wrote I write just with my thumb and first and middle fingers I also type just with the three fingers on my right and normal on the left. Debi South Lake Tahoe Ca OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Feet to Hands problems/solutions?
Candy, I am going to be at the Marriott on Marco Island the last weekend in Oct. (31-3). Celebrating my 50th Anniv with friends. Come on by and I'll cut your steak. Never been to Naples but will probably do some sightseeing there too. What is a good restaurant there? I live for most of the year in Delray Beach on the east coast. Do you ever get there? If you do, let me know. Take care, Rosalie In a message dated 9/30/2009 10:23:00 P.M. Eastern Daylight Time, cakal...@embarqmail.com writes: - Forwarded Message - From: CANDIS KALLEY cakal...@embarqmail.com To: Todd Tarno toddtm2...@sbcglobal.net Sent: Wednesday, September 30, 2009 10:20:13 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet to Hands problems/solutions? Well any time you're in SW FL, Ft. Myers/Naples, let me know. Can you cut-up my steak for me? That's the one I've had the most trouble with. The only other problem I've had when me hands cramp up, is I've thrown or dropped my silverware. And, Ive screamed several times - sure as heck scares my dog and parrot! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC-LIST TMIC-LIST@eskimo.com, CANDIS KALLEY cakal...@embarqmail.com Sent: Wednesday, September 30, 2009 5:19:44 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet to Hands problems/solutions? Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. I will go out in public with you anytime. We can do fried chicken, ribs, corn on the cob or even a nice juicy steak. Get out when you can, Todd in CC, TX --- On Wed, 9/30/09, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Feet to Hands problems/solutions? To: TMIC-LIST TMIC-LIST@eskimo.com Date: Wednesday, September 30, 2009, 11:10 AM OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] October Birthdays
October is a busy birthday month! Hope you all have a special day on your day! Please send any additions or corrections to tmic-l...@eskimo.com. There are a few here I am not sure of. 10-3 Lauren Graham (grahamsn...@aol.com) 10/4 Neil McNeil (n...@hotmail.com) 10-7 Naomi (ladyno...@aol.com) 10/08/ Rudy Aceves (race...@vengrp.com ) 10/8 Tim Holder (thol...@fbclr.org) 10/9 Assunta Rene (robert...@hotmail.it) 10/11 Lori B. (lbieh...@earthlink.net) 10-11 Kate (nicwi...@cox.net) 10-12 Kim (lkree...@cameron.net) (returned) 10-12 Diana Gray (graymyfat...@aol.com) 10/14 Marieke Dufresne! (marieke...@hotmail.com) 10/14 Lanora (noni...@hotmail.com) 10/16 Sandy Parker (parkersw...@aol.com) 10/16 Linda Cherpeski (cherp...@msn.com) 10/21 Renee A. in CT (littlem...@aol.com) 10/21 Cody Kidwell (c...@austin.rr.com) 10/21 Candy K (cakal...@embarqmail.com) 10/23 Keith (leboo...@cfl.rr.com ) 10-25 Debby Jones (ladybutl...@comcast.net) 10-26 Jim Lubin jlu...@eskimo.com 10-26 Bernie Pelow (bpe...@yahoo.com) 10/27 Robin (moldr3...@aol.com) 10/27 Krissy (ladykri...@comcast.net) 10-28 Netta Ganor (net...@isdn.net.il) 10/31 Jennifer Spence (jenniferspe...@cogeco.ca)
